Skip to main content
Top
Gepubliceerd in: Quality of Life Research 12/2019

04-09-2019 | Commentary

Viewing assessments of patient-reported heath status as conversations: Implications for developing and evaluating patient-reported outcome measures

Auteur: Kevin P. Weinfurt

Gepubliceerd in: Quality of Life Research | Uitgave 12/2019

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail

Abstract

Patient-reported outcome measures (PROMs) are frequently used in research to reflect the patient’s perspective. In this commentary, I argue that further improvements can be made in how we develop and evaluate PROMs by viewing assessment as a type of conversation. Philosophically speaking, a PROM assessment can be conceptualized as a formal conversation that serves as a model of an informal, longer, and more nuanced conversation with a research participant about their health experience. Psychologically speaking, evidence from research in survey methodology and discursive psychology shows that respondents to self-report measures behave in ways consistent with the idea that they are doing their best to participate in a conversation, albeit an unusual one. Several suggestions are offered for creating a better conversational context through study materials and PROM instructions, and by improving the yield of cognitive interviews. It is hoped that this commentary can stimulate further discussions in our field regarding how to integrate insights about the conversational nature of assessment from survey research and discursive psychology to better reflect the patient’s voice in research.
Literatuur
2.
go back to reference Markus, K. A., & Borsboom, D. (2013). Frontiers of test validity theory. New York: Routledge. Markus, K. A., & Borsboom, D. (2013). Frontiers of test validity theory. New York: Routledge.
3.
go back to reference Harré, R. (2002). Cognitive Science. Thousand Oaks, CA: Sage. Harré, R. (2002). Cognitive Science. Thousand Oaks, CA: Sage.
5.
go back to reference Gobo, G., & Mauceri, S. (2014). Constructing survey data. Thousand Oaks: Sage. Gobo, G., & Mauceri, S. (2014). Constructing survey data. Thousand Oaks: Sage.
7.
go back to reference Schwarz, N. (2010). Measurement as cooperative communication: What research participants learn from questionnaires. In G. Walford, E. Tucker, & M. Viswanathan (Eds.), The SAGE handbook of measurement (pp. 43–61). Thousand Oaks, CA: Sage.CrossRef Schwarz, N. (2010). Measurement as cooperative communication: What research participants learn from questionnaires. In G. Walford, E. Tucker, & M. Viswanathan (Eds.), The SAGE handbook of measurement (pp. 43–61). Thousand Oaks, CA: Sage.CrossRef
8.
go back to reference Harré, R., & Stearns, P. (Eds.). (1995). Discursive psychology in practice. Thousand Oaks: Sage. Harré, R., & Stearns, P. (Eds.). (1995). Discursive psychology in practice. Thousand Oaks: Sage.
9.
go back to reference Harré, R., & Gillett, G. (1994). The discursive mind. Thousand Oaks, CA: Sage. Harré, R., & Gillett, G. (1994). The discursive mind. Thousand Oaks, CA: Sage.
10.
go back to reference Grice, P. (1989). Logic and conversation. In H. P. Grice (Ed.), Studies in the way of words (pp. 22–57). Cambridge, MA: Harvard University Press. Grice, P. (1989). Logic and conversation. In H. P. Grice (Ed.), Studies in the way of words (pp. 22–57). Cambridge, MA: Harvard University Press.
12.
go back to reference Schwarz, N., Knäuper, B., Hippler, H. J., Noelle-Neumann, E., & Clark, F. (1991). Rating scales: Numeric values may change the meaning of scale labels. Public Opinion Quarterly,55, 570–582.CrossRef Schwarz, N., Knäuper, B., Hippler, H. J., Noelle-Neumann, E., & Clark, F. (1991). Rating scales: Numeric values may change the meaning of scale labels. Public Opinion Quarterly,55, 570–582.CrossRef
13.
go back to reference Schwarz, N. (1999). Frequency reports of physical symptoms and health behaviors: How the questionnaire determines the results. In D. C. Park, R. W. Morrell, & K. Shifren (Eds.), Processing of medical information in aging patients (pp. 93–108). New York: Academic Press. Schwarz, N. (1999). Frequency reports of physical symptoms and health behaviors: How the questionnaire determines the results. In D. C. Park, R. W. Morrell, & K. Shifren (Eds.), Processing of medical information in aging patients (pp. 93–108). New York: Academic Press.
15.
go back to reference Austin, J. L. (1962). How to do things with words (2nd ed.). Cambridge, MA: Harvard University Press. Austin, J. L. (1962). How to do things with words (2nd ed.). Cambridge, MA: Harvard University Press.
16.
go back to reference Cella, D., Hahn, E. A., & Dineen, K. (2002). Meaningful change in cancer-specific quality of life scores: Differences between improvement and worsening. Quality of Life Research,11(3), 207–221.CrossRef Cella, D., Hahn, E. A., & Dineen, K. (2002). Meaningful change in cancer-specific quality of life scores: Differences between improvement and worsening. Quality of Life Research,11(3), 207–221.CrossRef
Metagegevens
Titel
Viewing assessments of patient-reported heath status as conversations: Implications for developing and evaluating patient-reported outcome measures
Auteur
Kevin P. Weinfurt
Publicatiedatum
04-09-2019
Uitgeverij
Springer International Publishing
Gepubliceerd in
Quality of Life Research / Uitgave 12/2019
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-019-02285-8

Andere artikelen Uitgave 12/2019

Quality of Life Research 12/2019 Naar de uitgave