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Quality of Life Research

Gepubliceerd in:

22-10-2018

What matters most to sepsis survivors: a qualitative analysis to identify specific health-related quality of life domains

Auteurs: Christian König, Bastian Matt, Andreas Kortgen, Alison E. Turnbull, Christiane S. Hartog

Gepubliceerd in: Quality of Life Research | Uitgave 3/2019

Abstract

Purpose

It is unknown how sepsis survivors conceptualize health-related quality of life (HRQL). We aimed to identify important HRQL domains for this population.

Methods

A literature search was performed to inform an interview guide. Open-ended interviews were held with 15 purposefully sampled sepsis survivors. Interview transcripts were analyzed by interpretative phenomenological analysis to allow themes to develop organically. Resulting codes were reviewed by an independent expert. The preliminary list of domains was rated in a two-round Delphi consensus procedure with therapists and survivors.

Results

Eleven domains emerged as critically important: Psychological impairment, Fatigue, Physical impairment, Coping with daily life, Return to normal living, Ability to walk, Cognitive impairment, Self-perception, Control over one’s life, Family support, and Delivery of health care. Sepsis survivors want a “normal life,” to walk again, and to regain control without cognitive impairment. Family support is essential to overcome sepsis aftermaths.

Conclusions

Survivors described many HRQL domains which are not captured by the QoL instruments that have traditionally been used to study ICU survivorship (i.e., SF-36 and EQ-5D). Future studies of QoL in ICU survivors should consider using both a traditional instrument so that results are comparable to previous research, as well as a more holistic QoL measurement instrument like the WHOQOL-BREF.

vorige artikel Interpretation and use of patient-reported outcome measures through a philosophical lens

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Titel: What matters most to sepsis survivors: a qualitative analysis to identify specific health-related quality of life domains
Auteurs: Christian König
Bastian Matt
Andreas Kortgen
Alison E. Turnbull
Christiane S. Hartog
Publicatiedatum: 22-10-2018
Uitgeverij: Springer International Publishing
Gepubliceerd in: Quality of Life Research / Uitgave 3/2019
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI: https://doi.org/10.1007/s11136-018-2028-8

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Abstract

Purpose

Methods

Results

Conclusions

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