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Gepubliceerd in:

24-02-2017

The Cancer Loneliness Scale and Cancer-related Negative Social Expectations Scale: development and validation

Auteurs: Rebecca N. Adams, Catherine E. Mosher, Kevin L. Rand, Adam T. Hirsh, Patrick O. Monahan, Rafat Abonour, Kurt Kroenke

Gepubliceerd in: Quality of Life Research | Uitgave 7/2017

Abstract

Purpose

Loneliness is a known risk factor for poor mental and physical health outcomes and quality of life in the general population, and preliminary research suggests that loneliness is linked to poorer health outcomes in cancer patients as well. Various aspects of the cancer experience contribute to patients feeling alone and misunderstood. Furthermore, loneliness theory suggests that negative social expectations, which may specifically relate to the cancer experience, precipitate and sustain loneliness. Cancer-specific tools are needed to assess key constructs of this theory. In the current study, we developed and tested measures of (1) loneliness attributed to cancer (i.e., cancer-related loneliness) and (2) negative social expectations related to cancer.

Methods

First, we developed the items for the measures based on theory, prior research, and expert feedback. Next, we assessed the measures’ psychometric properties (i.e., internal consistency and construct validity) in a diverse sample of cancer patients.

Results

The final products included a 7-item unidimensional Cancer Loneliness Scale and a 5-item unidimensional Cancer-related Negative Social Expectations Scale. Evidence of excellent reliability and validity was found for both measures.

Conclusions

The resulting measures have both clinical and research utility.

vorige artikel Psychometric evaluation of the pediatric and parent-proxy Patient-Reported Outcomes Measurement Information System and the Neurology and Traumatic Brain Injury Quality of Life measurement item banks in pediatric traumatic brain injury

volgende artikel Validation of the PROMIS® measures of self-efficacy for managing chronic conditions

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Titel: The Cancer Loneliness Scale and Cancer-related Negative Social Expectations Scale: development and validation
Auteurs: Rebecca N. Adams
Catherine E. Mosher
Kevin L. Rand
Adam T. Hirsh
Patrick O. Monahan
Rafat Abonour
Kurt Kroenke
Publicatiedatum: 24-02-2017
Uitgeverij: Springer International Publishing
Gepubliceerd in: Quality of Life Research / Uitgave 7/2017
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI: https://doi.org/10.1007/s11136-017-1518-4

Bohn Stafleu van Loghum

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Abstract

Purpose

Methods

Results

Conclusions

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