Skip to main content
Top
Gepubliceerd in: Quality of Life Research 4/2014

01-05-2014

Development of the PROMIS® pediatric global health (PGH-7) measure

Auteurs: Christopher B. Forrest, Katherine B. Bevans, Ramya Pratiwadi, JeanHee Moon, Rachel E. Teneralli, Jo M. Minton, Carole A. Tucker

Gepubliceerd in: Quality of Life Research | Uitgave 4/2014

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail

Abstract

Purpose

To develop a practical, efficient, and reliable pediatric global health (PGH) measure that would be useful for clinical, quality improvement, and research applications.

Methods

Using the Patient Reported Outcome Measurement Information System (PROMIS) mixed-methods approach for item bank development, we identified an item pool that was well understood by children as young as age 8 years and tested its psychometric properties in an internet panel sample of 3,635 children 8–17 years old and 1,807 parents of children 5–17 years old.

Results

The final version of the PGH measure included 7 items assessing general, physical, mental, and social health. Four of these items had the same wording as the PROMIS adult global health measure. Internal consistency was 0.88 for the child-report form and 0.84 for the parent form; both had excellent test–retest reliability. The measures showed factor invariance across age categories. There was no differential item functioning by age, gender, race, or ethnicity. Because the measure includes the general health rating question, it is possible to estimate the PGH scale using this widely used single item.

Conclusions

The PROMIS PGH-7 measure is a brief and reliable 7-item measure of a child’s global health.
Bijlagen
Alleen toegankelijk voor geautoriseerde gebruikers
Literatuur
2.
go back to reference Bevans, K. B., Riley, A. W., Moon, J., & Forrest, C. B. (2010). Conceptual and methodological advances in child-reported outcomes measurement. Expert Review of Pharmacoeconomics Outcomes Research, 10(4), 385–396.PubMedCentralPubMedCrossRef Bevans, K. B., Riley, A. W., Moon, J., & Forrest, C. B. (2010). Conceptual and methodological advances in child-reported outcomes measurement. Expert Review of Pharmacoeconomics Outcomes Research, 10(4), 385–396.PubMedCentralPubMedCrossRef
3.
go back to reference Rebok, G., Riley, A., Forrest, C., Starfield, B., Green, B., Robertson, J., et al. (2001). Elementary school-aged children’s reports of their health: A cognitive interviewing study. Quality of Life Research, 10(1), 59–70.PubMedCrossRef Rebok, G., Riley, A., Forrest, C., Starfield, B., Green, B., Robertson, J., et al. (2001). Elementary school-aged children’s reports of their health: A cognitive interviewing study. Quality of Life Research, 10(1), 59–70.PubMedCrossRef
4.
go back to reference Irwin, D. E., Varni, J. W., Yeatts, K., & DeWalt, D. A. (2009). Cognitive interviewing methodology in the development of a pediatric item bank: A patient reported outcomes measurement information system (PROMIS) study. Health and Quality of Life Outcomes, 7, 3.PubMedCentralPubMedCrossRef Irwin, D. E., Varni, J. W., Yeatts, K., & DeWalt, D. A. (2009). Cognitive interviewing methodology in the development of a pediatric item bank: A patient reported outcomes measurement information system (PROMIS) study. Health and Quality of Life Outcomes, 7, 3.PubMedCentralPubMedCrossRef
5.
go back to reference Rajmil, L., Herdman, M., Fernandez de Sanmamed, M. J., Detmar, S., Bruil, J., Ravens-Sieberer, U., et al. (2004). Generic health-related quality of life instruments in children and adolescents: A qualitative analysis of content. Journal of Adolescent Health, 34(1), 37–45.PubMedCrossRef Rajmil, L., Herdman, M., Fernandez de Sanmamed, M. J., Detmar, S., Bruil, J., Ravens-Sieberer, U., et al. (2004). Generic health-related quality of life instruments in children and adolescents: A qualitative analysis of content. Journal of Adolescent Health, 34(1), 37–45.PubMedCrossRef
6.
go back to reference Clarke, S.-A., & Eiser, C. (2004). The measurement of health-related quality of life (QOL) in paediatric clinical trials: A systematic review. Health and Quality of Life Outcomes, 2, 66.PubMedCentralPubMedCrossRef Clarke, S.-A., & Eiser, C. (2004). The measurement of health-related quality of life (QOL) in paediatric clinical trials: A systematic review. Health and Quality of Life Outcomes, 2, 66.PubMedCentralPubMedCrossRef
7.
go back to reference DeSalvo, K. B., Bloser, N., Reynolds, K., He, J., & Muntner, P. (2006). Mortality prediction with a single general self-rated health question. A meta-analysis. Journal of General Internal Medicine, 21(3), 267–275.PubMedCentralPubMedCrossRef DeSalvo, K. B., Bloser, N., Reynolds, K., He, J., & Muntner, P. (2006). Mortality prediction with a single general self-rated health question. A meta-analysis. Journal of General Internal Medicine, 21(3), 267–275.PubMedCentralPubMedCrossRef
8.
go back to reference DeSalvo, K. B., Fan, V. S., McDonell, M. B., & Fihn, S. D. (2005). Predicting mortality and healthcare utilization with a single question. Health Services Research, 40(4), 1234–1246.PubMedCentralPubMedCrossRef DeSalvo, K. B., Fan, V. S., McDonell, M. B., & Fihn, S. D. (2005). Predicting mortality and healthcare utilization with a single question. Health Services Research, 40(4), 1234–1246.PubMedCentralPubMedCrossRef
9.
go back to reference Simon, A. E., Chan, K. S., & Forrest, C. B. (2008). Assessment of children’s health-related quality of life in the United States with a multidimensional index. Pediatrics, 121(1), e118–e126.PubMedCrossRef Simon, A. E., Chan, K. S., & Forrest, C. B. (2008). Assessment of children’s health-related quality of life in the United States with a multidimensional index. Pediatrics, 121(1), e118–e126.PubMedCrossRef
10.
go back to reference Starfield, B., Riley, A. W., Green, B. F., Ensminger, M. E., Ryan, S. A., Kelleher, K., et al. (1995). The adolescent child health and illness profile. A population-based measure of health. Medical Care, 33(5), 553–566.PubMedCrossRef Starfield, B., Riley, A. W., Green, B. F., Ensminger, M. E., Ryan, S. A., Kelleher, K., et al. (1995). The adolescent child health and illness profile. A population-based measure of health. Medical Care, 33(5), 553–566.PubMedCrossRef
11.
go back to reference Ravens-Sieberer, U., Erhart, M., Rajmil, L., Herdman, M., Auquier, P., Bruil, J., et al. (2010). Reliability, construct and criterion validity of the KIDSCREEN-10 score: A short measure for children and adolescents’ well-being and health-related quality of life. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 19(10), 1487–1500.CrossRef Ravens-Sieberer, U., Erhart, M., Rajmil, L., Herdman, M., Auquier, P., Bruil, J., et al. (2010). Reliability, construct and criterion validity of the KIDSCREEN-10 score: A short measure for children and adolescents’ well-being and health-related quality of life. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 19(10), 1487–1500.CrossRef
12.
go back to reference Varni, J. W., Seid, M., & Kurtin, P. S. (2001). PedsQL 4.0: Reliability and validity of the Pediatric Quality of Life Inventory version 4.0 generic core scales in healthy and patient populations. Medical Care, 39(8), 800–812.PubMedCrossRef Varni, J. W., Seid, M., & Kurtin, P. S. (2001). PedsQL 4.0: Reliability and validity of the Pediatric Quality of Life Inventory version 4.0 generic core scales in healthy and patient populations. Medical Care, 39(8), 800–812.PubMedCrossRef
13.
go back to reference Forrest, C. B., Bevans, K. B., Tucker, C., Riley, A. W., Ravens-Sieberer, U., Gardner, W., et al. (2012). Commentary: The patient-reported outcome measurement information system (PROMISR) for children and youth: Application to pediatric psychology. Journal of Pediatric Psychology, 37(6), 614–621.PubMedCentralPubMedCrossRef Forrest, C. B., Bevans, K. B., Tucker, C., Riley, A. W., Ravens-Sieberer, U., Gardner, W., et al. (2012). Commentary: The patient-reported outcome measurement information system (PROMISR) for children and youth: Application to pediatric psychology. Journal of Pediatric Psychology, 37(6), 614–621.PubMedCentralPubMedCrossRef
14.
go back to reference Hays, R. D., Bjorner, J. B., Revicki, D. A., Spritzer, K. L., & Cella, D. (2009). Development of physical and mental health summary scores from the patient-reported outcomes measurement information system (PROMIS) global items. Quality of Life Research, 18(7), 873–880.PubMedCentralPubMedCrossRef Hays, R. D., Bjorner, J. B., Revicki, D. A., Spritzer, K. L., & Cella, D. (2009). Development of physical and mental health summary scores from the patient-reported outcomes measurement information system (PROMIS) global items. Quality of Life Research, 18(7), 873–880.PubMedCentralPubMedCrossRef
15.
go back to reference Revicki, D. A., Kawata, A. K., Harnam, N., Chen, W. H., Hays, R. D., & Cella, D. (2009). Predicting EuroQol (EQ-5D) scores from the patient-reported outcomes measurement information system (PROMIS) global items and domain item banks in a United States sample. Quality of Life Research, 18(6), 783–791.PubMedCentralPubMedCrossRef Revicki, D. A., Kawata, A. K., Harnam, N., Chen, W. H., Hays, R. D., & Cella, D. (2009). Predicting EuroQol (EQ-5D) scores from the patient-reported outcomes measurement information system (PROMIS) global items and domain item banks in a United States sample. Quality of Life Research, 18(6), 783–791.PubMedCentralPubMedCrossRef
16.
go back to reference Riley, W. T., Rothrock, N., Bruce, B., Christodolou, C., Cook, K., Hahn, E. A., et al. (2010). Patient-reported outcomes measurement information system (PROMIS) domain names and definitions revisions: Further evaluation of content validity in IRT-derived item banks. Quality of Life Research, 19(9), 1311–1321.PubMedCentralPubMedCrossRef Riley, W. T., Rothrock, N., Bruce, B., Christodolou, C., Cook, K., Hahn, E. A., et al. (2010). Patient-reported outcomes measurement information system (PROMIS) domain names and definitions revisions: Further evaluation of content validity in IRT-derived item banks. Quality of Life Research, 19(9), 1311–1321.PubMedCentralPubMedCrossRef
17.
go back to reference Lasch, K. E., Marquis, P., Vigneux, M., Abetz, L., Arnould, B., Bayliss, M., et al. (2010). PRO development: Rigorous qualitative research as the crucial foundation. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 19(8), 1087–1096.CrossRef Lasch, K. E., Marquis, P., Vigneux, M., Abetz, L., Arnould, B., Bayliss, M., et al. (2010). PRO development: Rigorous qualitative research as the crucial foundation. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 19(8), 1087–1096.CrossRef
18.
go back to reference Fortune-Greeley, A. K., Flynn, K. E., Jeffery, D. D., Williams, M. S., Keefe, F. J., Reeve, B. B., et al. (2009). Using cognitive interviews to evaluate items for measuring sexual functioning across cancer populations: Improvements and remaining challenges. Quality of life research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 18(8), 1085–1093.CrossRef Fortune-Greeley, A. K., Flynn, K. E., Jeffery, D. D., Williams, M. S., Keefe, F. J., Reeve, B. B., et al. (2009). Using cognitive interviews to evaluate items for measuring sexual functioning across cancer populations: Improvements and remaining challenges. Quality of life research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 18(8), 1085–1093.CrossRef
19.
go back to reference Bevans, K. B., Riley, A. W., & Forrest, C. B. (2012). Development of the healthy pathways parent-report scales. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 38(2), 173–191. Bevans, K. B., Riley, A. W., & Forrest, C. B. (2012). Development of the healthy pathways parent-report scales. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 38(2), 173–191.
20.
go back to reference Bevans, K. B., Riley, A. W., & Forrest, C. B. (2010). Development of the healthy pathways child-report scales. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 19(8), 1195–1214.CrossRef Bevans, K. B., Riley, A. W., & Forrest, C. B. (2010). Development of the healthy pathways child-report scales. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 19(8), 1195–1214.CrossRef
22.
go back to reference Choi, S. W., Gibbons, L. E., & Crane, P. K. (2011). Lordif: An R package for detecting differential item functioning using iterative hybrid ordinal logistic regression/item response theory and Monte Carlo simulations. Journal of Statistical Software, 39(8), 1–30.PubMedCentralPubMed Choi, S. W., Gibbons, L. E., & Crane, P. K. (2011). Lordif: An R package for detecting differential item functioning using iterative hybrid ordinal logistic regression/item response theory and Monte Carlo simulations. Journal of Statistical Software, 39(8), 1–30.PubMedCentralPubMed
23.
go back to reference Crane, P. K., Gibbons, L. E., Narasimhalu, K., Lai, J. S., & Cella, D. (2007). Rapid detection of differential item functioning in assessment of health-related quality of life: The functional assessment of cancer therapy. Quality of Life Research, 16, 101–114.PubMedCrossRef Crane, P. K., Gibbons, L. E., Narasimhalu, K., Lai, J. S., & Cella, D. (2007). Rapid detection of differential item functioning in assessment of health-related quality of life: The functional assessment of cancer therapy. Quality of Life Research, 16, 101–114.PubMedCrossRef
24.
go back to reference Bevans, K. B., Pratawadi, R., Tucker, C., Riley, A. W., Forrest, C. B. (Submitted manuscript). A psychometric analysis of internet panel survey data collected from children and youth. Bevans, K. B., Pratawadi, R., Tucker, C., Riley, A. W., Forrest, C. B. (Submitted manuscript). A psychometric analysis of internet panel survey data collected from children and youth.
Metagegevens
Titel
Development of the PROMIS® pediatric global health (PGH-7) measure
Auteurs
Christopher B. Forrest
Katherine B. Bevans
Ramya Pratiwadi
JeanHee Moon
Rachel E. Teneralli
Jo M. Minton
Carole A. Tucker
Publicatiedatum
01-05-2014
Uitgeverij
Springer International Publishing
Gepubliceerd in
Quality of Life Research / Uitgave 4/2014
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-013-0581-8

Andere artikelen Uitgave 4/2014

Quality of Life Research 4/2014 Naar de uitgave