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Quality of Life Research
Gepubliceerd in: Quality of Life Research 3/2014

01-04-2014 | Pediatric QOL Special Section

Considering quality of life for children with cancer: a systematic review of patient-reported outcome measures and the development of a conceptual model

Auteurs: Samantha J. Anthony, Enid Selkirk, Lillian Sung, Robert J. Klaassen, David Dix, Katrin Scheinemann, Anne F. Klassen

Gepubliceerd in: Quality of Life Research | Uitgave 3/2014

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Abstract

Objectives

An appraisal of pediatric cancer-specific quality-of-life (QOL) instruments revealed a lack of clarity about what constitutes QOL in this population. This study addresses this concern by identifying the concepts that underpin the construct of QOL as determined by a content analysis of all patient-reported outcome (PRO) instruments used in childhood cancer research.

Methods

A systematic review was performed of key databases (i.e., MEDLINE, CINAHL, PsychINFO) to identify studies of QOL in children with cancer. A content analysis process was used to code and categorize all items from generic and cancer-specified PRO instruments. Our objective was to provide clarification regarding the conceptual underpinnings of these instruments, as well as to help inform the development of theory and contribute to building a conceptual framework of QOL for children with cancer.

Results

A total of 6,013 English language articles were screened, identifying 148 studies. Ten generic and ten cancer-specific PRO instruments provided 957 items. Content analysis led to the identification of four major domains of QOL (physical, psychological, social, and general health), with 11 subdomains covering 98 different concepts. While all instruments reflected items relating to the broader domains of QOL, there was substantial heterogeneity in terms of the content and variability in the distribution of items.

Conclusions

This systematic review and the proposed model represent a useful starting point in the critical appraisal of the conceptual underpinnings of PRO instruments used in pediatric oncology and contribute to the need to place such tools under a critical, yet reflective and analytical lens.
vorige artikel A review of patient-reported outcomes for children and adolescents with obesity
volgende artikel The European KIDSCREEN approach to measure quality of life and well-being in children: development, current application, and future advances
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Metagegevens
Titel
Considering quality of life for children with cancer: a systematic review of patient-reported outcome measures and the development of a conceptual model
Auteurs
Samantha J. Anthony
Enid Selkirk
Lillian Sung
Robert J. Klaassen
David Dix
Katrin Scheinemann
Anne F. Klassen
Publicatiedatum
01-04-2014
Uitgeverij
Springer International Publishing
Gepubliceerd in
Quality of Life Research / Uitgave 3/2014
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-013-0482-x

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