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Quality of Life Research
Gepubliceerd in: Quality of Life Research 3/2012

01-04-2012

Measuring outcomes in Parkinson’s disease: a multi-perspective concept mapping study

Auteurs: Catharina Sjödahl Hammarlund, Maria H. Nilsson, Peter Hagell

Gepubliceerd in: Quality of Life Research | Uitgave 3/2012

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Abstract

Purpose

To identify and develop a conceptual map of prioritized areas and to determine their relative importance for outcome measurement in clinical Parkinson’s disease (PD) trials, from the perspectives of health care professionals and people with PD.

Method

We used concept mapping, a qualitative/quantitative method consisting of three steps: item generation through focus groups (n = 27; 12 people with PD, 12 health care professionals, 3 researchers), item sorting and rating (n = 38; 19 people with PD, 19 health care professionals), and data analysis (multidimensional scaling, cluster analysis).

Results

Ninety-nine items and eight clusters were generated. Clusters representing Participation; Mobility and motor functioning; Cognitive and executive functioning; and Emotions were the most homogenous. Statements within clusters representing Energy and abilities; Autonomic dysfunctions; Sensory, speech and swallowing problems; and Neuropsychiatric symptoms also related to statements outside their respective clusters. Clusters rated most important were Participation and Mobility and motor functioning, and the highest rated items were quality of life, walking ability, and sleeping problems.

Conclusion

By the use of concept mapping, a multi-perspective conceptual map of prioritized aspects for the outcome measurement in PD was defined. These findings provide an initial conceptual basis toward improved outcome measurement priorities in clinical PD trials.
vorige artikel Applying mixed methods to pretest the Pressure Ulcer Quality of Life (PU-QOL) instrument
volgende artikel Using mixed methods research to explore the effect of an adaptation exercise on general population valuations of health states
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Metagegevens
Titel
Measuring outcomes in Parkinson’s disease: a multi-perspective concept mapping study
Auteurs
Catharina Sjödahl Hammarlund
Maria H. Nilsson
Peter Hagell
Publicatiedatum
01-04-2012
Uitgeverij
Springer Netherlands
Gepubliceerd in
Quality of Life Research / Uitgave 3/2012
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-011-9995-3

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