| Ireland | To apply the SEIQoL to a patient population and to provide information regarding the impact of irritable bowel syndrome (IBS) and peptic ulcer disease (PUD) on an individual measure of QoL | N = 20 IBS patients N = 20 PUD patients Mean age 35 years (range 17–65) Forty-two consecutive patients at a gastro-intestinal clinic with either IBS or PUD were asked to participate | SEIQoL Face-to-face interview administered at the hospital T1 | Nomination of the five areas of life considered most important by each subject in assessing his/her overall QoL | No information on the analysis conducted to derive the presented QoL domains No illustration of findings with individual patients’ profiles | Nominated cues (not ranked in any order): Leisure Family Work Relationships Happiness Independence Financial affairs Living conditions Health Educational aspects of life Religious aspects of life |
| Ireland | To describe the first clinical application of the SEIQoL-DW, assessing the QoL of a cohort of patients with HIV/AIDS managed in general practice | N = 52 patients known to be HIV positive Mean/median age: not specified Cohort of patients with HIV/AIDS who were being managed in general practice, primarily recruited through two Dublin inner city general practices and receiving some form of ambulatory care. | SEIQoL-DW Place where the face-to-face interview was administered: not specified T1 | What are the five most important aspects of your life at the moment? | No information on the analysis conducted to derive the presented QoL domains Illustration of findings with 4 individual patient profiles | Domains nominated as important to overall QoL (in descending frequency of patients nominating the cue): Health Family Money, finances Drugs, access to physeptone Children Spouse or partner Friends, social life Psychological factors: emotional well-being; sense of control; self acceptance; self esteem; feeling wanted Independence, choice Issues relating to death: time left; issues to be faced; having things sorted out before I die; that a cure is found for the virus/AIDS Living conditions Spirituality Sports, leisure Work Having somewhere to live, a home Sex, lover, sexuality Being able to get to work Miscellaneous |
| UK | To assess the ability of clinicians and partners to make proxy judgments on behalf of patients with prostate cancer relating to selection of life priorities and QoL | N = 25 newly diagnosed patients with adenocarcinoma and partners N = 18 newly diagnosed patients with adenocarcinoma and physicians (same patients) Mean/median age: not specified 47 consecutive newly diagnosed patients with histologically proven adenocarcinoma were recruited. All stages and proposed treatments were included. | SEIQoL-DW Face-to-face interview administered at the hospital Participants additionally administered the Functional Assessment of Cancer-Therapy-Prostate (FACT-P) questionnaire and an overall QoL score using a VAS T1 | Nomination of the five most important areas of life that were central to the patient’s QoL | No information on the analysis conducted to derive the presented QoL domains No illustration of findings with individual patients’ profiles | Cues nominated more than once (not ranked in any order): Pets Urinary symptoms Pain Diet Housing Religion Children Community Holidays Walking Home Daily living Finance Work Friends Gardening Health Leisure Wife Family Sexual ability |
| Sweden | To prospectively measure QoL in patients with malignant blood disorders following stem cell transplantation (SCT) | 22 patients with malignant blood disorders Median age: 50 years (range 31–66) During a 2-year period patients listed for autologous SCT at two university hospitals in Stockholm were asked to participate in the study. | SEIQoL-DW Face-to-face interview administered at the hospital Participants additionally administered a disease-related version of the SEIQoL-DW and the European Organization for Research and Treatment of Cancer Quality of Life Questionnaire (EORTC QLQ-C30) T1–T2 | If you think about your life as a whole, what are the most important things in your life at present—both good and bad- that are crucial for your QoL? | One of the authors carried out the analysis of the transcripts. The list of categorized statements was read by one of the co-authors. The two researchers achieved mutual consensus. The list of domains previously obtained in long-term survivors of Hodgkin lymphoma was used as an initial framework for categorization [ 65] Illustration of findings with individual statements | Domains nominated as important in life at T1 (in descending frequency of patients nominating the cue): Family Health in general Relations to other people Health concerns/problems: fatigue/loss of energy; physical limitations; psychosocial impact Work Leisure Housing Relation to partner Finances Emotional issues View of life and oneself Hospitalization/dependence Miscellaneous |
| UK | To compare the PDQ-39 with the SEIQoL-DW in patients with idiopathic Parkinson’s disease (IPD) | N = 123 IPD patients Median age 75,4 years (range 51–89) Eligible patients were included if they were under the care of the Parkinson’s disease service in North Tyneside on 31 December 2003 | SEIQoL-DW Face-to-face interview administered at the patient’s home Participants additionally administered the Parkinson’s Disease Questionnaire (PDQ-39), the Mini Mental State examination, Beck Depression Inventory, a qualitative pain assessment and the Palliative care assessment tool T1 | Nomination of five life areas or cues that are important to the patient | No information on the analysis conducted to derive the presented QoL domains No illustration of findings with individual patients’ profiles | The authors selected the 21 most mentioned domains out of a total of 87 domains mentioned (in descending frequency of patients nominating the cue): Family Health Leisure activities/ hobbies Marriage Friends Independence Walking/mobility/getting around Getting out Home/house/living conditions Social life Money/finances Happiness/contentment Faith/church/religion/spiritual life Holidays Future Work Spousal welfare/health Music Loss of spouse Neighbors Driving |
| The Netherlands | To examine how patients choose and define the five areas they consider important for their quality of life and to describe the problems in the elicitation of cues | N = 31 patients diagnosed with small-cell lung cancer (SCLC) Mean/median age: not specified. (range 39–82) Consecutive sample of SCLC patients, beginning their first-line chemotherapy, were recruited from five outpatient clinics for chest diseases in The Netherlands. | SEIQoL-DW Face-to-face interviews. All but two interviews were administered at the patient’s home Participants additionally administered the European Organization for Research and Treatment of Cancer Quality of Life Questionnaire (EORTC QLQ-C30) and it’s lung cancer module (QLQ-CL13) T1 | Nomination of five areas of life that the individual considers to be important for his/her overall QoL | Information on the analysis of the interviews to investigate the administration process. Illustration of findings with individual interview extracts | Domains considered to be important for patient’s overall QoL (in descending frequency of patients nominating the cue): Family (my husband; my wife; my children, becoming a granny, grandchildren; contact with my grandchildren; support from my family; to sort things out with my wife; ability to enjoy my family and other relations) Health (fatigue; health; to be cured; feeling physically and mentally well; being able to do what I want to do; becoming healthier; feeling good; not to get too ill; being mobile; getting back to my former daily routine) Social life (social contacts; social life; contacts in my living environment; friends; relations; support from my colleagues; club life; family not directly related) Leisure (leisure activities; sports; football; playing cards and fishing; sewing; my garden; working as a volunteer at the cemetery) Enjoying life (having a holiday; to enjoy life; time all to yourself; freedom and happiness; going out everywhere) Living conditions (living conditions; home, garden and pets; housing conditions; a quiet and peaceful well-organized life; norms and values in society) Autonomy (being independent; my car, my freedom; being physically and mentally independent; doing something on my own; continuing my former independent life) Work (own shop; moving firm; business; work; working in alternative medicine; my work as baby-sit) Finance (keeping control of my finances; my wife’s budget after my death; not being restricted in budget to enjoy life) Attitudes toward life (positive thinking; putting everything into perspective) |
| Australia | To investigate the relationship between response shift and adjustment | N = 56 patients with metastatic cancer Mean age 64 years (range 46–82) Consecutive patients who had been diagnosed with metastatic cancer within the last 3 months and being treated with palliative intent were recruited from three Medical Oncology Departments in Sydney, Australia | SEIQoL-DW Face-to-face interview administered at the patient’s home Participants additionally administered the Functional assessment for Cancer Therapy (FACT-G) T1–T3 | Nomination of five most important domains that a subject indentifies as contributing to his/her QoL | No information on the analysis conducted to derive the presented QoL domains No illustration of findings with individual patients’ profiles | Domains mentioned as the most important contributor to QoL at T1 (in descending frequency of patients nominating the cue): Health Family Independence Social Leisure Psychological Work Spiritual |
Willener and Hantikainen [ 21] | Switzerland | To examine the individual QoL of men following radical prostatectomy for prostate cancer | N = 11 men with prostate cancer who had undergone a radical prostatectomy 3–4 months earlier Mean age 66 years (range 58–70) Purposive sample | SEIQoL-DW Face-to-face interview administered at the hospital T1 | Nomination of five areas of life which are most important to the patient’s overall QoL | Categorization of QoL areas by 2 researchers Illustration of findings with 3 individual patient profiles Findings illustrated with patients’ quotes | 55 QL areas are grouped into 9 categories (not ranked in any order): Only the 3 categories considered the most impact on QoL are divided in subthemes: Health (e.g. inner peace resulting from the certainty that you are no longer ill; certainty that health will remain stable; getting rid of the uncertainty about the cancer) Activity Family (e.g. good understanding with children; (grand)children; wife) Relationship with a partner (harmony with wife; relationship with wife; not living alone) Autonomy Independence Hobby Financial security Sexuality |
| Canada | To investigate individualized QoL of patients participating in a Phase 1 trial of the novel therapeutic reovirus (Reolysin) | N = 16 patients with incurable metastatic cancer Median age 53 years (range 32–76) Sample: not specified. Patients were recruited according to the protocol of the Phase 1 trial. | SEIQoL-DW Face-to-face interview administered at the hospital Participants additionally administered the European Organization for Research and Treatment of Cancer Quality of Life Questionnaire (EORTC QLQ-C30), the Brief Symptom Inventory (BSI), the Beck Depression Inventory (BDI), the Spiritual Health Inventory (SHI) and a semi-structured expectations interview T1 | Nomination of five most important domains of QoL | Only areas identified by all 16 patients are presented in a table. No information on the analysis conducted to derive the presented QoL domains Illustration of findings with 2 individual patient profiles | Domains nominated (in descending frequency of patients nominating the cue): Family (children, spouse, grandchildren, parent, family tree) Activities (exercise, gardening, sewing, recreation, travel) Friends Health (mobility, physical fitness, energy) Faith (religion, belief, hope) Work Finances Pet Computer Pain control Art Fun Positivity Nature |
| UK | To assess the effect of pacemaker mode on individualized QoL by comparing an individualized evaluation with a generic health index and disease specific symptom scale | N = 73 patients randomized to VVI(R) or atrial-based pacing modes Mean age 76 years (range 55–88) All patients recruited to either of two multi-centre pacemaker trials between January 1997 and May 1999 were invited to participate | SEIQoL Face-to-face interview administered at the hospital Participants additionally administered the 36-item Medical Outcomes Study Short-form General Health Survey (SF36) and a modified version of the Karolinska Cardiovascular Symptomatology Questionnaire (KCSQ) T1–T4 | Nomination of five domains of life which are considered to be most important | No information on the analysis conducted to derive the presented QoL domains No illustration of findings with individual patients’ profiles | Domains nominated at T1; grouped into broader categories (in descending percentage of the total number of cues nominated at T1): Leisure Family Health Friends Marriage Finances Home Miscellaneous Independence Religion Holidays Work Mental health Contentment |
| UK | To report QoL of patients shortly after the diagnosis of malignant cord compression (MCC), its relation to physical ability and to emotional well-being | N = 180 patients diagnosed with MCC Mean/median age: not specified Patients diagnosed with MCC at any of three oncology centers in Scotland between 1 January 1998 and 14 April 1999 were recruited to the Scottish Spinal Cord Compression Audit. Following diagnosis, patients were asked whether they would be willing to participate in the interview component of the study. | SEIQoL-DW Place where the face-to-face interview was administered: not specified Participants additionally administered the Hospital Anxiety and Depression Scale (HADS) T1–T5 | Nomination of five areas of life which contribute most to their QoL | No information on the analysis conducted to derive the presented QoL domains Illustration of findings with 1 individual patient profile | Domains nominated at T1 (in descending frequency of patients nominating the cue): Family life Leisure activity Health Marriage Social life Friends Home/living environment Mobility/physical ability Independence Finances |
| UK | To examine whether the current disease-based clerking could be supplemented in older people with QoL information | N = 60 subjects subjects ≥ 65 years acutely admitted to a Medicine for the Elderly service Mean age 81 years (range 65–95) Study population was drawn from a cohort of patients admitted non-electively to an assessment ward in a Department of Medicine for the elderly | SEIQoL-DW Face-to-face interview administered at the Department of Medicine for the elderly Participants additionally administered the 36-item Medical Outcomes Study Short-form General Health Survey (SF36), the Mini Mental State Examination (MMSE) and the Controlled Oral Word Association (COWA) T1 | Nomination of five life areas that subjects consider important in determining their QoL | No information on the analysis conducted to derive the presented QoL domains No illustration of findings with individual patients’ profiles | Domains nominated as important to the patients’ QoL (in descending frequency of patients nominating the cue): Family Health Hobbies/leisure activities Home Money Relationship with spouse Friends Work Religion Mobility Social activities Neighbors Pets, sex, love, carer |
| UK | To evaluate the clinical usefulness of the SEIQoL-DW to quantify the impact on patients living with a diagnosis of lymphoma or leukemia | N = 51 patients with lymphoma and leukemia Mean age 54 years (range not specified) A sample of 57 in-patients and out-patients in the hematology department at the Royal Devon and Exeter Hospital were approached during a 4 month period in 1998. | SEIQoL-DW Face-to-face interview was administered at the hospital Patients additionally administered the Hospital Anxiety and Depression Scale (HADS) T1 | Nomination of five areas of life which are most important to the subject’s overall QoL | No information on the analysis conducted to derive the presented QoL domains Illustration of findings with 2 individual patient profiles | Important life areas nominated (in descending frequency of patients nominating the cue): Family Friends Health Leisure Home Marriage Employment Financial security Mobility/independence Awareness/positivity Sport/fitness Religion Social life Gardening Music Pets Food |
Bromberg and Forshew [ 29] | USA | To compare the SEIQoL-DW, ALSFRS and SIP/ALS-19 instruments in patients with ALS | N = 25 ALS patients Mean age 56 years (range 43–76) 25 consecutive patients with definite or probable ALS | SEIQoL-DW Face-to-face interview was administered at the hospital Patients additionally administered the ALS Functioning Rating Scale (ALS-FRS) and the ALS-related subset of the Sickness Impact Profile (SIP/ALS19) T1 | What are the five most important aspects of your life at this moment? | No information on the analysis conducted to derive the presented QoL domains No illustration of findings with individual patients’ profiles | Domains nominated as most important to QoL (in descending order of number of occurrences): Activities (recreation) Finances Dependence Family and children Friends Disease progression Work Religion |
| Ireland | To assess the internal consistency reliability and validity of the SEIQoL, to provide a brief description of QoL in ALS, and to examine the relationships between QoL, illness severity and psychological distress in this patient group | N = 26 ALS patients Median age 63 years (range 34–86) All patients were recruited through the Irish Register for ALS/motor neurone disease. The first eligible 26 patients consenting to take part were included. | SEIQoL (N = 21) SEIQoL-DW (N = 5) Face-to-face interview was administered at the patient’s home (majority), in a hospital setting (3) and in a nursing home (1) Participants additionally administered the ALS Functioning rating Scale (ALSFRS) and the Hospital Anxiety and Depression Scale (HADS) T1 | Nomination of five areas of life being of greatest importance to the subject’s overall QoL | No information on the analysis conducted to derive the presented QoL domains Illustration of findings with 1 individual patient profile | Domains nominated in SEIQoL and SEIQoL-DW (in descending percentage of total number of cues): ALS-related Family Hobbies Social life Occupation Independence Finances Spiritual life Miscellaneous |
| UK | To compare the sensitivity of four measures when used in a groups of cardiac patients undergoing the same intervention | N = 16 patients after myocardial infarction or coronary artery bypass graft (CABG) Mean age 61 years (range 43–73) Consecutive patients referred to the Royal Devon and Exeter Health Care Trust for cardiac rehabilitation between January and April 1998 were asked to participate | SEIQoL Face-to-face interviews were administered at the Royal Devon and Exeter Health Care Trust Participants additionally administered the 36-item Medical Outcomes Study Short-form General Health Survey (SF36), the Quality of life index-cardiac version (QLI), and the Quality of life after myocardial infarction questionnaire (QLMI) T1–T2 | What are the five most important aspects of your life at the moment? | Cues nominated by only 1 patient are labeled miscellaneous No information on the analysis conducted to derive the presented QoL domains Illustration of findings with 1 individual patient profile | Domains nominated as most important to overall QoL at T1 (in descending frequency of patients nominating the cue): Family Health Leisure/hobbies Marriage Work Exercise Home life/environment Social life Independence Food Finances Miscellaneous Holidays/travel Pets Work related activity since retirement |
| France | To determine whether patients change their selected items from one SEIQoL evaluation to the next. | N = 30 patients scheduled to undergo total hip arthroplasty Mean age 57 years (range 22–74) The study included 47 eligible patients scheduled to undergo total hip arthroplasty in 1995 at the orthopedics department of the R. Salengo Teaching Hospital, Lille, France. Thirty patients completed the SEIQoL at T1 and T2. | SEIQoL Face-to-face interview administered at the hospital T1–T2 | Nomination of five items that have the greatest impact on the subject’s QoL at the time of the interview | No information on the analysis conducted to derive the presented QoL domains No illustration of findings with individual patients’ profiles | Domains nominated at T1 (in descending frequency of patients nominating the cue): Health Family Self-sufficiency Work Leisure activities Social life Financial resources |
| Ireland | To determine whether the SEIQoL and SEIQoL-DW are valid, reliable and acceptable measures of QoL | N = 80 patients with incurable cancer Median age 62 years (range 34–87) Forty patients were recruited from a weekly outpatient program held at the Irish National radiotherapy Center at St Luke’s Hospital in Dublin, and 40 were recruited as inpatients admitted to Our Lady’s Hospice in Dublin. | SEIQoL (N = 62) SEIQoL-DW (N = 80) Face-to-face with inpatients administered at the hospital Place where the face-to-face interview with the patients from the outpatient program was administered: not specified T1 | Nomination of five areas of life the subject considers to be central to his or her QoL | No information on the analysis conducted to derive the presented QoL domains Illustration of findings with 2 individual patient profiles | The ten most frequently nominated domains in SEIQoL and SEIQoL-DW (in descending frequency of patients nominating the cue): Family Health Social life/activities Spiritual life/religion Friendships/relationships Contentment/happiness Work Finances Marriage Mobility Pain free |
| Scotland | To examine the QoL of cancer patients participating in phase I clinical trials | N = 15 cancer patients participating in phase 1 clinical trials Mean/median age: not specified Fifteen patients were identified as eligible for this study during the 4-week period of data collection in March/April 1997 | SEIQoL-DW Face-to-face interview administered at the hospital T1 | Nomination of five areas which are most important to the overall QoL of the subject | No information on the analysis conducted to derive the presented QoL domains Illustration of findings with 4 individual patient profiles | Domains nominated as most important to overall QoL (in descending frequency of patients nominating the cue): Family Health Leisure activities Social life Relationships Independence Finances Work Living conditions Physical activity Spiritual Religion Marriage Children Helping community Symptom control |
| Ireland | To determine the sensitivity of SEIQoL to the impact of a surgical procedure by comparison with measures that do not include the patients’ perspective | N = 20 patients undergoing unilateral total hip-replacement surgery Mean age 65 years (range 43–78) Consecutive patients from the greater Dublin area aged 40 and over attending Cappagh Hospital, Dublin with unilateral osteoarthritis of the hip were invited to participate | SEIQoL Face-to-face interview administered at the hospital Patients additionally administered the McMaster health index questionnaire, the arthritis impact measurement scales and the life experiences survey T1–T2 | Nomination of five areas of life the subject judges to be most important to his or her overall QoL | No information on the analysis conducted to derive the presented QoL domains Illustration of findings with 1 individual patient profile | Domains nominated as essential to overall QoL at T1 (in descending frequency of patients nominating the cue): Social/leisure activities Family Personal health Relationships Religion Work Finances Family health Independence Living conditions Miscellaneous Intellectual function Happiness |
| The Netherlands | To determine to what extent patients admitted to palliative care units (PCU) in The Netherlands maintained good levels of individual quality of life | N = 20 terminal patients admitted to a PCU N = 16 cancer patients (variety in cancer site) N = 3 cardiac patients N = 1 renal condition Mean age 73 years (range 52–93) Selection of a sample of 355 patients who were participating in a study in 10 PCUs in nursing homes in The Netherlands between January 2001 and July 2002. The condition of only 20 patients allowed interviewing. | SEIQoL-DW Face-to-face interviews administered at the PCU Participants additionally administered the Edmonton Symptom Assessment Scale (ESAS). T1–T3 | Nomination of five areas of life that are considered central to the subject’s QoL | No information on the analysis conducted to derive the presented QoL domains No illustration of findings with individual patients’ profiles | Results of 17 complete sets of SEIQoL data (T1). Domains mentioned as important life areas at T1 (in descending frequency of patients nominating the cue): Maintaining good contacts with family Maintaining good contacts with others Health Hobbies, pastime Religion Quality of care and attention Being physically active Functioning (physical, senses, mental) Good living conditions and housing Finances Good care for family Mobility Reversal of illness Being treated honestly and sincerely Dealing with the loss of relative or spouse Being independent Enjoying pleasant memories Dealing with issues at work |
| Germany | To evaluate the relationship between personal values and individual quality if life (iQoL) in palliative care patients | N = 64 patients treated for advanced cancer or ALS Median age 63 years (range 18–81) Seventy-five patients treated for advanced cancer or ALS at the Interdisciplinary Center for Palliative Medicine and the Outpatient Clinic of the Dept. of Neurology, Ludwig-Maximilians-University, Munich, Germany were asked to participate | SEIQoL-DW Place where the face-to-face interview was administered: not specified Patients additionally administered the Portrait Values Questionnaire (PVQ) T1 | Nomination of the life areas which are most important to the subjects’ individual QoL | No information on the analysis conducted to derive the presented QoL domains No illustration of findings with individual patients’ profiles | Domains mentioned as important life areas (in descending frequency of patients nominating the cue): Family Health Leisure time Friends Sports/motion Household Work Finances Partnership Nature, garden Freedom, relaxation, harmony Reading Religion Spirituality Communication Other |
| Germany | To compare the SEIQoL-DW with the EORTC QLQ-C30 in tumor patients before Peripheral Blood Stem Cell Transplantation (PBSCT) | N = 79 patients suffering from various hematological malignancies undergoing high-dose therapy with PBSCT and participating in a psycho-oncologic psychotherapy program Mean/median age: not specified Sample: not specified | SEIQoL-DW Place where the face-to-face interview was administered: not specified Patients additionally administered the European Organization for Research and Treatment of Cancer Quality of Life Questionnaire (EORTC QLQ-C30) T1 | Nomination of five areas of life important to the subject’s overall QoL | Cues nominated are grouped to 15 ‘aggregated cues’ [ 30] No information on the analysis conducted to derive the presented QoL domains Illustration of findings with 1 individual patient profile | The 9 most frequently nominated cue groups (aggregated cues) (in descending frequency of patients nominating the cue): Family Hobbies, pastimes Health Profession, occupation Social life, friends Miscellaneous Marriage, partnership Finances Spiritual life, religion |
| UK | To evaluate the 6-month health outcomes of patients diagnosed with coronary heart disease (CHD) who were discharged from the chest pain service | N = 57 patients diagnosed with CHD Mean age female patients 64 years Mean age male patients 61 years Overall range 40–79 Consecutive sample of patients admitted over a 4-month period with chest pain and a confirmed diagnosis of CHD | SEIQoL-DW Face-to-face interview was administered at the hospital Patients additionally administered the Seattle Angina Questionnaire, the Cardiovascular Limitations Profile (CLASP), and the Hospital Anxiety and Depression Scale (HADS) T1 | Nomination of five areas comprising the ‘quality’ parts of the subject’s life | No information on the analysis conducted to derive the presented QoL domains No illustration of findings with individual patients’ profiles | Domains mentioned as important to patients’ quality of life (in descending frequency of patients nominating the cue): Family Health Partner Sport Garden Work Friends Money House Car Church Grandchildren Holidays Television Craft Music Reading Pets Happiness Going out Animals Bingo Independence Sex Hope Food Reminiscence Do it yourself Caravan Photography |
| Sweden | To evaluate the quality of life of cystic fibrosis patients with indications for home intravenous antibiotic treatment (HIVAT) | N = 18 cystic fibrosis patients with indications for HIVAT Mean age 29 years (range 21–41) Patients treated at the University Hospital in Lund were recruited to participate in a clinical randomized cross-over study. Additionally they were invited to participate in this part of the study directed toward QoL | SEIQoL-DW Questionnaire T1 | Nomination of the 5 most important aspects of life | No information on the analysis conducted to derive the presented QoL domains Illustration of findings with 1 individual patient profile | Domains nominated as important life areas (in descending frequency of patients nominating the cue): Family Personal health Leisure activities Work Finances Friends Partner, spouse Sports Education Independence Home, dwelling Miscellaneous |
| Canada | To evaluate the feasibility of SEIQoL with an oncology sample and to compare the SEIQoL with a standards measure, the EORTC QLQ-C30 | N = 15 patients with early stage prostate cancer Mean age 65 years (range 49–78) Men with early stage prostate cancer treated with radiotherapy at a cancer treatment center in a large western Canadian city who expressed an interest in participating | SEIQoL Face-to-face interview administered at the cancer treatment center T1 | Nomination of five domains the subject believes are most important to his/her QoL at the moment | No information on the analysis conducted to derive the presented QoL domains Illustration of findings with 1 individual patient profile | Domains initially nominated as important to patients’ quality of life (in descending frequency of patients nominating the cue): Family Health Finances Leisure, hobbies, recreation Marriage Spiritual/religious life (experiential aspect; service aspect) Work Specific relationships Living conditions Social activities Friends/relationships Personal achievement Sex life Daily hassles Mental well-being |
| The Netherlands | To assess the feasibility and the validity of the adaptive conjoint analysis (ACA) to derive weights for individual QoL. Furthermore, agreement of the weighting procedures performed by the ACA and the direct weighting (DW) are assessed | N = 27 cancer patients N = 20 patients with rheumatoid arthritis Mean age 61 years (range not specified) Convenience sample of outpatients with rheumatoid arthritis or cancer who were treated at the Leiden University Medical Center. | SEIQoL-DW Face-to-face interviews administered at the hospital or at home T1 | Nomination of five areas of live considered most important by the subject to his/her overall QoL | Only domains that were mentioned by at least five patients are presented. The remaining domains are grouped together as ‘other’ No information on the analysis conducted to derive the presented QoL domains No illustration of findings with individual patients’ profiles | Domains nominated by five or more patients T1 (in descending frequency of patients nominating the cue): Other Own health Hobbies and relaxation Partner Social contact and friendship Work Family Partner and children Children Sports and holidays Transportation Health of partner Independence Feelings Activities of daily life |