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Gepubliceerd in: Quality of Life Research 10/2008

01-12-2008

Cognitive interviewing in the evaluation of fatigue items: Results from the patient-reported outcomes measurement information system (PROMIS)

Auteurs: Christopher Christodoulou, Doerte U. Junghaenel, Darren A. DeWalt, Nan Rothrock, Arthur A. Stone

Gepubliceerd in: Quality of Life Research | Uitgave 10/2008

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Abstract

Objectives

Cognitive Interviewing (CI) is a technique increasingly used to obtain respondent feedback on potential items during questionnaire development. No standard guidelines exist by which to incorporate CI feedback in deciding to retain, revise, or eliminate potential items. We used CI in developing fatigue items for the National Institutes of Health (NIH) Patient-Reported Outcomes Measurement Information System (PROMIS) Roadmap initiative. Our aims were to describe the CI process, formally evaluate the utility of decisions made on the basis of CI, and offer suggestions for future research.

Methods

Participants were 22 patients with a diverse range of chronic health conditions. During CI, each participant provided feedback on a series of items. We then reviewed the CI data and decided whether to retain, revise, or eliminate each potential item. Following this, we developed or adopted three quantitative methods to compare retained versus eliminated items.

Results

Retained items raised fewer serious concerns, were less likely to be viewed as non-applicable, and were less likely to display problems with clarity or to make incorrect assumptions about respondents.

Conclusions

CI was useful in developing the PROMIS fatigue items and the methods used to judge CI for the present item set may be useful for future investigations.
Literatuur
2.
go back to reference Bartley, S. H., & Chute, E. (1947). Fatigue and impairment in man. New York: McGraw-Hill. Bartley, S. H., & Chute, E. (1947). Fatigue and impairment in man. New York: McGraw-Hill.
3.
go back to reference Christodoulou, C. (2005). The assessment and measurement of fatigue. In J. DeLuca (Ed.), Fatigue as a window to the brain (pp. 19–35). New York: MIT Press. Christodoulou, C. (2005). The assessment and measurement of fatigue. In J. DeLuca (Ed.), Fatigue as a window to the brain (pp. 19–35). New York: MIT Press.
4.
go back to reference Yellen, S. B., Cella, D. F., Webster, K., et al. (1997). Measuring fatigue and other anemia-related symptoms with the Functional Assessment of Cancer Therapy (FACT) measurement system. Journal of Pain and Symptom Management, 13, 63–74. doi:10.1016/S0885-3924(96)00274-6.PubMedCrossRef Yellen, S. B., Cella, D. F., Webster, K., et al. (1997). Measuring fatigue and other anemia-related symptoms with the Functional Assessment of Cancer Therapy (FACT) measurement system. Journal of Pain and Symptom Management, 13, 63–74. doi:10.​1016/​S0885-3924(96)00274-6.PubMedCrossRef
5.
go back to reference Wessely, S., Hotopf, M., & Sharpe, D. (1998). Chronic fatigue and its syndromes. New York: Oxford University Press. Wessely, S., Hotopf, M., & Sharpe, D. (1998). Chronic fatigue and its syndromes. New York: Oxford University Press.
6.
go back to reference Stewart, A. L., Hays, R. D., & Ware, J. E. (1992). Health perceptions, energy/fatigue, and health distress measures. In A. L. Stewart & J. E. Ware (Eds.), Measuring functional status and well-being: The medical outcomes study approach (pp. 143–172). Durham, NC: Duke University Press. Stewart, A. L., Hays, R. D., & Ware, J. E. (1992). Health perceptions, energy/fatigue, and health distress measures. In A. L. Stewart & J. E. Ware (Eds.), Measuring functional status and well-being: The medical outcomes study approach (pp. 143–172). Durham, NC: Duke University Press.
7.
go back to reference North American Nursing Diagnosis Association. (1996). Nursing diagnoses: Definition and classification, 1997–1998. Philadelphia, PA: McGraw-Hill. North American Nursing Diagnosis Association. (1996). Nursing diagnoses: Definition and classification, 1997–1998. Philadelphia, PA: McGraw-Hill.
8.
go back to reference Glaus, A. (1998). Fatigue in patients with cancer: Analysis and assessment. Heidelberg, Germany: Springer. Glaus, A. (1998). Fatigue in patients with cancer: Analysis and assessment. Heidelberg, Germany: Springer.
10.
11.
go back to reference Willis, G. B. (2005). Cognitive interviewing: A tool for improving questionnaire design. Thousand Oaks: Sage. Willis, G. B. (2005). Cognitive interviewing: A tool for improving questionnaire design. Thousand Oaks: Sage.
12.
go back to reference Bartenfeld, T. A. (2003). Department of health and human services: Center for disease control and prevention: Proposed data collections submitted for public comment and recommendations. Federal Register, 68, 35227. Bartenfeld, T. A. (2003). Department of health and human services: Center for disease control and prevention: Proposed data collections submitted for public comment and recommendations. Federal Register, 68, 35227.
14.
go back to reference Hyde, M., Wiggins, R. D., Higgs, P., et al. (2003). A measure of quality of life in early old age: The theory, development and properties of a needs satisfaction model (CASP-19). Aging & Mental Health, 7, 186–194. doi:10.1080/1360786031000101157.CrossRef Hyde, M., Wiggins, R. D., Higgs, P., et al. (2003). A measure of quality of life in early old age: The theory, development and properties of a needs satisfaction model (CASP-19). Aging & Mental Health, 7, 186–194. doi:10.​1080/​1360786031000101​157.CrossRef
15.
go back to reference Carbone, E. T., Campbell, M. K., & Honess-Morreale, L. (2002). Use of cognitive interview techniques in the development of nutrition surveys and interactive nutrition messages for low-income populations. Journal of the American Dietetic Association, 102, 690–696. doi:10.1016/S0002-8223(02)90156-2.PubMedCrossRef Carbone, E. T., Campbell, M. K., & Honess-Morreale, L. (2002). Use of cognitive interview techniques in the development of nutrition surveys and interactive nutrition messages for low-income populations. Journal of the American Dietetic Association, 102, 690–696. doi:10.​1016/​S0002-8223(02)90156-2.PubMedCrossRef
18.
go back to reference Willis, G. B., & Lessler, J. T. (1999). Question appraisal system: QAS-99. National Cancer Institute. Willis, G. B., & Lessler, J. T. (1999). Question appraisal system: QAS-99. National Cancer Institute.
20.
go back to reference Conrad, F., & Blair, J. (1996). From impressions to data: Increasing the objectivity of cognitive interviews. In Proceedings of the Section on Survey Research Methods. Alexandria, VA: American Statistical Association, pp. 1–9. Conrad, F., & Blair, J. (1996). From impressions to data: Increasing the objectivity of cognitive interviews. In Proceedings of the Section on Survey Research Methods. Alexandria, VA: American Statistical Association, pp. 1–9.
Metagegevens
Titel
Cognitive interviewing in the evaluation of fatigue items: Results from the patient-reported outcomes measurement information system (PROMIS)
Auteurs
Christopher Christodoulou
Doerte U. Junghaenel
Darren A. DeWalt
Nan Rothrock
Arthur A. Stone
Publicatiedatum
01-12-2008
Uitgeverij
Springer Netherlands
Gepubliceerd in
Quality of Life Research / Uitgave 10/2008
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-008-9402-x

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