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Quality of Life Research

Gepubliceerd in:

01-11-2008

Reliability in the ratings of quality of life between parents and their children of school age with cerebral palsy

Auteurs: Annette Majnemer, Michael Shevell, Mary Law, Chantal Poulin, Peter Rosenbaum

Gepubliceerd in: Quality of Life Research | Uitgave 9/2008

Abstract

Background

Quality of life is recognized as an important outcome of health services. Ideally, the child’s perspectives should be sought directly to define their quality of life; however, this may be limited by age and cognitive and language abilities.

Purpose

In a sample of school-aged children with cerebral palsy (CP), we compared a parent’s perspective of their child’s quality of life with their child’s own perspective, when feasible.

Methods

Forty-eight children completed the Pediatric Quality of Life Inventory (PedsQL) measure independently (n = 33/48, 69% Gross Motor Function Classification System (GMFCS) I; n = 6/48, 12% III–V). A parent completed the proxy version and the scores were compared.

Results

Intraclass correlation (ICC) coefficients were high for physical (ICC = 0.72, confidence interval [CI]: 0.55–0.83) and moderate for psychosocial (ICC = 0.54, CI: 0.30–0.71) well-being, with the weakest agreement on school functioning and the strongest agreement for ratings of physical health. Parental ratings were more often lower, especially for social functioning, although children rated themselves lower on emotional functioning. Factors associated with a closer agreement between parent–child pairs included older age, male gender, higher social competency, functional abilities, and fewer emotional symptoms (r ² = 0.07–0.30).

Conclusion

In children with CP, parents’ ratings of their children’s quality of life are generally comparable as a group to their child’s self-report. Disparities do exist, particularly in psychosocial domains, and, therefore, the child’s own perspective should be considered whenever feasible.

vorige artikel Longitudinal factorial invariance of the PedsQL™ 4.0 Generic Core Scales Child Self-Report Version: One year prospective evidence from the California State Children’s Health Insurance Program (SCHIP)

volgende artikel Mapping the eight-item Parkinson’s Disease Questionnaire (PDQ-8) to the EQ-5D utility index

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Titel: Reliability in the ratings of quality of life between parents and their children of school age with cerebral palsy
Auteurs: Annette Majnemer
Michael Shevell
Mary Law
Chantal Poulin
Peter Rosenbaum
Publicatiedatum: 01-11-2008
Uitgeverij: Springer Netherlands
Gepubliceerd in: Quality of Life Research / Uitgave 9/2008
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI: https://doi.org/10.1007/s11136-008-9394-6

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Abstract

Background

Purpose

Methods

Results

Conclusion

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