Skip to main content
Top
Gepubliceerd in: Quality of Life Research 4/2007

01-05-2007 | Original Paper

Twelve years–experience with the Patient Generated Index (PGI) of quality of life: a graded structured review

Auteurs: Faith Martin, Laura Camfield, Karen Rodham, Petra Kliempt, Danny Ruta

Gepubliceerd in: Quality of Life Research | Uitgave 4/2007

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail

Abstract

The Patient Generated Index (PGI) is an individualised quality of life (QoL) measure that has been in use since 1994. Various adaptations have been made to suit a variety of client groups. The PGI’s psychometric properties have been studied but their review is necessary to inform instrument choice. This article provides a structured review, using grading criteria adapted from those developed to aid outcome measure selection for use with older people. These criteria grade quality of evidence and strength of findings for psychometric validity, providing a useful model for future reviews. All published articles providing data addressing validity, reliability and/or responsiveness were included in the review. Eighteen relevant articles were identified and analysed using the grading criteria. Variable results and quality of investigation were seen. Generally the measure was found to be adequately reliable for group comparisons. The PGI appeared valid but evidence for responsiveness was unclear. Those versions of the measure using fewer points in their Likert scales may have higher reliability. Cognitions involved in QoL judgements remain little understood and investigations of psychometric properties may be enhanced by examination of appraisal processes.
Bijlagen
Alleen toegankelijk voor geautoriseerde gebruikers
Literatuur
1.
go back to reference Ahmed, S. M., Mayo, N. E., Wood-Dauphinee, S., Hanley, J. A., & Cohen, S. R. (2005). Using the patient generated index to evaluate response shift post-stroke. Quality of Life Research, 14, 2247–257.CrossRefPubMed Ahmed, S. M., Mayo, N. E., Wood-Dauphinee, S., Hanley, J. A., & Cohen, S. R. (2005). Using the patient generated index to evaluate response shift post-stroke. Quality of Life Research, 14, 2247–257.CrossRefPubMed
2.
go back to reference Allison, P. J., Locker, D., & Feine, J. S. (1997). Quality of life: A dynamic construct. Social Science and Medicine, 45, 221–30.CrossRefPubMed Allison, P. J., Locker, D., & Feine, J. S. (1997). Quality of life: A dynamic construct. Social Science and Medicine, 45, 221–30.CrossRefPubMed
3.
go back to reference Atkins, D., Best, D., Briss, P. A., Eccles, M., Falck-Ytter, Y., Flottorp, S., et al. (2004). Grading quality of evidence and strength of recommendations. British Medical Journal, 328, 1490.CrossRefPubMed Atkins, D., Best, D., Briss, P. A., Eccles, M., Falck-Ytter, Y., Flottorp, S., et al. (2004). Grading quality of evidence and strength of recommendations. British Medical Journal, 328, 1490.CrossRefPubMed
4.
go back to reference Bland, J. M., & Altman, D. G. (1986). Statistical methods for assessing agreement between two methods of clinical measurement. The Lancet, 327, 307–10.CrossRef Bland, J. M., & Altman, D. G. (1986). Statistical methods for assessing agreement between two methods of clinical measurement. The Lancet, 327, 307–10.CrossRef
5.
go back to reference Callaghan, B. G., & Condie, M. E. (2003). A post-discharge quality of life outcome measure for lower limb amputees: Test-retest reliability and construct validity. Clinical Rehabilitation, 17, 858–64.CrossRefPubMed Callaghan, B. G., & Condie, M. E. (2003). A post-discharge quality of life outcome measure for lower limb amputees: Test-retest reliability and construct validity. Clinical Rehabilitation, 17, 858–64.CrossRefPubMed
6.
go back to reference Camilleri-Brennan, J., Ruta, D., & Steele, R. J. C. (2002). Patient generated index: New instrument for measuring quality of life in patients with rectal cancer. World Journal of Surgery, 26, 1354–359.CrossRefPubMed Camilleri-Brennan, J., Ruta, D., & Steele, R. J. C. (2002). Patient generated index: New instrument for measuring quality of life in patients with rectal cancer. World Journal of Surgery, 26, 1354–359.CrossRefPubMed
7.
go back to reference Cummins, R. (2000). Personal income and subjective well-being: A review. Journal of Happiness Studies, 1, 133–58.CrossRef Cummins, R. (2000). Personal income and subjective well-being: A review. Journal of Happiness Studies, 1, 133–58.CrossRef
8.
go back to reference Dempster, M., & Donnelly, M. (2000). How well do elderly people compete individualised quality of life measures: An exploratory study. Quality of Life Research, 9, 369–75.CrossRefPubMed Dempster, M., & Donnelly, M. (2000). How well do elderly people compete individualised quality of life measures: An exploratory study. Quality of Life Research, 9, 369–75.CrossRefPubMed
9.
go back to reference Dempster, M., Donnelly, M., & Fitzsimons, D. (2002). Generic, disease-specific and individualised approaches to measuring health-related quality of life among people with heart disease –a comparative analysis. Psychology and Health, 17, 447–57.CrossRef Dempster, M., Donnelly, M., & Fitzsimons, D. (2002). Generic, disease-specific and individualised approaches to measuring health-related quality of life among people with heart disease –a comparative analysis. Psychology and Health, 17, 447–57.CrossRef
10.
go back to reference Fitzpatrick, R. (1999). Assessment of quality of life as an outcome: Finding measurements that reflect individuals–priorities. Quality in Health Care, 8, 1–.CrossRefPubMed Fitzpatrick, R. (1999). Assessment of quality of life as an outcome: Finding measurements that reflect individuals–priorities. Quality in Health Care, 8, 1–.CrossRefPubMed
11.
go back to reference Griffiths, R., Jayasuriya, R., & Maitland, H. (2000). Development of a client-generated health outcome measure for community nursing. Australian and New Zealand Journal of Public Health, 24, 529–35.CrossRefPubMed Griffiths, R., Jayasuriya, R., & Maitland, H. (2000). Development of a client-generated health outcome measure for community nursing. Australian and New Zealand Journal of Public Health, 24, 529–35.CrossRefPubMed
12.
go back to reference Guyatt, G., Walter, S., & Norman, G. (1987). Measuring change over time: Assessing the usefulness of evaluative instruments. Journal of Chronic Diseases, 40, 171–78.CrossRefPubMed Guyatt, G., Walter, S., & Norman, G. (1987). Measuring change over time: Assessing the usefulness of evaluative instruments. Journal of Chronic Diseases, 40, 171–78.CrossRefPubMed
13.
go back to reference Haywood, K., Garratt, A. M., Dziedzic, K., & Dawes, P. T. (2003). Patient centered assessment of ankylosing spondylitis-specific health related quality of life: Evaluation of the patient generated index. The Journal of Rheumatology, 30, 764–73.PubMed Haywood, K., Garratt, A. M., Dziedzic, K., & Dawes, P. T. (2003). Patient centered assessment of ankylosing spondylitis-specific health related quality of life: Evaluation of the patient generated index. The Journal of Rheumatology, 30, 764–73.PubMed
14.
go back to reference Helmstadter, G. C. (1964). Principles of psychological measurement. New York: Appleton-Century Crofts. Helmstadter, G. C. (1964). Principles of psychological measurement. New York: Appleton-Century Crofts.
15.
go back to reference Herd, R. M., Tidman, M. J., Ruta, D., & Hunter, J. A. A. (1997). Measurement of quality of life in atopic dermatitis: Correlation and validation of two different methods. British Journal of Dermatology, 136, 502–07.CrossRefPubMed Herd, R. M., Tidman, M. J., Ruta, D., & Hunter, J. A. A. (1997). Measurement of quality of life in atopic dermatitis: Correlation and validation of two different methods. British Journal of Dermatology, 136, 502–07.CrossRefPubMed
16.
go back to reference Jenkinson, C., Stradling, J., & Petersen, S. (1998). How should we evaluate health status? A comparison of three methods in patients presenting with obstructive sleep apnoea. Quality of Life Research, 7, 95–00.CrossRefPubMed Jenkinson, C., Stradling, J., & Petersen, S. (1998). How should we evaluate health status? A comparison of three methods in patients presenting with obstructive sleep apnoea. Quality of Life Research, 7, 95–00.CrossRefPubMed
17.
go back to reference Jobe, J. (2003). Cognitive psychology and self-reports: Models and methods. Quality of Life Research, 12, 219–27.CrossRefPubMed Jobe, J. (2003). Cognitive psychology and self-reports: Models and methods. Quality of Life Research, 12, 219–27.CrossRefPubMed
18.
go back to reference Jobe, J. B., & Mingay, D. J. (1989). Cognitive research improves questionnaires. AJPH, 79, 1053–055.CrossRef Jobe, J. B., & Mingay, D. J. (1989). Cognitive research improves questionnaires. AJPH, 79, 1053–055.CrossRef
19.
go back to reference Jolles, B. M., Buchbinder, R., & Beaton, D. E. (2005). A study compared nine patient-specific indices for musculoskeletal disorders. Journal of Clinical Epidemiology, 58, 791–01.CrossRefPubMed Jolles, B. M., Buchbinder, R., & Beaton, D. E. (2005). A study compared nine patient-specific indices for musculoskeletal disorders. Journal of Clinical Epidemiology, 58, 791–01.CrossRefPubMed
20.
go back to reference Joyce, C., McGee, H., & O’Boyle, C. (1999). Individual quality of life: Approaches to conceptualisation and assessment. London: Psychology Press. Joyce, C., McGee, H., & O’Boyle, C. (1999). Individual quality of life: Approaches to conceptualisation and assessment. London: Psychology Press.
21.
go back to reference Katz, J. N., Larson, M. G., Philips, C. B., Fossel, A. H., & Liang, M. H. (1992). Comparative measurement sensitivity of short and longer health status instruments. Medical Care, 30, 917–25.CrossRefPubMed Katz, J. N., Larson, M. G., Philips, C. B., Fossel, A. H., & Liang, M. H. (1992). Comparative measurement sensitivity of short and longer health status instruments. Medical Care, 30, 917–25.CrossRefPubMed
22.
go back to reference Kelly, T. L. (1927). Principles of psychological measurement. Yonkers: World Books. Kelly, T. L. (1927). Principles of psychological measurement. Yonkers: World Books.
23.
go back to reference Kliempt, P. (2001). Developing a methodology for the identification and selection of outcome measures for use in older people living in the community. PhD thesis, Department of Epidemiology and Public Health. Dundee, Scotland: University of Dundee. Kliempt, P. (2001). Developing a methodology for the identification and selection of outcome measures for use in older people living in the community. PhD thesis, Department of Epidemiology and Public Health. Dundee, Scotland: University of Dundee.
24.
go back to reference Larsen, R. J., & Fredrickson, B. L. (2003). Measurement issues in emotion research. In D. Kahneman, E. Diener, & N. Schwartz (Eds.), Well-being: The foundations of hedonic psychology (pp. 40–0). London: Russell Sage Publications. Larsen, R. J., & Fredrickson, B. L. (2003). Measurement issues in emotion research. In D. Kahneman, E. Diener, & N. Schwartz (Eds.), Well-being: The foundations of hedonic psychology (pp. 40–0). London: Russell Sage Publications.
25.
go back to reference Lintern, T. C., Beaumont, G., Kenealy, P. M., & Murrell, R .C. (2001). Quality of life (QoL) in severely disabled multiple sclerosis patients: Comparison of three QoL measures using multidimensional scaling. Quality of Life Research, 10, 371–78.CrossRefPubMed Lintern, T. C., Beaumont, G., Kenealy, P. M., & Murrell, R .C. (2001). Quality of life (QoL) in severely disabled multiple sclerosis patients: Comparison of three QoL measures using multidimensional scaling. Quality of Life Research, 10, 371–78.CrossRefPubMed
26.
go back to reference LLewellyn, C. D., McGurk, M., & Weinman, J. (2006). Head and neck cancer: To what extent can psychological factors explain differences between health-related quality of life and individual quality of life. British Journal of Oral and Mazillofacial Surgery, 44, 351–57.CrossRef LLewellyn, C. D., McGurk, M., & Weinman, J. (2006). Head and neck cancer: To what extent can psychological factors explain differences between health-related quality of life and individual quality of life. British Journal of Oral and Mazillofacial Surgery, 44, 351–57.CrossRef
27.
go back to reference Macduff, C., & Russell, E. (1998). The problem of measuring change in individual health-related quality of life by postal questionnaire: Use of the patient-generated index in a disabled population. Quality of Life Research, 7, 761–19.CrossRefPubMed Macduff, C., & Russell, E. (1998). The problem of measuring change in individual health-related quality of life by postal questionnaire: Use of the patient-generated index in a disabled population. Quality of Life Research, 7, 761–19.CrossRefPubMed
28.
go back to reference Nunnally, J. C. (1978). Psychometric theory. New York: McGraw-Hill. Nunnally, J. C. (1978). Psychometric theory. New York: McGraw-Hill.
29.
go back to reference Nunnally, J. C., & Bernstein, H. I. (1994). Psychometric theory (3rd ed.). New York: McGraw-Hill. Nunnally, J. C., & Bernstein, H. I. (1994). Psychometric theory (3rd ed.). New York: McGraw-Hill.
30.
go back to reference O’Boyle, C., McGee, H., Hickey, A., O’Malley, K., & Joyce, C. R. B. (1992). Individual QOL in patients undergoing hip replacement. Lancet, 339, 1088–091.CrossRefPubMed O’Boyle, C., McGee, H., Hickey, A., O’Malley, K., & Joyce, C. R. B. (1992). Individual QOL in patients undergoing hip replacement. Lancet, 339, 1088–091.CrossRefPubMed
31.
go back to reference Patel, K. K., Veenstra, D. L., & Patrick, D. L. (2003). A review of selected patient-generated outcome measures and their application in clinical trials. Value in Health, 6, 595–03.CrossRefPubMed Patel, K. K., Veenstra, D. L., & Patrick, D. L. (2003). A review of selected patient-generated outcome measures and their application in clinical trials. Value in Health, 6, 595–03.CrossRefPubMed
32.
go back to reference Poellmann, W., Busch, C., & Voltz, R. (2005). Lebensqualitat bei Multipler Sklerose: Messinstrumente, Bedeutung, Probleme und Perspektiven [Quality of life in multiple sclerosis: Measures, relevance, problems and perpsectives. Der Nervenarzt, 76, 154–69.CrossRef Poellmann, W., Busch, C., & Voltz, R. (2005). Lebensqualitat bei Multipler Sklerose: Messinstrumente, Bedeutung, Probleme und Perspektiven [Quality of life in multiple sclerosis: Measures, relevance, problems and perpsectives. Der Nervenarzt, 76, 154–69.CrossRef
33.
go back to reference Rankin, G., & Stokes, M. (1998). Reliability of assessment tools in rehabilitation: An illustration of appropriate statistical analysis. Clinical Rehabilitation, 12, 187–99.CrossRefPubMed Rankin, G., & Stokes, M. (1998). Reliability of assessment tools in rehabilitation: An illustration of appropriate statistical analysis. Clinical Rehabilitation, 12, 187–99.CrossRefPubMed
34.
go back to reference Rapkin, B. D., & Schwartz, C. E. (2004). Toward a theoretical model of quality of life appraisal: Implications of findings from studies of response shift. Health and Quality of Life Outcomes at http://www.hqlo.com/content/2/1/14 2004; 2. Rapkin, B. D., & Schwartz, C. E. (2004). Toward a theoretical model of quality of life appraisal: Implications of findings from studies of response shift. Health and Quality of Life Outcomes at http://​www.​hqlo.​com/​content/​2/​1/​14 2004; 2.
35.
go back to reference Robling, M. (2006). Measuring change in patient quality of life over time: An evaluation of scale responsiveness and patient response shift. PhD Thesis, Department of General Practice, Cardiff University. Robling, M. (2006). Measuring change in patient quality of life over time: An evaluation of scale responsiveness and patient response shift. PhD Thesis, Department of General Practice, Cardiff University.
36.
go back to reference Ruta, D., Camfield, L., & Donaldson, C. (2006). Sen and the art of quality of life maintenance: Towards a working definition of quality of life. Wellbeing in Developing Countries (WeD) Research Group Working Paper. Available at http://www.bath.ac.uk/econ-dev/wellbeing/research/workingpaperpdf/wed12.pdf Ruta, D., Camfield, L., & Donaldson, C. (2006). Sen and the art of quality of life maintenance: Towards a working definition of quality of life. Wellbeing in Developing Countries (WeD) Research Group Working Paper. Available at http://​www.​bath.​ac.​uk/​econ-dev/​wellbeing/​research/​workingpaperpdf/​wed12.​pdf
37.
go back to reference Ruta, D., Garratt, A. M., Leng, M., Russel, I. T., & MacDonald, L. M. (1994). A new approach to the measurement of quality of life: The patient generated index. Medical Care, 32, 1109–126.CrossRefPubMed Ruta, D., Garratt, A. M., Leng, M., Russel, I. T., & MacDonald, L. M. (1994). A new approach to the measurement of quality of life: The patient generated index. Medical Care, 32, 1109–126.CrossRefPubMed
38.
go back to reference Ruta, D., Garratt, A. M., & Russell, I. T. (1999). Patient centred assessment of quality of life for patients with four common conditions. Quality in Health Care, 8, 22–9.CrossRefPubMed Ruta, D., Garratt, A. M., & Russell, I. T. (1999). Patient centred assessment of quality of life for patients with four common conditions. Quality in Health Care, 8, 22–9.CrossRefPubMed
39.
go back to reference Ruta, D., Martin, F., Devine, J., Bevan, P., & Camfield, L. (2004) Assessing individual quality of life in developing countries: Piloting a global PGI in Ethiopia and Bangladesh. International Society for Quality of Life Research: Harmonizing International Health-Related Quality of Life (HRQOL) Research, Hong Kong Ruta, D., Martin, F., Devine, J., Bevan, P., & Camfield, L. (2004) Assessing individual quality of life in developing countries: Piloting a global PGI in Ethiopia and Bangladesh. International Society for Quality of Life Research: Harmonizing International Health-Related Quality of Life (HRQOL) Research, Hong Kong
40.
go back to reference Schwartz, C. E., & Rapkin, B. D. (2004). Reconsidering the psychometrics of quality of life assessment in light of response shift and appraisal. Health and quality of life outcomes at http:/ww.hq10.com/content/2/1/16 Schwartz, C. E., & Rapkin, B. D. (2004). Reconsidering the psychometrics of quality of life assessment in light of response shift and appraisal. Health and quality of life outcomes at http:/ww.hq10.com/content/2/1/16
41.
go back to reference Schwartz, C. E., & Sprangers, M. A. G. (1999). Methodological approaches for assessing response shift in longitudinal health-related quality of life research. Social Science and Medicine, 48, 1531–548.CrossRefPubMed Schwartz, C. E., & Sprangers, M. A. G. (1999). Methodological approaches for assessing response shift in longitudinal health-related quality of life research. Social Science and Medicine, 48, 1531–548.CrossRefPubMed
42.
go back to reference Streiner, D. L., & Norman, G. (1995). Health measurement scales: A Practical guide to their development and use Oxford: Oxford University Press. Streiner, D. L., & Norman, G. (1995). Health measurement scales: A Practical guide to their development and use Oxford: Oxford University Press.
43.
go back to reference Symon, A., MacDonald, A., & Ruta, D. (2002). Postnatal quality of life assessment: Introducing the mother-generated index. Birth, 29, 40–6.CrossRefPubMed Symon, A., MacDonald, A., & Ruta, D. (2002). Postnatal quality of life assessment: Introducing the mother-generated index. Birth, 29, 40–6.CrossRefPubMed
44.
go back to reference Symon, A., MacKay, A., & Ruta, D. (2003). Postnatal quality of life: A pilot study using the mother-generated index. Journal of Advanced Nursing, 42, 21–9.CrossRefPubMed Symon, A., MacKay, A., & Ruta, D. (2003). Postnatal quality of life: A pilot study using the mother-generated index. Journal of Advanced Nursing, 42, 21–9.CrossRefPubMed
45.
go back to reference Tugwell, P., Bombardier, C., Buchanan, W. W., Goldsmith, C., Grace, E., Benett, K. J., et al. (1990). Methotrexate in rheumatoid-arthritis-impact on quality of life assessed by traditional standard-item and individualized patient preference health-status questionnaires. Archives of Internal Medicine, 150, 59–2.CrossRefPubMed Tugwell, P., Bombardier, C., Buchanan, W. W., Goldsmith, C., Grace, E., Benett, K. J., et al. (1990). Methotrexate in rheumatoid-arthritis-impact on quality of life assessed by traditional standard-item and individualized patient preference health-status questionnaires. Archives of Internal Medicine, 150, 59–2.CrossRefPubMed
46.
go back to reference Tully, M. P., & Cantrill, J. A. (2000). The validity of the modified patient generated index –a quantitative and qualitative approach. Quality of Life Research, 9, 509–20.CrossRefPubMed Tully, M. P., & Cantrill, J. A. (2000). The validity of the modified patient generated index –a quantitative and qualitative approach. Quality of Life Research, 9, 509–20.CrossRefPubMed
47.
go back to reference Tully, M. P., & Cantrill, J. A. (2002). The test-retest reliability of the modified patient generated index. Journal of Health Service Research Policy, 7, 81–9.CrossRef Tully, M. P., & Cantrill, J. A. (2002). The test-retest reliability of the modified patient generated index. Journal of Health Service Research Policy, 7, 81–9.CrossRef
Metagegevens
Titel
Twelve years–experience with the Patient Generated Index (PGI) of quality of life: a graded structured review
Auteurs
Faith Martin
Laura Camfield
Karen Rodham
Petra Kliempt
Danny Ruta
Publicatiedatum
01-05-2007
Uitgeverij
Springer Netherlands
Gepubliceerd in
Quality of Life Research / Uitgave 4/2007
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-006-9152-6

Andere artikelen Uitgave 4/2007

Quality of Life Research 4/2007 Naar de uitgave