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Maternal Socio-Economic and Race/Ethnic Characteristics Associated with Early Intervention Participation

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Abstract

Objectives To evaluate whether Massachusetts Early Intervention (EI) serves children at risk of developmental delay due to social factors, we identified socio-demographic characteristics associated with program enrollment and examined predictors of participation at each stage from referral to enrollment. Methods The Pregnancy to Early Life Longitudinal (PELL) data system linked birth certificate, hospital discharge, and EI data for all Massachusetts births, 1998–2000. We identified predictors of enrollment among births and predictors of referral, eligibility evaluation among those referred, and enrollment among eligible children using multivariate modified Poisson models to adjust for medical risks. Results Overall, 29,950 children (13.7% of births) enrolled in EI. Most social risk indicators predicted enrollment, including maternal government insurance (RR = 1.32, 95% CI 1.29–1.36) and maternal education ≤10 years (RR = 1.36, 95% CI 1.30–1.42). Having a foreign-born (RR = 0.77, 95% CI 0.74–0.80), non-English speaking (RR = 0.93, 95% CI 0.89–0.97) or Asian (RR = 0.88, 95% CI 0.82–0.94) mother was negatively associated with enrollment. Of births, 18.6% were referred to EI. Similar socio-demographic variables predicted referral as predicted enrollment. Among referrals, 87.7% received an evaluation. Evaluation was negatively associated with young maternal age, black maternal race, and high poverty level. Of eligible children, 93.0% enrolled. Enrollment among eligible children was negatively associated with young maternal age and high poverty level. Conclusion In Massachusetts, children born with social risk factors have high EI participation. Nevertheless, children in immigrant communities may face barriers to initial contact with EI, while children from low socioeconomic environments may be at risk for not enrolling after EI referral.

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Notes

  1. The authors linked birth, death, and hospital discharge data with Early Intervention (EI) program data in order to conduct this study on behalf of the Massachusetts Department of Public Health’s Early Intervention Program. Personally identifiable information received by the EI program is protected under the provisions of the Individuals with Disabilities Education Act (IDEA) which adopts the privacy protections of the Family Educational Rights and Privacy Act (FERPA), 20 U.S.C. §1232g and 34 CFR Part 99. Under these laws, parental consent is not required to disclose identifiable data to an organization that is conducting a study for or on behalf of the EI program. The use of EI program data for this study was permissible under these laws since the authors conducted the study on behalf of the EI program and destroyed direct identifiers from the analytic file once the linkage was completed.

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Acknowledgements

The PELL data system is supported by the Centers for Disease Control grants S1887—21/23 and S3485—23/23. Additional funding for Early Intervention program evaluation was provided by US Department of Education Early Intervention grant 45139021. We would like to thank Steven Evans, Mark McLaughlin, and Jean Shimer for their assistance in preparing the data files, and Howard Cabral for his careful review of the manuscript.

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Correspondence to Karen M. Clements.

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Clements, K.M., Barfield, W.D., Kotelchuck, M. et al. Maternal Socio-Economic and Race/Ethnic Characteristics Associated with Early Intervention Participation. Matern Child Health J 12, 708–717 (2008). https://doi.org/10.1007/s10995-007-0291-3

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