Abstract
The purpose of this study is to document the content and accuracy of middle school students’ spontaneously generated definitions of autism in order to inform future peer education interventions. Authors evaluated 450 middle school students’ written definitions of autism for accuracy and content. Most students (n = 321; 71.3%) provided accurate definitions of autism; the remaining definitions consisted of (a) a combination of accurate and inaccurate information (n = 45; 10.0%), (b) reporting “Don’t know” (n = 43; 9.6%), (c) inaccurate information (n = 20; 4.4%), and (d) combinations of uncertainty in the presence of accurate and inaccurate information (n = 21; 4.6%). Accurate responses reflected only basic understanding that autism was a disability; few accurate responses identified social, communicative, or restrictive patterns of behavior as core difficulties for individuals with autism. Middle school students reported inaccurate information across varied content, such as etiology, core symptoms, and associated problems. Results suggest that peer education messages should highlight information regarding the defining features, etiology, consequences, and outcomes related to autism.
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Appendices
Appendix A
Coding Instructions for Written Responses to “What is Autism?”:
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1.
Review verbatim response.
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2.
Code response for accuracy. Responses may be coded as accurate, inaccurate, don’t know, and any combination of these three options.
Responses may contain both accurate and inaccurate content and each component of the response should be coded. For example, the response, “Autism is a disorder where you can’t talk well. You get it from bad food,” is coded as accurate (i.e., “disorder where you can’t talk well”) and inaccurate (i.e., “You get it from bad food”). Similarly, a response can be coded as both accurate and don’t know. For example, the response, “I don’t know, maybe autism is a disability,” is coded as don’t know (i.e., “I don’t know”) and accurate (i.e., “autism is a disability”).
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3.
Code response for content. Responses may be coded for various aspects of content. Content is coded for the presence of the following:
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(a)
The general notion that autism is a disorder or disability (Code H: General theme of disorder),
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(b)
Identifying core symptomatology in the areas of social, communication, and restrictive/repetitive behavior and interests (Codes I-K),
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(c)
Identifying problems associated with autism, such as anxiety (Code L),
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(d)
Etiology (Code M),
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(e)
Attributions/interpretations about autism, such as persons with autism being slow, unique or shy (Code N),
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(f)
Commentary about how individuals with autism should or are treated, such as indicating that persons with autism should be included, accepted, or loved (Code O) and,
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(g)
Indicating source of information about autism, such as from family, television program, or internet (Code P).
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(a)
Appendix B
Table 3
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Campbell, J.M., Morton, J.F., Roulston, K. et al. A Descriptive Analysis of Middle School Students’ Conceptions of Autism. J Dev Phys Disabil 23, 377–397 (2011). https://doi.org/10.1007/s10882-011-9234-4
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DOI: https://doi.org/10.1007/s10882-011-9234-4