Skip to main content
Top
Gepubliceerd in: Journal of Child and Family Studies 4/2018

26-12-2017 | Original Paper

Fostering Insights: A Strengths-Based Theory of Parental Transformation

Auteurs: Julie A. Broski, Winnie Dunn

Gepubliceerd in: Journal of Child and Family Studies | Uitgave 4/2018

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail

Abstract

Parent’s awareness that their child’s development is not proceeding as they expected can create an unanticipated transition from being a parent to becoming the parent of a child with a developmental diagnosis. While many transition theories contribute to our understanding of how parents’ experience change over time, many traditional transition models are not family-centered and do not provide a strengths-based perspective of parents’ experiences during this transition. This paper describes the process of theory derivation to develop a strengths-based theory of parental transformation (STPT). We used the theory of well-being of refugee women experiencing cultural transition to gain insights into parents’ experiences related to their child’s diagnosis. We propose that the STPT addresses a gap in the literature by situating the diagnostic process within a strengths’ based framework that aligns with contemporary perspectives regarding disability. The STPT emphasizes understanding parents’ experiences and needs in ways that promote personal growth to support the parent and child.
Literatuur
go back to reference Armstrong, D. (1995). The rise of surveillance medicine. Sociology of Health and Illness, 17, 393–404.CrossRef Armstrong, D. (1995). The rise of surveillance medicine. Sociology of Health and Illness, 17, 393–404.CrossRef
go back to reference Baird, M. B., & Reed, P. G. (2015). Liminality in cultural transition: Applying ID-EA to advance a concept into theory-based practice. Research and Theory for Nursing Practice, 29, 25–37. https://doi.org/10.1891/1541-6577.29.1.25.CrossRefPubMed Baird, M. B., & Reed, P. G. (2015). Liminality in cultural transition: Applying ID-EA to advance a concept into theory-based practice. Research and Theory for Nursing Practice, 29, 25–37. https://​doi.​org/​10.​1891/​1541-6577.​29.​1.​25.​CrossRefPubMed
go back to reference Ballen, D. (2012). Journey with Julian [Kindle Version]. New York, NY: Strebor Books. Ballen, D. (2012). Journey with Julian [Kindle Version]. New York, NY: Strebor Books.
go back to reference Becker, G. (1997). Disrupted lives: How people create meaning in a chaotic world. Berkley, CA: University of California Press. Becker, G. (1997). Disrupted lives: How people create meaning in a chaotic world. Berkley, CA: University of California Press.
go back to reference Bronfenbrenner, U. (1979). The ecology of human development experiments by nature and design. Cambridge, MA: Harvard University Press. Bronfenbrenner, U. (1979). The ecology of human development experiments by nature and design. Cambridge, MA: Harvard University Press.
go back to reference Brueggemann, B. (2015). Disabilitystudies/disability culture. In M. Wehmeyer (Ed.), The Oxford handbook of positive psychology and disability (pp. 279–302). New York, NY: Oxford University Press. Brueggemann, B. (2015). Disabilitystudies/disability culture. In M. Wehmeyer (Ed.), The Oxford handbook of positive psychology and disability (pp. 279–302). New York, NY: Oxford University Press.
go back to reference Buntinx, W. (2013). Understanding disability: A strengths-based approach. In M. Wehmeyer (Ed.), The Oxford handbook of positive psychology and disability (pp. 7–18). New York, NY, USA: Oxford University Press. Buntinx, W. (2013). Understanding disability: A strengths-based approach. In M. Wehmeyer (Ed.), The Oxford handbook of positive psychology and disability (pp. 7–18). New York, NY, USA: Oxford University Press.
go back to reference Carmichael, N., Tsipis, J., Windmueller, G., Mandel, L., & Estrella, E. (2015). “Is it going to hurt?”: The impact of the diagnostic odyssey on children and their families. Journal of Genetic Counseling, 24, 325–335.CrossRefPubMed Carmichael, N., Tsipis, J., Windmueller, G., Mandel, L., & Estrella, E. (2015). “Is it going to hurt?”: The impact of the diagnostic odyssey on children and their families. Journal of Genetic Counseling, 24, 325–335.CrossRefPubMed
go back to reference Chaney, D. (2010). Analyzing mental representations: The contribution of cognitive maps. Recherche et Applications Enōsis Marketing (English Edition), 25, 93–115.CrossRef Chaney, D. (2010). Analyzing mental representations: The contribution of cognitive maps. Recherche et Applications Enōsis Marketing (English Edition), 25, 93–115.CrossRef
go back to reference Chick, N., & Meleis, A. (1986). Transitions: A nursing concern. Boulder, CO: Aspen Publications. Chick, N., & Meleis, A. (1986). Transitions: A nursing concern. Boulder, CO: Aspen Publications.
go back to reference Cohen, K. (2011). Seeing Ezra: A mother’s story of autism, unconditional love, and the meaning of normal [Kindle Version]. Berkley, CA: Seal Press. Cohen, K. (2011). Seeing Ezra: A mother’s story of autism, unconditional love, and the meaning of normal [Kindle Version]. Berkley, CA: Seal Press.
go back to reference Desai, M. U., Divan, G., Wertz, F. J., & Patel, V. (2012). The discovery of autism: Indian parents’ experiences of caring for their child with an autism spectrum disorder. Transcultural Psychiatry, 49, 613–637.CrossRefPubMedPubMedCentral Desai, M. U., Divan, G., Wertz, F. J., & Patel, V. (2012). The discovery of autism: Indian parents’ experiences of caring for their child with an autism spectrum disorder. Transcultural Psychiatry, 49, 613–637.CrossRefPubMedPubMedCentral
go back to reference Farrugia, D. (2009). Exploring stigma: Medical knowledge and the stigmatisation of parents of children diagnosed with autism spectrum disorder. Sociology of Health & Illness, 31, 1011–1027.CrossRef Farrugia, D. (2009). Exploring stigma: Medical knowledge and the stigmatisation of parents of children diagnosed with autism spectrum disorder. Sociology of Health & Illness, 31, 1011–1027.CrossRef
go back to reference Fields-Meyer, T. (2011). Following Ezra: What one father learned about Gumby, otters, autism, and love from his extraordinary son [Kindle version]. New York, NY: Penguin Group US. Fields-Meyer, T. (2011). Following Ezra: What one father learned about Gumby, otters, autism, and love from his extraordinary son [Kindle version]. New York, NY: Penguin Group US.
go back to reference Golledge, R. (1991). Cognition of physical and built environments. In T. Garling & G. Evans (Eds.), Environment, cognition, and action: An integrated approach (pp. 35–62). New York, NY: Oxford University Press, USA. Golledge, R. (1991). Cognition of physical and built environments. In T. Garling & G. Evans (Eds.), Environment, cognition, and action: An integrated approach (pp. 35–62). New York, NY: Oxford University Press, USA.
go back to reference Grinker, R. (2007). Unstrange minds: Remapping the world of autism. New York, NY: Perseus Books Group. Grinker, R. (2007). Unstrange minds: Remapping the world of autism. New York, NY: Perseus Books Group.
go back to reference Guerriere, D. N., McKeever, P., Llewellyn-Thomas, H., & Berall, G. (2003). Mothers’ decisions about gastrostomy tube insertion in children: Factors contributing to uncertainty. Developmental Medicine and Child Neurology, 45, 470–476. https://doi.org/10.1111/j.1469-8749.2003.tb00942.x.CrossRefPubMed Guerriere, D. N., McKeever, P., Llewellyn-Thomas, H., & Berall, G. (2003). Mothers’ decisions about gastrostomy tube insertion in children: Factors contributing to uncertainty. Developmental Medicine and Child Neurology, 45, 470–476. https://​doi.​org/​10.​1111/​j.​1469-8749.​2003.​tb00942.​x.​CrossRefPubMed
go back to reference Ho, H. S., Yi, H., Griffiths, S., Chan, D. F., & Murray, S. (2014). “Do It yourself” in the parent-professional partnership for the assessment and diagnosis of children with autism spectrum conditions in Hong Kong: A qualitative study. Autism : the International Journal of Research and Practice, 18, 832–844. https://doi.org/10.1177/1362361397012003.CrossRef Ho, H. S., Yi, H., Griffiths, S., Chan, D. F., & Murray, S. (2014). “Do It yourself” in the parent-professional partnership for the assessment and diagnosis of children with autism spectrum conditions in Hong Kong: A qualitative study. Autism : the International Journal of Research and Practice, 18, 832–844. https://​doi.​org/​10.​1177/​1362361397012003​.CrossRef
go back to reference Isaacson, R. (2009). The horse boy: A father’s quest to heal his son (1st ed.). New York, NY: Little, Brown and Co. Isaacson, R. (2009). The horse boy: A father’s quest to heal his son (1st ed.). New York, NY: Little, Brown and Co.
go back to reference Little, M., Jordens, C. F., Paul, K., Montgomery, K., & Philipson, B. (1998). Liminality: A major category of the experience of cancer illness. Social Science & Medicine, 47, 1485–1494. https://doi.org/10.1016/S0277-9536(98)00248-2.CrossRef Little, M., Jordens, C. F., Paul, K., Montgomery, K., & Philipson, B. (1998). Liminality: A major category of the experience of cancer illness. Social Science & Medicine, 47, 1485–1494. https://​doi.​org/​10.​1016/​S0277-9536(98)00248-2.CrossRef
go back to reference McCubbin, H. I., & Patterson, J. M. (2008). The family stress process: The double ABCX model of adjustment and adaptation. Marriage and Family Review, 6, 7–37.CrossRef McCubbin, H. I., & Patterson, J. M. (2008). The family stress process: The double ABCX model of adjustment and adaptation. Marriage and Family Review, 6, 7–37.CrossRef
go back to reference Meleis, A. (2010). Transitions theory: Middle range and situation specific theories in nursing research and practice. New York, NY: Springer Publishing Company. Meleis, A. (2010). Transitions theory: Middle range and situation specific theories in nursing research and practice. New York, NY: Springer Publishing Company.
go back to reference Meleis, A. (2015). Transitions theory. In M. Smith & M. Parker (Eds.), Nursing theories and nursing practice (4th ed., pp. 361–380). Philadelphia, PA: F.A. Davis Company. Meleis, A. (2015). Transitions theory. In M. Smith & M. Parker (Eds.), Nursing theories and nursing practice (4th ed., pp. 361–380). Philadelphia, PA: F.A. Davis Company.
go back to reference Messias, D., Gilliss, C., Sparacino, P., Tong, E., & Foote, D. (1995). Stories of transition: Parents recall the diagnosis of congenital heart defect. Families, Systems and Health, 13, 367–377. 10.1037/h0089280. Messias, D., Gilliss, C., Sparacino, P., Tong, E., & Foote, D. (1995). Stories of transition: Parents recall the diagnosis of congenital heart defect. Families, Systems and Health, 13, 367–377. 10.1037/h0089280.
go back to reference Millenson, M. L., DiGioia, III, A. M., Greenhouse, P. K., & Swieskowski, D. (2013). Turning patient-centeredness from ideal to real: Lessons from 2 success stories. The Journal of Ambulatory Care Management, 36, 319–334. https://doi.org/10.1097/JAC.0b013e3182a3e76dPMID:24402074.CrossRefPubMed Millenson, M. L., DiGioia, III, A. M., Greenhouse, P. K., & Swieskowski, D. (2013). Turning patient-centeredness from ideal to real: Lessons from 2 success stories. The Journal of Ambulatory Care Management, 36, 319–334. https://​doi.​org/​10.​1097/​JAC.​0b013e3182a3e76d​PMID:24402074.CrossRefPubMed
go back to reference Morris, P., & Bronfenbrenner, U. (2007). The bioecological model of human development. In W. Damon & R. Lerner (Eds.), Theoretical models of human development (5th ed., pp. 793–828). Hoboken, NJ: John Wiley & Sons, Inc. Morris, P., & Bronfenbrenner, U. (2007). The bioecological model of human development. In W. Damon & R. Lerner (Eds.), Theoretical models of human development (5th ed., pp. 793–828). Hoboken, NJ: John Wiley & Sons, Inc.
go back to reference Pope, A., & Brandt, E. (1997). Enabling America: Assessing the role of rehabilitation science and engineering (1st ed.). Washington, D.C.: National Academies Press. Pope, A., & Brandt, E. (1997). Enabling America: Assessing the role of rehabilitation science and engineering (1st ed.). Washington, D.C.: National Academies Press.
go back to reference Prelock, P. A., Beatson, J., Bitner, B., Broder, C., & Ducker, A. (2003). Interdisciplinary assessment of young children with autism spectrum disorder. Language, Speech, and Hearing Services in Schools, 34, 194–202. 10.1044/0161-1461(2003/016).CrossRefPubMed Prelock, P. A., Beatson, J., Bitner, B., Broder, C., & Ducker, A. (2003). Interdisciplinary assessment of young children with autism spectrum disorder. Language, Speech, and Hearing Services in Schools, 34, 194–202. 10.1044/0161-1461(2003/016).CrossRefPubMed
go back to reference Ramsey, W. (2016). Untangling two questions about mental representation. New Ideas in Psychology, 40, 3–12.CrossRef Ramsey, W. (2016). Untangling two questions about mental representation. New Ideas in Psychology, 40, 3–12.CrossRef
go back to reference Schalock, R. L., Borthwick-Duffy, S. A., Bradley, V. J., Buntinx, W. H. E., Coulter, D. L., & Craig, E. M., et al. (2010). Intellectual disability: Definition, classification, and systems of supports (11th ed.). Washington, D.C.: American Association on Intellectual and Developmental Disabilities. Schalock, R. L., Borthwick-Duffy, S. A., Bradley, V. J., Buntinx, W. H. E., Coulter, D. L., & Craig, E. M., et al. (2010). Intellectual disability: Definition, classification, and systems of supports (11th ed.). Washington, D.C.: American Association on Intellectual and Developmental Disabilities.
go back to reference Scorgie, K., Wilgosh, L., & Sobsey, D. (2004). The experience of transformation in parents of children with disabilities: Theoretical considerations. Developmental Disabilities Bulletin, 32, 84–110. Scorgie, K., Wilgosh, L., & Sobsey, D. (2004). The experience of transformation in parents of children with disabilities: Theoretical considerations. Developmental Disabilities Bulletin, 32, 84–110.
go back to reference Stewart, J. L., & Mishel, M. H. (2000). Uncertainty in childhood illness: A synthesis of the parent and child literature. Scholarly Inquiry for Nursing Practice, 14, 299–319.PubMed Stewart, J. L., & Mishel, M. H. (2000). Uncertainty in childhood illness: A synthesis of the parent and child literature. Scholarly Inquiry for Nursing Practice, 14, 299–319.PubMed
go back to reference Tait, K., Fung, F., Hu, A., Sweller, N., & Wang, W. (2016). Understanding Hong Kong Chinese families’ experiences of an autism/ASD diagnosis. Journal of Autism and Developmental Disorders, 46, 1164–1183.CrossRefPubMed Tait, K., Fung, F., Hu, A., Sweller, N., & Wang, W. (2016). Understanding Hong Kong Chinese families’ experiences of an autism/ASD diagnosis. Journal of Autism and Developmental Disorders, 46, 1164–1183.CrossRefPubMed
go back to reference Turner, V. (1969). The ritual process. New York NY: Transaction Publishers/Routledge. Turner, V. (1969). The ritual process. New York NY: Transaction Publishers/Routledge.
go back to reference van Gennep, A. (1960). The Rites of Passage. New York, NY: Routledge. van Gennep, A. (1960). The Rites of Passage. New York, NY: Routledge.
go back to reference Walker, L., & Avant, K. (2005). Strategies for theory construction in nursing. Upper Saddle River, NJ: Pearson. Walker, L., & Avant, K. (2005). Strategies for theory construction in nursing. Upper Saddle River, NJ: Pearson.
Metagegevens
Titel
Fostering Insights: A Strengths-Based Theory of Parental Transformation
Auteurs
Julie A. Broski
Winnie Dunn
Publicatiedatum
26-12-2017
Uitgeverij
Springer US
Gepubliceerd in
Journal of Child and Family Studies / Uitgave 4/2018
Print ISSN: 1062-1024
Elektronisch ISSN: 1573-2843
DOI
https://doi.org/10.1007/s10826-017-0964-5

Andere artikelen Uitgave 4/2018

Journal of Child and Family Studies 4/2018 Naar de uitgave