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Patterns of Caregiving of Cuban, Other Hispanic, Caribbean Black, and White Elders in South Florida

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Abstract

Caregivers in Miami, Florida (185 Cubans, 108 other Hispanics, 229 non-Hispanic Whites, and 73 Caribbean Blacks) were described and compared along demographic and health variables, cultural attitudes, and caregiving behaviors. Participants were recruited at random through Home Health Services (61 %) and convenience sampling in the community (39 %), and interviewed at their home. Standardized instruments and measures constructed for this study were pretested. Multivariate analyses showed that the ethnic groups differed in age, education, income, and number of persons giving care, while caregiver health and patient functioning were similar. Controlling for demographics, differences in cultural variables were small. The sense of obligation, emotional attachment, openness about who should give care, spirituality, use of family help or community services were comparable in all groups. Commitment to caregiving was high, driven mainly by patient needs. Cubans had the greatest family stability, and worked the hardest, with the lowest sense of burden. Caribbean Black caregivers lived in bigger families, were youngest, and their patients had the lowest cognitive status. Burden was felt most by White caregivers who were older than the others. Professionals need to understand complex belief systems and behavior patterns to assist caregivers in mobilizing appropriate resources.

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References

  • Adams, C. E., Horn, K., & Bader, J. (2006). Hispanic access to hospice services in a predominantly Hispanic community. The American Journal of Hospice & Palliative Care, 22(1), 9–16.

    Article  Google Scholar 

  • Anderson, J. R., & Turner, W. L. (2010). When caregivers are in need of care: African-American caregivers’ preferences for their own later life care. Journal of Aging Studies, 24, 65–73.

    Article  Google Scholar 

  • Angel, J. L., Angel, R. J., Aranda, M. P., & Miles, T. P. (2004). Can the family still cope? Social support and health as determinants of nursing home use in the older Mexican-origin population. Journal of Aging and Health, 16(3), 338–354.

    Article  Google Scholar 

  • Bee, P. E., Barnes, P., & Luker, K. A. (2009). A systematic review of informal caregivers’ needs in providing home-based end-of-life care to people with cancer. Journal of Clinical Nursing, 18, 1379–1393.

    Article  Google Scholar 

  • Calderón-Rosado, V., Morrill, A., Chang, B. H., & Tennstedt, S. (2002). Service utilization among disabled Puerto Rican elders and their caregivers: does acculturation play a role? Journal of Aging and Health, 14, 3–23.

    Article  Google Scholar 

  • Casado, B. L., van Vulpen, K. S., & Davis, S. L. (2011). Unmet needs for home and community-based services among frail older Americans and their caregivers. Journal of Aging and Health, 23, 529–533.

    Article  Google Scholar 

  • Clark, A. N., Sander, A. M., Pappadis, M. R., Evans, G. L., Struchen, M. A., & Chiou-Tan, F. Y. (2010). Caregiver characteristics and their relationship to health service utilization in minority patients with first episode stroke. NeuroRehabilitation, 27, 95–104.

    Google Scholar 

  • Cooper, C., Tandy, A. R., Balamurali, T. B., & Livingston, G. (2010). A systematic review and meta-analysis of ethnic differences in use of dementia treatment, care, and research. The American Journal of Geriatric Psychiatry, 18(3), 193–203.

    Article  Google Scholar 

  • Dilworth-Anderson, P., Williams, I., & Gibson, B. (2002). Issues of race, ethnicity, and culture in caregiving research: a 20-year review (1980–2000). The Gerontologist, 42(2), 237–272.

    Article  Google Scholar 

  • Dilworth-Anderson, P., Brummett, B. H., Goodwin, P., Wallace Williams, S., Williams, R. B., & Siegler, I. C. (2005). Effect of race on cultural justifications for caregiving. Journal of Gerontology: Social Sciences, 60B, S257–S262.

    Article  Google Scholar 

  • Drapalski, A. L., Marshall, T., Seybolt, D., Medoff, D., Peer, J., Leith, J., et al. (2008). Unmet needs of families of adults with mental illness and preferences regarding family services. Psychiatric Services, 59, 655–662.

    Article  Google Scholar 

  • Dunlop, D., Manheim, L., Song, J., & Chang, R. (2002). Gender and ethnic/racial disparities in health care utilization among older adults. Journal of Gerontology: Social Sciences, 57B(3), S221–S233.

    Article  Google Scholar 

  • Family Caregiver Alliance, National Center on Caregiving (2006). http://www.caregiver.org/caregiver/jsp/print_friendly.jsp?nodeid=1822. Fact Sheet: Caregiver Health.

  • Feld, S., Dunkle, R. E., & Schroepfer, T. (2004). Race/ethnicity and marital status in IADL caregiver network. Research on Aging, 26, 531–558.

    Article  Google Scholar 

  • Folstein, M. F., Folstein, S. E., & McHugh, P. R. (1975). Mini-mental state. Journal of Psychiatric Research, 12, 189–198.

    Article  Google Scholar 

  • Fredman, L., Cauley, J. A., Satterfield, S., Simonsick, E., Spencer, S. M., Ayonayon, H. N., et al. (2008). Caregiving, mortality, and mobility decline: the health, aging, and body composition (Health ABC) study. Archives of Internal Medicine, 168, 2154–2162.

    Article  Google Scholar 

  • Friedemann, M. L. (1991). An instrument to evaluate effectiveness of family functioning. Western Journal of Nursing Research, 13(2), 220–236.

    Article  Google Scholar 

  • Friedemann, M. L. (1995). The framework of systemic organization: A conceptual approach to families and nursing. Thousand Oaks: Sage Publications, Inc.

    Google Scholar 

  • Hinojosa, M. S., Rittman, M., & Hinojosa, R. (2009). Informal caregivers and racial/ethnic variation in health service use of stroke survivors. Journal of Rehabilitation Research and Development, 46(2), 233–242.

    Article  Google Scholar 

  • Huang, F. Y., Chung, H., Kroenke, K., Deluchi, K. L., & Spitzer, R. L. (2006). Using the Patient Health Questionnaire-9 to measure depression among racially and ethnically diverse primary care patients. Journal of General Internal Medicine, 21, 547–552.

    Article  Google Scholar 

  • Karlin, N. J., Eguigure, A., & Torres, A. (2009). Hispanic family members and caring for those with Alzheimer’s Disease. Alzheimer’s Care Today, 10(4), 191–203.

    Google Scholar 

  • Kaufman, A. V., Kosberg, J. I., Leeper, J. D., & Tang, M. (2010). Social support, caregiver burden, and life satisfaction in a sample of rural African-American and White caregivers of older persons with dementia. Journal of Gerontological Social Work, 53, 251–269.

    Article  Google Scholar 

  • Kosloski, K., Schaefer, J. P., Allwardt, D., Montgomery, R. J., & Karner, T. X. (2002). The role of cultural factors on clients’ attitudes toward caregiving, perceptions of service delivery, and service utilization. Home Health Care Services Quarterly, 21(3/4), 65–88.

    Article  Google Scholar 

  • Kutner, J., Kilbourn, K. M., Costerano, A., Lee, C. A., Nowels, C., Vancura, J. L., et al. (2009). Support needs of informal hospice caregivers: a qualitative study. Journal of Palliative Medicine, 12, 1101–1104.

    Article  Google Scholar 

  • Mausbach, B. T., Coon, D. W., Depp, C., Rabinowitz, Y. G., Wilson-Arias, E., Kraemer, H. C., et al. (2004). Ethnicity and time to institutionalization of dementia patients: a comparison of Latina and Caucasian female family caregivers. Journal of American Geriatrics Society, 52(7), 1077–1084.

    Article  Google Scholar 

  • Min, J. W., & Barrio, C. (2009). Cultural values and caregiver preference for Mexican-American and non-Latino White elders. Journal of Cross-Cultural Gerontology, 24, 225–239.

    Article  Google Scholar 

  • Montgomery, R. J., & Borgotta, E. F. (1985). Family Support Project. Final report to the Administration on Aging. Seattle, WA: University of Washington, Institute on Aging/Long-term Care Center.

  • Montgomery, R. J., & Borgotta, E. F. (1989). The effects of alternative support strategies on family caregiving. The Gerontologist, 29, 457–464.

    Article  Google Scholar 

  • Montgomery, R. J., & Kosloski, C. (2001). Executive summary: AOA further analysis and evaluation of the ADDGS project. Lawrence: Gerontology Center, University of Kansas.

    Google Scholar 

  • Montgomery, R. J., Stull, D. E., & Borgotta, E. F. (1985). Measurement and the analysis of burden. Research on Aging, 7, 137–152.

    Article  Google Scholar 

  • Morano, C. L., & King, D. (2005). Religiosity as a mediator of caregiver well-being. Journal of Gerontological Social Work, 45(1–2), 69–84.

    Article  Google Scholar 

  • Napoles, A. M., Chadiha, L., Eversley, R., & Moreno, J. (2010). Developing culturally sensitive dementia caregiver interventions: are we there yet? American Journal of Alzheimer’s Disease and Other Dementias, 25(5), 389–406.

    Article  Google Scholar 

  • Navaie-Waliser, M., Feldman, P. H., Gould, D. A., Levine, C., Kuerbis, A. N., & Doneland, K. (2001). The experiences and challenges of informal caregivers. The Gerontologist, 41, 733–741.

    Article  Google Scholar 

  • Nelson-Becker, H. (2005). Religion and coping in older adults: a social work perspective. Journal of Gerontological Social Work, 45(1/2), 51–67.

    Article  Google Scholar 

  • Pinquart, M., & Sorensen, S. (2005). Ethnic differences in stressors, resources, and psychological outcomes of family caregiving: a meta-analysis. The Gerontologist, 45(1), 90–106.

    Article  Google Scholar 

  • Radina, M. E., & Barber, C. E. (2004). Utilization of formal support services among Hispanic Americans caring for aging parents. Journal of Gerontological Social Work, 43(2–3), 5–23.

    Article  Google Scholar 

  • Reed, P. G. (1986). Religiousness among terminally ill and healthy adults. Research in Nursing & Health, 9, 35–41.

    Article  Google Scholar 

  • Robinson, K. M., Buckwalter, K. C., & Reed, D. (2005). Predictors of use of services among dementia caregivers. Western Journal of Nursing Research, 27(2), 126–140.

    Article  Google Scholar 

  • Roth, D. L., Haley, W. E., Wadley, V. G., Clay, O. J., & Howard, G. (2007). Race and gender differences in perceived availability for community-dwelling middle-aged and older adults. The Gerontologist, 47, 721–729.

    Article  Google Scholar 

  • Roth, D. L., Ackerman, M. L., Okonkwo, O. C., & Burgio, L. D. (2008). The four-factor model of depressive symptoms in dementia caregivers: a structural equation model of ethnic differences. Psychological Aging, 23, 567–576.

    Article  Google Scholar 

  • Savundranayagam, M. Y., & Montgomery, R. J. (2010). Impact of role discrepancies on caregiver burden among spouses. Research on Aging, 32(2), 175–199.

    Article  Google Scholar 

  • Savundranayagam, M. Y., Montgomery, R. J., & Kosloski, K. (2011). A dimensional analysis of caregiver burden amoung spouses and adult children. The Gerontologist, 51, 321–331.

    Article  Google Scholar 

  • Scharlach, A. E., Kellam, R., Ong, N., Baskin, A., Goldstein, C., & Fox, P. J. (2006). Cultural attitudes and caregiver resource use: lessons from focus groups with racially and ethnically diverse family caregivers. Journal of Gerontological Social Work, 47(1/2), 133–156.

    Article  Google Scholar 

  • Scharlach, A. E., Gustavson, K., & Dal Santo, T. S. (2007). Assistance received by employed caregivers and their care recipients: who helps care recipients when caregivers work full time? The Gerontologist, 47(6), 752–762.

    Article  Google Scholar 

  • Scharlach, A. E., Giunta, N., Chun-Chung Chow, J., & Lehning, A. (2008). Racial and ethnic variations in caregiver service use. Journal of Aging and Health, 20(3), 326–346.

    Article  Google Scholar 

  • Schubart, J. R., Kinzie, M. B., & Farace, E. (2007). Caring for the brain tumor patient: family caregiver burden and unmet needs. Neuro-Oncology, 10, 61–72.

    Article  Google Scholar 

  • Segre, L. S., Buckwalter, K. C., & Friedemann, M. L. (2011). Strategies to engage clinical staff in subject recruitment. Journal of Research in Nursing, 16, 321–332.

    Article  Google Scholar 

  • Siefert, M. L., Williams, A., Dowd, M. F., Chappel-Aiken, L., & McCorkle, R. (2008). The caregiver experience in a racially diverse sample of cancer family caregivers. Cancer Nursing, 31(5), 399–407.

    Article  Google Scholar 

  • Sorensen, S., & Pinquart, M. (2005). Racial and ethnic differences in the relationship of caregiver stressors, resources, and sociodemographic variables to caregiver depression and perceived physical health. Aging & Mental Health, 9(5), 482–495.

    Article  Google Scholar 

  • U. S. Census Bureau (2009). http://www.census.gov/population/www/projections/summarytables.html, Summary Table: Projections of the Population by Selected Age Groups and Sex for the United States: 2010 to 2050.

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Acknowledgment

This study was supported by Florida International University MBRS grant, SCORE Project NIHSO6GM08205, National Institutes of Health, National Institute of General Medical Sciences.

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Correspondence to Marie-Luise Friedemann.

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Friedemann, ML., Buckwalter, K.C., Newman, F.L. et al. Patterns of Caregiving of Cuban, Other Hispanic, Caribbean Black, and White Elders in South Florida. J Cross Cult Gerontol 28, 137–152 (2013). https://doi.org/10.1007/s10823-013-9193-6

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  • DOI: https://doi.org/10.1007/s10823-013-9193-6

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