Abstract
The objective of this research is to study, via a qualitative and exploratory approach, the coping strategies used by adults with autism and with no intellectual impairment. Semi-directive interviews were carried out with 31 adults diagnosed with Asperger’s syndrome or high-functioning autism (HFA). The data were analysed using an open coding system. Eight coping strategies were identified: special interests, militancy, diagnosis, seeking support from atypical friends, seeking support from animals, normalisation, intellectualisation, and humour. The practical and theoretical implications of the results are discussed in relation to the existing literature on this subject. A new approach is proposed in which special interests are seen as a resource and not as a symptom.
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Abel, M. H. (2002). Humor, stress, and coping strategies. Humor: International Journal of Humor Research, 15(4), 365–381. https://doi.org/10.1515/humr.15.4.365.
American Psychiatric Association. (1994). Diagnostic and statistical manual of mental disorders (4th ed.). Washington, DC: Author.
American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (5th ed.). Arlington, VA: American Psychiatric Publishing.
Attwood, T. (2006). Asperger’s syndrome and problems related to stress. In M. G. Baron, J. Groden, G. Groden, & L. Lipsitt (Eds.), Stress and coping in autism (pp. 351–370). New York: Oxford University Press
Attwood, T. (2007). The complete guide to Asperger’s syndrome. London: Jessica Kingsley Publishers.
Barnhill, G. P. (2007). Outcomes in adults with Asperger syndrome. Focus on Autism and Other Developmental Disabilities, 22, 116–126.
Baron-Cohen, S. (2000). Is Asperger syndrome/high-functioning autism necessarily a disability? Development and Psychopathology, 12(3), 489–500. https://doi.org/10.1017/S0954579400003126.
Bauminger, N. (2004). The expression and understanding of jealousy in children with autism. Development and Psychopathology 16(1), 157–177. https://doi.org/10.1017/S0954579404044451.
Bishop-Fitzpatrick, L., Mazefsky, C. A., Minshew, N. J., & Eack, S. M. (2015). The relationship between stress and social functioning in adults with autism spectrum disorder and without intellectual disability. Autism Research, 8(2), 164–173. https://doi.org/10.1002/aur.1433.
Boyd, B. A., Conroy, M. A., Mancil, G. R., Nakao, T., & Alter, P. J. (2007). Effects of circumscribed interests on the social behaviors of children with autism spectrum disorders. Journal of Autism & Developmental Disorders, 37(8), 1550–1561.
Bulman, R. J., & Wortman, C. B. (1977). Attributions of blame and coping in the ‘real world’: Severe accident victims react to their lot. Journal of Personality and Social Psychology, 35(5), 351–363. https://doi.org/10.1037/0022-3514.35.5.351.
Chamak, B., & Bonniau, B. (2013). Changes in the diagnosis of autism: How parents and professionals act and react in France. Culture, Medicine and Psychiatry, 37(3), 405–426. https://doi.org/10.1007/s11013-013-9323-1.
Creswell, J. W. (1994). Research design: Qualitative and quantitative approaches. Thousand Oaks, CA: SAGE.
Davis, G. (2005). Coping with mental illness. Psychiatric Rehabilitation Journal, 28(3), 299–302. https://doi.org/10.2975/28.2005.299.302.
Etikan, I., Musa, S. A., & Alkassim, R. S. (2016). Comparison of convenience sampling and purposive sampling. American Journal of Theoretical and Applied Statistics, 5(1), 1–4. https://doi.org/10.11648/j.ajtas.20160501.11.
Folkman, S., & Lazarus, R. S. (1980). An analysis of coping in a middle-aged community sample. Journal of Health and Social Behavior, 21(3), 219–239. https://doi.org/10.2307/2136617.
Folkman, S., & Moskowitz, J. T. (2004). Coping: Pitfalls and promise. Annual Review of Psychology, 55, 745–774. https://doi.org/10.1146/annurev.psych.55.090902.141456.
Foust, R. C., & Booker, K. (2007). The social cognition of gifted adolescents. Roeper Review: A Journal on Gifted Education, 29(5), 45–47.
Gaudet, S., Clement, R., & Deuzeman, K. (2005). Daily hassles, ethnic identity and psychological adjustment among Lebanese-Canadians. International Journal of Psychology, 40, 157–168. https://doi.org/10.1080/00207590444000267.
Gould, J., & Ashton-Smith, J. (2011). Missed diagnosis or misdiagnosis? Girls and women on the autism spectrum. Good Autism Practice, 12(1), 34–41.
Happé, F. (1999). Autism: Cognitive deficit or cognitive style? Trends in Cognitive Sciences, 3(6), 216–222. https://doi.org/10.1016/S1364-6613(99)01318-2.
Hartmann, A. (2008). Les orientations nouvelles dans le champ du coping. Pratiques Psychologiques, 14, 285–299.
Johnson, T. D., & Joshi, A. (2016). Dark clouds or silver linings? A stigma threat perspective on the implications of an autism diagnosis for workplace well-being. Journal of Applied Psychology, 101(3), 430–449. https://doi.org/10.1037/apl0000058.
Kerns, C. M., Newschaffer, C. J., & Berkowitz, S. J. (2015). Traumatic childhood events and autism spectrum disorder. Journal of Autism and Developmental Disorders, 45(11), 3475–3486. https://doi.org/10.1007/s10803-015-2392-y.
Khanna, R., Jariwala-Parikh, K., West-Strum, D., & Mahabaleshwarkar, R. (2014). Health-related quality of life and its determinants among adults with autism. Research in Autism Spectrum Disorders, 8(3), 157–167. https://doi.org/10.1016/j.rasd.2013.11.003.
Khor, A. S., Melvin, G. A., Reid, S. C., & Gray, K. M. (2014). Coping, daily hassles and behavior and emotional problems in adolescents with high-functioning autism/Asperger’s disorder. Journal of Autism and Developmental Disorders, 44(3), 593–608. https://doi.org/10.1007/s10803-013-1912-x.
Klin, A., Danovitch, J. H., Merz, A. B., & Volkmar, F. R. (2007). Circumscribed interests in higher functioning individuals with autism spectrum disorders: An exploratory study. Research & Practice for Persons with Severe Disabilities, 32(2), 89–100.
Labott, S. M., Ahleman, S., Wolever, M. E., & Martin, R. B. (1990). The physiological and psychological effects of the expression and inhibition of emotion. Behavioral Medicine, 16(4), 182–189. https://doi.org/10.1080/08964289.1990.9934608.
Lai, M., & Baron-Cohen, S. (2015). Identifying the lost generation of adults with autism spectrum conditions. The Lancet Psychiatry, 2(11), 1013–1027. https://doi.org/10.1016/S2215-0366(15)00277-1.
Lai, W. W., Goh, T. J., Oei, T. S., & Sung, M. (2015). Coping and well-being in parents of children with autism spectrum disorders (ASD). Journal of Autism and Developmental Disorders, 45(8), 2582–2593. https://doi.org/10.1007/s10803-015-2430-9.
Larsson, B. J., Nordin, K., & Nygren, I. (2016). Coping with amyotrophic lateral sclerosis; from diagnosis and during disease progression. Journal of the Neurological Sciences, 361, 235–242. https://doi.org/10.1016/j.jns.2015.12.042.
Lazarus, R. S., & Folkman, S. (1984). Stress, appraisal, and coping. New York: Springer.
Little, L. (2001). Peer victimization of children with Asperger spectrum disorders. Journal of the American Academy of Child and Adolescent Psychiatry, 40(9), 995–996. https://doi.org/10.1097/00004583-200109000-00007.
Mercier, C., Mottron, L., & Belleville, S. (2000). A psychosocial study on restricted interests in high-functioning persons with pervasive developmental disorders. Autism, 4(4), 406–425.
Mottron, L. (2010). Que fait-on de l’intelligence autistique? = How do we take account of autistic intelligence? Enfance, 62(1), 45–57. https://doi.org/10.4074/S0013754510001059.
National Health and Medical Research Council. (2007). National statement on ethical conduct in human research. Retrieved from http://www.nhmrc.gov.au/guidelines-publications/e72. Accessed 12 May 2016.
Nguyen, S., Pertini, M., & Kettler, L. (2015). Parental cognitive appraisals and coping behaviours following child’s epilepsy diagnosis: A qualitative study. Clinical Child Psychology and Psychiatry, 20(1), 20–38. https://doi.org/10.1177/1359104513494089.
O’Haire, M. E., McKenzie, S. J., Beck, A. M., & Slaughter, V. (2015). Animals may act as social buffers: Skin conductance arousal in children with autism spectrum disorder in a social context. Developmental Psychobiology, 57(5), 584–595. https://doi.org/10.1002/dev.21310.
Park, C. L., & Folkman, S. (1997). The role of meaning in the context of stress and coping. General Review of General Psychology, 1(2), 115–144.
Pouw, L. C., Rieffe, C., Stockmann, L., & Gadow, K. D. (2013). The link between emotion regulation, social functioning, and depression in boys with ASD. Research in Autism Spectrum Disorders, 7(4), 549–556. https://doi.org/10.1016/j.rasd.2013.01.002.
Renty, J., & Roeyers, H. (2007). Individual and marital adaptation in men with autism spectrum disorder and their spouses: The role of social support and coping strategies. Journal of Autism and Developmental Disorders, 37(7), 1247–1255. https://doi.org/10.1007/s10803-006-0268-x.
Rieffe, C., Oosterveld, P., Terwogt, M. M., Mootz, S., van Leeuwen, E., & Stockmann, L. (2011). Emotion regulation and internalizing symptoms in children with autism spectrum disorders. Autism, 15(6), 655–670. https://doi.org/10.1177/1362361310366571.
Samson, A. C. (2013). Humor(lessness) elucidated—Sense of humor in individuals with autism spectrum disorders: Review and introduction. Humor: International Journal of Humor Research, 26(3), 393–409. https://doi.org/10.1515/humor-2013-0027.
Samson, A. C., & Antonelli, Y. (2013). Humor as character strength and its relation to life satisfaction and happiness in Autism Spectrum Disorders. Humor: International Journal of Humor Research, 26(3), 477–491. https://doi.org/10.1515/humor-2013-0031.
Seymour, M., Wood, C., Giallo, R., & Jellett, R. (2013). Fatigue, stress and coping in mothers of children with an autism spectrum disorder. Journal of Autism and Developmental Disorders, 43(7), 1547–1554. https://doi.org/10.1007/s10803-012-1701-y.
Singer, J. (1999). ‘Why can’t you be normal for once in your life?’ From a ‘problem with no name’ to the emergence of a new category of difference. In M. Corker & S. French (Eds.), Disability and discourse. Buckingham: Open University Press.
Smith, T. B., & Silva, L. (2011). Ethnic identity and personal well-being of people of color: A meta-analysis. Journal of Counseling Psychology, 58, 42–60. https://doi.org/10.1037/a0021528.
Spiker, M. A., Lin, C. E., Van Dyke, M., & Wood, J. J. (2012). Restricted interests and anxiety in children with autism. Autism, 16(3), 306–320. https://doi.org/10.1177/1362361311401763.
Spratt, E., Nicholas, J., Brady, K., Carpenter, L., Hatcher, C., et al. (2012). Enhanced cortisol response to stress in children in autism. Journal of Autism and Developmental Disorders, 42, 75–81.
Strauss, A., & Corbin, J. (1990). Basics of qualitative research: Grounded theory, procedures and techniques. Newbury Park, CA: SAGE.
Sullivan, P. M., & Knutson, J. F. (2000). Maltreatment and disabilities: A population-based epidemiological study. Child Abuse & Neglect, 24(10), 1257–1273. https://doi.org/10.1016/S0145-2134(00)00190-3.
Sunagawa, M. (2015). The experiences of females with autism spectrum disorders: The social adaptation process and factors which ‘veil’ their disorders. Japanese Journal of Developmental Psychology, 26(2), 87–97.
Swiatek, M. A. (2002). Social coping among gifted elementary school students. Journal for the Education of the Gifted, 26(1), 65–86.
Tajfel, H., & Turner, J.-C. (1979) An integrative theory of intergroup conflict. In S. Worchel & W. Austin (Eds.), The social psychology of intergroup relations (pp. 33–48). Pacific Grove: Brooks/Cole.
Tajfel, H., & Turner, J.-C. (1986). The social identity theory of intergroup behavior. In S. Worchel & W. Austin (Eds.), Psychology of intergroup relations (pp. 7–24). Chicago: Nelson-Hall.
Tani, P., Lindberg, N., Matto, V., et al. (2005). Higher plasma ACTH levels in adults with Asperger syndrome. Journal of Psychosomatic Research, 58(6), 533–536.
Tierney, S., Burns, J., & Kilbey, E. (2016). Looking behind the mask: Social coping strategies of girls on the autistic spectrum. Research in Autism Spectrum Disorders, 23, 73–83. https://doi.org/10.1016/j.rasd.2015.11.013.
Twachtman-Cullen, D. (2006). Communication and stress in students with autism. In M. G. Baron, J. Groden, G. Groden & L. Lipsitt (Eds.), Stress and coping in autism (pp. 302–323). New York: Oxford University Press.
Viau, R., Arsenault-Lapierre, G., Fecteau, S., Champagne, N., Walker, C.-D., & Lupien, S. (2010). Effect of service dogs on salivary cortisol secretion in autistic children. Psycho-neuroendocrinology, 35(8), 1187–1193. https://doi.org/10.1016/j.psyneuen.2010.02.004.
Winter-Messiers, M. A. (2007). From tarantulas to toilet brushes: Understanding the special interest areas of children and youth with Asperger Syndrome. Remedial and Special Education, 28(3), 140–152.
Wu, C., Tseng, L., An, C., Chen, H., Chan, Y., Shih, C., & Zhuo, S. (2014). Do individuals with autism lack a sense of humor? A study of humor comprehension, appreciation, and styles among high school students with autism. Research in Autism Spectrum Disorders, 8(10), 1386–1393. https://doi.org/10.1016/j.rasd.2014.07.006.
Zablotsky, B., Bradshaw, C. P., & Stuart, E. A. (2013). The association between mental health, stress, and coping supports in mothers of children with autism spectrum disorders. Journal of Autism and Developmental Disorders, 43(6), 1380–1393. https://doi.org/10.1007/s10803-012-1693-7.
Zautra, A. J., Sheets, V. L., & Sandler, I. N. (1996). An examination of the construct validity of coping dispositions for a sample of recently divorced mothers. Psychological Assessment, 8(3), 256–264. https://doi.org/10.1037/1040-3590.8.3.256.
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Dachez, J., Ndobo, A. Coping Strategies of Adults with High-Functioning Autism: A Qualitative Analysis. J Adult Dev 25, 86–95 (2018). https://doi.org/10.1007/s10804-017-9278-5
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DOI: https://doi.org/10.1007/s10804-017-9278-5