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Gepubliceerd in: Journal of Autism and Developmental Disorders 11/2022

19-11-2021 | Original Paper

Family Impact During the Time Between Autism Screening and Definitive Diagnosis

Auteurs: Emily J. Hickey, Emily Feinberg, Jocelyn Kuhn, Howard J. Cabral, Sarabeth Broder-Fingert

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 11/2022

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Abstract

Over the past 10 years, identification of Autism Spectrum Disorder (ASD) risk has dramatically increased due to the wide-spread implementation of screening programs; yet, there is limited understanding about parent perceptions and experiences during the time period when risk is identified, but prior to receiving a formal diagnosis—a period that can last months to years given the long wait-lists for formal ASD evaluations. The current study aimed to examine parent perceptions of family impact (i.e., the impact their child’s behaviors have on the family) between the time of risk-identification and formal diagnosis among 277 children identified as at-risk for ASD through screening positive in primary care. We aimed to compare family impact among those whose child met diagnostic criteria for ASD and those who did not. Parents of children who received a non-ASD diagnosis reported a higher baseline level of family impact (F[1, 274] = 5.82, p = .017); however, perceived difficult child behavior was a stronger predictor of family impact (t[6] = 13.11, p < .001) than later diagnostic group (t[6] = − 2.10, p = .037), and child functioning did not predict family impact (t[6] = -0.31, p = .76). These results suggest that in this population, perceived difficult child behavior is a stronger predictor of family impact than later diagnostic category and should be considered an important factor in family support.
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Metagegevens
Titel
Family Impact During the Time Between Autism Screening and Definitive Diagnosis
Auteurs
Emily J. Hickey
Emily Feinberg
Jocelyn Kuhn
Howard J. Cabral
Sarabeth Broder-Fingert
Publicatiedatum
19-11-2021
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 11/2022
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-021-05354-5

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