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Journal of Autism and Developmental Disorders
Gepubliceerd in: Journal of Autism and Developmental Disorders 8/2022

30-07-2021 | Original Paper

Validation of Autism Diagnosis and Clinical Data in the SPARK Cohort

Auteurs: Eric Fombonne, Leigh Coppola, Sarah Mastel, Brian J. O’Roak

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 8/2022

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Abstract

The SPARK cohort was established to facilitate recruitment in studies of large numbers of participants with autism spectrum disorder (ASD). Online registration requires participants to have received a lifetime professional diagnosis by health or school providers although diagnoses are not independently verified. This study was set to examine the validity of self- and caregiver-reported autism diagnoses. Electronic medical records (EMR) of 254 SPARK participants (77.6% male, age 10.7 years) were abstracted. Using two different methods, confirmation of ASD diagnosis in EMRs was obtained in 98.8% of cases. Core clinical features recorded in EMRs were typical of autism samples and showed very good agreement with SPARK cohort data, providing further evidence of the validity of clinical information in the SPARK database.
vorige artikel Model Teachers or Model Students? A Comparison of Video Modelling Interventions for Improving Reading Fluency and Comprehension in Children with Autism
volgende artikel Sitting on the Sidelines: Disparities in Social, Recreational, and Community Participation Among Adolescents with Autism Spectrum Disorder
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Metagegevens
Titel
Validation of Autism Diagnosis and Clinical Data in the SPARK Cohort
Auteurs
Eric Fombonne
Leigh Coppola
Sarah Mastel
Brian J. O’Roak
Publicatiedatum
30-07-2021
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 8/2022
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-021-05218-y

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