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Gepubliceerd in: Journal of Autism and Developmental Disorders 12/2021

17-04-2021 | S.I.: Autism in Review: 1980-2020: 40 years after DSM-III

Epidemiological surveys of ASD: advances and remaining challenges

Auteurs: Eric Fombonne, Heather MacFarlane, Alexandra C. Salem

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 12/2021

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Abstract

Recent worldwide epidemiological surveys of autism conducted in 37 countries are reviewed; the median prevalence of autism is .97% in 26 high-income countries. Methodological advances and remaining challenges in designing and executing surveys are discussed, including the effects on prevalence of variable case definitions and nosography, of reliance on parental reports only, case ascertainment through mainstream school surveys, innovative approaches to screen school samples more efficiently, and consideration of age in interpreting surveys. Directions for the future of autism epidemiology are discussed, including the need to systematically examine cross-cultural variation in phenotypic expression and developing surveillance programs.
Literatuur
go back to reference Akhter, S., Hussain, A. H. M. E., Shefa, J., Kundu, G. K., Rahman, F., & Biswas, A. (2018). Prevalence of Autism Spectrum Disorder (ASD) among the children aged months in a rural community of Bangladesh: A cross sectional study. F1000 Research, 7, 424.PubMedPubMedCentralCrossRef Akhter, S., Hussain, A. H. M. E., Shefa, J., Kundu, G. K., Rahman, F., & Biswas, A. (2018). Prevalence of Autism Spectrum Disorder (ASD) among the children aged months in a rural community of Bangladesh: A cross sectional study. F1000 Research, 7, 424.PubMedPubMedCentralCrossRef
go back to reference Al-Ansari, A. M., & Ahmed, M. M. (2013). Epidemiology of autistic disorder in Bahrain: prevalence and obstetric and familial characteristics. Eastern Mediterranean Health Journal, 19(9). Al-Ansari, A. M., & Ahmed, M. M. (2013). Epidemiology of autistic disorder in Bahrain: prevalence and obstetric and familial characteristics. Eastern Mediterranean Health Journal19(9).
go back to reference Aldosari, M., Fombonne, E., Aldhalaan, H., Ouda, M., Elhag, S., Alshammari, H., & Al Khasawneh, M. (2019). Validation of the Arabic version of the Social Communication Questionnaire. Autism, 23(7), 1655–1662.PubMedPubMedCentralCrossRef Aldosari, M., Fombonne, E., Aldhalaan, H., Ouda, M., Elhag, S., Alshammari, H., & Al Khasawneh, M. (2019). Validation of the Arabic version of the Social Communication Questionnaire. Autism, 23(7), 1655–1662.PubMedPubMedCentralCrossRef
go back to reference Al-Mamri, W., Idris, A. B., Dakak, S., Al-Shekaili, M., Al-Harthi, Z., Alnaamani, A. M., & Islam, M. M. (2019). Revisiting the prevalence of autism spectrum disorder among omani children: A multicentre study. Sultan Qaboos University Medical Journal, 19(4), e305.PubMedPubMedCentralCrossRef Al-Mamri, W., Idris, A. B., Dakak, S., Al-Shekaili, M., Al-Harthi, Z., Alnaamani, A. M., & Islam, M. M. (2019). Revisiting the prevalence of autism spectrum disorder among omani children: A multicentre study. Sultan Qaboos University Medical Journal, 19(4), e305.PubMedPubMedCentralCrossRef
go back to reference Alshaban, F., Aldosari, M., Al-Shammari, H., El-Hag, S., Ghazal, I., Tolefat, M., & Saad, A. H. (2019). Prevalence and correlates of autism spectrum disorder in Qatar: a national study. Journal of Child Psychology and Psychiatry, 60(12), 1254–1268.PubMedCrossRef Alshaban, F., Aldosari, M., Al-Shammari, H., El-Hag, S., Ghazal, I., Tolefat, M., & Saad, A. H. (2019). Prevalence and correlates of autism spectrum disorder in Qatar: a national study. Journal of Child Psychology and Psychiatry, 60(12), 1254–1268.PubMedCrossRef
go back to reference Alshaigi, K., Albraheem, R., Alsaleem, K., Zakaria, M., Jobeir, A., & Aldhalaan, H. (2020). Stigmatization among parents of autism spectrum disorder children in Riyadh, Saudi Arabia. Int J Pediatr Adolesc Med, 7(3), 140–146.PubMedCrossRef Alshaigi, K., Albraheem, R., Alsaleem, K., Zakaria, M., Jobeir, A., & Aldhalaan, H. (2020). Stigmatization among parents of autism spectrum disorder children in Riyadh, Saudi Arabia. Int J Pediatr Adolesc Med, 7(3), 140–146.PubMedCrossRef
go back to reference Arora, N. K., Nair, M. K. C., Gulati, S., Deshmukh, V., Mohapatra, A., Mishra, D., & Murthy, G. V. S. (2018). Neurodevelopmental disorders in children aged 2–9 years: Population-based burden estimates across five regions in India. PLoS medicine, 15(7), e1002615.PubMedPubMedCentralCrossRef Arora, N. K., Nair, M. K. C., Gulati, S., Deshmukh, V., Mohapatra, A., Mishra, D., & Murthy, G. V. S. (2018). Neurodevelopmental disorders in children aged 2–9 years: Population-based burden estimates across five regions in India. PLoS medicine, 15(7), e1002615.PubMedPubMedCentralCrossRef
go back to reference American Psychiatric Association (Ed.). (2000). Diagnostic and statistical manual of mental disorders: DSM-IV-TR (4th ed., text revision). Washington, DC: American Psychiatric Association. American Psychiatric Association (Ed.). (2000). Diagnostic and statistical manual of mental disorders: DSM-IV-TR (4th ed., text revision). Washington, DC: American Psychiatric Association.
go back to reference Association, A. P. (Ed.). (1994). Diagnostic and statistical manual of mental disorders. (4th ed.). American Psychiatric Association. Association, A. P. (Ed.). (1994). Diagnostic and statistical manual of mental disorders. (4th ed.). American Psychiatric Association.
go back to reference Association, A. P. (Ed.). (2013). Diagnostic and statistical manual of mental disorders: DSM-5. (5th ed.). American Psychiatric Association. Association, A. P. (Ed.). (2013). Diagnostic and statistical manual of mental disorders: DSM-5. (5th ed.). American Psychiatric Association.
go back to reference Atladottir, H. O., Gyllenberg, D., Langridge, A., Sandin, S., Hansen, S. N., Leonard, H., & Hultman, C. M. (2015). The increasing prevalence of reported diagnoses of childhood psychiatric disorders: a descriptive multinational comparison. European Child & Adolescent Psychiatry, 24(2), 173–183.CrossRef Atladottir, H. O., Gyllenberg, D., Langridge, A., Sandin, S., Hansen, S. N., Leonard, H., & Hultman, C. M. (2015). The increasing prevalence of reported diagnoses of childhood psychiatric disorders: a descriptive multinational comparison. European Child & Adolescent Psychiatry, 24(2), 173–183.CrossRef
go back to reference Bachmann, C. J., Gerste, B., & Hoffmann, F. (2018). Diagnoses of autism spectrum disorders in Germany: Time trends in administrative prevalence and diagnostic stability. Autism, 22(3), 283–290.PubMedCrossRef Bachmann, C. J., Gerste, B., & Hoffmann, F. (2018). Diagnoses of autism spectrum disorders in Germany: Time trends in administrative prevalence and diagnostic stability. Autism, 22(3), 283–290.PubMedCrossRef
go back to reference Baio, J., Wiggins, L., Christensen, D. L., Maenner, M. J., Daniels, J., Warren, Z., & Durkin, M. S. (2018). Prevalence of autism spectrum disorder among children aged 8 years—autism and developmental disabilities monitoring network, 11 sites, United States, 2014. MMWR Surveillance Summaries, 67(6), 1.PubMedCentralCrossRef Baio, J., Wiggins, L., Christensen, D. L., Maenner, M. J., Daniels, J., Warren, Z., & Durkin, M. S. (2018). Prevalence of autism spectrum disorder among children aged 8 years—autism and developmental disabilities monitoring network, 11 sites, United States, 2014. MMWR Surveillance Summaries, 67(6), 1.PubMedCentralCrossRef
go back to reference Baird, G., Simonoff, E., Pickles, A., Chandler, S., Loucas, T., Meldrum, D., & Charman, T. (2006). Prevalence of disorders of the autism spectrum in a population cohort of children in South Thames: the Special Needs and Autism Project (SNAP). The Lancet, 368(9531), 210–215.CrossRef Baird, G., Simonoff, E., Pickles, A., Chandler, S., Loucas, T., Meldrum, D., & Charman, T. (2006). Prevalence of disorders of the autism spectrum in a population cohort of children in South Thames: the Special Needs and Autism Project (SNAP). The Lancet, 368(9531), 210–215.CrossRef
go back to reference Bakian, A. V., Bilder, D. A., Carbone, P. S., Hunt, T. D., Petersen, B., & Rice, C. E. (2015). Brief report: independent validation of Autism Spectrum Disorder case status in the Utah Autism and Developmental Disabilities Monitoring (ADDM) network site. Journal of Autism and Developmental Disorders, 45(3), 873–880.PubMedPubMedCentralCrossRef Bakian, A. V., Bilder, D. A., Carbone, P. S., Hunt, T. D., Petersen, B., & Rice, C. E. (2015). Brief report: independent validation of Autism Spectrum Disorder case status in the Utah Autism and Developmental Disabilities Monitoring (ADDM) network site. Journal of Autism and Developmental Disorders, 45(3), 873–880.PubMedPubMedCentralCrossRef
go back to reference Baron-Cohen, S., Scott, F. J., Allison, C., Williams, J., Bolton, P., Matthews, F. E., & Brayne, C. (2009). Prevalence of autism-spectrum conditions: UK school-based population study. The British Journal of Psychiatry, 194(6), 500–509.PubMedCrossRef Baron-Cohen, S., Scott, F. J., Allison, C., Williams, J., Bolton, P., Matthews, F. E., & Brayne, C. (2009). Prevalence of autism-spectrum conditions: UK school-based population study. The British Journal of Psychiatry, 194(6), 500–509.PubMedCrossRef
go back to reference Bastiaansen, J. A., Meffert, H., Hein, S., Huizinga, P., Ketelaars, C., Pijnenborg, M., & De Bildt, A. (2011). Diagnosing autism spectrum disorders in adults: the use of Autism Diagnostic Observation Schedule (ADOS) module 4. Journal of Autism and Developmental Disorders, 41(9), 1256–1266.PubMedCrossRef Bastiaansen, J. A., Meffert, H., Hein, S., Huizinga, P., Ketelaars, C., Pijnenborg, M., & De Bildt, A. (2011). Diagnosing autism spectrum disorders in adults: the use of Autism Diagnostic Observation Schedule (ADOS) module 4. Journal of Autism and Developmental Disorders, 41(9), 1256–1266.PubMedCrossRef
go back to reference Berument, S. K., Rutter, M., Lord, C., Pickles, A., & Bailey, A. (1999). Autism screening questionnaire: Diagnostic validity. British Journal of Psychiatry, 175, 444–451.CrossRef Berument, S. K., Rutter, M., Lord, C., Pickles, A., & Bailey, A. (1999). Autism screening questionnaire: Diagnostic validity. British Journal of Psychiatry, 175, 444–451.CrossRef
go back to reference Boilson, A. M., Staines, A., Ramirez, A., Posada, M., & Sweeney, M. R. (2016). Operationalisation of the European Protocol for Autism Prevalence (EPAP) for autism spectrum disorder prevalence measurement in Ireland. Journal of Autism and Developmental Disorders, 46(9), 3054–3067.PubMedCrossRef Boilson, A. M., Staines, A., Ramirez, A., Posada, M., & Sweeney, M. R. (2016). Operationalisation of the European Protocol for Autism Prevalence (EPAP) for autism spectrum disorder prevalence measurement in Ireland. Journal of Autism and Developmental Disorders, 46(9), 3054–3067.PubMedCrossRef
go back to reference Bowden, N., Thabrew, H., Kokaua, J., Audas, R., Milne, B., Smiler, K., & Gibb, S. (2020). Autism spectrum disorder/Takiwātanga: An Integrated Data Infrastructure-based approach to autism spectrum disorder research in New Zealand. Autism, 24(8), 2213–2227.PubMedPubMedCentralCrossRef Bowden, N., Thabrew, H., Kokaua, J., Audas, R., Milne, B., Smiler, K., & Gibb, S. (2020). Autism spectrum disorder/Takiwātanga: An Integrated Data Infrastructure-based approach to autism spectrum disorder research in New Zealand. Autism, 24(8), 2213–2227.PubMedPubMedCentralCrossRef
go back to reference Brugha, T. S., McManus, S., Smith, J., Scott, F. J., Meltzer, H., Purdon, S., & Bankart, J. (2012). Validating two survey methods for identifying cases of autism spectrum disorder among adults in the community. Psychological medicine, 42(3), 647.PubMedCrossRef Brugha, T. S., McManus, S., Smith, J., Scott, F. J., Meltzer, H., Purdon, S., & Bankart, J. (2012). Validating two survey methods for identifying cases of autism spectrum disorder among adults in the community. Psychological medicine, 42(3), 647.PubMedCrossRef
go back to reference Brugha, T. S., Spiers, N., Bankart, J., Cooper, S. A., McManus, S., Scott, F. J., & Tyrer, F. (2016). Epidemiology of autism in adults across age groups and ability levels. The British Journal of Psychiatry, 209(6), 498–503.PubMedCrossRef Brugha, T. S., Spiers, N., Bankart, J., Cooper, S. A., McManus, S., Scott, F. J., & Tyrer, F. (2016). Epidemiology of autism in adults across age groups and ability levels. The British Journal of Psychiatry, 209(6), 498–503.PubMedCrossRef
go back to reference Carruthers, S., Kinnaird, E., Rudra, A., Smith, P., Allison, C., Auyeung, B., & Hoekstra, R. A. (2018). A cross-cultural study of autistic traits across India. Japan and the UK. Molecular autism, 9(1), 52.PubMedCrossRef Carruthers, S., Kinnaird, E., Rudra, A., Smith, P., Allison, C., Auyeung, B., & Hoekstra, R. A. (2018). A cross-cultural study of autistic traits across India. Japan and the UK. Molecular autism, 9(1), 52.PubMedCrossRef
go back to reference Cheon, K. A., Park, J. I., Koh, Y. J., Song, J., Hong, H. J., Kim, Y. K., & Paik, K. C. (2016). The social responsiveness scale in relation to DSM IV and DSM5 ASD in Korean children. Autism Research, 9(9), 970–980.PubMedPubMedCentralCrossRef Cheon, K. A., Park, J. I., Koh, Y. J., Song, J., Hong, H. J., Kim, Y. K., & Paik, K. C. (2016). The social responsiveness scale in relation to DSM IV and DSM5 ASD in Korean children. Autism Research, 9(9), 970–980.PubMedPubMedCentralCrossRef
go back to reference Chiarotti, F., & Venerosi, A. (2020). Epidemiology of autism spectrum disorders: A review of worldwide prevalence estimates since 2014. Brain Sciences, 10(5), 274.PubMedCentralCrossRef Chiarotti, F., & Venerosi, A. (2020). Epidemiology of autism spectrum disorders: A review of worldwide prevalence estimates since 2014. Brain Sciences, 10(5), 274.PubMedCentralCrossRef
go back to reference Christensen, D. L., Maenner, M. J., Bilder, D., Constantino, J. N., Daniels, J., Durkin, M. S., & Dietz, P. (2019). Prevalence and characteristics of autism spectrum disorder among children aged 4 years—early autism and developmental disabilities monitoring network, seven Sites, United States, 2010, 2012, and 2014. MMWR. Surveillance Summaries, 68(2), 1–19.PubMedCentralCrossRef Christensen, D. L., Maenner, M. J., Bilder, D., Constantino, J. N., Daniels, J., Durkin, M. S., & Dietz, P. (2019). Prevalence and characteristics of autism spectrum disorder among children aged 4 years—early autism and developmental disabilities monitoring network, seven Sites, United States, 2010, 2012, and 2014. MMWR. Surveillance Summaries, 68(2), 1–19.PubMedCentralCrossRef
go back to reference Constantino, J. N., & Gruber, C. P. (2005). Social Responsiveness Scale (SRS). Western Psychological Services. Constantino, J. N., & Gruber, C. P. (2005). Social Responsiveness Scale (SRS). Western Psychological Services.
go back to reference de Leeuw, A., Happé, F., & Hoekstra, R. A. (2020). A conceptual framework for understanding the cultural and contextual factors on autism across the globe. Autism Research, 13(7), 1029–1050.PubMedCrossRef de Leeuw, A., Happé, F., & Hoekstra, R. A. (2020). A conceptual framework for understanding the cultural and contextual factors on autism across the globe. Autism Research, 13(7), 1029–1050.PubMedCrossRef
go back to reference Dekkers, L. M., Groot, N. A., Mosquera, E. N. D., Zúniga, I. P. A., & Delfos, M. F. (2015). Prevalence of autism spectrum disorders in Ecuador: A pilot study in Quito. Journal of Autism and Developmental Disorders, 45(12), 4165–4173.PubMedPubMedCentralCrossRef Dekkers, L. M., Groot, N. A., Mosquera, E. N. D., Zúniga, I. P. A., & Delfos, M. F. (2015). Prevalence of autism spectrum disorders in Ecuador: A pilot study in Quito. Journal of Autism and Developmental Disorders, 45(12), 4165–4173.PubMedPubMedCentralCrossRef
go back to reference Delobel-Ayoub, M., Saemundsen, E., Gissler, M., Ego, A., Moilanen, I., Ebeling, H., & Roge, B. (2020). Prevalence of autism spectrum disorder in 7–9-year-old children in Denmark, Finland, France and Iceland: A population-based registries approach within the ASDEU Project. Journal of Autism and Developmental Disorders, 50(3), 949–959.PubMedCrossRef Delobel-Ayoub, M., Saemundsen, E., Gissler, M., Ego, A., Moilanen, I., Ebeling, H., & Roge, B. (2020). Prevalence of autism spectrum disorder in 7–9-year-old children in Denmark, Finland, France and Iceland: A population-based registries approach within the ASDEU Project. Journal of Autism and Developmental Disorders, 50(3), 949–959.PubMedCrossRef
go back to reference Dietz, P. M., Rose, C. E., McArthur, D., & Maenner, M. (2020). National and State Estimates of Adults with Autism Spectrum Disorder. Journal of Autism and Developmental Disorders, 1–9. Dietz, P. M., Rose, C. E., McArthur, D., & Maenner, M. (2020). National and State Estimates of Adults with Autism Spectrum Disorder. Journal of Autism and Developmental Disorders, 1–9.
go back to reference Fombonne, E. (2003). Epidemiological surveys of autism and other pervasive developmental disorders: an update. Journal of Autism and Developmental Disorders, 33(4), 365–381.PubMedCrossRef Fombonne, E. (2003). Epidemiological surveys of autism and other pervasive developmental disorders: an update. Journal of Autism and Developmental Disorders, 33(4), 365–381.PubMedCrossRef
go back to reference Fombonne, E., & Tidmarsh, L. (2003). Epidemiologic data on Asperger disorder. Child and Adolescent Psychiatric Clinics, 12(1), 15–21.CrossRef Fombonne, E., & Tidmarsh, L. (2003). Epidemiologic data on Asperger disorder. Child and Adolescent Psychiatric Clinics, 12(1), 15–21.CrossRef
go back to reference Fombonne, E., Morel, J., MacArthur, J. (2006) No autism amongst Inuits from Northern Quebec? International Meeting for Autism Research (IMFAR), Montreal, June 1–3, 2006. Fombonne, E., Morel, J., MacArthur, J. (2006) No autism amongst Inuits from Northern Quebec? International Meeting for Autism Research (IMFAR), Montreal, June 1–3, 2006.
go back to reference Fombonne, E., Marcin, C., Bruno, R., Tinoco, C. M., & Marquez, C. D. (2012). Screening for Autism in Mexico. Autism Research, 5(3), 180–189.PubMedCrossRef Fombonne, E., Marcin, C., Bruno, R., Tinoco, C. M., & Marquez, C. D. (2012). Screening for Autism in Mexico. Autism Research, 5(3), 180–189.PubMedCrossRef
go back to reference Fombonne, E., Marcin, C., Manero, A. C., Bruno, R., Diaz, C., Villalobos, M., & Nealy, B. (2016). Prevalence of autism spectrum disorders in Guanajuato, Mexico: The Leon survey. Journal of Autism and Developmental Disorders, 46(5), 1669–1685.PubMedCrossRef Fombonne, E., Marcin, C., Manero, A. C., Bruno, R., Diaz, C., Villalobos, M., & Nealy, B. (2016). Prevalence of autism spectrum disorders in Guanajuato, Mexico: The Leon survey. Journal of Autism and Developmental Disorders, 46(5), 1669–1685.PubMedCrossRef
go back to reference Fombonne, E. (2018). The rising prevalence of autism. Journal of Child Psychology and Psychiatry, 59(7), 717–720.PubMedCrossRef Fombonne, E. (2018). The rising prevalence of autism. Journal of Child Psychology and Psychiatry, 59(7), 717–720.PubMedCrossRef
go back to reference Fombonne, É. (2019). Current issues in epidemiogical studies of autism. Psicologia: teoria e prática, 21(3), 405–417. Fombonne, É. (2019). Current issues in epidemiogical studies of autism. Psicologia: teoria e prática, 21(3), 405–417.
go back to reference Fombonne, E. (2020). Camouflage and autism. Journal of Child Psychology and Psychiatry, 61(7), 735–738.CrossRefPubMed Fombonne, E. (2020). Camouflage and autism. Journal of Child Psychology and Psychiatry, 61(7), 735–738.CrossRefPubMed
go back to reference Fombonne, E., Snyder, L. G., Daniels, A., Feliciano, P., & Chung, W. (2020). Psychiatric and Medical Profiles of Autistic Adults in the SPARK Cohort. Journal of Autism and Developmental Disorders, 1–20. Fombonne, E., Snyder, L. G., Daniels, A., Feliciano, P., & Chung, W. (2020). Psychiatric and Medical Profiles of Autistic Adults in the SPARK Cohort. Journal of Autism and Developmental Disorders, 1–20.
go back to reference Fombonne, E., MacFarlane, H., Salem, A., & Zuckerman, K. (2021a). Epidemiological surveys of ASD: Current findings and new directions. In P. Sturmey & J. Matson (Eds.), Handbook of autism spectrum disorder (in press). Fombonne, E., MacFarlane, H., Salem, A., & Zuckerman, K. (2021a). Epidemiological surveys of ASD: Current findings and new directions. In P. Sturmey & J. Matson (Eds.), Handbook of autism spectrum disorder (in press).
go back to reference Fombonne, E., Morotti, H., Mastel, S., Keller, K., Barnard, R. A., Hall, T., & O’Roak, B. J. (2021b). Autism questionnaire scores do not only rise because of autism. Developmental Medicine and Child Neurology, 63(2), 235–236.PubMedCrossRef Fombonne, E., Morotti, H., Mastel, S., Keller, K., Barnard, R. A., Hall, T., & O’Roak, B. J. (2021b). Autism questionnaire scores do not only rise because of autism. Developmental Medicine and Child Neurology, 63(2), 235–236.PubMedCrossRef
go back to reference Fombonne, E., & Zuckerman, K. (2021). Clinical profiles of Black and White children referred for autism diagnosis. Journal of Autism and Developmental Disorders (in press). Fombonne, E., & Zuckerman, K. (2021). Clinical profiles of Black and White children referred for autism diagnosis. Journal of Autism and Developmental Disorders (in press).
go back to reference Fuentes, J., Basurko, A., Isasa, I., Galende, I., Muguerza, M. D., García-Primo, P., García, J., Fernández-Álvarez, C. J., Canal-Bedia, R., Posada de la Paz, M. (2021). The ASDEU autism prevalence study in northern Spain. European Child & Adolescent Psychiatry, 30(4), 579–589.CrossRef Fuentes, J., Basurko, A., Isasa, I., Galende, I., Muguerza, M. D., García-Primo, P., García, J., Fernández-Álvarez, C. J., Canal-Bedia, R., Posada de la Paz, M. (2021). The ASDEU autism prevalence study in northern Spain. European Child & Adolescent Psychiatry, 30(4), 579–589.CrossRef
go back to reference Garg, S., Green, J., Leadbitter, K., Emsley, R., Lehtonen, A., Evans, D. G., & Huson, S. M. (2013). Neurofibromatosis type 1 and autism spectrum disorder. Pediatrics, 132(6), e1642–e1648.PubMedCrossRef Garg, S., Green, J., Leadbitter, K., Emsley, R., Lehtonen, A., Evans, D. G., & Huson, S. M. (2013). Neurofibromatosis type 1 and autism spectrum disorder. Pediatrics, 132(6), e1642–e1648.PubMedCrossRef
go back to reference Grzadzinski, R., Dick, C., Lord, C., & Bishop, S. (2016). Parent-reported and clinician-observed autism spectrum disorder (ASD) symptoms in children with attention deficit/hyperactivity disorder (ADHD): implications for practice under DSM-5. Molecular Autism, 7(1), 7.PubMedPubMedCentralCrossRef Grzadzinski, R., Dick, C., Lord, C., & Bishop, S. (2016). Parent-reported and clinician-observed autism spectrum disorder (ASD) symptoms in children with attention deficit/hyperactivity disorder (ADHD): implications for practice under DSM-5. Molecular Autism, 7(1), 7.PubMedPubMedCentralCrossRef
go back to reference Hand, B. N., Angell, A. M., Harris, L., & Carpenter, L. A. (2020). Prevalence of physical and mental health conditions in Medicare-enrolled, autistic older adults. Autism, 24(3), 755–764.PubMedCrossRef Hand, B. N., Angell, A. M., Harris, L., & Carpenter, L. A. (2020). Prevalence of physical and mental health conditions in Medicare-enrolled, autistic older adults. Autism, 24(3), 755–764.PubMedCrossRef
go back to reference Havdahl, K. A., Bal, V. H., Huerta, M., Pickles, A., Øyen, A. S., Stoltenberg, C., & Bishop, S. L. (2016). Multidimensional influences on autism symptom measures: implications for use in etiological research. Journal of the American Academy of Child & Adolescent Psychiatry, 55(12), 1054–1063.CrossRef Havdahl, K. A., Bal, V. H., Huerta, M., Pickles, A., Øyen, A. S., Stoltenberg, C., & Bishop, S. L. (2016). Multidimensional influences on autism symptom measures: implications for use in etiological research. Journal of the American Academy of Child & Adolescent Psychiatry, 55(12), 1054–1063.CrossRef
go back to reference Hepburn, S. L., DiGuiseppi, C., Rosenberg, S., Kaparich, K., Robinson, C., & Miller, L. (2008). Use of a teacher nomination strategy to screen for autism spectrum disorders in general education classrooms: a pilot study. Journal of Autism and Developmental Disorders, 38(2), 373–382.PubMedCrossRef Hepburn, S. L., DiGuiseppi, C., Rosenberg, S., Kaparich, K., Robinson, C., & Miller, L. (2008). Use of a teacher nomination strategy to screen for autism spectrum disorders in general education classrooms: a pilot study. Journal of Autism and Developmental Disorders, 38(2), 373–382.PubMedCrossRef
go back to reference Hoang, V. M., Le, T. V., Chu, T. T. Q., Le, B. N., Duong, M. D., Thanh, N. M., Pham, V. T., & Bui, T. T. H. (2019). Prevalence of autism spectrum disorders and their relation to selected socio-demographic factors among children aged 18–30 months in northern Vietnam. International Journal of Mental Health Systems, 13(1), 29.PubMedPubMedCentralCrossRef Hoang, V. M., Le, T. V., Chu, T. T. Q., Le, B. N., Duong, M. D., Thanh, N. M., Pham, V. T., & Bui, T. T. H. (2019). Prevalence of autism spectrum disorders and their relation to selected socio-demographic factors among children aged 18–30 months in northern Vietnam. International Journal of Mental Health Systems, 13(1), 29.PubMedPubMedCentralCrossRef
go back to reference Hoekstra, R. A., Girma, F., Tekola, B., & Yenus, Z. (2018). Nothing about us without us: the importance of local collaboration and engagement in the global study of autism. BJPsych international, 15(2), 40–43.PubMedPubMedCentralCrossRef Hoekstra, R. A., Girma, F., Tekola, B., & Yenus, Z. (2018). Nothing about us without us: the importance of local collaboration and engagement in the global study of autism. BJPsych international, 15(2), 40–43.PubMedPubMedCentralCrossRef
go back to reference Hus, V., Bishop, S., Gotham, K., Huerta, M., & Lord, C. (2013). Factors influencing scores on the social responsiveness scale. Journal of Child Psychology and Psychiatry, 54(2), 216–224.PubMedCrossRef Hus, V., Bishop, S., Gotham, K., Huerta, M., & Lord, C. (2013). Factors influencing scores on the social responsiveness scale. Journal of Child Psychology and Psychiatry, 54(2), 216–224.PubMedCrossRef
go back to reference Idring, S., Lundberg, M., Sturm, H., Dalman, C., Gumpert, C., Rai, D., & Magnusson, C. (2015). Changes in prevalence of autism spectrum disorders in 2001–2011: findings from the Stockholm youth cohort. Journal of Autism and Developmental Disorders, 45(6), 1766–1773.PubMedCrossRef Idring, S., Lundberg, M., Sturm, H., Dalman, C., Gumpert, C., Rai, D., & Magnusson, C. (2015). Changes in prevalence of autism spectrum disorders in 2001–2011: findings from the Stockholm youth cohort. Journal of Autism and Developmental Disorders, 45(6), 1766–1773.PubMedCrossRef
go back to reference Jariwala-Parikh, K., Barnard, M., Holmes, E. R., West-Strum, D., Bentley, J. P., Banahan, B., & Khanna, R. (2019). Autism prevalence in the medicaid program and healthcare utilization and costs among adult enrollees diagnosed with autism. Administration and Policy in Mental Health and Mental Health Services Research, 46(6), 768–776.PubMedCrossRef Jariwala-Parikh, K., Barnard, M., Holmes, E. R., West-Strum, D., Bentley, J. P., Banahan, B., & Khanna, R. (2019). Autism prevalence in the medicaid program and healthcare utilization and costs among adult enrollees diagnosed with autism. Administration and Policy in Mental Health and Mental Health Services Research, 46(6), 768–776.PubMedCrossRef
go back to reference Jarquin, V. G., Wiggins, L. D., Schieve, L. A., & Van Naarden-Braun, K. (2011). Racial disparities in community identification of autism spectrum disorders over time; Metropolitan Atlanta, Georgia, 2000–2006. Journal of Developmental and Behavioral Pediatrics, 32(3), 179–187.PubMedCrossRef Jarquin, V. G., Wiggins, L. D., Schieve, L. A., & Van Naarden-Braun, K. (2011). Racial disparities in community identification of autism spectrum disorders over time; Metropolitan Atlanta, Georgia, 2000–2006. Journal of Developmental and Behavioral Pediatrics, 32(3), 179–187.PubMedCrossRef
go back to reference Jin, Z., Yang, Y., Liu, S., Huang, H., & Jin, X. (2018). Prevalence of DSM-5 autism spectrum disorder among school-based children aged 3–12 years in Shanghai, China. Journal of Autism and Developmental Disorders, 48(7), 2434–2443.PubMedCrossRef Jin, Z., Yang, Y., Liu, S., Huang, H., & Jin, X. (2018). Prevalence of DSM-5 autism spectrum disorder among school-based children aged 3–12 years in Shanghai, China. Journal of Autism and Developmental Disorders, 48(7), 2434–2443.PubMedCrossRef
go back to reference Jo, H., Schieve, L. A., Rice, C. E., Yeargin-Allsopp, M., Tian, L. H., Blumberg, S. J., Kogan, M. D., & Boyle, C. A. (2015). Age at autism spectrum disorder (asd) diagnosis by race, ethnicity, and primary household language among children with special health care needs, United States, 2009–2010. Maternal and Child Health Journal, 19(8), 1687–1697.PubMedPubMedCentralCrossRef Jo, H., Schieve, L. A., Rice, C. E., Yeargin-Allsopp, M., Tian, L. H., Blumberg, S. J., Kogan, M. D., & Boyle, C. A. (2015). Age at autism spectrum disorder (asd) diagnosis by race, ethnicity, and primary household language among children with special health care needs, United States, 2009–2010. Maternal and Child Health Journal, 19(8), 1687–1697.PubMedPubMedCentralCrossRef
go back to reference Kawamura, Y., Takahashi, O., & Ishii, T. (2008). Reevaluating the incidence of pervasive developmental disorders: impact of elevated rates of detection through implementation of an integrated system of screening in Toyota. Japan. Psychiatry and Clinical Neurosciences, 62(2), 152–159.PubMedCrossRef Kawamura, Y., Takahashi, O., & Ishii, T. (2008). Reevaluating the incidence of pervasive developmental disorders: impact of elevated rates of detection through implementation of an integrated system of screening in Toyota. Japan. Psychiatry and Clinical Neurosciences, 62(2), 152–159.PubMedCrossRef
go back to reference Kim, S. H., Kim, Y. S., Koh, Y. J., Lim, E. C., Kim, S. J., & Leventhal, B. L. (2016). Often asked but rarely answered: Can asians meet dsm-5/icd-10 autism spectrum disorder criteria? Journal of Child and Adolescent Psychopharmacology, 26(9), 835–842.PubMedPubMedCentralCrossRef Kim, S. H., Kim, Y. S., Koh, Y. J., Lim, E. C., Kim, S. J., & Leventhal, B. L. (2016). Often asked but rarely answered: Can asians meet dsm-5/icd-10 autism spectrum disorder criteria? Journal of Child and Adolescent Psychopharmacology, 26(9), 835–842.PubMedPubMedCentralCrossRef
go back to reference Kim, Y. S., Fombonne, E., Koh, Y.-J., Kim, S.-J., Cheon, K.-A., & Leventhal, B. L. (2014). A comparison of DSM-IV pervasive developmental disorder and DSM-5 autism spectrum disorder prevalence in an epidemiologic sample. Journal of the American Academy of Child and Adolescent Psychiatry, 53(5), 500–508.PubMedPubMedCentralCrossRef Kim, Y. S., Fombonne, E., Koh, Y.-J., Kim, S.-J., Cheon, K.-A., & Leventhal, B. L. (2014). A comparison of DSM-IV pervasive developmental disorder and DSM-5 autism spectrum disorder prevalence in an epidemiologic sample. Journal of the American Academy of Child and Adolescent Psychiatry, 53(5), 500–508.PubMedPubMedCentralCrossRef
go back to reference Kim, Y. S., Leventhal, B. L., Koh, Y. J., Fombonne, E., Laska, E., Lim, E. C., Cheon, K. A., Kim, S. J., Kim, Y. K., Lee, H. K., Song, D. H., & Grinker, R. R. (2011). Prevalence of autism spectrum disorder in a total population sample. American Journal of Psychiatry, 168(9), 904–912.CrossRef Kim, Y. S., Leventhal, B. L., Koh, Y. J., Fombonne, E., Laska, E., Lim, E. C., Cheon, K. A., Kim, S. J., Kim, Y. K., Lee, H. K., Song, D. H., & Grinker, R. R. (2011). Prevalence of autism spectrum disorder in a total population sample. American Journal of Psychiatry, 168(9), 904–912.CrossRef
go back to reference Kogan, M. D., Blumberg, S. J., Schieve, L. A., et al. (2009). Prevalence of parent-reported diagnosis of autism spectrum disorder among children in the US, 2007. Pediatrics, 124(5), 1395–1403.PubMedCrossRef Kogan, M. D., Blumberg, S. J., Schieve, L. A., et al. (2009). Prevalence of parent-reported diagnosis of autism spectrum disorder among children in the US, 2007. Pediatrics, 124(5), 1395–1403.PubMedCrossRef
go back to reference Kogan, M. D., Vladutiu, C. J., Schieve, L. A., Ghandour, R. M., Blumberg, S. J., Zablotsky, B., Perrin, J. M., Shattuck, P., Kuhlthau, K. A., Harwood, R. L., Lu, M. C. (2018). The prevalence of parent-reported autism spectrum disorder among us children. Pediatrics, 142(6). Kogan, M. D., Vladutiu, C. J., Schieve, L. A., Ghandour, R. M., Blumberg, S. J., Zablotsky, B., Perrin, J. M., Shattuck, P., Kuhlthau, K. A., Harwood, R. L., Lu, M. C. (2018). The prevalence of parent-reported autism spectrum disorder among us children. Pediatrics, 142(6).
go back to reference Kovess-Masfety, V., Husky, M. M., Keyes, K., Hamilton, A., Pez, O., Bitfoi, A., Carta, M. G., Goelitz, D., Kuijpers, R., Otten, R., Koç, C., Lesinskiene, S., & Mihova, Z. (2016). Comparing the prevalence of mental health problems in children 6–11 across Europe. Social Psychiatry and Psychiatric Epidemiology, 51(8), 1093–1103.PubMedPubMedCentralCrossRef Kovess-Masfety, V., Husky, M. M., Keyes, K., Hamilton, A., Pez, O., Bitfoi, A., Carta, M. G., Goelitz, D., Kuijpers, R., Otten, R., Koç, C., Lesinskiene, S., & Mihova, Z. (2016). Comparing the prevalence of mental health problems in children 6–11 across Europe. Social Psychiatry and Psychiatric Epidemiology, 51(8), 1093–1103.PubMedPubMedCentralCrossRef
go back to reference Lai, D. C., Tseng, Y. C., Hou, Y. M., & Guo, H. R. (2012). Gender and geographic differences in the prevalence of intellectual disability in children: Analysis of data from the national disability registry of Taiwan. Research in developmental disabilities, 33(6), 2301–2307.PubMedCrossRef Lai, D. C., Tseng, Y. C., Hou, Y. M., & Guo, H. R. (2012). Gender and geographic differences in the prevalence of intellectual disability in children: Analysis of data from the national disability registry of Taiwan. Research in developmental disabilities, 33(6), 2301–2307.PubMedCrossRef
go back to reference Lainhart, J. E., Bigler, E. D., Bocian, M., Coon, H., Dinh, E., Dawson, G., Deutsch, C. K., Dunn, M., Estes, A., Tager-Flusberg, H., Folstein, S., Hepburn, S., Hyman, S., McMahon, W., Minshew, N., Munson, J., Osann, K., Ozonoff, S., Rodier, P., Volkmar, F. (2006). Head circumference and height in autism: a study by the Collaborative Program of Excellence in Autism. American Journal of Medical Genetics. Part A, 140(21), 2257–2274.PubMedPubMedCentralCrossRef Lainhart, J. E., Bigler, E. D., Bocian, M., Coon, H., Dinh, E., Dawson, G., Deutsch, C. K., Dunn, M., Estes, A., Tager-Flusberg, H., Folstein, S., Hepburn, S., Hyman, S., McMahon, W., Minshew, N., Munson, J., Osann, K., Ozonoff, S., Rodier, P., Volkmar, F. (2006). Head circumference and height in autism: a study by the Collaborative Program of Excellence in Autism. American Journal of Medical Genetics. Part A, 140(21), 2257–2274.PubMedPubMedCentralCrossRef
go back to reference Loomes, R., Hull, L., & Mandy, W. P. L. (2017). What is the male-to-female ratio in autism spectrum disorder? A systematic review and meta-analysis. Journal of the American Academy of Child and Adolescent Psychiatry, 56(6), 466–474.PubMedCrossRef Loomes, R., Hull, L., & Mandy, W. P. L. (2017). What is the male-to-female ratio in autism spectrum disorder? A systematic review and meta-analysis. Journal of the American Academy of Child and Adolescent Psychiatry, 56(6), 466–474.PubMedCrossRef
go back to reference Lord, C., Petkova, E., Hus, V., Gan, W., Lu, F., Martin, D. M., Ousley, O., Guy, L., Bernier, R., Gerdts, J., Algermissen, M., Whitaker, A., Sutcliffe, J. S., Warren, Z., Klin, A., Saulnier, C., Hanson, E., Hundley, R., Piggot, J., … Risi, S. (2012). A multisite study of the clinical diagnosis of different autism spectrum disorders. Archives of General Psychiatry, 69(3), 306–313. Lord, C., Petkova, E., Hus, V., Gan, W., Lu, F., Martin, D. M., Ousley, O., Guy, L., Bernier, R., Gerdts, J., Algermissen, M., Whitaker, A., Sutcliffe, J. S., Warren, Z., Klin, A., Saulnier, C., Hanson, E., Hundley, R., Piggot, J., … Risi, S. (2012). A multisite study of the clinical diagnosis of different autism spectrum disorders. Archives of General Psychiatry, 69(3), 306–313.
go back to reference Lord, C., Rutter, M., DiLavore, P., et al. (2002). The Autism Diagnostic Observation Scale (ADOS). Western Psychological Services. Lord, C., Rutter, M., DiLavore, P., et al. (2002). The Autism Diagnostic Observation Scale (ADOS). Western Psychological Services.
go back to reference Lotter, V. (1966). Epidemiology of autistic conditions in young children : I Prevalence. Social Psychiatry, 1, 124–137.CrossRef Lotter, V. (1966). Epidemiology of autistic conditions in young children : I Prevalence. Social Psychiatry, 1, 124–137.CrossRef
go back to reference MacFarlane, H., Salem, A., Lawley, G., Presmanes Hill, A., Zuckerman, K., & Fombonne, E. (2021). Epidemiology. In E. Hollander, R. Hagerman, & D. Fein (Eds.), Autism spectrum disorders (2nd ed.). American Psychiatric Association Publishing. MacFarlane, H., Salem, A., Lawley, G., Presmanes Hill, A., Zuckerman, K., & Fombonne, E. (2021). Epidemiology. In E. Hollander, R. Hagerman, & D. Fein (Eds.), Autism spectrum disorders (2nd ed.). American Psychiatric Association Publishing.
go back to reference Maenner, M. J., Rice, C. E., Arneson, C. L., Cunniff, C., Schieve, L. A., Carpenter, L. A., Van Naarden Braun, K., Kirby, R. S., Bakian, A. V., & Durkin, M. S. (2014). Potential impact of DSM-5 criteria on autism spectrum disorder prevalence estimates. JAMA Psychiatry, 71(3), 292–300.PubMedPubMedCentralCrossRef Maenner, M. J., Rice, C. E., Arneson, C. L., Cunniff, C., Schieve, L. A., Carpenter, L. A., Van Naarden Braun, K., Kirby, R. S., Bakian, A. V., & Durkin, M. S. (2014). Potential impact of DSM-5 criteria on autism spectrum disorder prevalence estimates. JAMA Psychiatry, 71(3), 292–300.PubMedPubMedCentralCrossRef
go back to reference Maenner, M. J., Shaw, K. A., Baio, J., Washington, A., Patrick, M., DiRienzo, M., Christensen, D. L., Wiggins, L. D., Pettygrove, S., Andrews, J. G., Lopez, M., Hudson, A., Baroud, T., Schwenk, Y., White, T., Rosenberg, C. R., Lee, L. C., Harrington, R. A., Huston, M., … Dietz, P. M. (2020). Prevalence of autism spectrum disorder among children aged 8 years - autism and developmental disabilities monitoring network, 11 sites, United States, 2016. MMWR Surveillance Summary, 69(4), 1–12.CrossRef Maenner, M. J., Shaw, K. A., Baio, J., Washington, A., Patrick, M., DiRienzo, M., Christensen, D. L., Wiggins, L. D., Pettygrove, S., Andrews, J. G., Lopez, M., Hudson, A., Baroud, T., Schwenk, Y., White, T., Rosenberg, C. R., Lee, L. C., Harrington, R. A., Huston, M., … Dietz, P. M. (2020). Prevalence of autism spectrum disorder among children aged 8 years - autism and developmental disabilities monitoring network, 11 sites, United States, 2016. MMWR Surveillance Summary, 69(4), 1–12.CrossRef
go back to reference Mandell, D., & Lecavalier, L. (2014). Should we believe the Centers for Disease Control and Prevention’s autism spectrum disorder prevalence estimates? Autism, 18(5), 482–484.PubMedCrossRef Mandell, D., & Lecavalier, L. (2014). Should we believe the Centers for Disease Control and Prevention’s autism spectrum disorder prevalence estimates? Autism, 18(5), 482–484.PubMedCrossRef
go back to reference Matson, J. L., Matheis, M., Burns, C. O., Esposito, G., Venuti, P., Pisula, E., Misiak, A., Kalyva, E., Tsakiris, V., Kamio, Y., Ishitobi, M., & Goldin, R. L. (2017). Examining cross-cultural differences in autism spectrum disorder: A multinational comparison from Greece, Italy, Japan, Poland, and the United States. European Psychiatry, 42, 70–76.PubMedCrossRef Matson, J. L., Matheis, M., Burns, C. O., Esposito, G., Venuti, P., Pisula, E., Misiak, A., Kalyva, E., Tsakiris, V., Kamio, Y., Ishitobi, M., & Goldin, R. L. (2017). Examining cross-cultural differences in autism spectrum disorder: A multinational comparison from Greece, Italy, Japan, Poland, and the United States. European Psychiatry, 42, 70–76.PubMedCrossRef
go back to reference Matsuo, J., Kamio, Y., Takahashi, H., Ota, M., Teraishi, T., Hori, H., & Kunugi, H. (2015). Autistic-like traits in adult patients with mood disorders and schizophrenia. PLoS ONE, 10(4), e0122711.PubMedPubMedCentralCrossRef Matsuo, J., Kamio, Y., Takahashi, H., Ota, M., Teraishi, T., Hori, H., & Kunugi, H. (2015). Autistic-like traits in adult patients with mood disorders and schizophrenia. PLoS ONE, 10(4), e0122711.PubMedPubMedCentralCrossRef
go back to reference May, T., Brignell, A., & Williams, K. (2020). Autism spectrum disorder prevalence in children aged 12–13 years from the longitudinal study of australian children. Autism Research, 13(5), 821–827.PubMedCrossRef May, T., Brignell, A., & Williams, K. (2020). Autism spectrum disorder prevalence in children aged 12–13 years from the longitudinal study of australian children. Autism Research, 13(5), 821–827.PubMedCrossRef
go back to reference Mohammadi, M. R., Ahmadi, N., Khaleghi, A., Zarafshan, H., Mostafavi, S. A., Kamali, K., & Shakiba, A. (2019). Prevalence of Autism and its Comorbidities and the Relationship with Maternal Psychopathology: A National Population-Based Study. Archives of Iranian medicine, 22(10), 546–553.PubMed Mohammadi, M. R., Ahmadi, N., Khaleghi, A., Zarafshan, H., Mostafavi, S. A., Kamali, K., & Shakiba, A. (2019). Prevalence of Autism and its Comorbidities and the Relationship with Maternal Psychopathology: A National Population-Based Study. Archives of Iranian medicine, 22(10), 546–553.PubMed
go back to reference Montiel-Nava, C., & Peña, J. A. (2008). Epidemiological findings of pervasive developmental disorders in a Venezuelan study. Autism, 12(2), 191–202.PubMedCrossRef Montiel-Nava, C., & Peña, J. A. (2008). Epidemiological findings of pervasive developmental disorders in a Venezuelan study. Autism, 12(2), 191–202.PubMedCrossRef
go back to reference Morales-Hidalgo, P., Roigé-Castellví, J., Hernández-Martínez, C., Voltas, N., & Canals, J. (2018). Prevalence and characteristics of autism spectrum disorder among Spanish school-age children. Journal of Autism and Developmental Disorders, 48(9), 3176–3190.PubMedCrossRef Morales-Hidalgo, P., Roigé-Castellví, J., Hernández-Martínez, C., Voltas, N., & Canals, J. (2018). Prevalence and characteristics of autism spectrum disorder among Spanish school-age children. Journal of Autism and Developmental Disorders, 48(9), 3176–3190.PubMedCrossRef
go back to reference Morotti, H., Mastel, S., Keller, K., Barnard, R. A., Hall, T., O’Roak, B. J., & Fombonne, E. (2021). Autism and attention-deficit/hyperactivity disorders and symptoms in children with neurofibromatosis type 1. Developmental Medicine and Child Neurology, 63(2), 226–232.PubMedCrossRef Morotti, H., Mastel, S., Keller, K., Barnard, R. A., Hall, T., O’Roak, B. J., & Fombonne, E. (2021). Autism and attention-deficit/hyperactivity disorders and symptoms in children with neurofibromatosis type 1. Developmental Medicine and Child Neurology, 63(2), 226–232.PubMedCrossRef
go back to reference Narzisi, A., Posada, M., Barbieri, F., Chericoni, N., Ciuffolini, D., Pinzino, M., & Muratori, F. (2020). Prevalence of autism spectrum disorder in a large Italian catchment area: A school-based population study within the ASDEU project. Epidemiology and Psychiatric Sciences, 29, E5.CrossRef Narzisi, A., Posada, M., Barbieri, F., Chericoni, N., Ciuffolini, D., Pinzino, M., & Muratori, F. (2020). Prevalence of autism spectrum disorder in a large Italian catchment area: A school-based population study within the ASDEU project. Epidemiology and Psychiatric Sciences, 29, E5.CrossRef
go back to reference Ofner, M., Coles, A., Decou, M. L., Do, M., Bienek, A., Snider, J., & Ugnat, A. (2018). Autism spectrum disorder among children and youth in Canada 2018. Public Health Agency of Canada. Ofner, M., Coles, A., Decou, M. L., Do, M., Bienek, A., Snider, J., & Ugnat, A. (2018). Autism spectrum disorder among children and youth in Canada 2018. Public Health Agency of Canada.
go back to reference Oliveira, G., Ataíde, A., Marques, C., Miguel, T. S., Coutinho, A. M., Mota-Vieira, L., & Vicente, A. M. (2007). Epidemiology of autism spectrum disorder in Portugal: prevalence, clinical characterization, and medical conditions. Developmental Medicine & Child Neurology, 49(10), 726–733.CrossRef Oliveira, G., Ataíde, A., Marques, C., Miguel, T. S., Coutinho, A. M., Mota-Vieira, L., & Vicente, A. M. (2007). Epidemiology of autism spectrum disorder in Portugal: prevalence, clinical characterization, and medical conditions. Developmental Medicine & Child Neurology, 49(10), 726–733.CrossRef
go back to reference Oner, O., & Munir, K. M. (2019). Modified Checklist for Autism in Toddlers Revised (MCHAT-R/F) in an Urban Metropolitan Sample of Young Children in Turkey. Journal of Autism and Developmental Disorders, 1–8. Oner, O., & Munir, K. M. (2019). Modified Checklist for Autism in Toddlers Revised (MCHAT-R/F) in an Urban Metropolitan Sample of Young Children in Turkey. Journal of Autism and Developmental Disorders, 1–8.
go back to reference Özerk, K., & Cardinal, D. (2020). Prevalence of Autism/ASD Among Preschool and School-age Children in Norway. Contemporary School Psychology, 1–10. Özerk, K., & Cardinal, D. (2020). Prevalence of Autism/ASD Among Preschool and School-age Children in Norway. Contemporary School Psychology, 1–10.
go back to reference Pantelis, P. C., & Kennedy, D. P. (2016). Estimation of the prevalence of autism spectrum disorder in South Korea, revisited. Autism, 20(5), 517–527.PubMedCrossRef Pantelis, P. C., & Kennedy, D. P. (2016). Estimation of the prevalence of autism spectrum disorder in South Korea, revisited. Autism, 20(5), 517–527.PubMedCrossRef
go back to reference Pérez-Crespo, L., Prats-Uribe, A., Tobias, A., Duran-Tauleria, E., Coronado, R., Hervás, A., & Guxens, M. (2019). Temporal and geographical variability of prevalence and incidence of Autism Spectrum Disorder diagnoses in children in Catalonia Spain. Autism Research, 12(11), 1693–1705.PubMedPubMedCentralCrossRef Pérez-Crespo, L., Prats-Uribe, A., Tobias, A., Duran-Tauleria, E., Coronado, R., Hervás, A., & Guxens, M. (2019). Temporal and geographical variability of prevalence and incidence of Autism Spectrum Disorder diagnoses in children in Catalonia Spain. Autism Research, 12(11), 1693–1705.PubMedPubMedCentralCrossRef
go back to reference Randall, M., Sciberras, E., Brignell, A., Ihsen, E., Efron, D., Dissanayake, C., & Williams, K. (2016). Autism spectrum disorder: Presentation and prevalence in a nationally representative Australian sample. Australian & New Zealand Journal of Psychiatry, 50(3), 243–253.CrossRef Randall, M., Sciberras, E., Brignell, A., Ihsen, E., Efron, D., Dissanayake, C., & Williams, K. (2016). Autism spectrum disorder: Presentation and prevalence in a nationally representative Australian sample. Australian & New Zealand Journal of Psychiatry, 50(3), 243–253.CrossRef
go back to reference Rescorla, L., Achenbach, M., Ivanova, M., Dumenci, L., Almqvist, F., Bilenberg, N., Bird, H., Chen, W., Dobrean, A., Dopfner, M., Erol, N., Fombonne, E., Fonseca, A., Frigerio, A., Grietens, H., Hannesdottir, H., Kanbayashi, Y., Lambert, M., Larsson, B., et al. (2007). Behavioral and emotional problems reported by parents of children ages 6 to 16 in 31 societies. Journal of Emotional and Behavioral Disorders, 15(3), 130–142.CrossRef Rescorla, L., Achenbach, M., Ivanova, M., Dumenci, L., Almqvist, F., Bilenberg, N., Bird, H., Chen, W., Dobrean, A., Dopfner, M., Erol, N., Fombonne, E., Fonseca, A., Frigerio, A., Grietens, H., Hannesdottir, H., Kanbayashi, Y., Lambert, M., Larsson, B., et al. (2007). Behavioral and emotional problems reported by parents of children ages 6 to 16 in 31 societies. Journal of Emotional and Behavioral Disorders, 15(3), 130–142.CrossRef
go back to reference Rosanoff, M. J., Daniels, A. M., & Shih, A. (2015). Autism: A (key) piece of the global mental health puzzle. Global Mental Health, 2. Rosanoff, M. J., Daniels, A. M., & Shih, A. (2015). Autism: A (key) piece of the global mental health puzzle. Global Mental Health2.
go back to reference Russell, G., Rodgers, L. R., Ukoumunne, O. C., & Ford, T. (2014). Prevalence of parent-reported ASD and ADHD in the UK: findings from the Millennium Cohort Study. Journal of Autism and Developmental Disorders, 44(1), 31–40.PubMedCrossRef Russell, G., Rodgers, L. R., Ukoumunne, O. C., & Ford, T. (2014). Prevalence of parent-reported ASD and ADHD in the UK: findings from the Millennium Cohort Study. Journal of Autism and Developmental Disorders, 44(1), 31–40.PubMedCrossRef
go back to reference Rutter, M., LeCouteur, A., & Lord, C. (2003). The Autism Diagnostic Interview-Revised (ADI-R). Western Psychological Services. Rutter, M., LeCouteur, A., & Lord, C. (2003). The Autism Diagnostic Interview-Revised (ADI-R). Western Psychological Services.
go back to reference Rydzewska, E., Hughes-McCormack, L. A., Gillberg, C., et al. (2019). Age at identification, prevalence and general health of children with autism: observational study of a whole country population. British Medical Journal Open, 9(7), e025904. Rydzewska, E., Hughes-McCormack, L. A., Gillberg, C., et al. (2019). Age at identification, prevalence and general health of children with autism: observational study of a whole country population. British Medical Journal Open, 9(7), e025904.
go back to reference Segev, A., Weisskopf, M. G., Levine, H., Pinto, O., & Raz, R. (2019). Incidence time trends and socioeconomic factors in the observed incidence of autism spectrum disorder in Israel: A nationwide nested case–control study. Autism Research, 12(12), 1870–1879.PubMedPubMedCentralCrossRef Segev, A., Weisskopf, M. G., Levine, H., Pinto, O., & Raz, R. (2019). Incidence time trends and socioeconomic factors in the observed incidence of autism spectrum disorder in Israel: A nationwide nested case–control study. Autism Research, 12(12), 1870–1879.PubMedPubMedCentralCrossRef
go back to reference Sell, N. K., Giarelli, E., Blum, N., Hanlon, A. L., & Levy, S. E. (2012). A comparison of autism spectrum disorder DSM-IV criteria and associated features among African American and white children in Philadelphia County. Disability and Health Journal, 5(1), 9–17.PubMedCrossRef Sell, N. K., Giarelli, E., Blum, N., Hanlon, A. L., & Levy, S. E. (2012). A comparison of autism spectrum disorder DSM-IV criteria and associated features among African American and white children in Philadelphia County. Disability and Health Journal, 5(1), 9–17.PubMedCrossRef
go back to reference Skonieczna-Żydecka, K., Gorzkowska, I., Pierzak-Sominka, J., & Adler, G. (2017). The prevalence of autism spectrum disorders in West Pomeranian and Pomeranian regions of Poland. Journal of Applied Research in Intellectual Disabilities, 30(2), 283–289.PubMedCrossRef Skonieczna-Żydecka, K., Gorzkowska, I., Pierzak-Sominka, J., & Adler, G. (2017). The prevalence of autism spectrum disorders in West Pomeranian and Pomeranian regions of Poland. Journal of Applied Research in Intellectual Disabilities, 30(2), 283–289.PubMedCrossRef
go back to reference Sun, X., Allison, C., Wei, L., Matthews, F. E., Auyeung, B., Wu, Y. Y., & Brayne, C. (2019). Autism prevalence in China is comparable to Western prevalence. Molecular autism, 10(1), 7.PubMedPubMedCentralCrossRef Sun, X., Allison, C., Wei, L., Matthews, F. E., Auyeung, B., Wu, Y. Y., & Brayne, C. (2019). Autism prevalence in China is comparable to Western prevalence. Molecular autism, 10(1), 7.PubMedPubMedCentralCrossRef
go back to reference Thomaidis, L., Mavroeidi, N., Richardson, C., Choleva, A., Damianos, G., Bolias, K., & Tsolia, M. (2020). Autism spectrum disorders in greece: nationwide prevalence in 10–11 year-old children and regional disparities. Journal of Clinical Medicine, 9(7), 2163.PubMedCentralCrossRef Thomaidis, L., Mavroeidi, N., Richardson, C., Choleva, A., Damianos, G., Bolias, K., & Tsolia, M. (2020). Autism spectrum disorders in greece: nationwide prevalence in 10–11 year-old children and regional disparities. Journal of Clinical Medicine, 9(7), 2163.PubMedCentralCrossRef
go back to reference Turban, J. L., & van Schalkwyk, G. I. (2018). “Gender Dysphoria” and autism spectrum disorder: is the link real? Journal of the American Academy of Child and Adolescent Psychiatry, 57(1), 8–9.PubMedCrossRef Turban, J. L., & van Schalkwyk, G. I. (2018). “Gender Dysphoria” and autism spectrum disorder: is the link real? Journal of the American Academy of Child and Adolescent Psychiatry, 57(1), 8–9.PubMedCrossRef
go back to reference Valenti, M., Vagnetti, R., Masedu, F., Pino, M. C., Rossi, A., Scattoni, M. L., & EAGLE GROUP. (2019). Register-based cumulative prevalence of autism spectrum disorders during childhood and adolescence in Central Italy. Epidemiology, Biostatistics and Public Health, 16(4). Valenti, M., Vagnetti, R., Masedu, F., Pino, M. C., Rossi, A., Scattoni, M. L., & EAGLE GROUP. (2019). Register-based cumulative prevalence of autism spectrum disorders during childhood and adolescence in Central Italy. Epidemiology, Biostatistics and Public Health16(4).
go back to reference Van Balkom, I. D., Bresnahan, M., Vogtländer, M. F., van Hoeken, D., Minderaa, R. B., Susser, E., & Hoek, H. W. (2009). Prevalence of treated autism spectrum disorders in Aruba. Journal of neurodevelopmental disorders, 1(3), 197–204.PubMedPubMedCentralCrossRef Van Balkom, I. D., Bresnahan, M., Vogtländer, M. F., van Hoeken, D., Minderaa, R. B., Susser, E., & Hoek, H. W. (2009). Prevalence of treated autism spectrum disorders in Aruba. Journal of neurodevelopmental disorders, 1(3), 197–204.PubMedPubMedCentralCrossRef
go back to reference Van Naarden Braun, K., Pettygrove, S., Daniels, J., Miller, L., Nicholas, J., Baio, J., & Brocksen, S. (2007). Evaluation of a methodology for a collaborative multiple source surveillance network for autism spectrum disorders—Autism and Developmental Disabilities Monitoring Network, 14 sites, United States, 2002. MMWR, 56(SS1), 29–40.PubMed Van Naarden Braun, K., Pettygrove, S., Daniels, J., Miller, L., Nicholas, J., Baio, J., & Brocksen, S. (2007). Evaluation of a methodology for a collaborative multiple source surveillance network for autism spectrum disorders—Autism and Developmental Disabilities Monitoring Network, 14 sites, United States, 2002. MMWR, 56(SS1), 29–40.PubMed
go back to reference Volkmar, F. R., Klin, A., Siegel, B., Szatmari, P., Lord, C., Campbell, M., Freeman, B. J., Cicchetti, D. V., Rutter, M., Kline, W., et al. (1994). Field trial for autistic disorder in DSM-IV. American Journal of Psychiatry, 151(9), 1361–1367.CrossRef Volkmar, F. R., Klin, A., Siegel, B., Szatmari, P., Lord, C., Campbell, M., Freeman, B. J., Cicchetti, D. V., Rutter, M., Kline, W., et al. (1994). Field trial for autistic disorder in DSM-IV. American Journal of Psychiatry, 151(9), 1361–1367.CrossRef
go back to reference Volkmar, F. R., Shaffer, D., & First, M. (2000). PDDNOS in DSM-IV. Journal of Autism and Developmental Disorders, 30(1), 74.PubMed Volkmar, F. R., Shaffer, D., & First, M. (2000). PDDNOS in DSM-IV. Journal of Autism and Developmental Disorders, 30(1), 74.PubMed
go back to reference Wignyosumarto, S., Mukhlas, M., & Shirataki, S. (1992). Epidemiological and clinical study of autistic children in Yogyakarta, Indonesia. The Kobe Journal of Medical Sciences, 38(1), 1–19.PubMed Wignyosumarto, S., Mukhlas, M., & Shirataki, S. (1992). Epidemiological and clinical study of autistic children in Yogyakarta, Indonesia. The Kobe Journal of Medical Sciences, 38(1), 1–19.PubMed
go back to reference World Health Organization. (1992). International Statistical Classification of Diseases and Related Health Problems (10th Revision). Geneva: World Health Organization. World Health Organization. (1992). International Statistical Classification of Diseases and Related Health Problems (10th Revision). Geneva: World Health Organization.
go back to reference Xu, G., Strathearn, L., Liu, B., & Bao, W. (2018). Prevalence of autism spectrum disorder among US children and adolescents, 2014–2016. JAMA, 319(1), 81–82.PubMedPubMedCentralCrossRef Xu, G., Strathearn, L., Liu, B., & Bao, W. (2018). Prevalence of autism spectrum disorder among US children and adolescents, 2014–2016. JAMA, 319(1), 81–82.PubMedPubMedCentralCrossRef
go back to reference Yeargin-Allsopp, M., Rice, C., Karapurkar, T., Doernberg, N., Boyle, C., & Murphy, C. (2003). Prevalence of autism in a US metropolitan area. JAMA, 289(1), 49–55.PubMedCrossRef Yeargin-Allsopp, M., Rice, C., Karapurkar, T., Doernberg, N., Boyle, C., & Murphy, C. (2003). Prevalence of autism in a US metropolitan area. JAMA, 289(1), 49–55.PubMedCrossRef
go back to reference Yu, L., Stronach, S., & Harrison, A. J. (2020). Public knowledge and stigma of autism spectrum disorder: Comparing China with the United States. Autism, 24(6), 1531–1545.PubMedCrossRef Yu, L., Stronach, S., & Harrison, A. J. (2020). Public knowledge and stigma of autism spectrum disorder: Comparing China with the United States. Autism, 24(6), 1531–1545.PubMedCrossRef
go back to reference Zablotsky, B., Black, L., Maenner, M. J., Schieve, L. A., & Blumberg, S. J. (2015). Estimated prevalence of autism and other developmental disabilities following questionnaire changes in the 2014 national health interview survey. National Health Statistics Reports, 87, 1–20. Zablotsky, B., Black, L., Maenner, M. J., Schieve, L. A., & Blumberg, S. J. (2015). Estimated prevalence of autism and other developmental disabilities following questionnaire changes in the 2014 national health interview survey. National Health Statistics Reports, 87, 1–20.
go back to reference Zablotsky, B., Bramlett, M. D., & Blumberg, S. J. (2020). The co-occurrence of autism spectrum disorder in children with ADHD. Journal of Attention Disorders, 24(1), 94–103.PubMedCrossRef Zablotsky, B., Bramlett, M. D., & Blumberg, S. J. (2020). The co-occurrence of autism spectrum disorder in children with ADHD. Journal of Attention Disorders, 24(1), 94–103.PubMedCrossRef
go back to reference Zeglam, A. M., & Maouna, A. J. (2012). Prevalence of autistic spectrum disorders in Tripoli, Libya: the need for more research and planned services. Eastern Mediterranean Health Journal, 18(2). Zeglam, A. M., & Maouna, A. J. (2012). Prevalence of autistic spectrum disorders in Tripoli, Libya: the need for more research and planned services. Eastern Mediterranean Health Journal18(2).
go back to reference Zhang, J., Wheeler, J. J., & Richey, D. (2006). Cultural validity in assessment instruments for children with autism from a Chinese cultural perspective. Int J Special Education, 21(1), 109–114. Zhang, J., Wheeler, J. J., & Richey, D. (2006). Cultural validity in assessment instruments for children with autism from a Chinese cultural perspective. Int J Special Education, 21(1), 109–114.
go back to reference Zhou, H., Xu, X., Yan, W., Zou, X., Wu, L., Luo, X., Li, T., Huang, Y., Guan, H., Chen, X., Mao, M., Xia, K., Zhang, L., Li, E., Ge, X., Zhang, L., Li, C., Zhang, X., Zhou, Y., LATENT-NHC Study Team. (2020). Prevalence of autism spectrum disorder in China: A nationwide multi-center population-based study among children aged 6 to 12 years. Neuroscience Bulletin, 36(9), 961–971. Zhou, H., Xu, X., Yan, W., Zou, X., Wu, L., Luo, X., Li, T., Huang, Y., Guan, H., Chen, X., Mao, M., Xia, K., Zhang, L., Li, E., Ge, X., Zhang, L., Li, C., Zhang, X., Zhou, Y., LATENT-NHC Study Team. (2020). Prevalence of autism spectrum disorder in China: A nationwide multi-center population-based study among children aged 6 to 12 years. Neuroscience Bulletin, 36(9), 961–971.
Metagegevens
Titel
Epidemiological surveys of ASD: advances and remaining challenges
Auteurs
Eric Fombonne
Heather MacFarlane
Alexandra C. Salem
Publicatiedatum
17-04-2021
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 12/2021
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-021-05005-9

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