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Journal of Autism and Developmental Disorders

Gepubliceerd in:

10-07-2020 | Original Paper

Factors Affecting Family Compliance with Genetic Testing of Children Diagnosed with Autism Spectrum Disorder

Auteurs: Yonah Hendel, Gal Meiri, Hagit Flusser, Analya Michaelovski, Ilan Dinstein, Idan Menashe

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 4/2021

Abstract

There is broad consensus about the importance of post-diagnostic genetic testing for children with ASD. However, the extent of compliance with these tests and the factors affecting compliance have rarely been examined. We surveyed a sample of 114 families with a child with ASD in Israel, where such genetic testing is funded by the government. We found that only one-third of these families completed post-diagnosis genetic testing for their child. The main factor influencing compliance was the doctor′s recommendation (OR 11.6; 95% CI 3.2–42.4; p < 0.001). Furthermore, > 50% of the non-compliant families reported that genetic testing was irrelevant to them. Our findings highlight the importance of providing clear recommendations and explanations regarding the benefits and relevance of post-diagnosis genetic testing for children with ASD.

vorige artikel Service Use and Unmet Needs Among Adults with Autism Awaiting Home- and Community-Based Medicaid Services

volgende artikel Participation Difficulties in Autism Spectrum Disorders and Intellectual Disabilities: Findings from the 2011 Survey of Pathway to Diagnosis and Services

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Titel: Factors Affecting Family Compliance with Genetic Testing of Children Diagnosed with Autism Spectrum Disorder
Auteurs: Yonah Hendel
Gal Meiri
Hagit Flusser
Analya Michaelovski
Ilan Dinstein
Idan Menashe
Publicatiedatum: 10-07-2020
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 4/2021
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-020-04589-y

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