Skip to main content
Top
Gepubliceerd in: Journal of Autism and Developmental Disorders 12/2018

23-08-2018 | Original Paper

“They Thought It Was an Obsession”: Trajectories and Perspectives of Autistic Transgender and Gender-Diverse Adolescents

Auteurs: John F. Strang, Meredith D. Powers, Megan Knauss, Ely Sibarium, Scott F. Leibowitz, Lauren Kenworthy, Eleonora Sadikova, Shannon Wyss, Laura Willing, Reid Caplan, Noor Pervez, Joel Nowak, Dena Gohari, Veronica Gomez-Lobo, David Call, Laura G. Anthony

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 12/2018

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail

Abstract

Despite research exploring autism in gender-diverse adolescents, no studies have elicited these individuals’ perspectives. In-depth interviews with 22 well-characterized autistic gender-diverse adolescents revealed critical themes, including: recollections of pre-pubertal gender nonconformity; vivid experiences of gender dysphoria; a fear of social gender expression due to perceived animosity toward transgender people; and specific challenges that result from the interplay of gender diversity and neurodiversity. During the ~ 22 month study social gender affirmation increased in six participants and gender dysphoria attenuated in four participants. Given the ethical imperative to understand and prioritize the voiced perspectives and needs of autistic gender minority adolescents as well as the discovery of shared themes and experiences in this population, results should inform clinical research approaches and priorities.
Bijlagen
Alleen toegankelijk voor geautoriseerde gebruikers
Literatuur
go back to reference American Psychiatric Association. (2013). Diagnostic and Statistical Manual of Mental Disorders: DSM-5 (5th ed.). Washington, DC: American Psychiatric Association.CrossRef American Psychiatric Association. (2013). Diagnostic and Statistical Manual of Mental Disorders: DSM-5 (5th ed.). Washington, DC: American Psychiatric Association.CrossRef
go back to reference Bastiaansen, J. A., Meffert, H., Hein, S., Huizinga, P., Ketelaars, C., Pijnenborg, M., … De Bildt, A. (2011). Diagnosing autism spectrum disorders in adults: The use of Autism Diagnostic Observation Schedule (ADOS) module 4. Journal of Autism and Developmental Disorders, 41(9), 1256–1266.CrossRefPubMed Bastiaansen, J. A., Meffert, H., Hein, S., Huizinga, P., Ketelaars, C., Pijnenborg, M., … De Bildt, A. (2011). Diagnosing autism spectrum disorders in adults: The use of Autism Diagnostic Observation Schedule (ADOS) module 4. Journal of Autism and Developmental Disorders, 41(9), 1256–1266.CrossRefPubMed
go back to reference Bizic, M. R., Jeftovic, M., Pusica, S., Stojanovic, B., Duisin, D., Vujovic, S., … Djordjevic, M.L. (2018). Gender dysphoria: Bioethical aspects of medical treatment. BioMed Research International, 2018, 9652305.CrossRefPubMedPubMedCentral Bizic, M. R., Jeftovic, M., Pusica, S., Stojanovic, B., Duisin, D., Vujovic, S., … Djordjevic, M.L. (2018). Gender dysphoria: Bioethical aspects of medical treatment. BioMed Research International, 2018, 9652305.CrossRefPubMedPubMedCentral
go back to reference Chandler, S., Charman, T., Baird, G., Simonoff, E., Loucas, T., Meldrum, D., … Pickles, A. (2007). Validation of the Social Communication Questionnaire in a population cohort of children with autism spectrum disorders. Journal of the American Academy of Child & Adolescent Psychiatry, 46(10), 1324–1332. https://doi.org/10.1097/chi.0b013e31812f7d8d CrossRef Chandler, S., Charman, T., Baird, G., Simonoff, E., Loucas, T., Meldrum, D., … Pickles, A. (2007). Validation of the Social Communication Questionnaire in a population cohort of children with autism spectrum disorders. Journal of the American Academy of Child & Adolescent Psychiatry, 46(10), 1324–1332. https://​doi.​org/​10.​1097/​chi.​0b013e31812f7d8d​ CrossRef
go back to reference Constantino, J. (2012). Social Responsiveness Scale 2 (SRS 2). Los Angeles, CA: Western Psychological Services. Constantino, J. (2012). Social Responsiveness Scale 2 (SRS 2). Los Angeles, CA: Western Psychological Services.
go back to reference Kol, A., Golubev, F., Morgan, J. (2016). Transfixed [Motion picture]. Canada: Filmoption International. Kol, A., Golubev, F., Morgan, J. (2016). Transfixed [Motion picture]. Canada: Filmoption International.
go back to reference Lainhart, J. E., Bigler, E. D., Bocian, M., Coon, H., Dinh, E., Dawson, G., … Volkmar, F. (2006). Head circumference and height in autism: A study by the Collaborative Program of Excellence in Autism. American Journal of Medical Genetics, Part A. 140(21), 2257–2274. https://doi.org/10.1002/ajmg.a.31465 CrossRef Lainhart, J. E., Bigler, E. D., Bocian, M., Coon, H., Dinh, E., Dawson, G., … Volkmar, F. (2006). Head circumference and height in autism: A study by the Collaborative Program of Excellence in Autism. American Journal of Medical Genetics, Part A. 140(21), 2257–2274. https://​doi.​org/​10.​1002/​ajmg.​a.​31465 CrossRef
go back to reference Lee, H., Marvin, A. R., Watson, T., Piggot, J., Law, J. K., Law, P. A., … Nelson, S. F. (2010). Accuracy of phenotyping of autistic children based on internet implemented parent report. American Journal of Medical Genetics Part B: Neuropsychiatric Genetics, 153B(6), 1119–1126. https://doi.org/10.1002/ajmg.b.31103 CrossRef Lee, H., Marvin, A. R., Watson, T., Piggot, J., Law, J. K., Law, P. A., … Nelson, S. F. (2010). Accuracy of phenotyping of autistic children based on internet implemented parent report. American Journal of Medical Genetics Part B: Neuropsychiatric Genetics, 153B(6), 1119–1126. https://​doi.​org/​10.​1002/​ajmg.​b.​31103 CrossRef
go back to reference Lord, C., Risi, S., Lambrecht, L., Cook, E. H., Leventhal, B. L., DiLavore, P. C., … Rutter, M. (2000). The Autism Diagnostic Observation Schedule—Generic: A standard measure of social and communication deficits associated with the spectrum of autism. Journal of Autism and Developmental Disorders, 30(3), 205–223. https://doi.org/10.1023/A:1005592401947 CrossRefPubMed Lord, C., Risi, S., Lambrecht, L., Cook, E. H., Leventhal, B. L., DiLavore, P. C., … Rutter, M. (2000). The Autism Diagnostic Observation Schedule—Generic: A standard measure of social and communication deficits associated with the spectrum of autism. Journal of Autism and Developmental Disorders, 30(3), 205–223. https://​doi.​org/​10.​1023/​A:​1005592401947 CrossRefPubMed
go back to reference Lord, C., Rutter, M., & Couteur, A. L. (1994). Autism Diagnostic Interview-Revised: A revised version of a diagnostic interview for caregivers of individuals with possible pervasive developmental disorders. Journal of Autism and Developmental Disorders, 24(5), 659–685. https://doi.org/10.1007/BF02172145 CrossRefPubMed Lord, C., Rutter, M., & Couteur, A. L. (1994). Autism Diagnostic Interview-Revised: A revised version of a diagnostic interview for caregivers of individuals with possible pervasive developmental disorders. Journal of Autism and Developmental Disorders, 24(5), 659–685. https://​doi.​org/​10.​1007/​BF02172145 CrossRefPubMed
go back to reference Lord, C., Rutter, M., DiLavore, P., Risi, S., Gotham, K., & Bishop, S. (2012). Autism Diagnostic Observation Schedule, 2nd ed. Los Angeles: Western Psychological Corporation. Lord, C., Rutter, M., DiLavore, P., Risi, S., Gotham, K., & Bishop, S. (2012). Autism Diagnostic Observation Schedule, 2nd ed. Los Angeles: Western Psychological Corporation.
go back to reference Mesibov, G. B., Shea, V., & Schopler, E. (2004). The TEACCH approach to Autism Spectrum Disorders. New York: Springer.CrossRef Mesibov, G. B., Shea, V., & Schopler, E. (2004). The TEACCH approach to Autism Spectrum Disorders. New York: Springer.CrossRef
go back to reference Nicolaidis, C., Raymaker, D. McDonald, K., Dern, S., Boisclair, W.C., Ashkenazy, E., & Baggs, A. (2013). Comparison of healthcare experiences in autistic and non-autistic adults: A cross-sectional online survey facilitated by an academic-community partnership. Journal of General Internal Medicine. 28(6), 761–769. https://doi.org/10.1007/s11606-012-2262-7 CrossRefPubMed Nicolaidis, C., Raymaker, D. McDonald, K., Dern, S., Boisclair, W.C., Ashkenazy, E., & Baggs, A. (2013). Comparison of healthcare experiences in autistic and non-autistic adults: A cross-sectional online survey facilitated by an academic-community partnership. Journal of General Internal Medicine. 28(6), 761–769. https://​doi.​org/​10.​1007/​s11606-012-2262-7 CrossRefPubMed
go back to reference Papanikolaou, K., Paliokosta, E., Houliaras, G., Vgenopoulou, S., Giouroukou, E., Pehlivanidis, A., … Tsiantis, I. (2009). Using the Autism Diagnostic Interview-Revised and the Autism Diagnostic Observation Schedule-Generic for the diagnosis of autism spectrum disorders in a Greek sample with a wide range of intellectual abilities. Journal of Autism and Developmental Disorders, 39(3), 414–420. https://doi.org/10.1007/s10803-007-0432-y CrossRefPubMed Papanikolaou, K., Paliokosta, E., Houliaras, G., Vgenopoulou, S., Giouroukou, E., Pehlivanidis, A., … Tsiantis, I. (2009). Using the Autism Diagnostic Interview-Revised and the Autism Diagnostic Observation Schedule-Generic for the diagnosis of autism spectrum disorders in a Greek sample with a wide range of intellectual abilities. Journal of Autism and Developmental Disorders, 39(3), 414–420. https://​doi.​org/​10.​1007/​s10803-007-0432-y CrossRefPubMed
go back to reference Ritchie, J., Spencer, L., & O’Connor, W. (2003). Carrying out qualitative analysis. In Qualitative Research (Ed.), Practice: A guide for social science students and researchers. London: Sage. Ritchie, J., Spencer, L., & O’Connor, W. (2003). Carrying out qualitative analysis. In Qualitative Research (Ed.), Practice: A guide for social science students and researchers. London: Sage.
go back to reference Rutter, M., Bailey, A., & Lord, C. (2003). The Social Communication Questionnaire. Los Angeles: Western Psychological Services. Rutter, M., Bailey, A., & Lord, C. (2003). The Social Communication Questionnaire. Los Angeles: Western Psychological Services.
go back to reference van Schalkwyk, G. I., Klingensmith, K., & Volkmar, F. R (2015). Gender identity and autism spectrum disorders. The Yale Journal of Biology and Medicine. 88(1), 81–83.PubMedPubMedCentral van Schalkwyk, G. I., Klingensmith, K., & Volkmar, F. R (2015). Gender identity and autism spectrum disorders. The Yale Journal of Biology and Medicine. 88(1), 81–83.PubMedPubMedCentral
go back to reference Wechsler, D. (2003). Wechsler Intelligence Scale for Children-Fourth Edition. San Antonio, TX: Harcourt Assessment. Wechsler, D. (2003). Wechsler Intelligence Scale for Children-Fourth Edition. San Antonio, TX: Harcourt Assessment.
go back to reference Wechsler, D. (2008). Wechsler Adult Intelligence Scale-IV. San Antonio, TX: Psychological Corporation. Wechsler, D. (2008). Wechsler Adult Intelligence Scale-IV. San Antonio, TX: Psychological Corporation.
go back to reference Wechsler, D., & Zhou, X. (2011). Wechsler Abbreviated Scale of Intelligence II. New York: The Psychological Corporation, Harcourt Brace & Company. Wechsler, D., & Zhou, X. (2011). Wechsler Abbreviated Scale of Intelligence II. New York: The Psychological Corporation, Harcourt Brace & Company.
Metagegevens
Titel
“They Thought It Was an Obsession”: Trajectories and Perspectives of Autistic Transgender and Gender-Diverse Adolescents
Auteurs
John F. Strang
Meredith D. Powers
Megan Knauss
Ely Sibarium
Scott F. Leibowitz
Lauren Kenworthy
Eleonora Sadikova
Shannon Wyss
Laura Willing
Reid Caplan
Noor Pervez
Joel Nowak
Dena Gohari
Veronica Gomez-Lobo
David Call
Laura G. Anthony
Publicatiedatum
23-08-2018
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 12/2018
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-018-3723-6

Andere artikelen Uitgave 12/2018

Journal of Autism and Developmental Disorders 12/2018 Naar de uitgave