Abstract
There is limited information on outcomes for young adults with autism spectrum disorder (ASD), including achievement at college. Qualitative interviews were conducted with 18 families reporting a degree-seeking college experience for their young adult with ASD. Interview transcripts were analyzed using a grounded theory approach. Four themes surrounding success and failure at college emerged. Preparation Beyond Academics involved challenges associated with ASD, such as social, executive functioning, and mental health issues, and to what extent these had been addressed prior to leaving high school. Student/College Fit related to whether a student’s capabilities were matched to college location, size, and culture, while Campus Supports and Family Supports concerned assistance provided by colleges and families, respectively. Implications for future practice are discussed.
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References
American Psychiatric Association (2013). Diagnostic and statistical manual of mental disorders (5th edn.). Washington DC: American Psychiatric Publishing.
Anderson, K. A., Shattuck, P. T., Cooper, B. P., Roux, A. M., & Wagner, M. (2014). Prevalence and correlates of postsecondary residential status among young adults with an autism spectrum disorder. Autism: The International Journal of Research and Practice, 18(5), 562–570.
Autism and Developmental Disabilities Monitoring (ADDM) Network Surveillance Year 2012 Principal Investigators. (2016). Prevalence and characteristics of autism spectrum disorder among children aged 8 years—Autism and Developmental Disabilities Monitoring Network, 11 sites, United States, 2012. Morbidity and Mortality Weekly Report (MMWR) Surveillance Summaries/CDC, 65(3), 1–23.
Boeije, H. (2002). A purposeful approach to the constant comparative method in the analysis of qualitative interviews. Quality & Quantity, 36(4), 391–409.
Buck, T. R., Viskochil, J., Farley, M., Coon, H., McMahon, W. M., Morgan, J., & Bilder, D. A. (2014). Psychiatric comorbidity and medication use in adults with autism spectrum disorder. Journal of Autism and Developmental Disorders, 44(12), 3063–3071.
Buetow, S. (2010). Thematic analysis and its reconceptualization as ‘saliency analysis.’ Journal of Health Services Research & Policy, 15(2), 123–125.
Cai, R. Y., & Richdale, A. L. (2016). Educational experiences and needs of higher education students with autism spectrum disorder. Journal of Autism and Developmental Disorders, 46(1), 31–41.
Conley, C. S., Kirsch, A. C., Dickson, D. A., & Bryant, F. B. (2014). Negotiating the transition to college: Developmental trajectories and gender differences in psychological functioning, cognitive-affective strategies, and social well-being. Emerging Adulthood, 2(3), 195–210.
Corbin, J., & Strauss, A. (2014). Basics of qualitative research: Techniques and procedures for developing grounded theory (4th edn.). Thousand Oaks, CA: Sage Publications.
Cullen, J. A. (2015). The needs of college students with autism spectrum disorders and Asperger’s syndrome. Journal of Postsecondary Education and Disability, 28(1), 89–101.
deBettencourt, L. U. (2002). Understanding the differences between IDEA and Sect. 504. Teaching Exceptional Children, 34(3), 16–23.
Drake, E. C., Sladek, M. R., & Doane, L. D. (2016). Daily cortisol activity, loneliness, and coping efficacy in late adolescence: A longitudinal study of the transition to college. International Journal of Behavioral Development, 40(4), 334–345.
Gerhardt, P. F., & Lainer, I. (2011). Addressing the needs of adolescents and adults with autism: A crisis on the horizon. Journal of Contemporary Psychotherapy, 41(1), 37–45.
Glaser, B. G. (1965). The constant comparative method of qualitative analysis. Social Problems, 12(4), 436–445.
Hedges, S. H., Kirby, A. V., Sreckovic, M. A., Kucharczyk, S., Hume, K., & Pace, S. (2014). “Falling through the cracks”: Challenges for high school students with autism spectrum disorder. High School Journal, 98(1), 64–82.
Howard Community College. (2017). Project Access: High school transition program for students with disabilities. Retrieved from: http://www.howardcc.edu/services-support/academic-support/disability-support-services/project-access/index.html.
Individuals with Disabilities Education Act, (2012). 20 U.S.C. §§ 1400–1419.
Lincoln, Y. S., & Guba, E. G. (1985). Naturalistic inquiry. Newbury Park, CA: Sage Publications.
Retherford, K. S., & Schreiber, L. R. (2015). Camp Campus: College preparation for adolescents and young adults with high-functioning autism, Asperger syndrome, and other social communication disorders. Topics in Language Disorders, 35(4), 362–385.
Roux, A. M., Shattuck, P. T., Cooper, B. P., Anderson, K. A., Wagner, M., & Narendorf, S. C. (2013). Postsecondary employment experiences among young adults with an autism spectrum disorder. Journal of the American Academy of Child & Adolescent Psychiatry, 52(9), 931–937.
Roux, A. M., Shattuck, P. T., Rast, J. E., Rava, J. A., & Anderson, K. A. (2015). National Autism Indicators report: Transition into young adulthood. In Life course outcomes research program, Philadelphia, PA: A.J. Drexel Autism Institute, Drexel University.
Section 504 of the Rehabilitation Act, (2012). 29 U.S.C. §§ 705(20), 794.
Shattuck, P. T., Narendorf, S. C., Cooper, B., Sterzing, P. R., Wagner, M., & Taylor, J. L. (2012). Postsecondary education and employment among youth with an autism spectrum disorder. Pediatrics, 129(6), 1042–1049.
Shaver, P., Furman, W., & Buhrmester, D. (1985). Transition to college: Network changes, social skills, and loneliness. In S. Duck & D. Perlman (Eds.), Understanding personal relationships: An interdisciplinary approach (pp. 193–219). Thousand Oaks, CA: Sage Publications.
U.S. Department of Education, Office of Special Education Programs. (2007, February 1). IDEA regulations: Secondary transition. Retrieved from http://idea.ed.gov/explore/view/p/%2Croot%2Cdynamic%2CTopicalBrief%2C17%2C.
Wallace, G. L., Kenworthy, L., Pugliese, C. E., Popal, H. S., White, E. I., Brodsky, E., & Martin, A. (2016). Real-world executive functions in adults with autism spectrum disorder: Profiles of impairment and associations with adaptive functioning and co-morbid anxiety and depression. Journal of Autism and Developmental Disorders, 46(3), 1071–1083.
Wehman, P. H., Schall, C. M., McDonough, J., Kregel, J., Brooke, V., Molinelli, A., … Thiss, W. (2014). Competitive employment for youth with autism spectrum disorders: Early results from a randomized clinical trial. Journal of Autism and Developmental Disorders, 44(3), 487–500.
White, S. W., Elias, R., Salinas, C. E., Capriola, N., Conner, C. M., Asselin, S. B., … Getzel, E. E. (2016). Students with autism spectrum disorder in college: Results from a preliminary mixed methods needs analysis. Research in Developmental Disabilities, 56, 29–40.
Zirkel, P. A., & Weathers, J. M. (2016). K-12 students eligible solely under Sect. 504: Updated national incidence data. Journal on Disability Policy, 27(2), 67–75.
Acknowledgments
We would like to express our gratitude to the families who made this research possible by sharing their experiences with us. We would also like to thank Towson University, the A. J. Drexel Autism Institute, and the Organization for Autism Research (OAR) for their generous funding of this project. In addition, we would like to thank Alexis Lupfer for her contribution to data analysis during an earlier phase of the project, and Cheryl Cohen, Zosia Zaks, and Dr. Jennifer Hillman for their insightful comments on the final draft of this paper.
Author Contributions
CA conceptualized the study; conducted all interviews; performed coding and qualitative data analysis; and drafted the final manuscript. CB performed coding and qualitative data analysis and contributed to the manuscript. Both authors read and approved the final manuscript.
Funding
This study was funded by the A. J. Drexel Autism Institute (#U0022482) and the Organization for Autism Research (#5060002).
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All procedures performed in studies involving human participants were in accordance with the ethical standards of the institutional and/or national research committee and with the 1964 Helsinki declaration and its later amendments or comparable ethical standards. This article does not contain any studies with animals performed by any of the authors.
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Informed consent was obtained from all individual participants included in the study.
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Anderson, C., Butt, C. Young Adults on the Autism Spectrum at College: Successes and Stumbling Blocks. J Autism Dev Disord 47, 3029–3039 (2017). https://doi.org/10.1007/s10803-017-3218-x
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DOI: https://doi.org/10.1007/s10803-017-3218-x