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Gepubliceerd in: Journal of Autism and Developmental Disorders 11/2016

01-08-2016 | Original Paper

How Families Make Sense of Their Child’s Behaviour When on an Autism Assessment and Diagnosis Waiting List

Auteurs: Katie Denman, Cordet Smart, Rudi Dallos, Paula Levett

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 11/2016

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Abstract

Families waiting for an Autism Spectrum Condition assessment often experience difficulties explaining, or making sense of, the referred young person’s behaviour. Little is known about this sense making, or how clinicians might support this ambiguity. This paper explored finite details of how five families do ‘sense-making’ in conversations with each other, while on the waiting list for an ASC assessment. A Discursive Psychology analysis of these conversations found that sense making was affected by (1) an interactional pattern of interruptions impeding the progress of sense making narratives; (2) face saving to maintain positive identities and shared understanding; and (3) difficulties in word finding within sense making narratives. These practices challenged the production of a coherent family sense making narrative.
Voetnoten
1
Currently in the UK a number of children who had previously been given a diagnostic label of ASC without a multiple assessment approach by a multi-disciplinary team are being re-assessed in line with the NICE (2011) guidelines, if there is a query about the diagnosis by parents or professionals.
 
2
When a speaker initiates repair in their own talk to re-establish progressivity.
 
3
A topic of difficulty, characterised by repairs.
 
4
A less favourable turn, turns that are against what is expected or a turn that is contentious. These are characterised by delays and hedges in speech.
 
5
An exit device at the end of a completed turn which enables another speaker to take a turn (e.g. ‘we’ve looked up about it, haven’t we?’).
 
6
An extended silence between two speakers, at a place where a speaker could commence a turn.
 
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Metagegevens
Titel
How Families Make Sense of Their Child’s Behaviour When on an Autism Assessment and Diagnosis Waiting List
Auteurs
Katie Denman
Cordet Smart
Rudi Dallos
Paula Levett
Publicatiedatum
01-08-2016
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 11/2016
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-016-2873-7

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