Top

Journal of Autism and Developmental Disorders

Gepubliceerd in:

17-02-2016 | Original Paper

Stress in Parents of Children with Autism Spectrum Disorder: An Exploration of Demands and Resources

Auteurs: Teri M. Krakovich, John H. McGrew, Yue Yu, Lisa A. Ruble

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 6/2016

Abstract

We applied the ABCX model of stress and coping to assess the association between child and family demands, school-based resources (i.e., parent–teacher alliance and COMPASS, a consultation intervention), and two measures of parent stress: perceptions of the demands of raising a child (Child domain) and reactions to those demands (Parent domain). Data were analyzed from seventy-nine parents of children ages 3–9 with ASD participating in two randomized controlled trials of COMPASS. Stronger parent–teacher alliance correlated with decreased Parent domain stress and participation in COMPASS correlated with decreased Child domain stress after controlling for baseline stress. The study indicates that school-based resources can help reduce parent stress.

vorige artikel Experiences of Autism Spectrum Disorder and Policing in England and Wales: Surveying Police and the Autism Community

volgende artikel Autism Spectrum Disorder in the DSM-5: Diagnostic Sensitivity and Specificity in Early Childhood

Abidin, R. R., & Brunner, J. F. (1995). Development of a parenting alliance inventory. Journal of Clinical Child Psychology, 24(1), 31–40. doi:10.1207/s15374424jccp2401_4.CrossRef

Almutairi, M. (2002). Mothers of children with autism: The relationship between knowledge of autism and stress. Dissertation Abstracts International Section A, 63, 1253.

Baker-Ericzén, M. J., Brookman-Frazee, L., & Stahmer, A. (2005). Stress levels and adaptability in parents of toddlers with and without autism spectrum disorders. Research and Practice for Persons with Severe Disabilities, 30(4), 194–204. doi:10.2511/rpsd.30.4.194.CrossRef

Benson, P. R. (2010). Coping, distress, and well-being in mothers of children with autism. Research in Autism Spectrum Disorders, 4(2), 217–228.CrossRef

Benson, P. R., & Karlof, K. L. (2009). Anger, stress proliferation, and depressed mood among parents of children with ASD: A longitudinal replication. Journal of Autism and Developmental Disorders, 39(2), 350–362. doi:10.1007/s10803-008-0632-0.CrossRefPubMed

Boyd, B. A. (2002). Examining the relationship between stress and lack of social support in mothers of children with autism. Focus on Autism and Other Developmental Disabilities, 17(4), 208–215.CrossRef

Bristol, M. M. (1987). Mothers of children with autism and communication disorders: Successful adaptation and the Double ABCX model. Journal of Autism and Developmental Disorders, 17, 469–486.CrossRefPubMed

Bromley, J., Hare, D. J., Davison, K., & Emerson, E. (2004). Mothers supporting children with autistic spectrum disorders social support, mental health status and satisfaction with services. Autism, 8(4), 409–423.CrossRefPubMed

Carrow-Woolfolk, E. (1996). Oral and written language scales: Written expression scale manual. Circle Pines, MN: American Guidance Service.

Cowen, P., & Reed, D. A. (2002). Effects of respite care for children with developmental disabilities: Evaluation of an intervention for at risk families. Public Health Nursing, 19(4), 272–283. doi:10.1046/j.1525-1446.2002.19407.x.CrossRefPubMed

Dababnah, S., & Parish, S. L. (2015). Feasibility of an empirically based program for parents of preschoolers with autism spectrum disorder. Autism. doi:10.1177/1362361314568900.PubMed

Davis, N. O., & Carter, A. S. (2008). Parenting stress in mothers and fathers of toddlers with autism spectrum disorders: Associations with child characteristics. Journal of Autism and Developmental Disorders, 38(7), 1278–1291.CrossRefPubMed

Dykens, E. M., Fisher, M. H., Taylor, J. L., Lambert, W., & Miodrag, N. (2014). Reducing distress in mothers of children with autism and other disabilities: A randomized trial. Pediatrics, 134(2), e454–e463. doi:10.1542/peds.2013-3164.CrossRefPubMedPubMedCentral

Ekas, N., Lickenbrock, D., & Whitman, T. (2010). Optimism, social support, and well being in mothers of children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 40(10), 1274–1284.CrossRefPubMed

Ekas, N., & Whitman, T. L. (2010). Autism symptom topography and maternal socioemotional functioning. American Journal on Intellectual and Developmental Disabilities, 115(3), 234–249.CrossRefPubMed

Elliott, C. D. (1990). DAS administration and scoring manual. San Antonio, TX: Psychological Corporation.

Estes, A., Munson, J., Dawson, G., Koehler, E., Zhou, X.-H., & Abbott, R. (2009). Parenting stress and psychological functioning among mothers of preschool children with autism and developmental delay. Autism, 13(4), 375–387.CrossRefPubMed

Ganz, M. L. (2007). The lifetime distribution of the incremental societal costs of autism. Archives of Pediatrics and Adolescent Medicine, 161(4), 343–349.CrossRefPubMed

Harper, A., Dyches, T., Harper, J., Roper, S., & South, M. (2013). Respite care, marital quality, and stress in parents of children with autism spectrum disorders. Journal of Autism and Developmental Disorders, 43(11), 2604–2616. doi:10.1007/s10803-0131812-0.CrossRefPubMed

Hayes, S. A., & Watson, S. L. (2013). The impact of parenting stress: A meta-analysis of studies comparing the experience of parenting stress in parents of children with and without autism spectrum disorder. Journal of Autism and Developmental Disorders, 43(3), 629–642.CrossRefPubMed

Huang, C., Yen, H., Tseng, M., Tung, L., Chen, Y., & Chen, K. (2014). Impacts of autistic behaviors, emotional and behavioral problems on parenting stress in caregivers of children with autism. Journal of Autism and Developmental Disorders, 44(6), 1383–1390. doi:10.1007/s10803-013-2000-y.CrossRefPubMed

Hudock, R. (2013). Examining parenting stress in parents of children with autism spectrum disorders. Dissertation Abstracts International Section A, 74.

Ingersoll, B., & Hambrick, D. Z. (2011). The relationship between the broader autism phenotype, child severity, and stress and depression in parents of children with autism spectrum disorders. Research in Autism Spectrum Disorders, 5(1), 337–344.CrossRef

Koegel, R. L., Bimbela, A., & Schreibman, L. (1996). Collateral effects of parent training on family interactions. Journal of Autism and Developmental Disorders, 26(3), 347–359.CrossRefPubMed

Lazarus, R. S., & Folkman, S. (1984). Stress, appraisal, and coping. New York: Springer.

Lecavalier, L., Leone, S., & Wiltz, J. (2006). The impact of behaviour problems on caregiver stress in young people with autism spectrum disorders. Journal of Intellectual Disability Research, 50(3), 172–183.CrossRefPubMed

Lord, C., Rutter, M., Goode, S., Heemsbergen, J., Jordan, H., Mawhood, L., & Schopler, E. (1989). Autism diagnostic observation schedule: A standardized observation of communicative and social behavior. Journal of Autism and Developmental Disorders, 19, 185–212.CrossRefPubMed

Mandell, D. S., & Salzer, M. S. (2007). Who joins support groups among parents of children with autism? Autism, 11(2), 111–122.CrossRefPubMedPubMedCentral

Manning, M. M. (2008). The Double ABCX model of adaptation in racially diverse families with a school-age child with autism. Dissertation Abstracts International, 69, 3271.

Manning, M., Wainwright, L., & Bennett, J. (2011). The double ABCX model of adaptation in racially diverse families with a school-age child with autism. Journal of Autism and Developmental Disorders, 41, 320–331.CrossRefPubMed

Mather, K. A., Jorm, A. F., Parslow, R. A., & Christensen, H. (2011). Is telomere length a biomarker of aging? A review. The Journals of Gerontology Series A: Biological Sciences and Medical Sciences, 66(2), 202–213.CrossRef

McCubbin, H. I., & Patterson, J. M. (1983). The family stress process: The double ABCX model of adjustment and adaptation. Marriage and Family Review, 6, 7–37.CrossRef

McGrew, J. M., & Keyes, M. L. (2014). Caregiver stress during the first year after diagnosis of an autism spectrum disorder. Research in Autism Spectrum Disorders, 8(10), 1373–1385.CrossRef

McLennan, J. D., Doig, J., Rasmussen, C., Hutcheon, E., & Urichuk, L. (2012). Stress and relief: Parents attending a respite program. Journal of the Canadian Academy of Child and Adolescent Psychiatry, 21(4), 261–269.PubMedPubMedCentral

McStay, R. L., Trembath, D., & Dissanayake, C. (2014). Stress and family quality of life in parents of children with autism spectrum disorder: Parent gender and the double ABCX model. Journal of Autism and Developmental Disorders. doi:10.1007/s10803-014-2178-7.PubMed

Meadan, H., Halle, J. W., & Ebata, A. T. (2010). Families with children who have autism spectrum disorders: Stress and support. Exceptional Children, 77(1), 7–36.

Montes, G., & Halterman, J. S. (2011). White-black disparities in family-centered care among children with autism in the United States: Evidence from the NS-CSHCN 2005-2006. Academic Pediatric, 11(4), 297–304. doi:10.1016/j.acap.2011.02.002.CrossRef

Morrison, S. T. (2014). Parents of children with autism spectrum disorders: Accessed and preferred parental supports. Dissertation Abstracts International Section A, 75.

Nelson, C. A., Varcin, K. J., Coman, N. K., DeVivo, I., & Tager-Flusberg, H. (2015). Shortened telomeres in families with a propensity to autism. Journal of the American Academy of Child and Adolescent Psychiatry, 54(7), 588–594. doi:10.1016/j.jaac.2015.04.006.CrossRefPubMed

Ngui, E. M., & Flores, G. (2007). Unmet needs for specialty, dental, mental, and allied health care among children with special health care needs: Are there racial/ethnic disparities? Journal of Health Care for the Poor and Underserved, 18(4), 931–949.CrossRefPubMed

Pakenham, K. I., Samios, C., & Sofronoff, K. (2005). Adjustment in mothers of children with Asperger syndrome. Autism, 9, 191–212.CrossRefPubMed

Paynter, J., Riley, E., Beamish, W., Davies, M., & Milford, T. (2013). The Double ABCX model of family adaptation in families of a child with an autism spectrum disorder attending an Australian early intervention service. Research in Autism Spectrum Disorders, 7(10), 1183–1195. doi:10.1016/j.rasd.2013.07.006.CrossRef

Pozo, P. P., Sarriá, E. E., & Brioso, A. A. (2014). Family quality of life and psychological well being in parents of children with autism spectrum disorders: A double ABCX model. Journal of Intellectual Disability Research, 58(5), 442–458. doi:10.1111/jir.12042.CrossRefPubMed

Rao, P. A., & Beidel, D. C. (2009). The impact of children with high-functioning autism on parental stress, sibling adjustment, and family functioning. Behavior Modification, 33(4), 437–451. doi:10.1177/0145445509336427.CrossRefPubMed

Reinke, J. (2013). Families of children with autism spectrum disorder: The role of family Centered care in perceived family challenges. (Doctoral dissertation). Retrieved from ProQuest. (UMI Number 3567468).

Reynolds, C. R., & Kamphaus, R. W. (2004). Behavior assessment system for children: Second edition (BASC-2). Circle Pines, MN: American Guidance Service.

Reyns, T. (2006). Relationship of differentiation in marital satisfaction and stress among parents raising a child with autism. Dissertation Abstracts International, 66, 3957.

Rivard, M., Terroux, A., Parent-Boursier, C., & Mercier, C. (2014). Determinants of stress in parents of children with autism spectrum disorders. Journal of Autism and Developmental Disorders, 44(7), 1609–1620. doi:10.1007/s10803-013-2028-z.CrossRefPubMed

Ruble, L. A., Dalrymple, N. J., & McGrew, J. H. (2010). The effects of consultation on individualized education program outcomes for young children with autism: The collaborative model for promoting competence and success. Journal of Early Intervention, 32(4), 286–301. doi:10.1177/1053815110382973.CrossRefPubMedPubMedCentral

Ruble, L. A., Dalrymple, N. J., & McGrew, J. H. (2012). (COMPASS) (p. 273, xxvii). New York, NY: Springer Science + Business Media.

Ruble, L. A., & McGrew, J. H. (2007). Community services outcomes for families and children with autism spectrum disorders. Research in Autism Spectrum Disorders, 1(4), 360–372. doi:10.1016/j.rasd.2007.01.002.CrossRef

Ruble, L. A., & McGrew, J. H. (2015). COMPASS and implementation science: Improving outcomes of children with ASD. New York: Springer.CrossRef

Ruble, L. A., McGrew, J. H., Toland, M. D., Dalrymple, N. J., & Jung, L. A. (2013). A randomized controlled trial of COMPASS web-based and face-to-face teacher coaching in autism. Journal of Consulting and Clinical Psychology. doi:10.1037/a0032003.PubMedPubMedCentral

Sanders, J. L., & Morgan, S. B. (1997). Family stress and adjustment as perceived by parents of children with autism or down syndrome: Implications for intervention. Child and Family Behavior Therapy, 19(4), 15–32. doi:10.1300/J019v19n04_02.CrossRef

Schopler, E., Reichler, R. J., DeVellis, R. F., & Daly, K. (1980). Toward objective classification of childhood autism: Childhood Autism Rating Scale (CARS). Journal of Autism and Developmental Disorders, 10(1), 91–103.CrossRefPubMed

Smith, L., Greenberg, J., & Seltzer, M. (2012). Social support and well-being at mid-life among mothers of adolescents and adults with autism spectrum disorders. Journal of Autism and Developmental Disorders, 42, 1818–1826.CrossRefPubMedPubMedCentral

Strunk, J. A. (2010). Respite care for families of special needs children: A systematic review. Journal of Developmental and Physical Disabilities, 22(6), 615–630.CrossRef

Stuart, M., & McGrew, J. H. (2009). Caregiver burden after receiving a diagnosis of an autism spectrum disorder. Research in Autism Spectrum Disorders, 3(1), 86–97. doi:10.1016/j.rasd.2008.04.006.CrossRef

Szatmari, P., Archer, L., Fisman, S., & Streiner, D. L. (1994). Parent and teacher agreement in the assessment of pervasive developmental disorders. Journal of Autism and Developmental Disorders, 24(6), 703–717.CrossRefPubMed

Thomas, K. C., Morrissey, J. P., & McLaurin, C. (2007). Use of autism-related services by families and children. Journal of Autism and Developmental Disorders, 37(5), 818–829.CrossRefPubMed

Tomanik, S., Harris, G. E., & Hawkins, J. (2004). The relationship between behaviors exhibited by children with autism and maternal stress. Journal of Intellectual and Developmental Disability, 29(1), 16–26. doi:10.1080/13668250410001662892.CrossRef

Tonge, B., Brereton, A., Kiomall, M., MacKinnon, A., King, N., & Rinehart, N. (2006). Effects on parental mental health of an education and skills training program for parents of young children with autism: A randomized controlled trial. Journal of the American Academy of Child and Adolescent Psychiatry, 45(5), 561–569.CrossRefPubMed

Turnbull, O. H., Zois, E., Kaplan-Solms, K., & Solms, M. (2006). The developing transference in amnesia: Changes in interpersonal relationship, despite profound episodic-memory loss. Neuropsychoanalysis, 8(2), 199–204.CrossRef

Volker, M. A., Lopata, C., Smerbeck, A. M., Knoll, V. A., Thomeer, M. L., Toomey, J. A., & Rodgers, J. D. (2010). BASC-2 prs profiles for students with high-functioning autism spectrum disorders. Journal of Autism and Developmental Disorders, 40(2), 188–199. doi:10.1007/s10803-009-0849-6.CrossRefPubMed

Young, A., Ruble, L. A., & McGrew, J. H. (2009). Public vs. private insurance: Cost, use, accessibility, and outcomes of services for children with autism spectrum disorders. Research in Autism Spectrum Disorders, 3(4), 1023–1033. doi:10.1016/j.rasd.2009.06.006.CrossRef

Zablotsky, B., Bradshaw, C. P., & Stuart, E. A. (2013). The association between mental health, stress, and coping supports in mothers of children with autism spectrum disorders. Journal of Autism and Developmental Disorders, 43(6), 1380–1393. doi:10.1007/s10803-012-1693-7.CrossRefPubMed

Titel: Stress in Parents of Children with Autism Spectrum Disorder: An Exploration of Demands and Resources
Auteurs: Teri M. Krakovich
John H. McGrew
Yue Yu
Lisa A. Ruble
Publicatiedatum: 17-02-2016
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 6/2016
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-016-2728-2

Bohn Stafleu van Loghum

Deel dit onderdeel of sectie (kopieer de link)

Abstract

Log in om toegang te krijgen

Andere artikelen Uitgave 6/2016

Autism Spectrum Disorder in the DSM-5: Diagnostic Sensitivity and Specificity in Early Childhood

Dissociation of Cross-Sectional Trajectories for Verbal and Visuo-Spatial Working Memory Development in Rubinstein-Taybi Syndrome

Do Adults with High Functioning Autism or Asperger Syndrome Differ in Empathy and Emotion Recognition?

Brief Report: Early Lexical Comprehension in Young Children with ASD: Comparing Eye-Gaze Methodology and Parent Report

Infant Development in Fragile X Syndrome: Cross-Syndrome Comparisons

Widespread White Matter Differences in Children and Adolescents with Autism Spectrum Disorder