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Journal of Autism and Developmental Disorders

Gepubliceerd in:

25-01-2016 | Original Paper

Factors Influencing the Research Participation of Adults with Autism Spectrum Disorders

Auteurs: Kaaren Haas, Debra Costley, Marita Falkmer, Amanda Richdale, Kate Sofronoff, Torbjörn Falkmer

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 5/2016

Abstract

Recruiting adults with autism spectrum disorders (ASD) into research poses particular difficulties; longitudinal studies face additional challenges. This paper reports on a mixed methods study to identify factors influencing the participation in longitudinal autism research of adults with ASD, including those with an intellectual disability, and their carers. Common and differentiating factors influencing the research participation of participants are identified and discussed. Factors influencing participation were found to differ both between and within participant categories. We propose a dichotomy whereby factors influencing research participation can be classified as those arising from a participant’s values, which act as either a motivator or a deterrent; and those based on convenience, which act as either an enabler or inhibitor. These findings are applicable to research studies that seek to recruit adults with ASD as participants.

vorige artikel Do Individuals with High-Functioning Autism Who Speak a Tone Language Show Intonation Deficits?

volgende artikel Social Tools And Rules for Teens (The START Program): Program Description and Preliminary Outcomes of an Experiential Socialization Intervention for Adolescents with Autism Spectrum Disorder

Alleen toegankelijk voor geautoriseerde gebruikers

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Titel: Factors Influencing the Research Participation of Adults with Autism Spectrum Disorders
Auteurs: Kaaren Haas
Debra Costley
Marita Falkmer
Amanda Richdale
Kate Sofronoff
Torbjörn Falkmer
Publicatiedatum: 25-01-2016
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 5/2016
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-016-2708-6

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