Skip to main content
Log in

Service Delivery Experiences and Intervention Needs of Military Families with Children with ASD

  • Original Paper
  • Published:
Journal of Autism and Developmental Disorders Aims and scope Submit manuscript

Abstract

The purpose of this study was to describe the experiences of military families with children with autism spectrum disorder (ASD) specifically as it relates to relocation. Online survey methodology was used to gather information from military spouses with children with ASD. The finalized dataset included 189 cases. Descriptive statistics and frequency analyses were used to examine participant demographics and service delivery questions. Results indicated the larger sample of military spouses largely confirmed the experiences reported qualitatively in previous studies and contributed information that was previously unknown about variables associated with the access, availability, quality, and frequency of intervention services for military families with children with ASD.

This is a preview of subscription content, log in via an institution to check access.

Access this article

Price excludes VAT (USA)
Tax calculation will be finalised during checkout.

Instant access to the full article PDF.

Institutional subscriptions

Similar content being viewed by others

References

  • Aman, M. G., Lam, K. S. L., & Van Bourgondien, M. E. (2005). Medication patterns in patients with autism: Temporal, regional, and demographic influences. Journal of Child and Adolescent Psychopharmacology, 15(1), 116–126.

    Article  PubMed  Google Scholar 

  • American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorder (5th ed.). Washington, DC: American Psychiatric Association.

    Google Scholar 

  • Aronson, K. R., Caldwell, L. I., & Perkins, D. F. (2011). Assisting children and families with military-related disruptions: The United States Marine Corps school liaison program. Psychology in the Schools, 48(10), 998–1015.

    Article  Google Scholar 

  • Autism and Developmental Disabilities Monitoring Network (ADDMN) Surveillance Year 2010 Principal Investigators & Center for Disease Control and Prevention. (2014). Prevalence of autism spectrum disorder among children aged 8 years—Autism and developmental disabilities monitoring network, 11 sites, United States, 2010. MMWR Surveillance Summary, 63, 1–21.

  • Barbaro, J., & Dissanayake, C. (2009). Autism spectrum disorders in infancy and toddlerhood: A review of the evidence on early signs, early identification tools, and early diagnosis. Journal of Developmental and Behavioral Pediatrics, 30, 447–459.

    Article  PubMed  Google Scholar 

  • Blue Star Families. (2013). Military families lifestyle survey results. Retrieved from http://bluestarfam.org/Policy/Surveys.

  • Braisure, K. R., Saathoff-Wells, T., Pereira, A., MacDermid-Wadsworth, S., & Dombro, A. L. (2012). Serving military families in the 21st century. New York: Taylor & Francis Group LLC.

    Google Scholar 

  • Brookman-Frazee, L., Baker-Ericzen, M., Stadnick, N., & Taylor, R. (2012). Parent perspectives on community mental health services for children with autism spectrum disorders. Journal of Child and Family Studies, 21, 533–544.

    Article  Google Scholar 

  • Burrell, L. M., Adams, G. A., Durand, D. B., & Castro, C. A. (2006). The impact of military lifestyle demands on well-being, Army, and family outcomes. Armed Forces & Society, 33(43), 43–58.

    Article  Google Scholar 

  • Creswell, J. W. (1998). Qualitative inquiry and research design: Choosing among five traditions. Thousand Oaks, CA: Sage.

    Google Scholar 

  • Davis, J. M., & Finke, E. H. (2015). The experience of military families with children with autism spectrum disorders during relocation and separation. Journal of Autism and Developmental Disorders, 45(7), 2019–2034.

    Article  PubMed  Google Scholar 

  • Department of Defense Education Activity. (2014). School liaison officers. Retrieved from http://www.dodea.edu/Partnership/schoolLiaisonOfficers.cfm.

  • Dillman, D. A., Smyth, J. D., & Christian, L. M. (2009). Internet, mail, and mixed-mode surveys: The tailored design method (3rd ed.). Hoboken, NJ: Wiley.

    Google Scholar 

  • Drummet, A. R., Coleman, M., & Cable, S. (2003). Military families under stress: Implications for family life education. Family Relations, 52(3), 279–287.

    Article  Google Scholar 

  • Dymond, S. K., Gilson, C. L., & Myran, S. P. (2007). Services for children with autism spectrum disorders. Journal of Disability Policy Studies, 18, 133–147.

    Article  Google Scholar 

  • Farmer, J. E., Clark, M. J., Mayfield, W. A., Cheak-Zamora, N., Marvin, A. R., Law, J. K., & Law, P. A. (2014). The relationship between the medical home and unmet needs for children with autism spectrum disorders. Maternal and Child Health Journal, 18, 672–680.

    Article  PubMed  Google Scholar 

  • Goin-Kochel, R. P., Meyers, B. J., & Mackintosh, V. G. (2007). Parental reports on the use of treatments and therapies for children with autism spectrum disorders. Research in Autism Spectrum Disorders, 1, 195–209.

    Article  Google Scholar 

  • Green, V. A., Pituch, K. A., Itchon, J., Choi, A., O’Reilly, M., & Sigafoos, J. (2006). Internet survey of treatments used by parents of children with autism. Research in Developmental Disorders, 27, 70–84.

    Article  Google Scholar 

  • Health Program Analysis and Evaluation Division. (n.d.). HCSDB issue brief: Experiences of children with special health care needs in TRICARE. Retrieved from: http://www.tricare.mil/survey/hcsurvey/childIssueBriefJan27_rev.pdf.

  • Howlin, P., Mawhoodd, L., & Rutter, M. (2000). Autism and developmental receptive language disorder: A follow-up comparison of early adult life 2: Social, behavioral, and psychiatric outcomes. Journal of Child Psychology and Psychiatry, 41(5), 561–578.

    Article  PubMed  Google Scholar 

  • Huebner, A., Alidoosti, M., Brickel, M., & Wade, K. (2010). Military family needs assessment: Final report. Retrieved from http://militaryfamilies.extension.org/wp-content/uploads/2011/04/MFNA_2010_Report.pdf.

  • Huffman, L. C., Sutcliffe, T. L., Tanner, I. S. D., & Feldman, H. M. (2011). Management of symptoms in children with autism spectrum disorders: A comprehensive review of pharmacologic and complementary-alternative medicine treatments. Journal of Developmental and Behavioral Pediatrics, 32, 56–68.

    Article  PubMed  Google Scholar 

  • Jagger, J. C., & Lederer, S. (2014). Impact of geographic mobility on military children’s access to special education services. Children & Schools, 36(1), 15–22.

    Article  Google Scholar 

  • Jelleyman, T., & Spencer, N. (2008). Residential mobility in childhood and health outcomes: A systematic review. Journal of Epidemiology and Community Health, 62(7), 584–592.

    Article  PubMed  Google Scholar 

  • Kohler, F. W. (1999). Examining the services received by young children with autism and their families: A survey of parent responses. Focus on Autism and Other Developmental Disabilities, 14(3), 150–158.

    Article  Google Scholar 

  • Little, L. (2003). Maternal perceptions of the importance of needs and resources for children with Asperger syndrome and nonverbal learning disorders. Focus on Autism and Other Developmental Disabilities, 18(4), 257–266.

    Article  Google Scholar 

  • Macdermid-Wadsworth, S. (2013). Understanding and supporting the resilience of a new generation of combat-exposed military families and their children. Clinical Child and Family Psychology Review, 16, 415–420.

    Article  Google Scholar 

  • Mackintosh, V. H., Goin-Kochel, R. P., & Meyers, B. J. (2012). “What do you like/dislike about the treatments you’re currently using?” A qualitative study of parents of children with autism spectrum disorders. Focus on Autism and Other Developmental Disabilities, 27, 51–60.

    Article  Google Scholar 

  • Matson, J. L., Dempsey, J., & LoVullo, S. V. (2009). Characteristics of social skills for adults with intellectual disability, autism, and PDD-NOS. Research in Autism Spectrum Disorders, 3, 207–213.

    Article  Google Scholar 

  • Military Community and Family Policy. (2013). 2013 Demographics Profile of the Military Community. Office of the Deputy Assistant Secretary of the Defense. Retrieved from: http://www.militaryonesource.mil/12038/MOS/Reports/2013-Demographics-Report.pdf.

  • Military Interstate Children’s Compact Commission (MICCC). (2011). Interstate compact on educational opportunity for Military Children Act. Retrieved from http://mic3.net/.

  • Military Interstate Children’s Compact Commission (MICCC). (2015). Interstate compact on educational opportunity for Military Children Act. Retrieved from http://mic3.net/.

  • Montes, G., Halterman, J. S., & Magyar, C. I. (2009). Access to and satisfaction with school and community health services for US children with ASD. Pediatrics, 124, 407–413.

    Article  Google Scholar 

  • Murphy, M. A., & Ruble, L. A. (2012). A comparative study of rurality and urbanicity on access to and satisfaction with services for children with autism spectrum disorders. Rural Special Education Quarterly, 31(3), 3–11.

    Google Scholar 

  • National Autism Center. (2015). Findings and conclusions: National standards project, addressing the need for evidence-based practice guidelines for autism spectrum disorders phase 2. Retrieved from http://www.nationalautismcenter.org/reports/.

  • National Council on Disability (NCD). (2011). United States Marine Corps exceptional family members: How to improve access to health care, special education, and long-term supports and services for family members with disabilities. Retrieved from http://www.ncd.gov/publications/2011/Nov282011.

  • Ohio State University Project Team. (2011a, December 11). Education services for military dependent children with autism: Final project report submitted to the Department of Defense, Deputy Under Secretary of Defense, Military Community and Family Policy. Retrieved from http://download.militaryonesource.mil/12038/MOS/EFMP/DOD-ASD-Final-Report.pdf.

  • Ohio State University Project Team, (2011b, January 6). Education services for military dependent children with autism: Phase 2: Final project report submitted to the Department of Defense, Deputy Assistant Secretary of Defense, Military Community and Family Policy. Retrieved from http://download.militaryonesource.mil/12038/MOS/EFMP/DOD_ASD_Final_Report_PhaseII.pdf.

  • Organization for Autism Research & Southwest Autism Research and Resource Center. (2010). Life journey through autism: A guide for military families. Retrieved from http://www.mccslejeune.com/efmp/LifeJourneyThroughAutism.pdf.

  • Parsons, S., Lewis, A., & Ellins, J. (2009). The views and experiences of parents of children with autism spectrum disorder about educational provision: Comparisons with parents of children with other disabilities from an online survey. European Journal of Special Needs Education, 24(1), 37–58.

    Article  Google Scholar 

  • Plucker, J. A., & Yecke, C. P. (1999). The effect of relocation on gifted students. Gifted Child Quarterly, 43(2), 95–106.

    Article  Google Scholar 

  • Rea, L. M., & Parker, R. A. (2005). Designing & conducting survey research: A comprehensive guide. San Francisco, CA: Jossey-Bass.

    Google Scholar 

  • Renty, J., & Roeyers, H. (2006). Satisfaction with formal support and education for children with autism spectrum disorder: The voices of the parents. Child: Care, Health and Development, 32(3), 371–385.

    Google Scholar 

  • Rogers, S. J., & Ozonoff, S. (2005). Annotation: What do we know about sensory dysfunction in autism? A critical review of the empirical evidence. Journal of Child Psychology and Psychiatry, 46(12), 1255–1268.

    Article  PubMed  Google Scholar 

  • Segal, M. (1986). The military and the family as greedy institutions. Armed Forces and Society, 13(1), 9–38.

    Article  Google Scholar 

  • Seltzer, M. M., Krauss, M. W., Shattuck, P. T., Orsmond, G., Swe, A., & Lord, C. (2003). The symptoms of autism spectrum disorders in adolescence and adulthood. Journal of Autism and Developmental Disorders, 33(6), 565–581.

    Article  PubMed  Google Scholar 

  • Sperry, L. A., Whaley, K. T., Shaw, E., & Brame, K. (1999). Services for young children with autism spectrum disorder: Voices of parents and providers. Infants and Young Children, 11(4), 17–33.

    Article  Google Scholar 

  • Stoner, J. B., Bock, S. J., Thompson, J. R., Angell, M. E., Heyl, B., & Crowley, E. P. (2005). Welcome to our world: Parent perspectives of interactions between parents of young children with ASD and education professionals. Focus on Autism and Other Developmental Disabilities, 20, 39–51.

    Article  Google Scholar 

  • Tregnago, M. K., & Cheak-Zamora, N. C. (2012). Systematic review of disparities in health care for individuals with autism spectrum disorders in the United States. Researach in Autism Spectrum Disorders, 6, 1023–1031.

    Article  Google Scholar 

  • Van Selm, M., & Jankowski, N. W. (2006). Conducting online surveys. Quality & Quantity, 40, 435–456.

    Article  Google Scholar 

  • Vohra, R., Madhaven, S., Sambamoorthi, U., & St Peter, C. (2014). Access to services, quality of care, and family impact for children with autism, other developmental disabilities, and other mental health conditions. Autism, 18(7), 815–826.

    Article  PubMed  Google Scholar 

Download references

Acknowledgments

We would like to thank all of the families who graciously gave their time to participate in the survey and the groups and families who helped forward our recruiting message. Additionally, we would like to thank colleagues, friends, and family who offered guidance and support through the duration of this project. Thank you for your help and support.

Author Contributions

JD conceived of the study, participated in its design and coordination, data collection, data analysis, and drafted the manuscript; EF participated in the design, data analysis, and manuscript revisions; BH participated in the design, statistical data analysis, and manuscript revisions. All authors read and approved the final manuscript.

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to Jennifer M. Davis.

Rights and permissions

Reprints and permissions

About this article

Check for updates. Verify currency and authenticity via CrossMark

Cite this article

Davis, J.M., Finke, E. & Hickerson, B. Service Delivery Experiences and Intervention Needs of Military Families with Children with ASD. J Autism Dev Disord 46, 1748–1761 (2016). https://doi.org/10.1007/s10803-016-2706-8

Download citation

  • Published:

  • Issue Date:

  • DOI: https://doi.org/10.1007/s10803-016-2706-8

Keywords

Navigation