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Journal of Autism and Developmental Disorders

Gepubliceerd in:

25-04-2015 | Original Paper

Psychological Well-Being of Mothers and Siblings in Families of Girls and Women with Rett Syndrome

Auteurs: Rina Cianfaglione, Richard P. Hastings, David Felce, Angus Clarke, Michael P. Kerr

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 9/2015

Abstract

Few published studies have reported on the psychological well-being of family members of individuals with Rett syndrome (RTT). Eighty-seven mothers of girls and women with RTT completed a questionnaire survey about their daughters’ behavioral phenotype, current health, and behavior problems, and their own and a sibling’s well-being. Mothers reported increased anxiety but similar levels of depression when compared to a normative sample. Across all problem domains on the Strengths and Difficulties Questionnaire, child and adolescent siblings (n = 39) were reported by mothers to have fewer difficulties than a normative sample. The severity of their daughters’ RTT behavioral phenotype predicted increased anxiety and stress for mothers. Increased RTT daughters’ current health problems predicted more maternal perceptions of positive gain.

vorige artikel Poverty and the Growth of Emotional and Conduct Problems in Children with Autism With and Without Comorbid ADHD

volgende artikel Investigation of Individual Factors Associated with Anxiety in Youth with Autism Spectrum Disorders

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Titel: Psychological Well-Being of Mothers and Siblings in Families of Girls and Women with Rett Syndrome
Auteurs: Rina Cianfaglione
Richard P. Hastings
David Felce
Angus Clarke
Michael P. Kerr
Publicatiedatum: 25-04-2015
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 9/2015
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-015-2457-y

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