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Gepubliceerd in: Journal of Autism and Developmental Disorders 3/2015

01-03-2015 | Brief Report

Brief Report: Independent Validation of Autism Spectrum Disorder Case Status in the Utah Autism and Developmental Disabilities Monitoring (ADDM) Network Site

Auteurs: Amanda V. Bakian, Deborah A. Bilder, Paul S. Carbone, Tyler D. Hunt, Brent Petersen, Catherine E. Rice

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 3/2015

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Abstract

An independent validation was conducted of the Utah Autism and Developmental Disabilities Monitoring Network’s (UT-ADDM) classification of children with autism spectrum disorder (ASD). UT-ADDM final case status (n = 90) was compared with final case status as determined by independent external expert reviewers (EERs). Inter-rater reliability (ICC = 0.84), specificity [0.83 (95 % CI 0.74–0.90)], and sensitivity [0.99 (95 % CI 0.96–1.00)] were high for ASD case versus non-case classification between UT-ADDM and EER. At least one EER disagreed with UT-ADDM on ASD final case status on nine out of 30 records; however, all three EERs disagreed with UT-ADDM for only one record. Findings based on limited data suggest that children with ASD as identified by UT-ADDM are consistently classified as ASD cases by independent autism experts.
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Literatuur
go back to reference American Psychiatric Association. (2000). Diagnostic criteria from DSM-IV-TR. Washington, DC: American Psychiatric Association. American Psychiatric Association. (2000). Diagnostic criteria from DSM-IV-TR. Washington, DC: American Psychiatric Association.
go back to reference American Psychiatric Association. (2013). Diagnostic criteria from DSM-5. Washington, DC: American Psychiatric Association. American Psychiatric Association. (2013). Diagnostic criteria from DSM-5. Washington, DC: American Psychiatric Association.
go back to reference Avchen, R. N., Wiggins, L. D., Devine, O., Van Naarden Braun, K., Rice, C., Hobson, N. C., et al. (2011). Evaluation of a records-review surveillance system used to determine the prevalence of autism spectrum disorders. Journal of Autism and Developmental Disorders, 41(2), 227–236.CrossRefPubMed Avchen, R. N., Wiggins, L. D., Devine, O., Van Naarden Braun, K., Rice, C., Hobson, N. C., et al. (2011). Evaluation of a records-review surveillance system used to determine the prevalence of autism spectrum disorders. Journal of Autism and Developmental Disorders, 41(2), 227–236.CrossRefPubMed
go back to reference Bishop, D. V., Whitehouse, A. J., Watt, H. J., & Line, E. A. (2008). Autism and diagnostic substitution: Evidence from a study of adults with a history of developmental language disorder. Developmental Medicine and Child Neurology, 50(5), 341–345.CrossRefPubMed Bishop, D. V., Whitehouse, A. J., Watt, H. J., & Line, E. A. (2008). Autism and diagnostic substitution: Evidence from a study of adults with a history of developmental language disorder. Developmental Medicine and Child Neurology, 50(5), 341–345.CrossRefPubMed
go back to reference Centers for Disease Control and Prevention. (2007a). Prevalence of autism spectrum disorders: Autism and Developmental Disabilities Monitoring Network, six sites, United States, 2000. MMWR Surveillance Summaries, 56(1), 1–11. Centers for Disease Control and Prevention. (2007a). Prevalence of autism spectrum disorders: Autism and Developmental Disabilities Monitoring Network, six sites, United States, 2000. MMWR Surveillance Summaries, 56(1), 1–11.
go back to reference Centers for Disease Control and Prevention. (2007b). Prevalence of autism spectrum disorders: Autism and Developmental Disabilities Monitoring Network, 14 sites, United States, 2002. MMWR Surveillance Summaries, 56(1), 12–28. Centers for Disease Control and Prevention. (2007b). Prevalence of autism spectrum disorders: Autism and Developmental Disabilities Monitoring Network, 14 sites, United States, 2002. MMWR Surveillance Summaries, 56(1), 12–28.
go back to reference Centers for Disease Control and Prevention. (2009). Prevalence of autism spectrum disorders: Autism and Developmental Disabilities Monitoring Network, United States, 2006. MMWR Surveillance Summaries, 58(10), 1–20. Centers for Disease Control and Prevention. (2009). Prevalence of autism spectrum disorders: Autism and Developmental Disabilities Monitoring Network, United States, 2006. MMWR Surveillance Summaries, 58(10), 1–20.
go back to reference Centers for Disease Control and Prevention. (2012). Prevalence of autism spectrum disorders: Autism and Developmental Disabilities Monitoring Network, 14 sites, United States, 2008. MMWR Surveillance Summaries, 61(3), 1–21. Centers for Disease Control and Prevention. (2012). Prevalence of autism spectrum disorders: Autism and Developmental Disabilities Monitoring Network, 14 sites, United States, 2008. MMWR Surveillance Summaries, 61(3), 1–21.
go back to reference Centers for Disease Control and Prevention. (2014). Prevalence of autism spectrum disorders among children aged 8 years: Autism and Developmental Disabilities Monitoring Network, 11 sites, United States, 2010. MMWR Surveillance Summaries, 63(2), 1–19. Centers for Disease Control and Prevention. (2014). Prevalence of autism spectrum disorders among children aged 8 years: Autism and Developmental Disabilities Monitoring Network, 11 sites, United States, 2010. MMWR Surveillance Summaries, 63(2), 1–19.
go back to reference Fombonne, E. (2009). Epidemiology of pervasive developmental disorders. Pediatric Research, 65(6), 591–598.CrossRefPubMed Fombonne, E. (2009). Epidemiology of pervasive developmental disorders. Pediatric Research, 65(6), 591–598.CrossRefPubMed
go back to reference Liptak, G. S., Benzoni, L. B., Mruzek, D. W., Nolan, K. W., Thingvoll, M. A., Wade, C. M., et al. (2008). Disparities in diagnosis and access to health services for children with autism: Data from the National Survey of Children’s Health. Journal of Developmental and Behavioral Pediatrics, 29(3), 152–160.CrossRefPubMed Liptak, G. S., Benzoni, L. B., Mruzek, D. W., Nolan, K. W., Thingvoll, M. A., Wade, C. M., et al. (2008). Disparities in diagnosis and access to health services for children with autism: Data from the National Survey of Children’s Health. Journal of Developmental and Behavioral Pediatrics, 29(3), 152–160.CrossRefPubMed
go back to reference Lord, C., Petkova, E., Hus, V., Gan, W., Lu, F., Martin, D. M., et al. (2012). A multisite study of the clinical diagnosis of different autism spectrum disorders. Archives of General Psychiatry, 69(3), 306–313.CrossRefPubMedCentralPubMed Lord, C., Petkova, E., Hus, V., Gan, W., Lu, F., Martin, D. M., et al. (2012). A multisite study of the clinical diagnosis of different autism spectrum disorders. Archives of General Psychiatry, 69(3), 306–313.CrossRefPubMedCentralPubMed
go back to reference R Core Team. (2011). A language and environment for statistical computing. Viena, Austria: R Foundation for Statistical Computing. ISBN 3-900051-07-0. R Core Team. (2011). A language and environment for statistical computing. Viena, Austria: R Foundation for Statistical Computing. ISBN 3-900051-07-0.
go back to reference Rice, C. E., Baio, J., Van Naarden Braun, K., Doernberg, N., Meaney, F. J., & Kirby, R. S. (2007). A public health collaboration for the surveillance of autism spectrum disorders. Paediatric and Perinatal Epidemiology, 21(2), 179–190.CrossRefPubMed Rice, C. E., Baio, J., Van Naarden Braun, K., Doernberg, N., Meaney, F. J., & Kirby, R. S. (2007). A public health collaboration for the surveillance of autism spectrum disorders. Paediatric and Perinatal Epidemiology, 21(2), 179–190.CrossRefPubMed
go back to reference Rice, C. E., Nicholas, J., Baio, J., Pettygrove, S., Lee, L., Van Naarden Braun, K., et al. (2010). Changes in autism spectrum disorder prevalence in 4 areas of the United States. Disability and Health Journal, 3(3), 186–201.CrossRefPubMed Rice, C. E., Nicholas, J., Baio, J., Pettygrove, S., Lee, L., Van Naarden Braun, K., et al. (2010). Changes in autism spectrum disorder prevalence in 4 areas of the United States. Disability and Health Journal, 3(3), 186–201.CrossRefPubMed
go back to reference Risi, S., Lord, C., Gotham, K., Corsello, C., Chrysler, C., Szatmari, P., et al. (2006). Combining information from multiple sources in the diagnosis of autism spectrum disorders. Journal of the American Academy of Child and Adolescent Psychiatry, 45(9), 1094–1103.CrossRefPubMed Risi, S., Lord, C., Gotham, K., Corsello, C., Chrysler, C., Szatmari, P., et al. (2006). Combining information from multiple sources in the diagnosis of autism spectrum disorders. Journal of the American Academy of Child and Adolescent Psychiatry, 45(9), 1094–1103.CrossRefPubMed
go back to reference Shattuck, P. T. (2006a). The contribution of diagnostic substitution to the growing administrative prevalence of autism in US special education. Pediatrics, 117(4), 1028–1037.CrossRefPubMed Shattuck, P. T. (2006a). The contribution of diagnostic substitution to the growing administrative prevalence of autism in US special education. Pediatrics, 117(4), 1028–1037.CrossRefPubMed
go back to reference Shattuck, P. T. (2006b). Diagnostic substitution and changing autism prevalence. Pediatrics, 117(4), 1438–1439.CrossRefPubMed Shattuck, P. T. (2006b). Diagnostic substitution and changing autism prevalence. Pediatrics, 117(4), 1438–1439.CrossRefPubMed
go back to reference Van Naarden Braun, K., Pettygrove, S., Daniels, J., Miller, L., Nicholas, J., Baio, J., et al. (2007). Evaluation of a methodology for a collaborative multiple source surveillance network for autism spectrum disorders: Autism and Developmental Disabilities Monitoring Network, 14 sites, United States, 2002. MMWR Surveillance Summaries, 56(1), 29–40. Van Naarden Braun, K., Pettygrove, S., Daniels, J., Miller, L., Nicholas, J., Baio, J., et al. (2007). Evaluation of a methodology for a collaborative multiple source surveillance network for autism spectrum disorders: Autism and Developmental Disabilities Monitoring Network, 14 sites, United States, 2002. MMWR Surveillance Summaries, 56(1), 29–40.
go back to reference Yeargin-Allsopp, M., Rice, C., Karapurkar, T., Doernberg, N., Boyle, C., & Murphy, C. (2003). Prevalence of autism in a US metropolitan area. JAMA, 289(1), 49–55.CrossRefPubMed Yeargin-Allsopp, M., Rice, C., Karapurkar, T., Doernberg, N., Boyle, C., & Murphy, C. (2003). Prevalence of autism in a US metropolitan area. JAMA, 289(1), 49–55.CrossRefPubMed
Metagegevens
Titel
Brief Report: Independent Validation of Autism Spectrum Disorder Case Status in the Utah Autism and Developmental Disabilities Monitoring (ADDM) Network Site
Auteurs
Amanda V. Bakian
Deborah A. Bilder
Paul S. Carbone
Tyler D. Hunt
Brent Petersen
Catherine E. Rice
Publicatiedatum
01-03-2015
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 3/2015
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-014-2187-6

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