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Journal of Autism and Developmental Disorders

Gepubliceerd in:

01-11-2013 | Original Paper

The International Collaboration for Autism Registry Epidemiology (iCARE): Multinational Registry-Based Investigations of Autism Risk Factors and Trends

Auteurs: Diana E. Schendel, Michaeline Bresnahan, Kim W. Carter, Richard W. Francis, Mika Gissler, Therese K. Grønborg, Raz Gross, Nina Gunnes, Mady Hornig, Christina M. Hultman, Amanda Langridge, Marlene B. Lauritsen, Helen Leonard, Erik T. Parner, Abraham Reichenberg, Sven Sandin, Andre Sourander, Camilla Stoltenberg, Auli Suominen, Pål Surén, Ezra Susser

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 11/2013

Abstract

The International Collaboration for Autism Registry Epidemiology (iCARE) is the first multinational research consortium (Australia, Denmark, Finland, Israel, Norway, Sweden, USA) to promote research in autism geographical and temporal heterogeneity, phenotype, family and life course patterns, and etiology. iCARE devised solutions to challenges in multinational collaboration concerning data access security, confidentiality and management. Data are obtained by integrating existing national or state-wide, population-based, individual-level data systems and undergo rigorous harmonization and quality control processes. Analyses are performed using database federation via a computational infrastructure with a secure, web-based, interface. iCARE provides a unique, unprecedented resource in autism research that will significantly enhance the ability to detect environmental and genetic contributions to the causes and life course of autism.

vorige artikel Erratum to: A Review of Technology-Based Interventions to Teach Academic Skills to Students with Autism Spectrum Disorder

volgende artikel A Critical Review of the Research on the Extreme Male Brain Theory and Digit Ratio (2D:4D)

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Titel: The International Collaboration for Autism Registry Epidemiology (iCARE): Multinational Registry-Based Investigations of Autism Risk Factors and Trends
Auteurs: Diana E. Schendel
Michaeline Bresnahan
Kim W. Carter
Richard W. Francis
Mika Gissler
Therese K. Grønborg
Raz Gross
Nina Gunnes
Mady Hornig
Christina M. Hultman
Amanda Langridge
Marlene B. Lauritsen
Helen Leonard
Erik T. Parner
Abraham Reichenberg
Sven Sandin
Andre Sourander
Camilla Stoltenberg
Auli Suominen
Pål Surén
Ezra Susser
Publicatiedatum: 01-11-2013
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 11/2013
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-013-1815-x

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