Skip to main content
Top
Gepubliceerd in: Journal of Autism and Developmental Disorders 11/2013

01-11-2013 | Original Paper

Measurement Tools and Target Symptoms/Skills Used to Assess Treatment Response for Individuals with Autism Spectrum Disorder

Auteurs: Erin Elizabeth Bolte, Joshua John Diehl

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 11/2013

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail

Abstract

This study examined the measurement tools and target symptoms/skills used to assess treatment response during Autism Spectrum Disorder (ASD) intervention trials from 2001 through 2010. Data from 195 prospective trials were analyzed. There were 289 unique measurement tools, of which 61.6 % were used only once, and 20.8 % were investigator-designed. Only three tools were used in more than 2 % of the studies, and none were used in more than 7 % of studies. Studies investigated an average of 11.4 tool-symptom combinations per trial, with as many as 45 in one study. These results represent a lack of consistency in outcome measurements in ASD intervention trials. These findings highlight the need to set guidelines for appropriate outcome measurement in the ASD field.
Bijlagen
Alleen toegankelijk voor geautoriseerde gebruikers
Literatuur
go back to reference Aman, M. G., Burrow, W. H., & Wolford, P. L. (1995). The aberrant behavior checklist-community: Factor validity and effect of subject variables for adults in group homes. American Journal on Mental Retardation, 100(3), 283–292.PubMed Aman, M. G., Burrow, W. H., & Wolford, P. L. (1995). The aberrant behavior checklist-community: Factor validity and effect of subject variables for adults in group homes. American Journal on Mental Retardation, 100(3), 283–292.PubMed
go back to reference Aman, M. G., Singh, N. N., Stewart, A. W., & Field, C. J. (1985). The aberrant behavior checklist: A behavior rating scale for the assessment of treatment effects. American Journal of Mental Deficiency, 89(5), 485–491.PubMed Aman, M. G., Singh, N. N., Stewart, A. W., & Field, C. J. (1985). The aberrant behavior checklist: A behavior rating scale for the assessment of treatment effects. American Journal of Mental Deficiency, 89(5), 485–491.PubMed
go back to reference American Psychiatric Association. (2000). Diagnostic and statistical manual of mental disorders. (4th edition text revision; DSM IV-TR). Washington, DC: American Psychiatric Publishing.CrossRef American Psychiatric Association. (2000). Diagnostic and statistical manual of mental disorders. (4th edition text revision; DSM IV-TR). Washington, DC: American Psychiatric Publishing.CrossRef
go back to reference American Psychiatric Association. (2012). American psychiatric association DSM-5 development: Disorders usually first diagnosed in infancy, childhood, or adolescence. Retrieved from: http://www.dsm5.org. Last accessed July 16, 2012. American Psychiatric Association. (2012). American psychiatric association DSM-5 development: Disorders usually first diagnosed in infancy, childhood, or adolescence. Retrieved from: http://​www.​dsm5.​org. Last accessed July 16, 2012.
go back to reference Bayley, N. (1993). Bayley scales of infant development (2nd ed.). San Antonio, TX: Psychological Corporation. Bayley, N. (1993). Bayley scales of infant development (2nd ed.). San Antonio, TX: Psychological Corporation.
go back to reference Bertoglio, K., James, S. J., Deprey, L., Brule, N., & Hendren, R. L. (2010). Pilot study of the effect of methyl B12 treatment on behavioral and biomarker measures in children with autism. The Journal of Alternative and Complementary Medicine, 16(5), 555–560.PubMedCrossRef Bertoglio, K., James, S. J., Deprey, L., Brule, N., & Hendren, R. L. (2010). Pilot study of the effect of methyl B12 treatment on behavioral and biomarker measures in children with autism. The Journal of Alternative and Complementary Medicine, 16(5), 555–560.PubMedCrossRef
go back to reference Campbell, M., Kafantaris, V., Malone, R. P., Kowalik, S. C., & Locascio, J. J. (1991). Diagnostic and assessment issues related to pharmacotherapy for children and asolescents with autism. Behavior Modification, 15(3), 326–354.PubMedCrossRef Campbell, M., Kafantaris, V., Malone, R. P., Kowalik, S. C., & Locascio, J. J. (1991). Diagnostic and assessment issues related to pharmacotherapy for children and asolescents with autism. Behavior Modification, 15(3), 326–354.PubMedCrossRef
go back to reference Centers for Disease Control, Prevention. (2012). Prevalence of autism spectrum disorders—Autism and developmental disabilities monitoring network, 14 Sites, United States, 2008. Morbidity and Mortality Weekly Report, 61(SS03), 1–19. Centers for Disease Control, Prevention. (2012). Prevalence of autism spectrum disorders—Autism and developmental disabilities monitoring network, 14 Sites, United States, 2008. Morbidity and Mortality Weekly Report, 61(SS03), 1–19.
go back to reference Cohen, I. L. (2003). Criterion-related validity of the PDD behavior inventory. Journal of Autism and Developmental Disorders, 33(1), 47–53.PubMedCrossRef Cohen, I. L. (2003). Criterion-related validity of the PDD behavior inventory. Journal of Autism and Developmental Disorders, 33(1), 47–53.PubMedCrossRef
go back to reference Cohen, I. L., Schmidt-Lackner, S., Romanczyk, R., & Sudhalter, V. (2003). The PDD behavior inventory: A rating scale for assessing response to intervention in children with pervasive developmental disorder. Journal of Autism and Developmental Disorders, 33(1), 31–45.PubMedCrossRef Cohen, I. L., Schmidt-Lackner, S., Romanczyk, R., & Sudhalter, V. (2003). The PDD behavior inventory: A rating scale for assessing response to intervention in children with pervasive developmental disorder. Journal of Autism and Developmental Disorders, 33(1), 31–45.PubMedCrossRef
go back to reference Conners, C. K., Sitarenios, G., Parker, J. D. A., & Epstein, J. N. (1998). The revised Conners’ parent rating scale (CPRS-R): Factor structure, reliability, and criterion validity. Journal of Abnormal Child Psychology, 26(4), 257–268.PubMedCrossRef Conners, C. K., Sitarenios, G., Parker, J. D. A., & Epstein, J. N. (1998). The revised Conners’ parent rating scale (CPRS-R): Factor structure, reliability, and criterion validity. Journal of Abnormal Child Psychology, 26(4), 257–268.PubMedCrossRef
go back to reference Garfin, D. G., McCallon, D., & Cox, R. (1988). Validity and reliability of the childhood autism rating scale with autistic adolescents. Journal of Autism and Developmental Disorders, 18(3), 367–378.PubMedCrossRef Garfin, D. G., McCallon, D., & Cox, R. (1988). Validity and reliability of the childhood autism rating scale with autistic adolescents. Journal of Autism and Developmental Disorders, 18(3), 367–378.PubMedCrossRef
go back to reference Gray, K. M., Tonge, B. J., & Sweeney, D. J. (2008). Using the autism diagnostic interview-revised and the autism diagnostic observation schedule with young children with developmental delay: Evaluating diagnostic validity. Journal of Autism and Developmental Disorders, 38(4), 657–667.PubMedCrossRef Gray, K. M., Tonge, B. J., & Sweeney, D. J. (2008). Using the autism diagnostic interview-revised and the autism diagnostic observation schedule with young children with developmental delay: Evaluating diagnostic validity. Journal of Autism and Developmental Disorders, 38(4), 657–667.PubMedCrossRef
go back to reference Guy, W. (1976). ECDEU assessment manual for psychopharmacology, Publication No. 76–338. Rockville, MD: U.S. DHEW, NIMH. Guy, W. (1976). ECDEU assessment manual for psychopharmacology, Publication No. 76–338. Rockville, MD: U.S. DHEW, NIMH.
go back to reference Kasari, C. (2002). Assessing change in early intervention programs for children with autism. Journal of Autism and Developmental Disorders, 32(5), 447–461.PubMedCrossRef Kasari, C. (2002). Assessing change in early intervention programs for children with autism. Journal of Autism and Developmental Disorders, 32(5), 447–461.PubMedCrossRef
go back to reference Leekam, S. R., Prior, M. R., & Uljarevic, M. (2011). Restricted and repetitive behaviors in autism spectrum disorders: A review of research in the last decade. Psychological Bulletin, 137(4), 562–593.PubMedCrossRef Leekam, S. R., Prior, M. R., & Uljarevic, M. (2011). Restricted and repetitive behaviors in autism spectrum disorders: A review of research in the last decade. Psychological Bulletin, 137(4), 562–593.PubMedCrossRef
go back to reference Lord, C., & Corsello, C. (2005). Diagnostic instruments in autistic spectrum disorders. In F. R. Volkmar, R. Paul, A. Klin, & D. J. Cohen (Eds.), Handbook of autism and pervasive developmental disorders, vol. 2: Assessment, interventions, and policy (3rd ed., pp. 730–771). Hoboken, NJ: Wiley. Lord, C., & Corsello, C. (2005). Diagnostic instruments in autistic spectrum disorders. In F. R. Volkmar, R. Paul, A. Klin, & D. J. Cohen (Eds.), Handbook of autism and pervasive developmental disorders, vol. 2: Assessment, interventions, and policy (3rd ed., pp. 730–771). Hoboken, NJ: Wiley.
go back to reference Lord, C., Rutter, M., DiLavore, P. C., & Risi, S. (2002). Autism diagnostic observation schedule (ADOS). Los Angeles: Western Psychological Services. Lord, C., Rutter, M., DiLavore, P. C., & Risi, S. (2002). Autism diagnostic observation schedule (ADOS). Los Angeles: Western Psychological Services.
go back to reference Lord, C., Rutter, M., DiLavore, P. C., Risi, S., Gotham, K., & Bishop, S. (2012). Autism diagnostic observation schedule, second edition: ADOS-2. Los Angeles: Western Psychological Services. Lord, C., Rutter, M., DiLavore, P. C., Risi, S., Gotham, K., & Bishop, S. (2012). Autism diagnostic observation schedule, second edition: ADOS-2. Los Angeles: Western Psychological Services.
go back to reference Lord, C., Wagner, A., Rogers, S., Szatmari, P., Aman, M., Charman, T., et al. (2005). Challenges in evaluating psychosocial interventions for autistic spectrum disorders. Journal of Autism and Developmental Disorders, 35(6), 695–708.PubMedCrossRef Lord, C., Wagner, A., Rogers, S., Szatmari, P., Aman, M., Charman, T., et al. (2005). Challenges in evaluating psychosocial interventions for autistic spectrum disorders. Journal of Autism and Developmental Disorders, 35(6), 695–708.PubMedCrossRef
go back to reference Magiati, I., Moss, J., Yates, R., Charman, T., & Howlin, P. (2011). Is the autism treatment evaluation checklist a useful tool for monitoring progress in children with autism spectrum disorders? Journal of Intellectual Disability Research, 55(3), 302–312.PubMedCrossRef Magiati, I., Moss, J., Yates, R., Charman, T., & Howlin, P. (2011). Is the autism treatment evaluation checklist a useful tool for monitoring progress in children with autism spectrum disorders? Journal of Intellectual Disability Research, 55(3), 302–312.PubMedCrossRef
go back to reference Matson, J. L. (2007). Determining treatment outcome in early intervention programs for autism spectrum disorders: A critical analysis of measurement issues in learning based interventions. Research in Developmental Disabilities, 28(2), 207–218.PubMedCrossRef Matson, J. L. (2007). Determining treatment outcome in early intervention programs for autism spectrum disorders: A critical analysis of measurement issues in learning based interventions. Research in Developmental Disabilities, 28(2), 207–218.PubMedCrossRef
go back to reference Rogers, S. J., & Vismara, L. A. (2008). Empirically supported comprehensive treatments for early autism. Journal of Clinical Child and Adolescent Psychology, 37, 8–38.PubMedCrossRef Rogers, S. J., & Vismara, L. A. (2008). Empirically supported comprehensive treatments for early autism. Journal of Clinical Child and Adolescent Psychology, 37, 8–38.PubMedCrossRef
go back to reference Roseman, B., Schneider, E., Crimmins, D., Bostwick, H., Visintainer, P., Jaskow, P. A., et al. (2001). What to measure in autism drug trials [Letter to the editor]. Journal of Autism and Developmental Disorders, 31(3), 361–362.PubMedCrossRef Roseman, B., Schneider, E., Crimmins, D., Bostwick, H., Visintainer, P., Jaskow, P. A., et al. (2001). What to measure in autism drug trials [Letter to the editor]. Journal of Autism and Developmental Disorders, 31(3), 361–362.PubMedCrossRef
go back to reference Rutter, M., Le Couteur, A., & Lord, C. (2003). Autism diagnostic interview-revised. Los Angeles: Western Psychological Services. Rutter, M., Le Couteur, A., & Lord, C. (2003). Autism diagnostic interview-revised. Los Angeles: Western Psychological Services.
go back to reference Schopler, E., Reichler, R., & Renner, B. (1988). The childhood autism rating scale (CARS). Los Angeles, CA: Western Psychological. Schopler, E., Reichler, R., & Renner, B. (1988). The childhood autism rating scale (CARS). Los Angeles, CA: Western Psychological.
go back to reference Sevin, J. A., Matson, J. L., Coe, D. A., Fee, V. E., & Sevin, B. M. (1991). A comparison and evaluation of three commonly used autism scales. Journal of Autism and Developmental Disorders, 21(4), 417–432.PubMedCrossRef Sevin, J. A., Matson, J. L., Coe, D. A., Fee, V. E., & Sevin, B. M. (1991). A comparison and evaluation of three commonly used autism scales. Journal of Autism and Developmental Disorders, 21(4), 417–432.PubMedCrossRef
go back to reference Sparrow, S., Balla, D., & Cicchetti, D. V. (1984). The Vineland adaptive behavior scales (Survey Form). Circle Pines, MN: American Guidance Service. Sparrow, S., Balla, D., & Cicchetti, D. V. (1984). The Vineland adaptive behavior scales (Survey Form). Circle Pines, MN: American Guidance Service.
go back to reference Teal, M. B., & Wiebe, M. J. (1986). A validity analysis of selected instruments used to assess autism. Journal of Autism and Developmental Disorders, 16(4), 485–494.PubMedCrossRef Teal, M. B., & Wiebe, M. J. (1986). A validity analysis of selected instruments used to assess autism. Journal of Autism and Developmental Disorders, 16(4), 485–494.PubMedCrossRef
go back to reference Virués-Ortega, J. (2010). Applied behavior analytic intervention for autism in early childhood: Meta-analysis, meta-regression and dose–response meta-analysis of multiple outcomes. Clinical Psychology Review, 30(4), 387–399.PubMedCrossRef Virués-Ortega, J. (2010). Applied behavior analytic intervention for autism in early childhood: Meta-analysis, meta-regression and dose–response meta-analysis of multiple outcomes. Clinical Psychology Review, 30(4), 387–399.PubMedCrossRef
go back to reference Volkmar, F., Lord, C., Bailey, A., Schultz, R. T., & Klin, A. (2004). Autism and pervasive developmental disorders. Journal of Child Psychology and Psychiatry, 45, 135–170.PubMedCrossRef Volkmar, F., Lord, C., Bailey, A., Schultz, R. T., & Klin, A. (2004). Autism and pervasive developmental disorders. Journal of Child Psychology and Psychiatry, 45, 135–170.PubMedCrossRef
go back to reference Wink, L. K., Erickson, C. A., & McDougle, C. J. (2010). Pharmacologic treatment of behavioral symptoms associated with autism and other pervasive developmental disorders. Journal of Autism and Developmental Disorders, 12(6), 529–538. Wink, L. K., Erickson, C. A., & McDougle, C. J. (2010). Pharmacologic treatment of behavioral symptoms associated with autism and other pervasive developmental disorders. Journal of Autism and Developmental Disorders, 12(6), 529–538.
go back to reference World Health Organization. (2008). International statistical classification of diseases and related health problems, 10th revision (ICD-10). New York, NY: Author. World Health Organization. (2008). International statistical classification of diseases and related health problems, 10th revision (ICD-10). New York, NY: Author.
Metagegevens
Titel
Measurement Tools and Target Symptoms/Skills Used to Assess Treatment Response for Individuals with Autism Spectrum Disorder
Auteurs
Erin Elizabeth Bolte
Joshua John Diehl
Publicatiedatum
01-11-2013
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 11/2013
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-013-1798-7

Andere artikelen Uitgave 11/2013

Journal of Autism and Developmental Disorders 11/2013 Naar de uitgave