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Gepubliceerd in: Journal of Autism and Developmental Disorders 7/2013

01-07-2013 | Original Paper

Views on the Diagnostic Labels of Autism and Asperger’s Disorder and the Proposed Changes in the DSM

Auteurs: Donna M. Kite, Judith Gullifer, Graham A. Tyson

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 7/2013

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Abstract

With the approaching release of the DSM V in 2013, there has been much debate about the proposal to remove the diagnostic label of Asperger’s disorder from the new DSM. This study explored how health and education professionals perceive the conditions of autism and Asperger’s disorder and their views on the proposed diagnostic changes. Analysis of the 547 participant responses confirmed an increase stigma is associated with the label of autism, with autism considered to be a more severe than the condition of Asperger’s disorder. Approximately half of the participants reported being opposed to proposed diagnostic changes and of the remaining participants, 22 % supported the proposed changes and 28 % expressed uncertainty.
Literatuur
go back to reference Admin. (2011, July 6). Asperger’s, autism and the new DSM. Retrieved December 27, 2011. Admin. (2011, July 6). Asperger’s, autism and the new DSM. Retrieved December 27, 2011.
go back to reference American Psychiatric Association. (2000). Diagnostic and statistical manual of mental disorders. Washington: American Psychiatric Association. American Psychiatric Association. (2000). Diagnostic and statistical manual of mental disorders. Washington: American Psychiatric Association.
go back to reference American Psychiatric Association. (2009). Asperger’s disorder. Retrieved 30 April 2009. American Psychiatric Association. (2009). Asperger’s disorder. Retrieved 30 April 2009.
go back to reference American Psychiatric Association. (2010). DSM-V: The future manual. Retrieved 18 June. American Psychiatric Association. (2010). DSM-V: The future manual. Retrieved 18 June.
go back to reference Angermeyer, M. C., & Matschinger, H. (2003). The stigma of mental illness: Effects of labelling on public attitudes towards people with mental illness. Acta Psychiatrica Scandinavica, 108, 304–309.PubMedCrossRef Angermeyer, M. C., & Matschinger, H. (2003). The stigma of mental illness: Effects of labelling on public attitudes towards people with mental illness. Acta Psychiatrica Scandinavica, 108, 304–309.PubMedCrossRef
go back to reference Attwood, T. (1998). Asperger’s syndrome: A guide for parents and professionals. London: Jessica Kingsley Publishers. Attwood, T. (1998). Asperger’s syndrome: A guide for parents and professionals. London: Jessica Kingsley Publishers.
go back to reference Australian Government. (2008). Helping children with autism. Canberra: FaHCSIA. Australian Government. (2008). Helping children with autism. Canberra: FaHCSIA.
go back to reference Autism Support Group. (2010). Proposed changes to autism diagnosis in DSM-V. Retrieved 20 July 2010. Autism Support Group. (2010). Proposed changes to autism diagnosis in DSM-V. Retrieved 20 July 2010.
go back to reference Barbaro, J., & Dissanayake, C. (2007). A comparative study of the use and understanding of self-presentational display rules in children with high functioning autism and Asperger’s disorder. Journal of Autism and Developmental Disorders, 37, 1235–1246.PubMedCrossRef Barbaro, J., & Dissanayake, C. (2007). A comparative study of the use and understanding of self-presentational display rules in children with high functioning autism and Asperger’s disorder. Journal of Autism and Developmental Disorders, 37, 1235–1246.PubMedCrossRef
go back to reference Bernard, H. R., & Ryan, G. W. (2010). Analyzing qualitative data systematic approaches. London: SAGE Publications. Bernard, H. R., & Ryan, G. W. (2010). Analyzing qualitative data systematic approaches. London: SAGE Publications.
go back to reference Bocaccini, M. T., Murrie, D. C., Clark, J. W., & Cornell, D. G. (2008). Describing, diagnosing and naming psychopathy: How do youth psychopathy labels influence jurors. Behavioural Science and the Law, 26, 487–510.CrossRef Bocaccini, M. T., Murrie, D. C., Clark, J. W., & Cornell, D. G. (2008). Describing, diagnosing and naming psychopathy: How do youth psychopathy labels influence jurors. Behavioural Science and the Law, 26, 487–510.CrossRef
go back to reference Brewin, B. J., Renwick, R., & Fudge Schormans, A. (2008). Parental perspectives of the quality of life in school environments for children with Asperger syndrome. Focus on Autism and other developmental disabilities, 23(4), 242–252.CrossRef Brewin, B. J., Renwick, R., & Fudge Schormans, A. (2008). Parental perspectives of the quality of life in school environments for children with Asperger syndrome. Focus on Autism and other developmental disabilities, 23(4), 242–252.CrossRef
go back to reference Bubbles. (2011). Autism and Asperger’s in teh DSM-V: Thoughts on clinical utility. Retrieved September 2011. Bubbles. (2011). Autism and Asperger’s in teh DSM-V: Thoughts on clinical utility. Retrieved September 2011.
go back to reference Corrigan, P. W. (2007). How clinical diagnosis might exacerbate the stigma of mental illness. Social Work, 52(1), 31–39.PubMedCrossRef Corrigan, P. W. (2007). How clinical diagnosis might exacerbate the stigma of mental illness. Social Work, 52(1), 31–39.PubMedCrossRef
go back to reference Cuccaro, M. L., Nations, L., Brinkley, J., Abramson, R. K., Wright, H. H., Hall, A., et al. (2007). A comparison of repetitive behaviors in Aspergers disorder and high functioning autism. Child Psychiatry and Human Development, 37, 347–360.PubMedCrossRef Cuccaro, M. L., Nations, L., Brinkley, J., Abramson, R. K., Wright, H. H., Hall, A., et al. (2007). A comparison of repetitive behaviors in Aspergers disorder and high functioning autism. Child Psychiatry and Human Development, 37, 347–360.PubMedCrossRef
go back to reference Doherty, E. (2009, 26 April). Kids ‘Cage’ Anger. The Advertiser, pp. 1, 4. Doherty, E. (2009, 26 April). Kids ‘Cage’ Anger. The Advertiser, pp. 1, 4.
go back to reference Earley, D. (2009, May 2). Rein reveals autism ordeal. The Advertiser. Earley, D. (2009, May 2). Rein reveals autism ordeal. The Advertiser.
go back to reference Eiser, J. R., & Mower-White, C. J. (1976). The persuasiveness of labels: Attitude change produced through definition of the attitude continuum. European Journal of Social Psychology, 4(1), 89–92.CrossRef Eiser, J. R., & Mower-White, C. J. (1976). The persuasiveness of labels: Attitude change produced through definition of the attitude continuum. European Journal of Social Psychology, 4(1), 89–92.CrossRef
go back to reference Elfant, A. B. (1985). Psychotherapy and assessment in hospital settings: Ideological and professional conflicts. Professional Psychology: Research and Practice, 16(1), 55–63.CrossRef Elfant, A. B. (1985). Psychotherapy and assessment in hospital settings: Ideological and professional conflicts. Professional Psychology: Research and Practice, 16(1), 55–63.CrossRef
go back to reference Fletcher, J., Pirkis, J., King, K., Christo, J., Bassilios, B., Burgess, P., et al. (2011). Psychologists’ experiences with the Better Access initiative: A pilot study. Australian Psychologist, 46, 153–162.CrossRef Fletcher, J., Pirkis, J., King, K., Christo, J., Bassilios, B., Burgess, P., et al. (2011). Psychologists’ experiences with the Better Access initiative: A pilot study. Australian Psychologist, 46, 153–162.CrossRef
go back to reference Ghaziuddin, M. (2005). A family history study of Asperger’s syndrome. Journal of Autism and Developmental Disorders, 35, 177–182.PubMedCrossRef Ghaziuddin, M. (2005). A family history study of Asperger’s syndrome. Journal of Autism and Developmental Disorders, 35, 177–182.PubMedCrossRef
go back to reference Ghaziuddin, M. (2008). Defining the behavioural phenotype of Asperger syndrome. Journal of Autism and Developmental Disorders, 38(1), 138–142.PubMedCrossRef Ghaziuddin, M. (2008). Defining the behavioural phenotype of Asperger syndrome. Journal of Autism and Developmental Disorders, 38(1), 138–142.PubMedCrossRef
go back to reference Ghaziuddin, M. (2010). Brief report: Should the DSM V drop Asperger syndrome? Journal of Autism and Developmental Disorders, 40, 1146–1148.PubMedCrossRef Ghaziuddin, M. (2010). Brief report: Should the DSM V drop Asperger syndrome? Journal of Autism and Developmental Disorders, 40, 1146–1148.PubMedCrossRef
go back to reference Gillberg, C., & Enlers, S. (1998). High functioning people with Autism and Asperger’s syndrome: A literature review. In E. Schopler, G. B. Mesibov, & L. J. Kunce (Eds.), Asperger syndrome or high-functioning autism? (pp. 79–100). New York: Plenum Press.CrossRef Gillberg, C., & Enlers, S. (1998). High functioning people with Autism and Asperger’s syndrome: A literature review. In E. Schopler, G. B. Mesibov, & L. J. Kunce (Eds.), Asperger syndrome or high-functioning autism? (pp. 79–100). New York: Plenum Press.CrossRef
go back to reference Henrysdad. (2010). Autism and Asperger’s in teh DSM-V: Thoughts on clinical utility. Retrieved September 21, 2011. Henrysdad. (2010). Autism and Asperger’s in teh DSM-V: Thoughts on clinical utility. Retrieved September 21, 2011.
go back to reference Holm-Denoma, J. M. (2008). Patients’ affective reaction to receiving diagnostic feedback. Journal of Social and Clinical Psychology, 27(6), 555–575.CrossRef Holm-Denoma, J. M. (2008). Patients’ affective reaction to receiving diagnostic feedback. Journal of Social and Clinical Psychology, 27(6), 555–575.CrossRef
go back to reference Hough, H. (2006). Letters to the editor. Journal of Child and Adolescent Psychiatric Nursing, 19(4), 166–169.CrossRef Hough, H. (2006). Letters to the editor. Journal of Child and Adolescent Psychiatric Nursing, 19(4), 166–169.CrossRef
go back to reference Huang, H., & Diamond, K. E. (2010). Early childhood teacher’s ideas about including children with disabilities in programmes designed for typically developing children. International Journal of Disability, Development and Education, 56(2), 169–182.CrossRef Huang, H., & Diamond, K. E. (2010). Early childhood teacher’s ideas about including children with disabilities in programmes designed for typically developing children. International Journal of Disability, Development and Education, 56(2), 169–182.CrossRef
go back to reference Isus. (2011). Autism and Asperger’s in the DSM-V: Thoughts on clinical utility. Retrieved September 21, 2011. Isus. (2011). Autism and Asperger’s in the DSM-V: Thoughts on clinical utility. Retrieved September 21, 2011.
go back to reference Kite, D., & Tyson, G. (2011a). Implicit theories of characteristics and causes of Asperger's disorder. Manuscript submitted for publication. Kite, D., & Tyson, G. (2011a). Implicit theories of characteristics and causes of Asperger's disorder. Manuscript submitted for publication.
go back to reference Kite, D., & Tyson, G. (2011b). Management and treatment strategies for Asperger's disorder- How effective are they perceived to be? Manuscript submitted for publication. Kite, D., & Tyson, G. (2011b). Management and treatment strategies for Asperger's disorder- How effective are they perceived to be? Manuscript submitted for publication.
go back to reference Kite, D., Tyson, G., & Gullifer, J. (2011). Exploring the perception of Asperger’s disorder. Unpublished Manuscript submitted for publication. Kite, D., Tyson, G., & Gullifer, J. (2011). Exploring the perception of Asperger’s disorder. Unpublished Manuscript submitted for publication.
go back to reference Kupfer, D. J., Regier, D. A., & Kuhl, E. A. (2008). On the road to the DSM-V and ICD-11. European Archives of Psychiatry and Clinical Neuroscience, 258, 2–6.PubMedCrossRef Kupfer, D. J., Regier, D. A., & Kuhl, E. A. (2008). On the road to the DSM-V and ICD-11. European Archives of Psychiatry and Clinical Neuroscience, 258, 2–6.PubMedCrossRef
go back to reference Lecavalier, L., Gadow, K. D., DeVincent, C. J., Houts, C., & Edwards, M. C. (2009). Deconstructing the PDD clinical phenotype: Internal validity of the DSM-IV. Journal of Child Psychology and Psychiatry, 50(10), 1246–1254.PubMedCrossRef Lecavalier, L., Gadow, K. D., DeVincent, C. J., Houts, C., & Edwards, M. C. (2009). Deconstructing the PDD clinical phenotype: Internal validity of the DSM-IV. Journal of Child Psychology and Psychiatry, 50(10), 1246–1254.PubMedCrossRef
go back to reference Lenne, B. S., & Waldby, C. (2011). Sorting out autism spectrum disorders: Evidence-based medicine and the complexities of the clinical encounter. Health Sociology Review, 20(1), 70–83.CrossRef Lenne, B. S., & Waldby, C. (2011). Sorting out autism spectrum disorders: Evidence-based medicine and the complexities of the clinical encounter. Health Sociology Review, 20(1), 70–83.CrossRef
go back to reference Little, L. (2003). Maternal perceptions of the importance of needs and resources for children with Asperger syndrome and nonverbal learning disorders. Focus on Autism and Other Developmental Disabilities, 18(4), 257–266.CrossRef Little, L. (2003). Maternal perceptions of the importance of needs and resources for children with Asperger syndrome and nonverbal learning disorders. Focus on Autism and Other Developmental Disabilities, 18(4), 257–266.CrossRef
go back to reference Lopez-Duran, N. (2010). Autism and Asperger’s in the DSM-V: Thoughts on clinical utility. Retrieved September 21, 2011, Lopez-Duran, N. (2010). Autism and Asperger’s in the DSM-V: Thoughts on clinical utility. Retrieved September 21, 2011,
go back to reference MacCulloch, T. (2010). Constructions of truth, gate-keeping and the power of diagnostic labels. Issues in Mental Health and Nursing, 31, 151–152.CrossRef MacCulloch, T. (2010). Constructions of truth, gate-keeping and the power of diagnostic labels. Issues in Mental Health and Nursing, 31, 151–152.CrossRef
go back to reference Macintosh, K., & Dissanayake, C. (2006). Social skills and problem behaviours in school aged children with high-functioning autism and Asperger’s disorder. Journal of Developmental Disorders, 36, 1065–1076.CrossRef Macintosh, K., & Dissanayake, C. (2006). Social skills and problem behaviours in school aged children with high-functioning autism and Asperger’s disorder. Journal of Developmental Disorders, 36, 1065–1076.CrossRef
go back to reference Paxton, K., & Estay, I. A. (2007). Counselling people of the autism spectrum: A practical manual. London: Jessica Kingsley Publishers. Paxton, K., & Estay, I. A. (2007). Counselling people of the autism spectrum: A practical manual. London: Jessica Kingsley Publishers.
go back to reference Regier, D. A., Narrow, W. E., Kuhl, E. A., & Kupfer, D. J. (2009). The conceptual development of DSM-V. American Journal of Psychiatry, 166(6), 645–650.PubMedCrossRef Regier, D. A., Narrow, W. E., Kuhl, E. A., & Kupfer, D. J. (2009). The conceptual development of DSM-V. American Journal of Psychiatry, 166(6), 645–650.PubMedCrossRef
go back to reference Rogler, L. H. (1997). Making sense of historical changes in the diagnostic and statistical manual of mental disorders: Five propositions. Journal of Health and Social Behavior, 38, 9–20.PubMedCrossRef Rogler, L. H. (1997). Making sense of historical changes in the diagnostic and statistical manual of mental disorders: Five propositions. Journal of Health and Social Behavior, 38, 9–20.PubMedCrossRef
go back to reference Rosenberg, R. E., Daniels, A. M., Law, K. J., Law, P. A., & Kaufmann, W. E. (2009). Trends in autism spectrum disorder. Journal of Autism and Developmental Disorders, 39, 1099–1111.PubMedCrossRef Rosenberg, R. E., Daniels, A. M., Law, K. J., Law, P. A., & Kaufmann, W. E. (2009). Trends in autism spectrum disorder. Journal of Autism and Developmental Disorders, 39, 1099–1111.PubMedCrossRef
go back to reference Sanders, J. L. (2009). Qualitative or quantitative differences between Asperger’s Disorder and autism? Historical considerations. Journal of Autism and Developmental Disorders, 39, 1560–1567.PubMedCrossRef Sanders, J. L. (2009). Qualitative or quantitative differences between Asperger’s Disorder and autism? Historical considerations. Journal of Autism and Developmental Disorders, 39, 1560–1567.PubMedCrossRef
go back to reference Skellern, C., Schluter, P., & McDowell, M. (2005). From complexity to category: Responding to diagnostic uncertainties of autism spectrum disorders. Journal of Paediatrics and Child Health, 41, 407–412.PubMedCrossRef Skellern, C., Schluter, P., & McDowell, M. (2005). From complexity to category: Responding to diagnostic uncertainties of autism spectrum disorders. Journal of Paediatrics and Child Health, 41, 407–412.PubMedCrossRef
go back to reference Sproule, W. (2010). Content analysis. In M. Walter (Ed.), Social research methods (2nd ed., pp. 323–350). Melbourne: Oxford University Press. Sproule, W. (2010). Content analysis. In M. Walter (Ed.), Social research methods (2nd ed., pp. 323–350). Melbourne: Oxford University Press.
go back to reference Stinnett, T. A., Bull, K. S., Koonce, D. A., & Aldridge, J. O. (1999). Effects of diagnostic label, race, gender, educational placement and definitional information on prognostic outlook for children with behavior problems. Psychology in Schools, 36(1), 51–59.CrossRef Stinnett, T. A., Bull, K. S., Koonce, D. A., & Aldridge, J. O. (1999). Effects of diagnostic label, race, gender, educational placement and definitional information on prognostic outlook for children with behavior problems. Psychology in Schools, 36(1), 51–59.CrossRef
go back to reference Swedo, S. (2009). Report of the DSM-V neurodevelopmental disorder work group. Retrieved 9/12/2009. Swedo, S. (2009). Report of the DSM-V neurodevelopmental disorder work group. Retrieved 9/12/2009.
go back to reference Wallis, C. (2009). A powerful identity, a vanishing diagnosis. The New York Times. Wallis, C. (2009). A powerful identity, a vanishing diagnosis. The New York Times.
go back to reference Wing, L., Gould, J., & Gillberg, C. (2011). Autism spectrum disorders in the DSM-V: Better or worse than the DSM-IV? Research in Developmental Disabilities, 32, 768–773.PubMedCrossRef Wing, L., Gould, J., & Gillberg, C. (2011). Autism spectrum disorders in the DSM-V: Better or worse than the DSM-IV? Research in Developmental Disabilities, 32, 768–773.PubMedCrossRef
go back to reference World Health Organisation. (1992). ICD-10 international statistical classification of diseases and related health problems. Geneva: author. World Health Organisation. (1992). ICD-10 international statistical classification of diseases and related health problems. Geneva: author.
Metagegevens
Titel
Views on the Diagnostic Labels of Autism and Asperger’s Disorder and the Proposed Changes in the DSM
Auteurs
Donna M. Kite
Judith Gullifer
Graham A. Tyson
Publicatiedatum
01-07-2013
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 7/2013
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-012-1718-2

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