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Journal of Autism and Developmental Disorders

Gepubliceerd in:

01-01-2013 | Original Paper

Who Participates in Support Groups for Parents of Children with Autism Spectrum Disorders? The Role of Beliefs and Coping Style

Auteurs: Tessen Clifford, Patricia Minnes

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 1/2013

Abstract

One hundred forty-nine parents of children with autism spectrum disorders (ASD) completed online questionnaires measuring their beliefs about support groups and ASD, coping style, social support, mood, and use of support groups. Those currently using parent support groups (PSGs) reported using more adaptive coping strategies than both parents who had never used PSGs and parents who had used PSGs in the past. Past PSG users reported that they did not find the groups as beneficial as current users, and parents who had never participated in PSGs reported difficulties with the accessibility of PSGs. Based on the current results, interventions for parents of children with ASD that are focused on meeting the needs identified by participating parents may be most effective.

vorige artikel Autism Severity and Qualities of Parent–Child Relations

volgende artikel Eye-Tracking, Autonomic, and Electrophysiological Correlates of Emotional Face Processing in Adolescents with Autism Spectrum Disorder

One participant did not indicate their level of education.

Two participants did not indicate their partner’s level of education and 11 indicated that this question was not applicable.

The data from 6 participants are missing for these questions.

These categories were not mutually exclusive; some parents indicated that their child had both Autism and Autism Spectrum Disorder, likely because the child was given different diagnoses by different professionals.

Barnes, L. L. B., Harp, D., & Jung, W. S. (2002). Reliability generalization of scores on the Spielberger state-trait anxiety inventory. Educational and Psychological Measurement, 62, 603–618.CrossRef

Behr, S. K., Murphy, D. L., & Summers, J. A. (1992). User’s Manual: Kansas Inventory of Parental Perceptions (KIPP). Lawrence: Beach Center on Families and Disability.

Bitsika, V., & Sharpley, C. (1999). An exploratory examination of the effects of support groups on the well-being of parents of children with autism-I: General counselling. Journal of Applied Health Behaviour, 1, 16–22.

Blacher, J., & McIntyre, L. L. (2006). Syndrome specificity and behavioural disorders in young adults with intellectual disability: Cultural differences in family impact. Journal of Intellectual Disability Research, 50, 184–198.PubMedCrossRef

Carver, C. S. (1997). You want to measure coping but your protocol’s too long: Consider the brief COPE. International Journal of Behavioral Medicine, 4, 91–100.CrossRef

Clifford, T. (2011). Support groups for parents of children with autism spectrum disorders: Predictors and effects of involvement (Doctoral Dissertation). Retrieved from http://hdl.handle.net/1974/6561.

Cohen, S., & Hoberman, H. M. (1983). Positive events and social supports as buffers of life change stress. Journal of Applied Social Psychology, 13, 99–125.CrossRef

Cook, J. A., Heller, T., & Pickett-Schenk, S. A. (1999). The effect of support group participation on caregiver burden among parents of adult offspring with severe mental illness. Family Relations, 48, 405–410.CrossRef

Corsello, C., Hus, V., Pickles, A., Risi, S., Cook, E. H, Jr, Leventhal, B. L., et al. (2007). Between a ROC and a hard place: Decision making and making decisions about using the SCQ. Journal of Child Psychology and Psychiatry, 48, 932–940.PubMedCrossRef

Douma, J. C. H., Dekker, M. C., & Koot, H. M. (2006). Supporting parents of youths with intellectual disabilities and psychopathology. Journal of Intellectual Disability Research, 50, 570–581.PubMedCrossRef

Eisenhower, A. S., Baker, B. L., & Blacher, J. (2005). Preschool children with intellectual disability: Syndrome specificity, behaviour problems, and maternal well-being. Journal of Intellectual Disability Research, 49, 657–671.PubMedCrossRef

Faul, F., Erdfelder, E., Lang, A.-G., & Buchner, A. (2007). G*Power 3: A flexible statistical power analysis program for the social, behavioral, and biomedical sciences. Behavior Research Methods, 39, 175–191.PubMedCrossRef

Floyd, F. J., & Gallagher, E. M. (1997). Parental stress, care demands and the use of support services for school-age children with disabilities and behavior problems. Family Relations, 46, 359–371.CrossRef

Fontana, C. A., Fleischman, A. R., McCarton, C., Meltzer, A., & Ruff, H. (1988). A neonatal preventive intervention study: Issues of recruitment and retention. Journal of Primary Prevention, 9, 164–176.CrossRef

Grande, G. E., Myers, L. B., & Sutton, S. R. (2006). How do patients who participate in cancer support groups differ from those who do not? Psycho-Oncology, 15, 321–334.PubMedCrossRef

Hastings, R. P. (2002). Parental stress and behaviour problems of children with developmental disability. Journal of Intellectual & Developmental Disability, 27, 149–160.CrossRef

Katz, D., Koppie, T., Wu, D., Meng, M., Grossfield, G., Sadesky, N., et al. (2002). Sociodemographic characteristics and health related quality of life in men attending prostate cancer support groups. The Journal of Urology, 168, 2092–2096.PubMedCrossRef

Kerr, S. M., & McIntosh, J. B. (2000). Coping when a child has a disability: Exploring the impact of parent-to-parent support. Child: Care, Health and Development, 26, 309–322.CrossRef

Koroloff, N. M., & Friesen, B. J. (1991). Support groups for parents of children with emotional disorders: A comparison of members and non-members. Community Mental Health Journal, 27, 265–279.PubMedCrossRef

Leventhal, H., Benyamini, Y., Brownlee, S., Diefenbach, M., Leventhal, E. A., Patrick-Miller, L., et al. (1997). Illness representations: Theoretical foundations. In K. J. Petrie & J. A. Weinman (Eds.), Perceptions of health and illness: Current research and applications (pp. 19–45). Amsterdam: Harwood Academic Publishers.

Leventhal, H., Brissette, I., & Leventhal, E. A. (2003). The common-sense model of self-regulation of health and illness. In L. D. Cameron & H. Leventhal (Eds.), The self-regulation of health and illness behaviour (pp. 42–65). New York: Routledge.

Mandell, D. S., & Salzer, M. S. (2007). Who joins support groups among parents of children with autism? Autism, 11, 111–122.PubMedCrossRef

McColl, M. A., & Skinner, H. (1995). Assessing inter- and intrapersonal resources: Social support and coping among adults with a disability. Disability and Rehabilitation, 17, 24–34.PubMedCrossRef

McGovern, R. J., Heyman, E. N., & Resnick, M. I. (2002). An examination of coping style and quality of life in cancer patients who attend a prostate cancer support group. Journal of Psychosocial Oncology, 20(3), 57–68.CrossRef

Mickelson, K. D. (1997). Seeking social support: Parents in electronic support groups. In S. Kiesler (Ed.), Culture of the internet (pp. 157–178). Mahwah: Lawrence Erlbaum Associates, Publishers.

Miniwatts Marketing Group. (2010). Internet usage and population statistics for North America. Retrieved July 14, 2010, from http://www.internetworldstats.com/stats14.htm.

Plass, A., & Koch, U. (2001). Participation of oncological outpatients in psychosocial support. Psycho-Oncology, 10, 511–520.PubMedCrossRef

Preyde, M., & Ardal, F. (2003). Effectiveness of a parent “buddy” program for mothers of very preterm infants in a neonatal intensive care unit. Canadian Medical Association Journal, 168, 969–973.PubMed

Rutter, M., Bailey, A., & Lord, C. (2003). Social Communication Questionnaire. Los Angeles: Western Psychological Services.

Singer, G. H. S., Marquis, J., Powers, L. K., Blanchard, L., Divenere, N., Santelli, B., et al. (1999). A multi-site evaluation of parent to parents programs for parents of children with disabilities. Journal of Early Intervention, 22, 217–229.CrossRef

Smith, K., Gabard, D., Dale, D., & Drucker, A. (1994). Parental opinions about attending parent support groups. Children’s Health Care, 23, 127–136.PubMedCrossRef

Spielberger, C. D. (1983). Manual for the State-Trait Anxiety Inventory. Palo Alto: Consulting Psychologists Press.

Spielberger, C. D., Ritterband, L. M., Reheiser, E. C., & Brunner, T. M. (2003). The nature and measurement of depression. International Journal of Clinical and Health Psychology, 3, 209–234.

Titel: Who Participates in Support Groups for Parents of Children with Autism Spectrum Disorders? The Role of Beliefs and Coping Style
Auteurs: Tessen Clifford
Patricia Minnes
Publicatiedatum: 01-01-2013
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 1/2013
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-012-1561-5

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