Top

Journal of Autism and Developmental Disorders

Gepubliceerd in:

01-03-2011 | Original Paper

The Double ABCX Model of Adaptation in Racially Diverse Families with a School-Age Child with Autism

Auteurs: Margaret M. Manning, Laurel Wainwright, Jillian Bennett

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 3/2011

Abstract

In this study, the Double ABCX model of family adaptation was used to explore the impact of severity of autism symptoms, behavior problems, social support, religious coping, and reframing, on outcomes related to family functioning and parental distress. The sample included self-report measures collected from 195 families raising school-age children with autism from racially diverse backgrounds throughout the United States. Hierarchical regression results revealed that the Double ABCX model of family adaptation accounted for a substantial amount of the variance in family functioning (28%) and parental distress (46%). Findings suggest that child behavior problems and reframing are most strongly associated with family outcomes. Clinical implications for working with these families, including the use of strength-based approaches, are discussed.

vorige artikel Standardized ADOS Scores: Measuring Severity of Autism Spectrum Disorders in a Dutch Sample

volgende artikel Early Developmental Regression in Autism Spectrum Disorder: Evidence from an International Multiplex Sample

Abbeduto, L., Seltzer, M. M., Shattuck, P., Krauss, M., Orsmond, G., & Murphy, M. (2004). Psychological well-being and coping in mother’s of youths with autism, Down syndrome, or Fragile X syndrome. American Journal on Mental Retardation, 109, 237–254.CrossRefPubMed

Abidin, R. R. (1995). Manual for the Parenting Stress Index (3rd ed.). Charlottesville, VA: Pediatric Psychology Press.

Achenbach, T. M. (1991). Manual for the Child Behavior Checklist (CBCL/4–18). Burlington, VT: University of Vermont, Department of Psychiatry.

Adamakos, H., Ryan, K., Ulman, D. G., Pascoe, J., Diaz, R., & Chessare, J. (1986). Maternal social support as a predictor of mother-child stress and stimulation. Child Abuse and Neglect, 10, 463–470.CrossRefPubMed

Adler, N., Epel, E., Castellazzo, G., & Ickovics, J. (2000). Relationship of subjective and objective social status with psychological and physiological functioning: Preliminary data in healthy European-American women. Health Psychology, 19, 586–592.CrossRefPubMed

Behr, S. K., Murphy, D. L., & Summers, J. A. (1992). User’s manual: Kansas Inventory of Parental Perceptions (KIPP). Lawrence, KS: Beach Center on Families and Disability.

Beresford, B. A. (1994). Resources and strategies: How parents cope with the care of a disabled child. Journal of Child Psychology and Psychiatry, 35, 171–209.CrossRefPubMed

Berument, S. K., Rutter, M., Lord, C., Pickles, A., & Bailey, A. (1999). Autism screening questionnaire: Diagnostic validity. The British Journal of Psychiatry, 175, 444–451.CrossRefPubMed

Bitsika, V., & Sharpley, C. (2004). Stress, anxiety and depression among parents of children with autism spectrum disorder. Australian Journal of Guidance and Counseling, 14, 151–161.

Bristol, M. (1984). Family resources and successful adaptation to autistic children. In E. Schopler & G. Mesibov (Eds.), The effects of autism on the family. New York: Plenum Press.

Bristol, M. (1987). Mothers of children with autism or communication disorders. Successful adaptation and the double ABCX model. Journal of Autism and Developmental Disorders, 17, 469–486.CrossRefPubMed

Carnes, S., & Quinn, W. (2005). Family adaptation to brain injury: Coping and psychological distress. Families, Systems, & Health, 23, 186–203.CrossRef

Centers for Disease Control and Prevention (2010). Retrieved March 16, 2010 from http://www.cdc.gov/ncbddd/features/counting-autism.html.

Davis, N., & Carter, A. S. (2008). Parenting stress in mother’s and father’s of toddlers with autism spectrum disorders. Journal of Autism and Developmental Disorders, 38, 1278–1291.CrossRefPubMed

Dumas, J. E., Wolf, L. C., Fisman, S. N., & Culligan, A. (1991). Parenting stress, child behavior problems, and dysphoria in parents of children with autism, down syndrome, behavior disorders, and normal development. Exceptionality, 2, 97–110.CrossRef

Dunn, M. E., Burbine, T., Bowers, C. A., & Tantleff-Dunn, S. (2001). Moderators of stress in parents of children with autism. Community Mental Health Journal, 37, 39–51.CrossRefPubMed

Dunst, C. J., Jenkin, V., & Trivette, C. M. (1984). Family Support Scale: Reliability and validity. Journal of Individual, Family and Community Wellness, 1, 45–52.

Folkman, S., & Moskowitz, J. T. (2000). Positive affect and the other side of coping. American Psychologist, 55, 647–654.CrossRefPubMed

Goldberg, S., Marcovitch, S., MacGregor, D., & Lojkasek, M. (1986). Family response to developmental delayed preschoolers: Etiology and the father’s role. American Journal of Mental Deficiency, 90, 610–617.PubMed

Gray, D. (1998). Autism and the family: Problems, prospects, and coping with the disorder. Springfield, IL: Charles C. Thomas.

Harris, S., & Powers, M. (1984). Behavior therapists look at the impact of an autistic child on the family system. In E. Schopler & G. Mesibov (Eds.), The effects of autism on the family. New York: Plenum Press.

Hastings, R. P., & Brown, T. (2002). Behavior problems of autistic children, parental self-efficacy and mental health. American Journal on Mental Retardation, 107, 222–232.CrossRefPubMed

Hastings, R. P., & Johnson, E. (2001). Stress in UK families conducting intensive home-based behavioral intervention for their young children with autism. Journal of Autism and Developmental Disorders, 31, 327–336.CrossRefPubMed

Hastings, R., Kovshoff, H., Brown, T., Ward, N., Espinosa, F., & Remington, B. (2005a). Coping strategies in mothers and fathers of preschool and school-age children with autism. Autism, 9(4), 377–391.CrossRefPubMed

Hastings, R., Kovshoff, H., Ward, N., Espinosa, F., Brown, T., & Remington, B. (2005b). Systems analysis of stress and positive perceptions in mothers and fathers of pre-school children with autism. Journal of Autism and Developmental Disorders, 10, 635–644.CrossRef

Hastings, R. P., & Taunt, H. (2002). Positive perceptions in families of children with developmental disabilities. American Journal on Mental Retardation, 107, 116–127.CrossRefPubMed

Higgins, D., Bailey, S., & Pearce, J. (2005). Factors associated with functioning style and coping strategies of families with a child with an autism spectrum disorder. Autism, 9, 125–137.CrossRefPubMed

Hill, R. (1949). Families under stress. New York: Harper & Row.

Hill, R. (1953). Generic features of families under stress. Social Casework, 49, 139–150.

Keller, D., & Honig, A. (2004). Maternal and paternal stress in families with school-aged children with disabilities. American Journal of Orthopsychiatry, 74, 337–348.CrossRefPubMed

Konstantareas, M. M., & Homatidis, S. (1998). Assessing child symptom severity and stress in parents of autistic children. Journal of Child Psychology and Psychiatry, 30, 459–470.CrossRef

Kuhn, J. C., & Carter, A. S. (2006). Maternal self-efficacy and associated parenting cognitions among mothers of children with autism. American Journal of Orthopsychiatry, 76, 564–575.CrossRefPubMed

Lazarus, R. S., & Folkman, S. (1984). Stress, appraisal, and coping. Berlin: Springer.

Lecavalier, L., Leone, S., & Wiltz, J. (2006). The impact of behavior problems on caregiver stress in young people with autism spectrum disorders. Journal of Intellectual Disability Research, 50, 172–183.CrossRefPubMed

McConachie, H., & Waring, M. (1997). Child psychology portfolio: Parental coping and support. Windsor, UK: NFER-Nelson.

McCubbin, H., Olson, D., & Larsen, A. (1981). Family Crisis Oriented Personal Evaluation Scales (F-COPES). In H. I. McCubbin, A. I. Thompson, & M. A. McCubbin (Eds.), Family Assessment: Resiliency, coping and adaptation inventories for research and practice (pp. 455–507). Madison: University of Wisconsin.

McCubbin, H. I., & Patterson, J. M. (1983). The family stress process: the Double ABCX Model of adjustment and adaptation. In H. I. McCubbin, M. B. Sussman, & J. M. Patterson (Eds.), Social stress and the family: Advances and developments in family stress theory and research. New York: Haworth Press.

Midence, K., & O’Neill, M. (1999). The experience of parents in the diagnosis of autism: A pilot study. Autism, 3, 273–285.CrossRef

Moos, R. H., & Moos, B. S. (1986). Family Environment Scale manual (2nd ed.). Palo Alto, CA: Consulting Psychologists Press.

Norton, P., & Drew, C. (1994). Autism and potential family stressors. The American Journal of Family Therapy, 22, 67–76.CrossRef

Pakenham, K., Samios, C., & Sofronoff, K. (2005). Adjustment in mother’s of children with Asperger’s syndrome. Autism, 9, 191–212.CrossRefPubMed

Poyadue, F. S. (1993). Cognitive coping at parents helping parents. In A. P. Turnbull, J. M. Patterson, S. K. Behr, D. L. Murphy, J. G. Marquis, & M. J. Blue-Banning (Eds.), Cognitive coping, families, and disability (pp. 95–109). Baltimore: Brookes.

Randall, P., & Parker, J. (1999). Supporting the families of children with autism. New York: John Wiley and Sons.

Rodrigue, J. R., Morgan, S. B., & Geffken, G. (1990). Families of autistic children: Psychological functioning of mothers. Journal of Clinical Child Psychology, 19, 371–379.CrossRef

Rogers-Dulan, J., & Blacher, J. (1995). African American families, religion, and disability: A conceptual framework. Mental Retardation, 33, 226–238.PubMed

Sanders, J. L., & Morgan, S. B. (1997). Family stress and adjustment as perceived by caregivers of children with autism or Down syndrome: Implications for intervention. Child and Family Behavior Therapy, 19, 15–32.CrossRef

Scahill, L., Koenig, K., Carroll, D., & Pachler, M. (2007). Risperidone approved for the treatment of serious behavioral problems in children with autism. Journal of Child and Adolescent Psychiatric Nursing, 20, 188–190.CrossRefPubMed

Seltzer, M. M., Greenberg, J. S., & Krauss, M. W. (1995). A comparison of coping strategies of aging mothers of adults with mental illness or mental retardation. Psychology and Aging, 10, 64–75.CrossRefPubMed

Singer, G. H. S., Marquis, J., Powers, L. K., Blanchard, L., Divenere, N., Santelli, B., et al. (1999). A multi-site evaluation of parent to parent programs for parents of children with disabilities. Journal of Early Intervention, 22, 217–229.CrossRef

Sivberg, B. (2002). Family system and coping behaviors. A comparison between parents of children with autistic spectrum disorders and parents with non-autistic children. Autism, 6, 397–409.CrossRefPubMed

Skinner, D., Bailey, D., Correa, V., & Rodriguez, P. (1999). Narrating self and disability: Latino mothers’ construction of identities vis-à-vis their child with special needs. Exceptional Children, 65, 481–495.

Smith, L., Seltzer, M. M., Tager-Flusberg, H., Greenberg, J., & Carter, A. S. (2008). A comparison of well-being and coping among mother’s of toddlers and mother’s of adolescents with ASD. Journal of Autism and Developmental Disorders, 38, 876–889.CrossRefPubMed

Tarakeshwar, N., & Pargament, K. (2001). Religious coping in families of children with autism. Focus on Autism and Other Developmental Disabilities, 16, 247–260.CrossRef

Taunt, H., & Hastings, R. (2002). Positive impact of children with developmental disabilities on their families: A preliminary study. Education and Training in Mental Retardation and Developmental Disabilities, 37, 410–420.

Titel: The Double ABCX Model of Adaptation in Racially Diverse Families with a School-Age Child with Autism
Auteurs: Margaret M. Manning
Laurel Wainwright
Jillian Bennett
Publicatiedatum: 01-03-2011
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 3/2011
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-010-1056-1

Bohn Stafleu van Loghum

Deel dit onderdeel of sectie (kopieer de link)

Abstract

Log in om toegang te krijgen

Andere artikelen Uitgave 3/2011

Behavioral Profiles of Affected and Unaffected Siblings of Children with Autism: Contribution of Measures of Mother–Infant Interaction and Nonverbal Communication

Keiko Tobe: With the Light: Raising an Autistic Child (Volume 5)

Interpretation of Ambiguous Situations: Evidence for a Dissociation Between Social and Physical Threat in Williams Syndrome

Brief Report: Are ADHD Traits Dissociable from the Autistic Profile? Links Between Cognition and Behaviour

Early Developmental Regression in Autism Spectrum Disorder: Evidence from an International Multiplex Sample

Brief Report: Eosinophilic Esophagitis as a Cause of Feeding Problems in Autistic Boy. The First Reported Case