Skip to main content
Top
Gepubliceerd in: Journal of Autism and Developmental Disorders 1/2009

01-01-2009 | Original Paper

Parents’ Experiences of Home-Based Applied Behavior Analysis Programs for Young Children with Autism

Auteurs: Corinna F. Grindle, Hanna Kovshoff, Richard P. Hastings, Bob Remington

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 1/2009

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail

Abstract

Although much research has documented the benefits to children with autism of early intensive behavioral intervention (EIBI), little has focused on the impact of EIBI on families. Using a semi-structured format, we interviewed 53 parents whose children had received 2 years of EIBI to obtain detailed first person accounts of the perceived benefits and pitfalls of running a home program, and the impact of EIBI on family life and support systems. In general, parents were positive about EIBI, its benefits for them, their child, and the broader family. Interviews also, however, revealed some of the more challenging aspects of managing home-based EIBI. The implications of these findings for more supportive interventions for families on home programs are discussed.
Voetnoten
1
Names have been changed.
 
Literatuur
go back to reference Anderson, S. R., Avery, D. L., DiPietro, E. K., Edwards, G. L., & Christian, W. P. (1987). Intensive home-based intervention with autistic children. Education & Treatment of Children, 10, 352–366. Anderson, S. R., Avery, D. L., DiPietro, E. K., Edwards, G. L., & Christian, W. P. (1987). Intensive home-based intervention with autistic children. Education & Treatment of Children, 10, 352–366.
go back to reference Balazs, T. (2005, May). Home programs for autism and other developmental disabilities. Interventions to support parents and other family members. Paper presented at the international meeting of the Association of Behavior Analysis, Chicago. Balazs, T. (2005, May). Home programs for autism and other developmental disabilities. Interventions to support parents and other family members. Paper presented at the international meeting of the Association of Behavior Analysis, Chicago.
go back to reference Birnbrauer, J. S., & Leach, D. J. (1993). The Murdoch Early Intervention Program after two years. Behaviour Change, 10, 63–74. Birnbrauer, J. S., & Leach, D. J. (1993). The Murdoch Early Intervention Program after two years. Behaviour Change, 10, 63–74.
go back to reference Bitsika, V., & Sharpley, C. (2000). Development and testing of the effects of support groups on the well-being of parents of children with autism, II: Specific stress management techniques. Journal of Applied Health Behaviour, 2, 8–15. Bitsika, V., & Sharpley, C. (2000). Development and testing of the effects of support groups on the well-being of parents of children with autism, II: Specific stress management techniques. Journal of Applied Health Behaviour, 2, 8–15.
go back to reference Blackledge, J. T., & Hayes, S. C. (2006). Using acceptance and commitment training in the support of parents of children diagnosed with autism. Child & Family Behavior Therapy, 28, 1–18. doi:10.1300/J019v28n01_01.CrossRef Blackledge, J. T., & Hayes, S. C. (2006). Using acceptance and commitment training in the support of parents of children diagnosed with autism. Child & Family Behavior Therapy, 28, 1–18. doi:10.​1300/​J019v28n01_​01.CrossRef
go back to reference Bristol, M. M., Gallagher, J. J., & Holt, K. D. (1993). Maternal depressive symptoms in autism. Response to psychoeducational intervention. Rehabilitation Psychology, 38, 3–10.CrossRef Bristol, M. M., Gallagher, J. J., & Holt, K. D. (1993). Maternal depressive symptoms in autism. Response to psychoeducational intervention. Rehabilitation Psychology, 38, 3–10.CrossRef
go back to reference Bristol, M. M., & Schopler, E. (1984). A developmental perspective on stress and coping in families of autistic children. In J. Blacher (Ed.), Severely handicapped young children and their families (pp. 91–141). New York: Academic Press. Bristol, M. M., & Schopler, E. (1984). A developmental perspective on stress and coping in families of autistic children. In J. Blacher (Ed.), Severely handicapped young children and their families (pp. 91–141). New York: Academic Press.
go back to reference Cattell-Gordon, D., & Cattell-Gordon, D. (1998). The development of an effective applied behavior analysis program for a young child with autism: A parent’s perspective. Infants and Young Children, 10, 79–85. Cattell-Gordon, D., & Cattell-Gordon, D. (1998). The development of an effective applied behavior analysis program for a young child with autism: A parent’s perspective. Infants and Young Children, 10, 79–85.
go back to reference Celiberti, D. A. (1993). Training parents of children with autism to promote sibling play: Randomized trials of three alternative training interventions. Unpublished doctoral dissertation, Rutgers, The State University of New Jersey, Piscataway, NJ. Celiberti, D. A. (1993). Training parents of children with autism to promote sibling play: Randomized trials of three alternative training interventions. Unpublished doctoral dissertation, Rutgers, The State University of New Jersey, Piscataway, NJ.
go back to reference Dey, I. (1993). Qualitative data analysis. A user friendly guide for social scientists. London: Routledge. Dey, I. (1993). Qualitative data analysis. A user friendly guide for social scientists. London: Routledge.
go back to reference Green, G. (1996). Early behavioral intervention for autism. What does research tell us? In C. Maurice, G. Green, & S. C. Luce (Eds.), Behavioral intervention for young children with autism: A manual for parents and professionals (pp. 29–45). Austin, TX: Pro-Ed. Green, G. (1996). Early behavioral intervention for autism. What does research tell us? In C. Maurice, G. Green, & S. C. Luce (Eds.), Behavioral intervention for young children with autism: A manual for parents and professionals (pp. 29–45). Austin, TX: Pro-Ed.
go back to reference Harris, S. L., & Glasberg, B. (2003). Siblings of children with autism (2nd edn.). Bethesda, MD: Woodbine House. Harris, S. L., & Glasberg, B. (2003). Siblings of children with autism (2nd edn.). Bethesda, MD: Woodbine House.
go back to reference Hastings, R. P. (2008). Stress in parents of children with autism. In E. McGregor, M. Nunez, K. Williams, & J. Gomez (Eds.), Autism: An integrated view (pp. 303–324). Oxford: Blackwell. Hastings, R. P. (2008). Stress in parents of children with autism. In E. McGregor, M. Nunez, K. Williams, & J. Gomez (Eds.), Autism: An integrated view (pp. 303–324). Oxford: Blackwell.
go back to reference Hastings, R. P. (2003). Behavioral adjustment of siblings of children with autism engaged in applied behavior analysis early intervention programs: The moderating role of social support. Journal of Autism and Developmental Disorders, 33, 141–150. doi:10.1023/A:1022983209004.PubMedCrossRef Hastings, R. P. (2003). Behavioral adjustment of siblings of children with autism engaged in applied behavior analysis early intervention programs: The moderating role of social support. Journal of Autism and Developmental Disorders, 33, 141–150. doi:10.​1023/​A:​1022983209004.PubMedCrossRef
go back to reference Hastings, R. P., & Johnson, E. (2001). Stress in UK families conducting intensive home-based behavioral intervention for their young child with autism. Journal of Autism and Developmental Disorders, 31, 327–336. doi:10.1023/A:1010799320795.PubMedCrossRef Hastings, R. P., & Johnson, E. (2001). Stress in UK families conducting intensive home-based behavioral intervention for their young child with autism. Journal of Autism and Developmental Disorders, 31, 327–336. doi:10.​1023/​A:​1010799320795.PubMedCrossRef
go back to reference Hayes, S. C., Strosahl, K., & Wilson, K. G. (1999). Acceptance and commitment therapy: An experiential approach to behavior change. New York: Guilford Press. Hayes, S. C., Strosahl, K., & Wilson, K. G. (1999). Acceptance and commitment therapy: An experiential approach to behavior change. New York: Guilford Press.
go back to reference Koegel, R. L., Schreibman, L., Loos, L. M., Dirlich-Wilheim, H., Dunlap, G., Robbins, F. R., et al. (1992). Consistent stress profiles in mothers of children with autism. Journal of Autism and Developmental Disorders, 22, 205–216. doi:10.1007/BF01058151.PubMedCrossRef Koegel, R. L., Schreibman, L., Loos, L. M., Dirlich-Wilheim, H., Dunlap, G., Robbins, F. R., et al. (1992). Consistent stress profiles in mothers of children with autism. Journal of Autism and Developmental Disorders, 22, 205–216. doi:10.​1007/​BF01058151.PubMedCrossRef
go back to reference Lobato, D. (1990). Brothers, sisters and special needs. Baltimore, MD: Paul H. Brookes. Lobato, D. (1990). Brothers, sisters and special needs. Baltimore, MD: Paul H. Brookes.
go back to reference Lovaas, O. I. (1996). The UCLA young autism model of service delivery. In C. Maurice, G. Green, & S. C. Luce (Eds.), Behavioral intervention for young children with autism: A manual for parents and professionals (pp. 241–248). Austin, TX: Pro-Ed. Lovaas, O. I. (1996). The UCLA young autism model of service delivery. In C. Maurice, G. Green, & S. C. Luce (Eds.), Behavioral intervention for young children with autism: A manual for parents and professionals (pp. 241–248). Austin, TX: Pro-Ed.
go back to reference Lovaas, O. I. (2002). Teaching individuals with developmental delays: Basic intervention techniques. Austin, TX: Pro-Ed. Lovaas, O. I. (2002). Teaching individuals with developmental delays: Basic intervention techniques. Austin, TX: Pro-Ed.
go back to reference Maurice, C., Green, G., & Foxx, R. (Eds.). (2001). Making a difference: Behavioral intervention for autism. Austin, TX: Pro-Ed. Maurice, C., Green, G., & Foxx, R. (Eds.). (2001). Making a difference: Behavioral intervention for autism. Austin, TX: Pro-Ed.
go back to reference McEachin, J. J., Smith, T., & Lovaas, O. I. (1993). Long-term outcome for children with autism who received early intensive behavioral treatment. American Journal of Mental Retardation, 97, 359–372.PubMed McEachin, J. J., Smith, T., & Lovaas, O. I. (1993). Long-term outcome for children with autism who received early intensive behavioral treatment. American Journal of Mental Retardation, 97, 359–372.PubMed
go back to reference Meyer, D. J., & Vadasy, P. E. (1994). Sibshops: Workshops for siblings of children with special needs. Baltimore, MD: Paul H. Brookes. Meyer, D. J., & Vadasy, P. E. (1994). Sibshops: Workshops for siblings of children with special needs. Baltimore, MD: Paul H. Brookes.
go back to reference Mudford, O. C., Martin, N. T., Eikeseth, S., & Bibby, P. (2001). Parent-managed behavioral treatment for preschool children with autism: Some characteristics of UK programs. Research in Developmental Disabilities, 22, 173–182. doi:10.1016/S0891-4222(01)00066-X.PubMedCrossRef Mudford, O. C., Martin, N. T., Eikeseth, S., & Bibby, P. (2001). Parent-managed behavioral treatment for preschool children with autism: Some characteristics of UK programs. Research in Developmental Disabilities, 22, 173–182. doi:10.​1016/​S0891-4222(01)00066-X.PubMedCrossRef
go back to reference Remington, B., Hastings, R., Kovshoff, H., degli Espinosa, F., Jahr, E., Brown, T., Alsford, P., Lemaic, M., & Ward, N. (2007). Early intensive behavioral intervention: Outcomes for children with autism and their parents after two years. American Journal on Mental Retardation, 112, 418–438.PubMedCrossRef Remington, B., Hastings, R., Kovshoff, H., degli Espinosa, F., Jahr, E., Brown, T., Alsford, P., Lemaic, M., & Ward, N. (2007). Early intensive behavioral intervention: Outcomes for children with autism and their parents after two years. American Journal on Mental Retardation, 112, 418–438.PubMedCrossRef
go back to reference Smith, T., Donahoe, P. A., & Davis, B. J. (2000b). The UCLA young autism project. In S. J. Handleman & S. L. Harris (Eds.), Preschool education programs for children with autism (pp. 29–48). Austin, TX: Pro-Ed. Smith, T., Donahoe, P. A., & Davis, B. J. (2000b). The UCLA young autism project. In S. J. Handleman & S. L. Harris (Eds.), Preschool education programs for children with autism (pp. 29–48). Austin, TX: Pro-Ed.
go back to reference Smith, T., Groen, A. D., & Wynn, J. W. (2000c). Randomized trial of intensive early intervention for children with pervasive developmental disorder. American Journal of Mental Retardation, 105, 269–285. doi:10.1352/0895-8017(2000)105<0269:RTOIEI>2.0.CO;2. Smith, T., Groen, A. D., & Wynn, J. W. (2000c). Randomized trial of intensive early intervention for children with pervasive developmental disorder. American Journal of Mental Retardation, 105, 269–285. doi:10.1352/0895-8017(2000)105<0269:RTOIEI>2.0.CO;2.
go back to reference Smith, T., & Wynn, J. (2002). Considerations for selecting consultants for home-based programs. In O. I. Lovaas (Ed.), Teaching individuals with developmental delays: Basic intervention techniques (pp. 327–31). Austin, TX: Pro-Ed. Smith, T., & Wynn, J. (2002). Considerations for selecting consultants for home-based programs. In O. I. Lovaas (Ed.), Teaching individuals with developmental delays: Basic intervention techniques (pp. 327–31). Austin, TX: Pro-Ed.
Metagegevens
Titel
Parents’ Experiences of Home-Based Applied Behavior Analysis Programs for Young Children with Autism
Auteurs
Corinna F. Grindle
Hanna Kovshoff
Richard P. Hastings
Bob Remington
Publicatiedatum
01-01-2009
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 1/2009
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-008-0597-z

Andere artikelen Uitgave 1/2009

Journal of Autism and Developmental Disorders 1/2009 Naar de uitgave