Abstract
Background
Reducing mental illness stigma in youth is an important societal goal, but much of the existing literature focuses on knowledge enhancement strategies. These alone may not be sufficient to enhance empathy, change fundamental attitudes, or reduce social distance.
Objective
To evaluate a youth-initiated, discussion- and empathy-based antistigma school program, called “Let’s Erase the Stigma” (LETS), among adolescents from Los Angeles. We hypothesized that participation in such clubs, for a semester, would be associated with better attitudes toward mental illness, reduced social distance against those with mental illness, and enhanced performance of antistigma actions, but not greater knowledge about mental disorder.
Method
Participants were involved in LETS clubs for a semester; non-participants, also interested in such involvement, were evaluated prior to club activities. Outcomes in this quasi-experimental, non-randomized trial included (a) quantitative measures of attitudes, social distance, positive antistigma actions, and knowledge, all related to mental illness; and (b) open-ended responses related to stigma awareness, potential antistigma actions, and antistigma rationale. The design did not allow for evaluation of pre–post differences but afforded insight into potential contributions of LETS participation regarding outcomes of interest.
Results
LETS participation was associated with statistically significant differences across attitudes, social distance, antistigma actions, and knowledge, with effect sizes ranging from small to large.
Conclusions
Although not meeting the standard of a randomized trial, the findings suggest that a youth-directed, discussion- and action-based intervention may provide a novel means of reducing mental illness stigma in adolescents. The preliminary nature of the results mandates experimental investigations.
Similar content being viewed by others
References
Bogardus, E. S. (1925). Measuring social distances. Journal of Applied Sociology, 9, 299–308.
Corrigan, P. W., Edwards, A. B., Green, A., Diwan, S. L., & Penn, D. L. (2001). Prejudice, social distance, and familiarity with mental illness. Schizophrenia Bulletin, 27(2), 219–225. doi:10.1093/oxfordjournals.schbul.a006868.
Corrigan, P. W., Kosyluk, K. A., & Rüsch, N. (2013). Reducing self-stigma by coming out proud. American Journal of Public Health, 103(5), 794–800. doi:10.2105/AJPH.2012.301037.
Corrigan, P. W., Morris, S. B., Michaels, P. J., Rafacz, J. D., & Rüsch, N. (2012). Challenging the public stigma of mental illness: A meta-analysis of outcome studies. Psychiatric Services, 63(10), 963–973. doi:10.1176/appi.ps.005292011.
Corrigan, P. W., & Penn, D. L. (1999). Lessons from social psychology on discrediting psychiatric stigma. American Psychologist, 54(9), 765–776. doi:10.1037/0003-066X.54.9.765.
Corrigan, P. W., & Rüsch, N. (2002). Mental illness stereotypes and clinical care: Do people avoid treatment because of stigma? Psychiatric Rehabilitation Skills, 6(3), 312–334. doi:10.1080/10973430208408441.
Corrigan, P. W., & Shapiro, J. R. (2010). Measuring the impact of programs that challenge the public stigma of mental illness. Clinical Psychology Review, 30(8), 907–922. doi:10.1016/j.cpr.2010.06.004.
Corrigan, P. W., & Watson, A. C. (2004). At issue: Stop the stigma: Call mental illness a brain disease. Schizophrenia Bulletin, 30(3), 477–479. doi:10.1093/oxfordjournals.schbul.a007095.
Corrigan, P. W., Watson, A. C., Byrne, P., & Davis, K. E. (2005). Mental illness stigma: Problem of public health or social justice? Social Work, 50(4), 363–368. doi:10.1093/sw/50.4.363.
Crisp, A. H., Gelder, M. G., Rix, S., Meltzer, H. I., & Rowlands, O. J. (2000). Stigmatisation of people with mental illnesses. British Journal of Psychiatry, 177(1), 4–7. doi:10.1192/bjp.177.1.4.
Des Jarlais, D. C., Lyles, C., Crepaz, N., & the TREND Group. (2004). Improving the reporting quality of nonrandomized evaluations of behavioral and public health interventions: The TREND statement. American Journal of Public Health, 94(3), 361–366. doi:10.2105/ajph.94.3.361.
DeSocio, J., Stember, L., & Schrinsky, J. (2006). Teaching children about mental health and illness: A school nurse health education program. The Journal of School Nursing, 22(2), 81–86. doi:10.1177/105984050602200204.
Essler, V., Arthur, A., & Stickley, T. (2006). Using a school-based intervention to challenge stigmatizing attitudes and promote mental health in teenagers. Journal of Mental Health, 15(2), 243–250. doi:10.1080/09638230600608669.
Esters, I. G., Cooker, P. G., & Ittenbach, R. F. (1998). Effects of a unit of instruction in mental health on rural adolescents’ conceptions of mental illness and attitudes about seeking help. Adolescence, 33(130), 469–476.
Estroff, S. E., Penn, D. L., & Toporek, J. R. (2004). From stigma to discrimination: An analysis of community efforts to reduce the negative consequences of having a psychiatric disorder and label. Schizophrenia Bulletin, 30(3), 493–509. doi:10.1093/oxfordjournals.schbul.a007097.
Heary, C., Hennessy, E., & Swords, L. (2014). Stigma associated with disease and disability during childhood and adolescence: A developmental approach. In P. W. Corrigan (Ed.), The stigma of disease and disability: Understanding causes and overcoming injustices (pp. 205–222). Washington, DC: American Psychological Association.
Hinshaw, S. P. (2005). The stigmatization of mental illness in children and parents: Developmental issues, family concerns, and research needs. Journal of Child Psychology and Psychiatry, 46(7), 714–734. doi:10.1111/j.1469-7610.2005.01456.x.
Hinshaw, S. P. (2007). The mark of shame: Stigma of mental illness and an agenda for change. New York, NY: Oxford University Press.
Holmes, E. P., & River, L. P. (1998). Individual strategies for coping with the stigma of severe mental illness. Cognitive and Behavioral Practice, 5(2), 231–239. doi:10.1016/S1077-7229(98)80008-4.
IBM Corp. (2011). SPSS Statistics for Windows (Version 20.0) [Computer software]. Armonk, NY: IBM Corp.
Kvaale, E. P., Haslam, N., & Gottdiener, W. H. (2013). The ‘side effects’ of medicalization: A meta-analytic review of how biogenetic explanations affect stigma. Clinical Psychology Review, 33(6), 782–794. doi:10.1016/j.cpr.2013.06.002.
Link, B. G., Phelan, J. C., Bresnahan, M., Stueve, A., & Pescosolido, B. A. (1999). Public conceptions of mental illness: Labels, causes, dangerousness, and social distance. American Journal of Public Health, 89(9), 1328–1333. doi:10.2105/ajph.89.9.1328.
Link, B. G., Yang, L. H., Phelan, J. C., & Collins, P. Y. (2004). Measuring mental illness stigma. Schizophrenia Bulletin, 30(3), 511–541. doi:10.1093/oxfordjournals.schbul.a007098.
Mann, C. E., & Himelein, M. J. (2008). Putting the person back into psychopathology: An intervention to reduce mental illness stigma in the classroom. Social Psychiatry and Psychiatric Epidemiology, 43(7), 545–551. doi:10.1007/s00127-008-0324-2.
Penn, D. L., Guynan, K., Daily, T., Spaulding, W. D., Garbin, C. P., & Sullivan, M. (1994). Dispelling the stigma of schizophrenia: What sort of information is best? Schizophrenia Bulletin, 20(3), 567–578. doi:10.1093/schbul/20.3.567.
Pescosolido, B. A., Martin, J. K., Long, J. S., Medina, T. R., Phelan, J. C., & Link, B. G. (2010). “A disease like any other”? A decade of change in public reactions to schizophrenia, depression, and alcohol dependence. American Journal of Psychiatry, 167(11), 1321–1330. doi:10.1176/appi.ajp.2010.09121743.
Pettigrew, T. F., & Tropp, L. R. (2006). A meta-analytic test of intergroup contact theory. Journal of Personality and Social Psychology, 90(5), 751–783. doi:10.1037/0022-3514.90.5.751.
Pettigrew, T. F., & Tropp, L. R. (2008). How does intergroup contact reduce prejudice? Meta-analytic tests of three mediators. European Journal of Social Psychology, 38(6), 922–934. doi:10.1002/ejsp.504.
Pinfold, V., Toulmin, H., Thornicroft, G., Huxley, P., Farmer, P., & Graham, T. (2003). Reducing psychiatric stigma and discrimination: Evaluation of educational interventions in UK secondary schools. British Journal of Psychiatry, 182(4), 342–346. doi:10.1192/bjp.02.375.
Pinto-Foltz, M. D., & Logsdon, M. C. (2009). Conceptual model of research to reduce stigma related to mental disorders in adolescents. Issues in Mental Health Nursing, 30(12), 788–795. doi:10.3109/01612840903267620.
Reinke, R. R., Corrigan, P. W., Leonhard, C., Lundin, R. K., & Kubiak, M. A. (2004). Examining two aspects of contact on the stigma of mental illness. Journal of Social and Clinical Psychology, 23(3), 377–389. doi:10.1521/jscp.23.3.377.35457.
Roberts, G., Somers, J., Dawe, J., Passy, R., Mays, C., Carr, G., et al. (2007). On the edge: A drama-based mental health education programme on early psychosis for schools. Early Intervention in Psychiatry, 1(2), 168–176. doi:10.1111/j.1751-7893.2007.00025.x.
Schachter, H. M., Girardi, A., Ly, M., Lacroix, D., Lumb, A. B., van Berkom, J., et al. (2008). Effects of school-based interventions on mental health stigmatization: A systematic review. Child and Adolescent Psychiatry and Mental Health, 2(1), 18. doi:10.1186/1753-2000-2-18.
Schulze, B., Richter-Werling, M., Matschinger, H., & Angermeyer, M. C. (2003). Crazy? So what! Effects of a school project on students’ attitudes towards people with schizophrenia. Acta Psychiatrica Scandinavica, 107(2), 142–150. doi:10.1034/j.1600-0447.2003.02444.x.
Sirey, J. A., Bruce, M. L., Alexopoulos, G. S., Perlick, D. A., Raue, P., Friedman, S. J., et al. (2001). Perceived stigma as a predictor of treatment discontinuation in young and older outpatients with depression. American Journal of Psychiatry, 158(3), 479–481. doi:10.1176/appi.ajp.158.3.479.
Stuart, H. (2006). Reaching out to high school youth: The effectiveness of a video-based antistigma program. Canadian Journal of Psychiatry, 51(10), 647–653.
Thornicroft, G. (2006). Shunned: Discrimination against people with mental illness. New York, NY: Oxford University Press.
Thornicroft, G., Rose, D., Kassam, A., & Sartorius, N. (2007). Stigma: Ignorance, prejudice or discrimination? British Journal of Psychiatry, 190(3), 192–193. doi:10.1192/bjp.bp.106.025791.
Tolomiczenko, G. S., Goering, P. N., & Durbin, J. F. (2001). Educating the public about mental illness and homelessness: A cautionary note. Canadian Journal of Psychiatry, 46(3), 253–257.
Vogel, D. L., Bitman, R. L., Hammer, J. H., & Wade, N. G. (2013). Is stigma internalized? The longitudinal impact of public stigma on self-stigma. Journal of Counseling Psychology, 60(2), 311–316. doi:10.1037/a0031889.
Wahl, O. F. (2002). Children’s views of mental illness: A review of the literature. Psychiatric Rehabilitation Skills, 6(2), 134–158. doi:10.1080/10973430208408430.
Wahl, O., Hanrahan, E., Karl, K., Lasher, E., & Swaye, J. (2007). The depiction of mental illnesses in children’s television programs. Journal of Community Psychology, 35(1), 121–133. doi:10.1002/jcop.20138.
Wahl, O. F., Susin, J., Kaplan, L., Lax, A., & Zatina, D. (2011). Changing knowledge and attitudes with a middle school mental health education curriculum. Stigma Research and Action, 1(1), 44–53. doi:10.5463/SRA.v1i1.17.
Wark, C., & Galliher, J. F. (2007). Emory Bogardus and the origins of the social distance scale. American Sociologist, 38(4), 383–395. doi:10.1007/s12108-007-9023-9.
Watson, A. C., Otey, E., Westbrook, A. L., Gardner, A. L., Lamb, T. A., Corrigan, P. W., et al. (2004). Changing middle schoolers’ attitudes about mental illness through education. Schizophrenia Bulletin, 30(3), 563–572. doi:10.1093/oxfordjournals.schbul.a007100.
Yamaguchi, S., Mino, Y., & Uddin, S. (2011). Strategies and future attempts to reduce stigmatization and increase awareness of mental health problems among young people: A narrative review of educational interventions. Psychiatry and Clinical Neurosciences, 65(5), 405–415. doi:10.1111/j.1440-1819.2011.02239.x.
Acknowledgments
Work on this project was supported by the Let’s Erase the Stigma (LETS) Educational Foundation. It was facilitated by the efforts of many dedicated LETS staff members and volunteers and by the dedicated efforts of students and school personnel in the greater Los Angeles area. We are especially grateful for the incredible work on data entry and data coding by Madeleine Fox and Zane Wagener. We would also like to extend special thanks to Landon Costa and Shaikh Ahmad for their guidance and support throughout the duration of this project.
Ethics statement
We have complied with the APA ethical guidelines in performing this investigation. Our quasi-experimental evaluation did not necessitate IRB approval or informed consent, because we did not collect any participant identifying information.
Conflict of interest
The authors declare that they have no conflict of interest.
Author information
Authors and Affiliations
Corresponding author
Rights and permissions
About this article
Cite this article
Murman, N.M., Buckingham, K.C.E., Fontilea, P. et al. Let’s Erase the Stigma (LETS): A Quasi-Experimental Evaluation of Adolescent-Led School Groups Intended to Reduce Mental Illness Stigma. Child Youth Care Forum 43, 621–637 (2014). https://doi.org/10.1007/s10566-014-9257-y
Published:
Issue Date:
DOI: https://doi.org/10.1007/s10566-014-9257-y