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Supporting Parents Who Have Youth with Emotional Disturbances Through a Parent-to-Parent Support Program: A Proof of Concept Study Using Random Assignment

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Abstract

Poor outcomes for youth who have emotional disturbances (ED), especially for those youth who are placed in special education programs, are well documented. Parent Connectors is a parent-to-parent support program delivered through weekly telephone calls to families of youth with ED in special education programs, with the aim of increasing the engagement of parents in their child’s education and treatment and improving the academic and emotional functioning of the child. Findings from a proof of concept study using random assignment of participants yielded encouraging support for the clinical efficacy of the intervention. Results demonstrated enhanced outcomes for parents who were highly strained at the beginning of the study. Implications for future research in the area of parent support are provided.

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References

  • Anderson, J. A., Rivera, V. R., & Kutash, K. (1998). Measuring consumer satisfaction with children’s mental health. In M. H. Epstein, K. Kutash, & A. J. Duchnowski (Eds.), Outcomes for children and youth with behavioral and emotional disorders: Programs and evaluation best practices (pp. 455–482). Austin, TX: Pro-Ed.

  • Bickman, L. (1997). Resolving issues raised by the Fort Bragg evaluation: New directions for mental health services research. American Psychologist, 52(5), 562–565.

    Article  PubMed  CAS  Google Scholar 

  • Bickman, L., Earl, E., & Klindworth, L. (1991). Vanderbilt mental health service self-efficacy questionnaire. Nashville, TN: Vanderbilt University.

    Google Scholar 

  • Bickman, L., Heflinger, C., Northrup, D., Sonnichsen, S., & Schilling, S. (1998a). Long term outcomes to family caregiver empowerment. Journal of Child and Family Studies, 7(3), 269–282.

    Article  Google Scholar 

  • Bickman, L., Salzer, M. S., Lambert, E. W., Saunders, R., Summerfelt, W. T., Heflinger, C., et al. (1998b). Rejoinder to Mordock’s critique of the Ft. Bragg evaluation: The sample is generalizable and the outcomes are clear. Child Psychiatry and Human Development, 29(1), 77–91.

    Article  PubMed  CAS  Google Scholar 

  • Bird, H., Canino, G., Davies, M., Ramirez, R., Chavez, L., & Duarte, C. (2005). The brief impairment scale (BIS): A multidimensional scale of functional impairment for children and adolescents. Journal of American Academy Child and Adolescent Psychiatry, 44(7), 699–707.

    Article  Google Scholar 

  • Blackorby, J., & Wagner, M. (1996). Longitudinal postschool outcomes of youth with disabilities: Findings from the national longitudinal transition study. Exceptional Children, 62(5), 399–414.

    Google Scholar 

  • Borman, G. D., Hewes, G. M., Overman, L. T., & Brown, S. (2002). Comprehensive school reform and school achievement: A meta-analysis (Report No. 59). Baltimore: Johns Hopkins University, Center for Research on the Education of Students Placed at Risk.

  • Brannan, A., & Heflinger, C. (2001). Distinguishing caregiver strain from psychological distress: Modeling the relationships among child, family, and caregiver variables. Journal of Child and Family Studies, 10(4), 405–418.

    Article  Google Scholar 

  • Brannan, A., Heflinger, C., & Bickman, L. (1997). The caregiver strain questionnaire: Measuring the impact on the family of living with a child with serious emotional disturbances. Journal of Emotional and Behavioral Disorders, 5(4), 212–222.

    Article  Google Scholar 

  • Burns, B. J., Costello, E. J., Angold, A., Tweed, D., Stangl, D., Farmer, E. M., et al. (1995). Children’s mental health service use across service sectors. Health Affairs (Project Hope), 14(3), 147–159.

    Article  CAS  Google Scholar 

  • Burns, B. J., & Kutash, K. (2000). Child and adolescent measures of functional status. In: A. J. Rush, M. B. First, & D. Blacker (Eds.), Handbook of psychiatric measures and outcomes (pp. 357–392). Washington, DC: American Psychiatric Association.

  • Can Biotech, Inc. (2010, March 25). Glossary. A proof of concept study. Retrieved from http://www.canbiotech.com/showHTMP.asp?hpId=417.

  • Cappella, E., Frazier, S. L., Atkins, M. S., Schoenwald, S. K., & Glisson, C. (2008). Enhancing schools’ capacity to support children in poverty: An ecological model of school-based mental health services. Administration and Policy In Mental Health, 35(5), 395–409.

    Article  PubMed  Google Scholar 

  • Capraro, M. M. (2005). An introduction to confidence introduction to intervals for both statistical estimates and effect sizes. Research in the Schools, 11(2), 22–33.

    Google Scholar 

  • Cohen, J. (1988). Statistical power analysis for the behavioral sciences (2nd ed.). New York: Academic Press.

    Google Scholar 

  • Cumming, G. (2001). Exploratory Software for Confidence Intervals (CIdelta) [Computer software]. Bundoora, AU: La Trobe University. Retrieved from http://www.latrobe.edu.au/psy/esci/.

  • Cumming, G., & Fidler, F. (2009). Confidence intervals: Better answers to better questions. Journal of Psychology, 217(1), 15–26.

    Google Scholar 

  • Cumming, G., & Finch, S. (2001). A primer on the understanding, use, and calculation of confidence intervals that are based on central and noncentral distributions. Educational and Psychological Measurement, 61(4), 532–574.

    Google Scholar 

  • Department of Health and Human Services. (1999). The Surgeon general’s report—chapter 3: Children and mental health. Mental health: A report of the surgeon general (pp. 124–220). Author.

  • Dunst, C. J., & Trivette, C. M. (1986a). Support functions scale—short version. Newton: Brookline Books.

    Google Scholar 

  • Dunst, C. J., & Trivette, C. M. (1986b). Support functions scale: Reliability and validity. Asheville, NC: Winterberry Press.

    Google Scholar 

  • Elliot, D. J., Koroloff, N., Koren, P. D., & Friesen, B. (1998). Improving access to children’s mental health services: The family associate approach. In M. H. Epstein, K. Kutash, & A. J. Duchnowski (Eds.), Outcomes for children and youth with emotional disorders and their families: Programs and evaluation best practices (pp. 581–609). Austin, TX: Pro-Ed.

    Google Scholar 

  • Fan, X., & Chen, M. (2001). Parental involvement and students’ academic achievement: A meta-analysis. Educational Psychology Review, 13(1), 1–22.

    Article  Google Scholar 

  • Goodman, R. (2001). Psychometric properties of the strengths and difficulties questionnaire. Journal of the American Academy of Child and Adolescent Psychiatry, 40(11), 1337–1345.

    Article  PubMed  CAS  Google Scholar 

  • Greenbaum, P. E., Dedrick, R. F., Friedman, R. M., Kutash, K., Brown, E. C., Lardieri, S. P., et al. (1998). National adolescent and child treatment study (NACTS): Outcomes for children with serious emotional disturbances. In M. H. Epstein, K. Kutash, & A. J. Duchnowski (Eds.), Outcomes for children and youth with behavioral and emotional disorders: Programs and evaluation best practices (pp. 21–54). Austin, TX: Pro-Ed.

    Google Scholar 

  • Hanley, B., Tassé, M. J., Aman, M. G., & Pace, P. (1998). Psychometric properties of the family support scale with head start families. Journal of Child and Family Studies, 07(1), 69–77.

    Article  Google Scholar 

  • Heflinger, C., Bickman, L., Northrup, D., & Sonnichsen, S. (1997). A theory-driven intervention and evaluation to explore family caregiver empowerment. Journal of Emotional and Behavioral Disorders, 5(3), 184–191.

    Article  Google Scholar 

  • Heflinger, C., Northrup, D., Sonnichsen, S., & Brannan, A. M. (1998). Including a family focus in research on community-based services for children with serious emotional disturbance: Experience from the Fort Bragg evaluation project. In M. H. Epstein, K. Kutash, & A. J. Duchnowski (Eds.), Outcomes for children and youth with behavioral and emotional disorders: Programs and evaluation best practices (pp. 261–293). Austin, TX: Pro-Ed.

    Google Scholar 

  • Hoagwood, K. (2005). Family-based services in children’s mental health: A research review and synthesis. Journal of Child Psychology and Psychiatry and Allied Disciplines, 46(7), 690–713.

    Article  Google Scholar 

  • Hoagwood, K. E., Cavaleri, M. A., Olin, S. S., Burns, B. J., Slaton, E., Gruttadero, D., et al. (2010). Family support in children’s mental health: A review and synthesis. Clinical Child and Family Psychology Review, 13(1), 1–45.

    Article  PubMed  Google Scholar 

  • Hoagwood, K., Olin, S. S., Kerker, B. D., Kratochwill, T. R., Crowe, M., & Saka, N. (2007). Empirically based school interventions targeted at academic and mental health functioning. Journal of Emotional and Behavioral Disorders, 15(2), 66–92.

    Article  Google Scholar 

  • Huff, B. (2004). Proof of concept studies/translational research; new hypotheses. Research Initiative/Treatment Action, 10(1), 24–25.

    Google Scholar 

  • Ireys, H. T., Chernoff, R., DeVet, K. A., & Kim, Y. (2001a). Maternal outcomes of a randomized controlled trial of a community-based support program for families of children with chronic illnesses. Archives of Pediatrics and Adolescent Medicine, 155(7), 771–777.

    PubMed  CAS  Google Scholar 

  • Ireys, H., Chernoff, R., Stein, R. E., DeVet, K. A., & Silver, E. J. (2001b). Outcomes of community-based family-to-family support: Lessons learned from a decade of randomized trials. Children’s Services, 4(4), 203–216.

    Article  Google Scholar 

  • Ireys, H., & Sakwa, D. D. (2006). Building family-to-family support programs: Rationale, goals, and challenges. Focal Point, 20(1), 10–14.

    Google Scholar 

  • Ireys, H., Sills, E. M., Kolodner, K. B., & Walsh, B. B. (1996). A social support intervention for parents of children with juvenile rheumatoid arthritis: Results of a randomized trial. Journal of Pediatric Psychology, 21(5), 633–641.

    Article  PubMed  CAS  Google Scholar 

  • Jeynes, W. (2005). A meta-analysis of the relation of parental involvement to urban elementary school student academic achievement. Urban Education, 40(3), 237–269.

    Article  Google Scholar 

  • Jeynes, W. (2007). The relationship between parental involvement and urban secondary school student academic achievement: A meta-analysis. Urban Education, 42(1), 82–110.

    Article  Google Scholar 

  • Kang, E., Brannan, A. M., & Heflinger, C. (2005). Racial differences in responses to the caregiver strain questionnaire. Journal of Child and Family Studies, 14(1), 43–56.

    Article  Google Scholar 

  • Kessler, R. C., Chiu, W. T., Demler, O., & Walters, E. E. (2005). Prevalence, severity, and comorbidity of 12-month DSM-IV disorders in the national comorbidity survey replication. Archives of General Psychiatry, 62(6), 617–627.

    Article  PubMed  Google Scholar 

  • Koren, P. D., DeChillo, N., & Friesen, B. (1992). Measuring empowerment in families whose children have emotional disorders: A brief questionnaire. Rehabilitation Psychology, 37(4), 305–332.

    Article  Google Scholar 

  • Kutash, K., Duchnowski, A. J., & Lynn, N. (2006). School-based mental health: An empirical guide for decision-makers. Tampa: The Research and Training Center for Children’s Mental Health; Louis de la Parte Florida Mental Health Institute, University of South Florida.

  • Kuypers, D. R., Claes, K., Evenepoel, P., Maes, B., & Vanrenterghem, Y. (2004). A prospective proof of concept study of the efficacy of tacrolimus ointment on uraemic pruritus (UP) in patients on chronic dialysis therapy. Nephrology, Dialysis, Transplantation, 19(9), 1895–1901.

    Article  PubMed  CAS  Google Scholar 

  • McCubbin, H., & Patterson, J. (1983). The family stress process: The double ABCX Model of adjustment and adaptation. Marriage and Family Review, 6, 7–37.

    Article  Google Scholar 

  • Mellor, D. (2004). Furthering the use of the strengths and difficulties questionnaire: Reliability with younger child respondents. Psychological Assessment, 16(4), 396–401.

    Article  PubMed  Google Scholar 

  • New Freedom Commission on Mental Health. (2003). Achieving the promise: Transforming mental health care in America (Final Report ed.). DHHS Pub. No SMA-03-3832, Rockville, MD.

  • Newman, L. (2005). Family involvement in the educational development of youth with disabilities: A special topic report of findings from the national longitudinal transition study-2 (NLTS2). Menlo Park, CA: SRI International.

    Google Scholar 

  • Ogles, B. M., Melendez, G., Davis, D. C., & Lunnen, K. M. (1999). The Ohio youth problems, functioning, and satisfaction scale (short form). Ohio: Ohio University.

    Google Scholar 

  • Preyde, M., & Ardal, F. (2003). Effectiveness of a parent “buddy” program for mothers of very preterm infants in a neonatal intensive care unit. Canadian Medical Association. Journal CMAJ, 168(8), 969–974.

    Google Scholar 

  • Reid, R., Gonzalez, J. E., Nordness, P., Trout, A., & Epstein, M. H. (2004). A meta-analysis of the academic status of students with emotional/behavioral disturbance. The Journal of Special Education, 38(3), 130–143.

    Article  Google Scholar 

  • Resendez, M. G., Quist, R. M., & Matshazi, D. G. M. (2000). A longitudinal analysis of family empowerment and client outcomes. Journal of Child and Family Studies, 9(4), 449–460.

    Article  Google Scholar 

  • Robbins, V., Johnston, J., Barnett, H., Hobstetter, W., Kutash, K., Duchnowski, A. J., et al. (2008). Parent to parent: A synthesis of emerging literature. Tampa, FL: University of South Florida, The Louis de la Parte Florida Mental Health Institute, Department of Child and Family Studies.

    Google Scholar 

  • Rones, M., & Hoagwood, K. E. (2000). School-based mental health services: A research review. Clinical Child and Family Psychology Review, 3(4), 223–241.

    Article  PubMed  CAS  Google Scholar 

  • Rosenblatt, A., & Rosenblatt, J. A. (2002). Assessing the effectiveness of care for youth with severe emotional disturbances: Is there agreement between popular outcome measures? Journal of Behavioral Health Services and Research, 29(3), 259–273.

    Article  PubMed  Google Scholar 

  • Scheel, M., & Rieckmann, T. (1998). An empirically derived description of self-efficacy and empowerment for parents of children identified as psychologically disordered. The American Journal of Family Therapy, 26(1), 15–27.

    Article  Google Scholar 

  • Simpson, R. L. (2004). Inclusion of students with behavior disorders in general education settings: Research and measurements issues. Behavior Disorders, 30(1), 19–31.

    Google Scholar 

  • Smith, M. K., Jones, I., Morris, M. F., Grieve, A. P., & Tan, K. (2006). Implementation of a Bayesian adaptive design in a proof of concept study. Pharmaceutical Statistics, 5, 39–50.

    Article  PubMed  Google Scholar 

  • Thompson, B. (2007). Effect sizes, confidence intervals, and confidence intervals for effect sizes. Psychology in the Schools, 44(5), 423–432.

    Article  Google Scholar 

  • Turchik, J., Karpenko, V., & Ogles, B. M. (2007). Further evidence of the utility and validity of a measure of outcome for children and adolescents. Journal of Emotional and Behavioral Disorders, 15(2), 119–128.

    Article  Google Scholar 

  • United States Office of Special Education Programs. (2002). The children we serve: The demographic characteristics of elementary and middle school students with their disabilities and their households. Retrieved May 25, 2009, from http://www.seels.net/info_reports/children_we_serve.htm.

  • Wagner, M. (1995). Outcomes for youths with serious emotional disturbance in secondary school and early adulthood. The Future of Children, 5(2), 90–112.

    Article  PubMed  CAS  Google Scholar 

  • Wagner, M., Friend, M., Bursuck, W., Kutash, K., Duchnowski, A. J., & Sumi, W. C. (2006). Educating students with emotional disturbances: A national perspective on school programs and services. Journal of Emotional and Behavioral Disorders, 14(1), 12–30.

    Article  Google Scholar 

  • Wagner, M., Kutash, K., Duchnowski, A. J., & Epstein, M. H. (2005a). The special education elementary longitudinal study and the national longitudinal transition study: Study designs and implications for children and youth with emotional disturbance. Journal of Emotional and Behavioral Disorders, 13(1), 25–41.

    Article  Google Scholar 

  • Wagner, M., Kutash, K., Duchnowski, A. J., Epstein, M. H., & Sumi, W. C. (2005b). The children and youth we serve: A national picture of the characteristics of students with emotional disturbances receiving special education. Journal of Emotional and Behavioral Disorders, 13(2), 79–96.

    Article  Google Scholar 

  • Wells, K. B. (1999). Treatment research at the crossroads: The scientific interface of clinical trials and effectiveness research. American Journal of Psychiatry, 156(1), 5–10.

    PubMed  CAS  Google Scholar 

  • Wilkinson, G. S. (1993). Wide range achievement test (3rd ed.). Wilmington, DE: Wide Range.

    Google Scholar 

  • Wilkinson, L., & Task Force on Statistical Inference, American Psychological Association, Science Directorate. (1999). Statistical methods in psychology journals: Guidelines and explanations. American Psychologist, 54(8), 594–604.

    Article  Google Scholar 

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Acknowledgement

This study was supported in part by the U.S. Office of Special Education Programs, Grant number H324C040040.

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Correspondence to Krista Kutash.

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Kutash, K., Duchnowski, A.J., Green, A.L. et al. Supporting Parents Who Have Youth with Emotional Disturbances Through a Parent-to-Parent Support Program: A Proof of Concept Study Using Random Assignment. Adm Policy Ment Health 38, 412–427 (2011). https://doi.org/10.1007/s10488-010-0329-5

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