This study examines how family support affects people living with HIV/AIDS (PLHA) in China. In-depth, semi-structured interviews (n=30) were conducted with people living with HIV/AIDS who were infected through different routes (e.g., intravenous drug use, sex) and of different age groups. Findings showed that all of the participants were in great need of help and the primary source of support came from their families. Family support included financial assistance, support in the disclosure process, daily routine activities, medical assistance, or psychological support. This study illustrates that the support provided by family makes multiple levels of positive impact on people living with HIV/AIDS, suggesting the importance of including families in HIV/AIDS interventions.
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REFERENCES
Alubo, O., Zwandor, A., Jolayemi, T., and Omudu, E. (2002). Acceptance and stigmatization of PLWA in Nigeria. AIDS Care, 14(1), 117–126.
Bor, R., Miller, R., and Goldman, E. (1993). HIV/AIDS and the family: A review of research in the first decade. Journal of Family Therapy, 15, 187–204.
Bor, R., Plessis, P., and Russell, M. (2004). The impact of disclosure of HIV on the index patient's self-defined family. Journal of Family Therapy, 26, 167–192.
Burgoyne, R. W. (2005). Exploring direction of causation between social support and clinical outcome for HIV-positive adults in the context of highly active antiretroviral therapy. AIDS Care, 17(1), 111–124.
Cao, X. B., Pang, L., and Wu, Z. Y. (2005). Reasons and patterns of AIDS stigma and intervention strategies. Chinese Journal of AIDS/STD, 11(3), 243–245.
Castro, R., Orozco, E., Aggleton, P., Eroza, E., and Hernandez, J. J. (1998). Family responses to HIV/AIDS in Mexico. Social Science and Medicine, 47(10), 1473–1484.
China Nanfang Zhoumo News. (2004). AIDS mother: The unreachable population? November 11, 2004.
China State Council. (2001). China's action plan for reducing and preventing the spread of HIV/AIDS (2001-2005): Unofficial translation of June 25 China AIDS action plan. Ministry of Health Communicable Disease Control Division, June, 2001.
China Xinhua News Agency. (2002, August 8). Nation mobilizes to fight AIDS/HIV. Retrieved September 12, 2004, from http://www.chinagate.com.cn/english/2698.htm
Derlega, V. J., Winstead, B. A., Oldfield III, E. C., and Barbee, A. P. (2003). Close relationships and social support in coping with HIV: A test of sensitive interaction systems theory. AIDS and Behavior, 7(2), 119–129.
France-Presse. (2002, September 6). China with one million HIV cases, warns of ten-fold increase. Retrieved December 12, 2004, from http://www.aegis.com/news/afp/2002/AF020917.html
HDN Moderation Team. (2005). Discussion summary 3: Stigma, HIV/AIDS and disclosure. Retrieved August 4, 2005, from http://eforums.healthdev.org/read/messages?id=1071
Jia, H., Uphold, C. R., Wu, S., Chen, G. J., and Duncan, P. W. (2005). Predictors of changes in health-related quality of life among men with HIV infection in the HAART era. AIDS Patient Care and STDS, 19(6), 395–405.
Kimberly, J. A., and Serovich, J. M. (1999). The role of family and friend social support in reducing risk behaviors among HIV-positive gay men. AIDS Education and Prevention, 11(6), 465–475.
Li, J. H. (2002, November 1–3). HIV and AIDS in Yunnan: Socioeconomic impact of HIV-AIDS. Paper presented at the Sino-U.S. Conference on Research and Training in AIDS-related Areas, Beijing, China.
Li, L., Wu, Z., Wu, S., Cui, H., and Rotheram, M. J. (2005). Families living with HIV/AIDS in China. Paper presented at the Seventh International Congress on AIDS in Asia and the Pacific Abstracts.
Manopaiboon, C., Shaffer, N., Clark, L., Bhadrakom, C., Siriwasin, W., Chearskul, S., et al. (1998). Impact of HIV on families of HIV-infected women who have recently given birth, Bangkok, Thailand. Journal of Acquired Immune Deficiency Syndromes and Human Retrovirology, 18(1), 54–63.
Muhr, T. (1997). Atlas TI [Computer software]. Berlin: Scientific Software Development.
Ostrow, D., Monjan, A., Joseph, J., Van Raden, M., Fox, R., Lawrence, K., et al. (1989). HIV-related symptoms and psychological functioning in a cohort of homosexual men. American Journal of Psychiatry, 146, 737–742.
Pequegnat, W., Bauman, L. J., Bray, J. H., DiClemente, R., DiIorio, C., and Hoppe, S. K. (2001). Measurement of the role of families in prevention and adaptation to HIV/AIDS. AIDS and Behavior, 5(1), 1–19.
Rosenthal, E. (2002). China raises estimates of HIV-AIDS cases to 1 million. Times News Tracker. Retrieved September 9, 2002, from http://www.nytimes.com/2002/9/06/international/06CND-CHIN.html
Rotheram-Borus, M. J., and Lightfoot, M. (2000). Helping adolescents and parents with AIDS cope effectively with daily life. In W. Pequegnat and J. Szapocznik (Eds.), Working with families in the era of HIV/AIDS (pp. 189–212). Thousand Oaks, CA: Sage.
Sandelowski, M. (1986). The problem of rigor in qualitative research. Advances in Nursing Science, 8, 27–37.
Sethosa, E., and Peltzer, K. (2005). Evaluation of HIV counselling and testing, self-disclosure, social support and sexual behaviour change among a rural sample of HIV reactive patients in South Africa. Curationis, 28(1), 29–41.
Smith, M. Y., and Rapkin, B. D. (1996). Social support and barriers to family involvement in caregiving for persons with AIDS: Implications for patient education. Patient Education and Counseling, 27, 85–94.
State Council AIDS Working Committee Office and UN Theme Group on HIV/AIDS in China. (2004). A joint assessment of HIV/AIDS prevention, treatment and care in China.
Songwathana, P., and Manderson, L. (2001). Stigma and rejection: Living with AIDS in villages in southern Thailand. Medical Anthropology, 20, 1–23.
Tucker, J. D., Henderson, G. E., Wang, T. F., Huang, Y. Y., Parish, W., Pan, S. M., et al. (2005). Surplus men, sex work, and the spread of HIV in China. AIDS, 19(6), 539–547.
The U.N. Theme Group on HIV/AIDS in China. (2002). HIV/AIDS: China's titanic peril. 2001 Report of the AIDS situation and need assessment report.
The U.N. General Assembly. (2005). Kofi Annan's message on International Day of Families. Retrieved January 15, 2005, from http://www.un.org/esa/socdev/family/IntObs/IDF/IDFFrames/IDF2005.htm/
U.S. Embassy. (2000). AIDS in China: Yunnan Province confronts HIV. Retrieved July 12, 2005, from http://www.usembassy-china.org.cn/sandt/yunnanbarth.html
Wang, D. B., Zhang, X. J., Zhang, H. B., Zhang, C. Y., and Su, B. (2005). A rapid assessment of community-wide HIV intervention in China. Sexually Transmitted Infections, 81, 47– 52.
Wu, H. X., and Zhou, L. (1996). Rural-to-urban migration in China. Asia-Pacific Economic Literature, 10(2), 54–67.
Yunnan Center for Disease Prevention and Control. (2004). HIV/AIDS epidemic and response of Yunnan.
Zich, J., and Temoshok, L. (1987) Perceptions of social support in men with AIDS and ARC: Relationships with distress and hardiness. Journal of Applied Social Psychology, 17, 193– 215.
ACKNOWLEDGMENTS
This paper was completed with the support of National Institute of Mental Health grant R01MH070931.
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Li, L., Wu, S., Wu, Z. et al. Understanding Family Support for People Living with HIV/AIDS in Yunnan, China. AIDS Behav 10, 509–517 (2006). https://doi.org/10.1007/s10461-006-9071-0
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DOI: https://doi.org/10.1007/s10461-006-9071-0