Abstract
Purpose
This article presents initial psychometric validation of an instrument developed to measure cyber informational and decisional empowerment. The article provides preliminary insights into the extent to which cyber patients view the digital environment of peer-based information and support as a resource for informed and empowered participation in self health care management.
Methods
Data come from cancer patients (N = 350) who participated in the Study of Virtual Health Networks for Cancer Patients of the 21st Century. Data were first analyzed using exploratory factor analysis with principle component extraction and Varimax rotation. Age-based split-sample analysis (≥51 and ≤50) was performed on a subsample, which consisted of only women (N = 255), in order to cross-validate psychometric data obtained from the full sample. A confirmatory factor analysis was conducted using AMOS 19.0. to further validate the scale.
Results
The composite scale is unidimensional with excellent internal consistency reliability. The highest average scores were obtained for informational empowerment items. The lowest average was for the item that measured empowerment to seek second opinion from additional health care professionals.
Conclusions
The ability of this composite measure to provide information about the extent to which computer-connected patients view digital peer support as an empowerment tool makes it a valuable addition to the literature in health informatics, supportive cancer care, and health quality of life research.
References
Taha J, Sharit J, Czaja S (2009) Use of and satisfaction with sources of health information among older Internet users and nonusers. Gerontologist 49:663–673
Weaver JB III, Thompson NJ, Sargent Weaver S, Hopkins GL (2009) Healthcare non-adherence decisions and Internet health information. Comput Hum Behav 25:1373–1380
Pew Internet & American Life Project. The engaged e-patient population. Available at: http://www.pewinternet.org. Accessed February 1, 2007.
Greene JA, Choudhry NK, Kilabuk E, Shrank WH (2010) Online social networking by patients with diabetes: a qualitative evaluation of communication with Facebook. J Gen Intern 26:287–292
Helft PR (2008) A new age for cancer information seeking: are we better off now? J Gen Intern Med 23:350–352
Seçkin G (2010) Cyber patients surfing the medical Web: computer-mediated medical knowledge and perceived benefits. Comput Hum Behav 26:1694–1700
Fogel J (2004) Internet breast health information use and coping among women with breast cancer. Cyberpsychol Behav 7:59–63
Basch EM, Thaler HT, Shi W, Yakren S, Schrag D (2004) Use of information resources by patients with cancer and their companions. Cancer 100:2476–2483
LaCoursiere SP, Knobf MT, McCorkle R (2005) Cancer patients’ self reported attitudes about the Internet. J Med Internet Res 7:e22
Seçkin G (2009) Internet technology in service of personal health care management: patient perspective. J Tech Hum Serv 27:79–92
Rochman B (2010) Group therapy: why so many patients are sharing their medical data online. Time 47–48
Nimrod G (2009) Seniors' online communities: a quantitative content analysis. Gerontologist 503:382–392
Seçkin G (2007) Virtual networks for cancer patients of the 21st century: patient empowerment, psychological well-being, and trauma transcendence. Doctoral Dissertation. Available from ProQuest database (Document ID: 1459916491. Source: DAI-A 68/12 Publication number: AAT3295352)
Hara R (2010) How to evaluate online resources and support for people affected by cancer. Oncol Nurs Adv 39–40.
iCrossing, a digital marketing company (2010) How America searches: health and wellness. Available at: http://www.icrossing.com. Accessed May 27, 2010
Medical Library Association. A user’s guide to finding and evaluating health information on the Web. Available: http://www.mlanet.org/resources/userguide.html. Accessed November 27, 2009
Todman J, Dugard P (2007) Approaching multivariate analysis. An introduction for psychology. Psychology Press, New York
Hair JF, Black WC, Babin BJ, Anderson RE, Tatham RL (2006) Multivariate data analysis. Pearson, New Jersey
Ashida S, Palmquist AEL, Basen-Engquist K, Singletary ES, Koehly LM (2009) Changes in female support network systems and adaptation after breast cancer diagnosis: differences between older and younger patients. Gerontologist 49:549–559
Kenny DA (2010) Measuring model fit. Available: http://www.davidakenny.net/kenny.htm. Accessed February 19, 2011
Harris GM, Durkin DW, Allen RS, DeCoster J, Burgio LD (2011) Exemplary care as a mediator of the effects of caregiver subjective appraisal and emotional outcomes. Gerontologist 51:332–342
Shaw B, Gustafson DH, Hawkins R, Mctavish F, McDowell H, Pingree S, Ballard D (2006) How underserved breast cancer patients use and benefit from e-health programs. Am Behav Sci 49:823–834
Cullen R. Health information on the Internet (2006) A study of providers, quality, and users. Praeger, Westport
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Seçkin, G. Informational and decisional empowerment in online health support communities: initial psychometric validation of the Cyber Info-Decisional Empowerment Scale (CIDES) and preliminary data from administration of the scale. Support Care Cancer 19, 2057–2061 (2011). https://doi.org/10.1007/s00520-011-1249-y
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DOI: https://doi.org/10.1007/s00520-011-1249-y