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Self-reported assessment of health-related quality of life in children who underwent restorative proctocolectomy with ileal J-pouch anal anastomosis for ulcerative colitis

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Abstract

Purpose

To clarify health-related quality of life (HRQOL) by self-evaluation after restorative proctocolectomy with ileal J-pouch anal anastomosis (IPAA) in children with ulcerative colitis, a questionnaire using the Pediatric Quality of Life Inventory™ 4.0 (PedsQL) was administered.

Methods

The PedsQL was administered to 13 consecutive children (mean age 14.5 years) who underwent IPAA between 2005 and 2010 in our hospital and age-matched healthy controls. The mean duration after IPAA was 2.5 years (range 0.08–6 years) at the time of this study. Healthy children completed the same questionnaire by retrospective imaging during the past 1 month by the PedsQL evaluation policy.

Results

Patients’ total score and each functioning score after IPAA reached the same levels as those in healthy controls. Soiling, pouchitis occurrence, and bowel movements had no significant relationship to the PedsQL total score and each functioning score.

Conclusions

Interference of physical activity, emotional status, and social life caused by refractory ulcerative colitis (UC) worsens patients’ HRQOL. IPAA could resolve these problems in children with UC and result in an HRQOL comparable with that in healthy children.

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Authors and Affiliations

  1. Department of Gastrointestinal and Pediatric Surgery, Mie University Graduate School of Medicine, 2-174 Edobashi, Tsu, Mie, 514-8507, Japan

    Keiichi Uchida, Kiyoshi Hashimoto, Mikihiro Inoue, Kohei Otake, Yuhki Koike, Kohei Matsushita, Hiroyuki Fujikawa, Yoshiki Okita, Toshimitsu Araki, Kouji Tanaka & Masato Kusunoki

  2. Mie University Hospital, Tsu, Mie, Japan

    Ayumi Kawamata

Authors
  1. Keiichi Uchida
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  2. Ayumi Kawamata
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  3. Kiyoshi Hashimoto
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  4. Mikihiro Inoue
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  5. Kohei Otake
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  6. Yuhki Koike
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  7. Kohei Matsushita
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  12. Masato Kusunoki
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Correspondence to Keiichi Uchida.

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Uchida, K., Kawamata, A., Hashimoto, K. et al. Self-reported assessment of health-related quality of life in children who underwent restorative proctocolectomy with ileal J-pouch anal anastomosis for ulcerative colitis. Pediatr Surg Int 29, 287–291 (2013). https://doi.org/10.1007/s00383-012-3224-1

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  • DOI: https://doi.org/10.1007/s00383-012-3224-1

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