Summary
The assessment of problems in functioning and the subjective perception of these problems in people with Multiple Sclerosis: the Multiple Sclerosis Impact Profile (MSIP)
People with Multiple Sclerosis (MS) perceive consequences of this chronic condition that are not limited to impairments in physical functioning but also have their impact on limitations in activities and restrictions in participation in life situations. There is a growing awareness among healthcare professionals that there is a meaningful difference between the objective problems in functioning and the subjective perception of these problems that should be followed by suitable care and support interventions.
A measure for healthcare professionals and people with MS with the goal to evaluate the objective consequences of MS and the subjective perception of these consequences was until recently not available. The Multiple Sclerosis Impact Profile (MSIP) is a recently developed self-report measure for assessing the impact of MS on a broad spectrum of (potential) problems in functioning and the perception of these problems. The MSIP showed sound psychometric qualities and seemed to be a useful instrument in clinical practice for the health professional and for persons with MS.
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Literatuur
Cardol, M., Haan, R.J. de, Bos, G.A. van den, Jong, B.A. de, &; Groot, I.J. de (1999). The development of a handicap assessment questionnaire: the Impact on Participation and Autonomy (IPA).Clinical Rehabilitation, 13, 411-419.
Cardol, M., Haan, R.J. de, Jong, B.A. de, Bos, G.A. van den, &; Groot, I.J. de (2001). Psychometric properties of the Impact on Participation and Autonomy Questionnaire. Archives of Physical Medicine and Rehabilitation, 82, 210-216.
Clark, L.A., &; Watson, D. (1995). Constructing validity: Basic issues in objective scale development. Psychological Assessment, 7, 309-319.
Cohen, L., Pouwer, F., Pfennings, L.E., Lankhorst, G.J., Ploeg, H.M. van der, Polman, C.H., Ader, H.J., Jonnson, A., &; Vleugels, L. (1999). Factor structure of the Disability and Impact Profile in patients with multiple sclerosis. Quality of Life Research, 8, 141-150.
Compston, A., &; Coles, A. (2002). Multiple sclerosis. Lancet, 359, 1221-1231.
International Federation of Multiple Sclerosis Societies. (1985). Minimal Record of Disability for Multiple Sclerosis. New York: National Multiple Sclerosis Societies.
Kempen, G.I.J.M., Miedema, I., Ormel, J., &; Molenaar, W. (1996). The assessment of disability with the Groningen Activity Restriction Scale. Conceptual framework and psychometric properties. Social Science &; Medicine, 43, 1601-1610.
Laman, H., &; Lankhorst, G.J. (1994). Subjective weighting of disability: an approach to quality of life assessment in rehabilitation. Disability and Rehabilitation, 16, 198-204.
Nunnally, J.C., &; Bernstein, I.H. (1994). Psychometric theory (Third ed.). New York: McGraw-Hill.
Olek, M.J., &; Dawson, D.M. (2002). Multiple Sclerosis and other inflammatory demyelinating diseases of the central nervous system. Neurology in clinical practice. (Third ed.) New York: Butterworth Heineman.
Ware, J.E. (2000). SF-36 health survey update. Spine, 25, 3130-3139.
WHO-FIC collaborating Centre in the Netherlands, R. B. (2001). Internationale classificatie van het menselijk functioneren. Houten: Bohn Stafleu van Loghum.
WHOQOL Group. (1998). Development of the World Health Organization WHOQOL-BREF Quality of Life Assessment. Psychological Medicine, 28, 551-558.
World Health Organization (WHO). (2001). International Classification of Functioning, Disability and Health, ICF. Geneva: World Health Organization.
Wynia, K. (2008). The Multiple Sclerosis Impact Profile (MSIP) an ICF-based outcome measure for disability and disability perception in MS: development and psychometric testing. University Medical Center Groningen, University of Groningen. Proefschrift.
Wynia, K., Middel, B., Dijk, J.P. van, Keyser, J. de, &; Reijneveld, S. (2008b). The impact of disabilities on quality of life in people with multiple sclerosis. Multiple Sclerosis, 14, 972-980.
Wynia, K., Middel, B., Dijk, J.P. van, Ruiter, H. de, Keyser, J. de, &; Reijneveld, S.A. (2008c). The Multiple Sclerosis impact Profile (MSIP). Development and testing psychometric properties of an ICF-based health measure. Disability and Rehabilitation, 30, 261-274.
Wynia, K., Middel, B., Dijk, J.P. van, Ruiter, H. de, Lok, W., Keyser, J.H. de, &; Reijneveld, S.A. (2006). Broadening the scope on health problems among the chronically neurologically ill with the International Classification of Functioning (ICF).Disability and Rehabilitation, 28, 1445-1454.
Wynia, K., Middel, B., Dijk, J.P. v., Ruiter, H. de, Lok, W.S., Keyser, J.H. A. d., &; Reijneveld, S.A. (2009). Adding a subjective dimension to an ICF-based disability measure for people with Multiple Sclerosis. Disability and Rehabilitation, 31, 1008-1017.
Wynia, K., Middel, B., Ruiter, H. de, Dijk, J.P. van, Keyser, J.H. de, &; Reijneveld, S.A. (2008a). Stability and relative validity of the Multiple Sclerosis Impact Profile (MSIP). Disability and Rehabilitation, 29, 1-12.
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Mw. dr. Klaske Wynia is onderzoeker zorg voor chronisch zieken, afdeling Neurologie en Wenckebach Instituut, Universitair Medisch Centrum Groningen (UMCG). Mw. dr. Petrie F. Roodbol is lector Verpleegkundige aan de Hanzehogeschool Groningen en directeur Wenckebach Instituut, UMCG
Dr. Berry Middel is methodoloog, afdeling Gezondheidswetenschappen, UMCG.
Bijlage 1 Multiple Sclerosis Impact Profile (MSIP) – Overzicht
Bijlage 1 Multiple Sclerosis Impact Profile (MSIP) – Overzicht
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Wynia, K., Roodbol, P.F. & Middel, B. Meten van functioneringsproblemen én de beleving ervan bij mensen met Multiple Sclerose: de Multiple Sclerosis Impact Profile (MSIP). PSEG 37, 165–176 (2009). https://doi.org/10.1007/BF03080390
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DOI: https://doi.org/10.1007/BF03080390