Abstract
Support services for families who have a member with developmental disabilities are a growing component of many state mental health systems. Family empowerment is a key principle of these programs, but parents and the staff who work with them are often challenged in their efforts to have parents participate in policy development, program management, and evaluation of programs. The use of nominal group techniques is described as a means of identifying factors parents believe characterize quality family support programs. Parents’ identified factors are then compared with factors from a theoretical framework for quality. Parents stressed access to information, adherence to empowerment philosophy, and the importance of interpersonal relationships with staff. Parents placed less emphasis on factors generally found in accreditation criteria.
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Knoll J, Covent S, Osuch, R, et al.: Supporting families: State family support efforts. In: Bradley V, Knoll J, Agosta J (Eds.):Emerging Issues in Family Support. Washington, DC: AAMR, 1992, pp. 57–98.
Taylor S, Knoll J, Lehr S, et al.: Families for all children: Value-based services for children with disabilities and their families. In: Singer G, Irvin L (Eds.):Support for Care Giving Families: Enabling Positive Adaptions to Disability. Baltimore: Brooks, 1989, pp. 41–54.
Dunst C, Trivette C, Deal A: Enabling and empowering families. In: Dunst C, Trivette C, Deal A (Eds.):Supporting & Strengthening Families. Vol. 1: Methods, Strategies and Practices. Cambridge, MA: Brookline, 1994, pp. 2–11.
Bradley V: Implications for policy development. In Singer G, Irvin L (Eds.):Support for Care-Giving Families: Enabling Positive Adaptation to Disability. Baltimore: Brooks, 1989, pp. 343–348.
Dunst C, Trivette C, Starnes A, et al.:Building and Evaluating Family Support Initiatives: A National Study of Programs for Persons with Developmental Disabilities. Baltimore: Brooks, 1993.
Dunst C, Trivette C: Aims and principles of family support programs. In Dunst C, Trivette C, Deal A (Eds.):Supporting & Strengthening Families. Vol. 1: Methods, Strategies and Practices. Cambridge, MA: Brookline, 1994, pp. 30–48.
Agosta J: Using cash assistance to support family efforts. In Singer G, Irvin L (Eds.):Support for Care-Giving Families: Enabling Positive Adaptation to Disability. Baltimore: Brooks, 1989, pp. 189–204.
Dunst C, Trivette C, Deal A:Enabling and Empowering Families: Principles and Guidelines for Practice. Cambridge, MA: Brookline Books, 1988.
Singer G, Irvin L: Family care giving, stress and support. In: Singer G, Irvin L (Eds.):Support for Care-Giving Families: Enabling Positive Adaptation to Disability. Baltimore: Brooks, 1989, pp. 3–26.
Dunst C, Trivette C, Thompson R: Supporting and strengthening family functioning: Toward a congruence between principle and practice. In: Dunst C, Trivette C, Deal A (Eds.):Supporting & Strengthening Families. Vol. 1: Methods, Strategies and Practices. Cambridge, MA: Brookline, 1994, pp. 49–61.
Agosta J, Bradley V:Family Care for Persons with Developmental Disabilities: A Growing Commitment. Boston, MA: Human Services Research Institute, 1985.
Moxley D, Melvyn C, Cohen S: Specifying and facilitating family involvement in services to persons with developmental disabilities.Child and Adolescent Social Work 1989; 6(4):301–312.
Irvin, L: Evaluating family support programs. In: Singer G, Irvin L (Eds.):Support for Care-Giving Families: Enabling Positive Adaptation to Disability. Baltimore: Brooks, 1989, pp. 329–342.
Weber J, Stoneman Z: Parental non-participation in program planning for mentally retarded children: An empirical investigation.Applied Research in Mental Retardation 1986; 7(3):359–369.
Darling R: Parent-professional interaction: The roots of misunderstanding. In: Seligman M (Ed.):The Family with a Handicapped Child: Understanding and Treatment. New York: Grune & Stratton, 1983, pp. 95–124.
Rubin S, Quinn-Curran N: Lost, then found: Parents’ journey through the community service maze. In: Seligman M (Ed.):The Family with a Handicapped Child: Understanding and Treatment. New York: Grune & Stratton, 1983, pp. 63–94.
Warren F, Warren S: The roles of parents in getting and maintaining quality family support services. In: Singer G, Irvin L (Eds.):Support for Care-Giving Families: Enabling Positive Adaptation to Disability. Baltimore: Brooks, 1989, pp. 55–68.
Gaucher, EJ, Coffey RJ:Total Quality in Health Care: From Theory to Practice. San Francisco; Jossey-Bass, 1990.
Lehr S, Lehr R: Getting what you want: Expectations of families. In: Bradley V, Bersani H (Eds.):Quality Assurance for Individuals with Developmental Disabilities; It’s Everybody’s Business. Baltimore: Brookes, 1990, pp. 61–75.
Bradley VJ: Conceptual issues in quality assurance. In: Bradley V, Bersani H (Eds.):Quality Assurance for Individuals with Developmental Disabilities; It’s Everybody’s Business. Baltimore: Brookes, 1990, pp. 3–15.
Conroy JW, Feinstein CS: A new way of thinking about quality. In: Bradley V, Bersani H (Eds.):Quality Assurance for Individuals with Developmental Disabilities; It’s Everybody’s Business. Baltimore: Brookes, 1990, pp. 263–278.
Kimmich MH: The South Carolina model. In: Bradley V, Bersani H (Eds.):Quality Assurance for Individuals with Developmental Disabilities; It’s Everybody’s Business. Baltimore: Brookes, 1990, pp. 281–300.
Kagan S: Defining and achieving quality in family support. In: Kagan S, Weissbourd B (Eds.):Putting Families First: America’s Family Support Movement and the Challenge of Change. San Francisco: Jossey-Bass, 1994, pp. 375–400.
Norton D: Education for professionals in family support. Kagan S, Weissbourd B (Eds.):Putting Families First: America’s Family Support Movement and the Challenge of Change. San Francisco: Jossey-Bass, 1994, pp. 401–440.
Powell D: Evaluating family support programs: Are we making progress? Kagan S, Weissbourd B (Eds.):Putting Families First: America’s Family Support Movement and the Challenge of Change. San Francisco: Jossey-Bass, 1994, pp. 441–470.
Chen H: Issues in constructing program theory. In: Bickman L (Ed.):Advances in Program Theory, New Directions in Program Evaluation, No. 47. San Francisco: Jossey-Bass, 1990, pp. 7–18.
Donabedian, A:Exploration in Quality Assessment and Monitoring. Vol I: The Definition of Quality and Approaches to Its Assessment. Ann Arbor, MI: Health Administration Press, 1980.
Donabedian A: The quality of care: How can it be assessed?Journal of American Medical Association 1988; 260:1744–1748.
Delbecq A, Van de Ven A, Gustafson, D:Group Techniques for Program Planning: A Guide to Nominal Group and Delphi Processes. Glenview, IL: Scott, Foresman, 1975.
Linstone H, Turoff M:The Delphi Method: Techniques and Applications. Reading, MA: Addison-Wesley, 1975.
Moore C:Group Techniques for Idea Building (Applied Social Research Methods Series), Vol. 9. Newbury Park, CA: Sage, 1987.
Morgan D:Focus Groups as Qualitative Research (Sage University Paper Series on Qualitative Research Methods), Vol. 16. Newbury Park, CA: Sage, 1988.
Michigan State Board of Education.Revised Administrative Rules for Special Education and Rules for School Social Workers and School Psychological Services. Lansing, MI: Author, 1986.
Loether H, McTavish D:Descriptive Statistics. Boston: Allyn & Bacon, 1974.
Marcenko M, Herman S, Hazel K: A comparison of how families and their services providers rate family generated quality of service factors.Community Mental Health Journal 1992; 28(5):441–449.
Hemp R, Braddock D: Accreditation of developmental disabilities programs. In: Bradley V, Bersani H (Eds.):Quality Assurance for Individuals with Developmental Disabilities; It’s Everybody’s Business. Baltimore: Brookes, 1990, pp. 187–204.
Knoll, JA: Defining quality in residential services. In: Bradley V, Bersani H (Eds.):Quality Assurance for Individuals with Developmental Disabilities; It’s Everybody’s Business. Baltimore: Brookes, 1990, pp. 235–261.
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This research was funded in part by Grants 87205, 88205, and 89205 from the Michigan Developmental Disabilities Council. This work was carried out at the Services Research Unit, Michigan Department of Mental Health.
An erratum to this article is available at http://dx.doi.org/10.1007/BF02522310.
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Herman, S.E., Marcenko, M.O. & Hazel, K.L. Parents’ perspectives on quality in family support programs. The Journal of Mental Health Administration 23, 156–169 (1996). https://doi.org/10.1007/BF02519107
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DOI: https://doi.org/10.1007/BF02519107