Abstract
This chapter examines quality of life satisfaction across life domains in several sources using the same survey instrument. The research is described in developmental sequence and illustrates how different variables and factors play an important role in our understanding of family quality of life where there is a child with an intellectual or development disability. These results illustrate the importance of taking a wide range of variables into account and the effects that they may have both on the child with a disability and on other family members. These include family age, form of disability, and place of origin, along with the types of support that are required. The relevance of comparing families with and without a child with a disability is also considered. The results suggest that both internal aspects of family life, including the nature of a child’s disability, and external factors, such as community and the types of support available for the family, are highly relevant. The data stress family variability and therefore raise questions concerning the flexibility of support and intervention. The discussion suggests the types of support that are needed and indicates ways in which policy may be redirected to support more optimal family quality of life along with their impact for each member of the family, including the child with a disability. The results, from a research perspective, indicate ways in which measurement and comparison between groups need to be improved in terms of hypotheses, questions, and research methodology. However there are sufficient data, both of a quantitative and a qualitative nature, to suggest how changes might be made to improve policy and practice for supporting families, and at the same time positively influencing the adaptation of the child with a disability.
Keywords
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“Children” is the term used to cover persons of all ages who are the individuals who have been raised by adult members of the family. Unless otherwise stated these children represented a wide age range.
References
Andrews, F. M. (1974). Social indicators of perceived life quality. Social Indicators Research, 1, 279–299.
Brown, I., Anand., S., Fung, W., Isaacs, B., & Baum, N. (2003). Family quality of life: Canadian results from an international study. Journal of Developmental and Physical Disabilities, 15, 207–230.
Brown, I., & Brown, R. (2004). Concept for beginning study in family quality of life. In A. Turnbull, I. Brown, & R. Turnbull (Eds.), Families and people with mental retardation and quality of life: International perspectives (pp. 25–47). Washington, DC: American Association on Mental Retardation.
Brown, I., & Brown, R. I. (2003). Quality of Life and Disability: An Approach for Community Practitioners. London, UK: Jessica Kingsley.
Brown, I., & Brown, R. I. (2009). Choice as an aspect of quality of life for people with intellectual disabilities. Journal of Policy and Practice in Intellectual Disabilities, 6, 10–17.
Brown, I., Brown, R. I., Baum, N. T., Isaacs, B. J., Meyerscough, T., Neikrug, S., et al. (2006). Family Quality of Life Survey: Main Caregivers of People with Intellectual or Developmental Disabilities. Toronto: Surrey Place Centre.
Brown, R. I., Bayer, M. B., & Brown, P. M. (1992). Empowerment and developmental handicaps: Choices and quality of life. Toronto: Captus.
Brown, R. I., MacAdam-Crisp, J., Wang, M., & Iarocci, G. (2006). Family quality of life where there is a child with a developmental disability? Journal of Policy and Practice in Intellectual Disabilities, 3(4), 238–245.
Brown, R. I., Schalock, R. L., & Brown, I. (2009). Quality of life: Its application to persons with intellectual disabilities and their families – introduction and overview. Journal of Policy and Practice in Intellectual Disabilities, 6(1), 2–6.
Chou, Y.-C., & Schalock, R. (2009). Survey outcomes and cross-national comparisons of quality of life with respect to people with intellectual disabilities in Taiwan. Journal of Policy and Practice in Intellectual Disabilities. Intellectual and Developmental Disability, 6(1), 6–9.
Chung, Y., Lee, S., & Chung, B. (2003). Children with developmental disability and family welfare. Seoul: Hyunhaksa.
Cummins, R. A. (2001b). The subjective wellbeing of people caring for a family member with a severe disability at home: A review. Journal of Intellectual and Developmental Disability, 26(1), 88–100.
Esbensen, A. J., Seltzer, M. M., & Greenberg, J. S. (2006). Depressive symptoms of adults with mild to moderate intellectual disability and their relation to maternal well-being. Journal of Policy and Practice in Intellectual Disabilities, 3(4), 229–237.
Isaacs, B. J., Brown, I., Brown, R. I., Baum, N., Myerscough, T., Neikrug, S., et al. (2007). The international family quality of life project: Goals and description of a survey tool. Journal of Policy and Practice in Intellectual Disabilities, 4(3), 177–185.
Keith, K. D., & Schalock, R. L. (Eds.). (2000). Cross-cultural perspectives on quality of life. Washington, DC: American Association on Mental Retardation.
Kim, N. (1997). Social work Intervention model for mothers of children with auditory impairment. Busan: Busan University.
Lee, H. (2002). Parenting social network for the children with developmental disabilities. Korean Journal of Special Education, 37(3), 57–74.
Otrebski, W. (2000). Quality of life of people with mental retardation living in two different environments. In K. D. Keith & R. L. Schalock (Eds.), Cross-cultural perspectives on quality of life (pp. 83–92). Washington, DC: American.
Schalock, R. L., Brown, I., Brown, R., Cummins, R. A., Felce, D., Matikka, L., et al. (2002). Conceptualization, measurement, and application of quality of life for persons with intellectual disabilities: Report of an international panel of experts. Mental Retardation, 40, 457–470.
Schalock, R. L., & Keith, K. D. (1993). Quality of Life Questionnaire. Worthington, OH: IDS Publishing.
Turnbull, A., Brown, I., & Turnbull, R. (Eds.). (2004). Families and people with mental retardation and quality of life: International perspectives. Washington, DC: American Association on Mental Retardation.
Verdugo, M. A., & Schalock, R. L. (2009). Quality of life: From concept to future applications in the field of intellectual disabilities. Journal of Policy and Practice in Intellectual Disabilities, 6, 62–64.
Wang, M., & Brown, R. (2009). Family quality of life: A framework for policy and social service provisions to support families of children with disabilities. Journal of Family Social Work, 12, 144–167.
Wilgosh, L., & Scorgie, K. (2006). Theoretical model for conceptualizing cross-cultural applications and intervention strategies for parents of children with disabilities. Journal of Policy and Practice in Intellectual Disabilities, 3(4), 211–218.
Werner, S., Edwards, M., & Baum, N. T. (2009). Family quality of life before and after out-of-home placement of a family member with an intellectual disability. Journal of Policy and Practice in Intellectual Disabilities, 6, 32–39.
Yang, O. (1998). Social stigma on people with mental disorder. The Korean Journal of Social Welfare, 35, 231–260.
Ylvén, R., Bjôrck-Åkesson, E., & Granlund, M. (2006). Literature review of positive functioning in families with children with a disability. Journal of Policy and Practice in Intellectual Disabilities, 3(4), 253–270.
Zuna, N. I., Turnbull, A., & Summers, J. A. (2009). Family quality of life: Moving fro measurement to application. Journal of Policy and Practice in Intellectual Disabilities, 6, 24–31.
Acknowledgements
We would like to acknowledge the support and assistance of:
Brian Eacott and Hilary Hayes for their involvement in collecting the Australian data while at Flinders University.
Jacqueline Crisp, University of Victoria, Canada, for help with the original Canadian study.
Hyeji Choi, Seoul Women’s University, South Korea.
Cheng-Yea Ma, Psychiatrist, Tsaotun Psychiatric Center, Department of Health, Tsao tun, Nan-Tou, Taiwan.
Also thanks to Patricia M. Brown for editorial suggestions and Cathy Craft, Canada, for graphical preparation.
We also appreciated the support of Office for Disability and Client Services of the South Australian Department for Families and Communities for their assistance in the Australian data collection and The Ministry of Children and Family Development through the Human Early Learning Partnership (HELP) for the Canadian material. The views stated are those of the authors and do not necessarily represent the views of government or HELP.
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Brown, R.I., Hong, K., Shearer, J., Wang, M., Wang, Sy. (2010). Family Quality of Life in Several Countries: Results and Discussion of Satisfaction in Families Where There Is a Child with a Disability. In: Kober, R. (eds) Enhancing the Quality of Life of People with Intellectual Disabilities. Social Indicators Research Series, vol 41. Springer, Dordrecht. https://doi.org/10.1007/978-90-481-9650-0_20
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DOI: https://doi.org/10.1007/978-90-481-9650-0_20
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