Zusammenfassung
Die chronische Erkrankung eines Familienmitglieds hat Auswirkungen auf die gesamte Familie. Anhand von Metaanalysen von mehr als 450 empirischen Studien wird untersucht, ob sich Eltern chronisch kranker Kinder und Jugendlicher von den Eltern gleichaltriger Gesunder im Ausmaß an Stressbelastung und in der psychischen Gesundheit unterscheiden. Ebenso werden Vergleiche der Familienfunktion – z. B. der Kohäsion – vorgenommen. Darauf aufbauend wird analysiert, ob sich die Belastungen der Eltern chronisch körperlich kranker Kinder in Abhängigkeit von der Art der Erkrankung und von anderen Merkmalen dieser Kinder und Eltern unterscheiden.
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Literatur
Weiterführende Literatur
Wallander, J. L. &Varni, J.W. (1998). Effects of pediatric chronic physical disorders on child and family adjustment. Journal of Child Psychology and Psychiatry, 39, 29–46.
Zitierte Literatur
Abidin, R. R. (1995). Parenting Stress Index: Professional Manual (3rd ed.). Odessa, FL: Psychological Assessment Resources.
Alderfer, M., Navsaria, N. & Kazak, A. (2009). Family functioning and posttraumatic stress disorder in adolescent survivors of childhood cancer. Journal of Family Psychology, 23, 717–725.
Barlow, J. H. & Ellard, D. R. (2006). The psychosocial well-being of children with chronic disease, their parents and siblings: an overview of the research evidence base. Child: Care, Health and Development, 32, 19–31.
Bartlett, S. J., Krishan, J. A., Rickert, K. A., Butz, A. M., Malveaux, F. J. & Rand, C. S. (2004). Maternal depressive symptoms and adherence to therapy in inner-city children with asthma. Pediatrics, 113, 229–237.
Beck, A. T., Ward, C. & Mendelson, M. (1961). Beck Depression Inventory (BDI). Archives of General Psychiatry, 4, 561–571.
Berger, Z. E. & Dalton, L. J. (2009). Coping with a cleft: Psychosocial adjustment of adolescents with a cleft lip and palate and their parents. Cleft Palate-Craniofacial Journal, 46, 435–443.
Brehaut, J. C., Kohen, D. E., O’Donnell, M., Raina, P., Rosenbaum, P., Russell, D. J., Swinton, M. & Walter, S. D. (2004). The health of primary caregivers of children with cerebral palsy: How does it compare with that of other Canadian caregivers? Pediatrics, 114, 182–191.
Brown, R. T., Wiener, L., Kupst, M. J., Brennan, T., Behrman, R. et al. (2008). Single parents of children with chronic illness: An understudied phenomenon. Journal of Pediatric Psychology, 33, 408–421.
Butcher, P. R., Wind, T. & Bouma, A. (2008). Parenting stress in mothers and fathers of a child with a hemiparesis: sources of stress, intervening factors and long-term expressions of stress. Child: Care, Health and Development, 34, 920–930.
Cabizuca, M., Marques-Portella, C., Mendlowicz, M. V., Coutinho, E. S. F. & Figueira, I. (2009). Posttraumatic stress disorder in parents of children with chronic illnesses: A metaanalysis. Health Psychology, 28, 379–388.
Cohen, J. (1992). A power primer. Psychological Bulletin, 112, 155–159.
Cohen, M. S. (1999). Families coping with childhood chronic illness: A research review. Families, Systems, & Health, 17, 149–164.
Costello, C. G. (1993). Symptoms of depression. Oxford: Wiley.
Dashiff, C., Vance, D., Abdullatif, H. & Wallander, J. (2009). Parenting, autonomy and self-care of adolescents with type 1 diabetes. Child: Care, Health and Development, 35, 79–88.
DeMore, M., Adams, C. D., Wilson, N. W. & Hogan, M. B. (2005). Medication adherence in pediatric asthma: The role of parental distress and difficult child behavior. Children’s Health Care, 34, 249–255.
Derogatis, L. R. (1977). SCL-90-R. Administration, scoring and procedures manual-I for the R(evised) version. Baltimore, MD: John Hopkins University School of Medicine.
Derogatis, L. R. (1993). Brief Symptom Inventory (BSI), administration, scoring, and procedures manual (3rd edn). Minneapolis, MN: National Computer Services.
Dewey, D. & Crawford, S. G. (2007). Correlates of maternal and paternal adjustment to chronic childhood disease. Journal of Clinical Psychology in Medical Settings, 14, 219–226.
Epstein, N., Baldwin, L. & Bishop, D. (1983). The McMaster Family Assessment Device. Journal of Marital & Family Therapy, 9, 171–180.
Fedrizzi, E., Pagliano, E., Andreucci, E. & Oleari, G. (2003). Hand function in children with hemiplegic cerebral palsy: Prospective follow-up and functional outcome in adolescence. Developmental Medicine & Child Neurology, 45, 85–91.
Ferro, M. A., Avison, W. R., Campbell, M. K. & Speechley, K. N. (2011). Prevalence and trajectories of depressive symptoms in mothers of children with newly-diagnosed epilepsy. Epilepsia, 52, 326–336.
Glenn, S., Cunningham, C., Poole, H., Reeves, D. & Weindling, M. (2009). Maternal parenting stress and its correlates in families with a young child with cerebral palsy. Child: Care Health and Development, 35, 71–78.
Goldberg, D. P. (1978). Manual of the General Health Questionnaire. Windsor: NFER.
Gudmundsdottir, E., Schirren, M. & Boman. K. K. (2011). Psychological resilience and long-term distress in Swedish and Icelandic parents‘ adjustment to childhood cancer. Acta Oncologica, 50, 373–380.
Hatzmann, J., Heymans, H. S, Ferrer-I-Carbonell, A., van Praag, B. M. & Grootenhuis, M. A. (2008). Hidden consequences of success in pediatrics: Parental health-related quality of life-Results from the Care Project. Pediatrics, 122, e1030–e1038.
Hay, W. W., Levin, M. J., Sondheimer, J. M., Deterding, R. R. (Eds.). (2011). Current diagnosis & treatment: Pediatrics (20th edn.). New York: McGraw-Hill.
Helgeson, V. S., Reynolds, K. A., Siminerio, L., Escobar, O. & Becker, D. (2008). Parent and adolescent distribution of responsibility for diabetes self-care: Links to health outcomes. Journal of Pediatric Psychology, 33, 497–508.
Herzer, M., Denson, L. A., Baldasano, R. N. & Hommel, K. A. (2011). Patient and parent psychosocial factors associated with health-related quality of life in pediatric inflammatory bowel disease. Journal of Pediatric Gastroenterology and Nutrition, 52, 295–299.
Holmbeck, G. N. & Devine, K. A. (2010). Psychological and family functioning in spina bifida. Developmental Disabilities, 16, 40–46.
Horton, T. V. & Wallander, J. L. (2001). Hope and social support as resilience factors against psychological distress of mothers who care for children with chronic physical conditions. Rehabilitation Psychology, 46, 382–399.
Hullman, S. E., Wolfe-Christensen, C., Ryan, J. L., Fedele, D. A., Rambo, P. L., Chaney, J. M. & Mullins, L. L. (2010). Parental overprotection, perceived child vulnerability, and parenting stress: A cross-illness comparison. Journal of Clinical Psychology in Medical Settings, 17, 357–365.
Jobe-Shields, L., Alderfer, M. A., Barrera, M., Vannatta, K., Currier, J. M. & Phipps, S. (2009). Parental depression and family environment predict distress in children before stem cell transplantation. Journal of Developmental and Behavioral Pediatrics, 30, 140–146.
Jobst, E. A., Nabors, L. A., Brunner, H. I. & Precht, B. (2007). Pain, fatigue, family functioning, and attitude toward illness in children with juvenile rheumatic diseases. Journal of Developmental and Physical Disabilities, 19, 135–144.
Jones, D. J., Shaffer, A., Forehand, R., Brody, G. & Armistead, L. P. (2003). Coparent conflict in single mother-headed African American families: Do parenting skills serve as a mediator or moderator of child psychosocial adjustment? Behavior Therapy, 34, 259–272.
Kamtsiuris, P., Atzpodien, K., Ellert, U., Schlack, R. & Schlaud, M. (2007). Prävalenz von somatischen Erkrankungen bei Kindern und Jugendlichen in Deutschland. Bundesgesundheitsblatt, 50, 686–700.
Kazak, A. E. & Meadows, A. T. (1989). Families of young adolescents who have survived cancer: Social-emotional adjustment, adaptability, and social support. Journal of Pediatric Psychology, 14, 175–191.
Kazak, A., Simms, S., Barakat, L., Hobbie, W., Foley, B., Golomb, V., et al. (1999). Surviving Cancer Competently Intervention Program (SCCIP): A cognitive-behavioral and family therapy intervention for adolescent survivors of childhood cancer and their families. Family Process, 38, 175–191.
King, G., King, S., Rosenbaum, P. & Goffin, R. (1999). Familycentered caregiving and well-being of parents of children with disabilities: Linking process with outcome. Journal of Pediatric Psychology, 24, 41–53.
Kovacs, M., Iyengar, S., Goldstone, D., Obrosky, D. S., Stewart, J. & Marsh, J. (1990). Psychological functioning among mothers of children with insulin-dependent diabetes mellitus: A longitudinal study. Journal of Consulting and Clinical Psychology, 58, 189–195.
Landgraf, J. M. & Abetz, L. N. (1997). The physical and psychosocial well-being of children representing three cultural groups: Initial self-reports using the child health questionnaire (CHQ-CF87). Psychology and Health, 12, 1–16.
Landolt, M. A., Buechel, E. V. & Latal, B. (2011). Predictors of parental quality of life after child open heart surgery: A 6-month prospective study. Journal of Pediatrics, 158, 93–99.
Lim, J. H., Wood, B. L., Miller, B. D. & Simmens, S. J. (2011). Effects of paternal and maternal depressive symptoms on child internalizing symptoms and asthma disease activity: Mediation by interparental negativity and parenting. Journal of Family Psychology, 25, 137–146.
Lipsey, M. W. & Wilson, D. B. (2001). Practical meta-analysis. Thousand Oaks, CA: Sage.
Long, K. A. & Marsland, A. L. (2011). Family adjustment to childhood cancer: A systematic review. Clinical Child and Family Psychology Review, 14, 57–88.
Lopez, W. L., Mullins, L. L., Wolfe-Christensen, C. & Bourdeau, T. (2008). The relation between parental psychological distress and adolescent anxiety in youths with chronic illnesses: The mediating effect of perceived child vulnerability. Children’s Health Care, 37, 171–182.
Manne, S., DuHamel, K., Redd, W. H. et al. (2000). Association of psychological vulnerability factors to post-traumatic stress symptomatology in mothers of pediatric cancer survivors. Psycho-Oncology, 9, 372–384.
Manne, S., DuHamel, K., Ostroff, J. et al. (2003). Coping and the course of mothers’depressive symptoms during and after pediatric bone marrow transplantation. Journal of the American Academy of Child and Adolescent Psychiatry, 42, 1055–1068.
McCusker, C. G., Doherty, N. N., Molloy, B., Rooney, N., Mulholland, C., Sands, A., Craig, B., Stewart, M. & Casey, F. (2010). A controlled trial of early interventions to promote maternal adjustment and development in infants born with severe congenital heart disease. Child: Care, Health and Development, 36, 110–117.
Monaghan, M., Hilliard, M. E., Cogen, F. R. & Streisand, R. (2011). Supporting parents of very young children with type 1 diabetes: Results from a pilot study. Patient Education and Counseling, 82, 271–274.
Moos, R. & Moos, B. (1994). Family Environment Scale manual: Development, applications, research (3rd edn.). Palo Alto, CA: Consulting Psychologist Press.
Noojin, A. B. & Wallander, J. L. (1997). Perceived problem-solving ability, stress, and coping in mothers of children with physical disabilities: Potential cognitive influences on adjustment. International Journal of Behavioral Medicine, 4, 415–432.
Norberg, A. L., Lindblad, F. & Boman, K. K. (2005). Parental traumatic stress during and after paediatric cancer treatment. Acta Oncologica, 44, 382–388.
Pai, A. L., Greenley, R. N., Lewandowski, A., Drotar, D., Youngstrom, E. & Peterson, C. C. (2007). A meta-analytic review of the influence of pediatric cancer on parent and family functioning. Journal of Family Psychology, 21, 407–415.
Phares, V., Lopez, E., Fields, S., Kamboukos, D. & Duhig, A. (2005). Are fathers involved in pediatric psychology research and treatment? Journal of Pediatric Psychology, 30, 631–643.
Pinquart, M. & Shen, Y. (2011). Behavior problems in children and adolescents with chronic physical illness: A metaanalysis. Journal of Pediatric Psychology, 36, 1003–1016.
Pope, A. W., Tillman, K. & Snyder, H. (2005). Parenting stress in infancy and psychosocial adjustment in toddlerhood: A longitudinal study of children with craniofacial anomalies. Cleft Palate-Craniofacial Journal, 42, 556–559.
Rabineau, K. M., Mabe, P. A. & Roger, A. V. (2008). Parenting stress in pediatric oncology populations. Journal of Pediatric Hematology/Oncology, 30, 1077–1087.
Radloff, L. S. (1977). The CES-D scale: A self report depression scale for research in the general population. Applied Psychological Measurement, 1, 385–401.
Rosenthal, R. & Rubin, D. B. (1982). A simple general purpose display of magnitude of experimental effect. Journal of Educational Psychology, 74, 166–169.
Sahler, O. J., Varni, J. W., Fairclough, D. L. et al. (2002). Problemsolving skills training for mothers of children with newly diagnosed cancer: A randomized trial. Journal of Developmental and Behavioral Pediatrics, 23, 77–86.
Sahler, O. J., Fairclough, D. L., Phipps, S., Mulhern, R. K., Dolgin, M. J. & Noll, R. B. (2005). Using problem-solving skills training to reduce negative affectivity in mothers of children with newly diagnosed cancer: Report of a multisite randomized trial. Journal of Consulting & Clinical Psychology, 73, 272–283.
Silver, E. J., Bauman, L. J. & Ireys, H. T. (1998). Relationships of self-esteem and efficacy to psychological distress in mothers of children with chronic physical illness. Health Psychology, 14, 333–340.
Silver, E. J., Warman, K. L. & Stein, R. E. (2005). The relationship of caretaker anxiety to children‘s asthma morbidity and acute care utilization. Journal of Asthma, 42, 379–383.
Sloper, P. (2000). Predictors of distress in parents of children with cancer: A prospective study. Journal of Pediatric Psychology, 25, 79–91.
Spielberger, C. D., Gorsuch, R. L. & Lushene. R. E. (1970). Manual for the State-Trait Anxiety Inventory. Palo Alto, CA: Consulting Psychologists Press.
Vermaes, I., Janssen, J., Bosman, A. & Gerris, J. (2005). Parents‘ psychological adjustment in families of children with spina bifida: A meta-analysis. BMC Pediatrics, 5, 32–45.
Vrijmoet-Wiersma, C. M. J., Van Klink, J. M. M., Kolk, A. M., Koopman, H. M., Ball, L. M. & Egeler, R. M. (2008). Assessment of parental psychological stress in pediatric cancer: A review. Journal of Pediatric Psychology, 33, 1–13.
Wallander, J. L. &Varni, J. W. (1998). Effects of pediatric chronic physical disorders on child and family adjustment. Journal of Child Psychology and Psychiatry, 39, 29–46.
Warschburger, P. (2000). Chronisch kranke Kinder und Jugendliche. Göttingen: Hogrefe.
Yong, L., Chengye, J. & Jiong, Q. (2006). Factors affecting the quality of life in childhood epilepsy in China. Acta Neurologica Scandinavia, 113, 167–173.
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Teubert, D., Pinquart, M. (2013). Belastungen der Eltern chronisch körperlich kranker Kinder. In: Pinquart, M. (eds) Wenn Kinder und Jugendliche körperlich chronisch krank sind. Springer, Berlin, Heidelberg. https://doi.org/10.1007/978-3-642-31277-9_6
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DOI: https://doi.org/10.1007/978-3-642-31277-9_6
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