Abstract
The prognosis and outcomes of autism spectrum disorder (ASD) are highly influenced by social and family contexts, cultural history, public policies, available programs, environment, and opportunities. Families who live in under-resourced environments face more than their share of stress and obstacles. Social determinants that prevent families affected by ASD from accessing needed interventions may have a detrimental impact on child and family outcomes. Addressing these issues is particularly critical for vulnerable families who are SES disadvantaged. In this chapter, we describe general understanding and cultural interpretation of ASD in disadvantaged families in Taiwan. We also summarize ASD-related services in the Taiwanese health-care and education systems available to families of children with ASD, as well as common barriers to ASD diagnosis and ASD services. Furthermore, we discuss the challenges and opportunities for adapting individualized parent-implemented intervention for the underserved and SES-disadvantaged families who are affected by ASD. Lastly, we suggest feasible strategies for successful adaptation and adoption of parent-implemented intervention for these families.
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References
Blake, J. M., Rubenstein, E., Tsai, P.-C., Rahman, H., Rieth, S. R., Hasmot, A., et al. (2017). Lessons learned while developing, adapting, and implementing a pilot parent-mediated behavioural intervention for children with autism spectrum disorder in rural Bangladesh (In press).
Central Intelligence Agency (2016). https://www.cia.gov/library/publications/the-world-factbook/geos/tw.html. Accessed 25 May 2016.
Chang, C.-F. (2014a). 身心障礙及資賦優異學生鑑定辦法說明:拾貳、自閉症鑑定辦法說明 [Instructions for identifying students with mental and/or physical disabilites or talented students: Chapter 12: Instructions for Autism Identification].
Chang, H.-H. (2014b). Social change and the disability rights movement in Taiwan 1981–2002. Review of Disability Studies: An International Journal, 3(1 & 2), (3–18).
Chao, K. Y., Chang, H. L., Chin, W. C., Li, H. M., & Chen, S. H. (2017). How Taiwanese parents of children with autism spectrum disorder experience the process of obtaining a diagnosis: A descriptive phenomenological analysis. Autism, doi:https://doi.org/10.1177/1362361316680915,
Chen, C.-Y., Liu, C.-Y., Su, W.-C., Huang, S.-L., & Lin, K.-M. (2008). Urbanicity-related variation in help-seeking and services utilization among preschool-age children with autism in Taiwan. Journal of Autism and Developmental Disorders, 38(3), 489–497.
Chen, T.-T. (2009). 以家庭中心取向早期介入服務模式建構親職教育 [The Renewal of Parent Education in family-centered Early Intervention]. Special Education Forum(7), 18–33, doi:https://doi.org/10.6502/sef.2009.7.18-33.
Chu, C.-L., Chiang, C.-H., Wu, C.-C., Hou, Y.-M., & Liu, J.-H. (2017). Service system and cognitive outcomes for young children with autism spectrum disorders in a rural area of Taiwan. Autism, 0(0). https://doi.org/10.1177/1362361316664867
Chung, K. F., & Wong, M. C. (2004). Experience of stigma among Chinese mental health patients in Hong Kong. Psychiatric Bulletin, 28(12), 451–454. https://doi.org/10.1192/pb.28.12.451
Department of Human Resources Development, National Development Council (2016). Population Projections for R.O.C. (Taiwan): 2016~2060. http://www.ndc.gov.tw/en/cp.aspx?n=2E5DCB04C64512CC. Accessed 28 Feb 2017.
Dingfelder, H. E., & Mandell, D. S. (2011). Bridging the research-to-practice gap in autism intervention: An application of diffusion of innovation theory. Journal of Autism and Developmental Disorders, 41(5), 597–609. https://doi.org/10.1007/s10803-010-1081-0
Drmic, I. E., Aljunied, M., & Reaven, J. (2017). Feasibility, acceptability and preliminary treatment outcomes in a school-based CBT intervention program for adolescents with ASD and anxiety in Singapore. Journal of Autism and Developmental Disorders, 47, 1–21. https://doi.org/10.1007/s10803-016-3007-y
Fung, K. M. T., Tsang, H. W. H., Corrigan, P. W., Lam, C. S., & Cheng, W. M. (2007). Measuring self-stigma of mental illness in China and its implications for recovery. International Journal of Social Psychiatry, 53(5), 408–418. https://doi.org/10.1177/0020764007078342
Health Promotion Administration, Ministry of Health and Welfare (2016). 衛生福利部國民健康署輔導兒童發展聯合評估中心(105年度) [Children's developmental evaluation centers affiliated with Health Promotion Administration, Ministry of Health and Welfare in 2016]. http://www.hpa.gov.tw/Pages/ashx/File.ashx?FilePath=~/File/Attach/548/File_1652.pdf. Accessed 25 April 2016.
Inada, N., Koyama, T., Inokuchi, E., Kuroda, M., & Kamio, Y. (2011). Reliability and validity of the Japanese version of the modified checklist for autism in toddlers (M-CHAT). Research in Autism Spectrum Disorders, 5(1), 330–336. https://doi.org/10.1016/j.rasd.2010.04.016.
Lai, D. C., Tseng, Y. C., Hou, Y. M., & Guo, H. R. (2012). Gender and geographic differences in the prevalence of autism spectrum disorders in children: Analysis of data from the national disability registry of Taiwan. Research in Developmental Disabilities, 33(3), 909–915. https://doi.org/10.1016/j.ridd.2011.12.015
Lung, F.-W., Chiang, T.-L., Lin, S.-J., & Shu, B.-C. (2016). Urban and education disparity for autism Spectrum disorders in Taiwan birth cohort study. Journal of Autism and Developmental Disorders, 47, 1–8. https://doi.org/10.1007/s10803-016-2980-5
Ministry of Education Republic of China (Taiwan) (2015). 偏鄉數位關懷推動計畫 [Plan for Improving Internet and Computer Usage in Rural Areas]. http://itaiwan.moe.gov.tw/upfd/upfile/105Project/104-偏鄉數位關懷推動計畫成果專刊_Compressed.pdf. Accessed 3 March 2017.
Ministry of Health and Welfare Republic of China (Taiwan) (2016). 中低收入戶統計 [Statistics of Middle to Low-and Low-Income Housholds]. http://www.mohw.gov.tw/cht/DOS/Statistic.aspx?f_list_no=312&fod_list_no=4197. Accessed February 27 2017.
Ministry of health and Welfare Republic of China (Taiwan) (2016). 中低收入戶統計 [Statistics of middle to low- and low-income housholds]. http://www.mohw.gov.tw/cht/DOS/Statistic.aspx?f_list_no=312&fod_list_no=4197. Accessed 27 Feb 2017.
Ministry of Labor Republic of China (Taiwan) (2015). International Labor Statistics. http://statdb.mol.gov.tw/html/nat/table10.3.pdf. Accessed 28 Feb 2017.
National Statistics Republic Of China (Taiwan) (2010). 2010 Population and Housing Census. https://eng.stat.gov.tw/public/Data/7113143851PNHSNJPU.pdf. Accessed 26 Feb 2017.
Rodrigo, M. J., Almeida, A., Spiel, C., & Koops, W. (2012). Introduction: Evidence-based parent education programmes to promote positive parenting. European Journal of Developmental Psychology, 9(1), 2–10.
Special Education Transmit Net, Minsitry of Education Republic of China (Taiwan), (2016). 特殊教育統計查詢 [Statistics of special education]. https://www.set.edu.tw/Stastic_WEB/sta2/default.asp. Accessed 21 March 2016.
Tsai, P.-C., Chen, P.-F., Wu, Y.-T., Stahmer, A. C., Reith, S. R., Chang, C.-M., et al. (2015). A Parent-Implemented Autism Intervention Among Underserved Families in Taiwan. Paper presented at the International Meeting for Autism Research Salt Lake City, Utah, USA, May 13–16, 2015
Wang, C.-L., & Lin, S.-J. (2008). The survey of children language assessment practices in Taiwan. Bulletin of Special Education and Rehabilitation, 19, 1–23.
Wong, Y.-S., Yang, C.-C., Steward, L., Chiang, C.-H., & Wu, C.-C. (2017). Use of the Chinese version modified checklist for autism in toddlers in a high-risk sample in Taiwan (under review).
Wu, T.-Y., Majeed, A., & Kuo, K. N. (2010). An overview of the healthcare system in Taiwan. London Journal of Primary Care, 3(2), 115–119.
Yen, Z.-L., & Chang, C.-F. (2014). 臺灣自閉症者家庭碩博士論文回顧與分析 [Families of Individuals with Autism in Taiwan]. Annual Journal of Special Education, 247–262.
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Lee, LC., Stahmer, A.C., Wu, CC., Tsai, PC., Chiang, CH. (2018). Home-Based, Parent-Implemented Intervention for Underserved Families in Taiwan. In: Siller, M., Morgan, L. (eds) Handbook of Parent-Implemented Interventions for Very Young Children with Autism. Autism and Child Psychopathology Series. Springer, Cham. https://doi.org/10.1007/978-3-319-90994-3_23
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