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Critical Autism Studies

Encyclopedia of Autism Spectrum Disorders

Synonyms

Critical autism studies; Emancipatory autism studies; Transformative autism studies (Woods et al. 2018)

Definition

Introduction

Critical Autism Studies (CAS) is the only autistic-led community of practice, within autism studies, and it has a few proposed definitions. A recent entry by notable autistic CAS scholars reviewed the main definitions and its ontology to propose a more inclusive approach between autistic and non-autistic academics; the preferred definition put forward is:

The ‘criticality’ comes from investigating power dynamics that operate in discourses around autism, questioning deficit-based definitions of autism, and being willing to consider the ways in which biology and culture intersect to produce ‘disability’. (Waltz 2014, p. 1337)

For a discussion on the other primary CAS definitions, see Woods et al. (2018). This essay outlines key concepts from disability studies and the nature of the neurodiversity movement before explaining how CAS is relevant to...

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References and Reading

  • All Party Parliamentary Group on Autism. (2019). The Autism Act, 10 years on: A report from the All Party Parliamentary Group on Autism on understanding, services and support for autistic people and their families in England (Online report). Retrieved from: https://www.autism.org.uk/get-involved/media-centre/news/2019-09-09-not-enough-campaign.aspx. Accessed 12 Sept 2019.

  • Alvares, G., Bebbeington, K., Cleary, D., Evans, K., Glassom, E., Evans, K., … Whitehouse, A. (2019). The misnomer of ‘high functioning autism’: Intelligence is an imprecise predictor of functional abilities at diagnosis. Autism. https://doi.org/10.1177/1362361319852831.

    Article  PubMed  Google Scholar 

  • Andrews, T., Hodge, N., & Redmore, N. (2019). The potential of the fractions of lifeworld for inclusive qualitative inquiry in the third space. The International Journal of Inclusive Education., 1. https://doi.org/10.1080/13603116.2019.1642398.

  • Angell, A., & Solomon, O. (2017). “If I was a different ethnicity, would she treat me the same?”: Latino parents’ experiences obtaining autism services. Disability & Society, 32(8), 1142–1164.

    Article  Google Scholar 

  • Arnold, L. (2012). Introduction. Autonomy, the Critical Journal of Interdisciplinary Autism Studies, 1(1).

    Google Scholar 

  • Arnold, L. (2017). A brief history of “neurodiversity” as a concept and perhaps a movement. Autonomy, the Critical Journal of Interdisciplinary Autism Studies, 1(5).

    Google Scholar 

  • Barnes, C. (2008). Disability and the Academy: a British perspective (Conference paper). Retrieved from: https://disability-studies.leeds.ac.uk/wp-content/uploads/sites/40/library/Barnes-Whats-the-point.pdf. Accessed 18 Oct 2019.

  • Berghs, M., Atkin, K., Hatton, C., & Thomas, C. (2019). Do disabled people need a stronger social model: A social model of human rights? Disability & Society, 34, 1034. https://doi.org/10.1080/09687599.2019.1619239.

    Article  Google Scholar 

  • Bertilsdotter-Rosqvist, H. (2019). Doing things together: Exploring meanings of different forms of sociality among autistic people in an autistic work space. European Journal of Disability Research, 13(3), 168–178.

    Article  Google Scholar 

  • Bertilsdotter-Rosqvist, H., Kourti, M., Jackson-Perry, D., Brownlow, C., Fletcher, K., Bendelman, D., & O’Dell, L. (2019). Doing it differently: Emancipatory autism studies within a neurodiverse academic space. Disability & Society, 34, 1082. https://doi.org/10.1080/09687599.2019.1603102.

    Article  Google Scholar 

  • Bolton, J. (2018). With the silence of a thousand cries: Extremes of autistic advocacy. Disability & Society, 33(6), 980–984.

    Article  Google Scholar 

  • Campbell, F. (2008). Exploring internalized ableism using critical race theory. Disability & Society, 23(2), 151–162.

    Article  Google Scholar 

  • Cassidy, S., Bradley, L., Shaw, R., & Baron-Cohen, S. (2018). Risk markers for suicidality in autistic adults. Molecular Autism, 9, 42. https://doi.org/10.1186/s13229-018-0226-4.

    Article  PubMed  Google Scholar 

  • Chown, N. (2017). Understanding and evaluating autism theory. London: Jessica Kingsley Publishers.

    Google Scholar 

  • Chown, N. (2019a). Neurodiversity. In F. Volkmar (Ed.), Encyclopaedia of autism spectrum disorders. New York: Springer Nature.

    Google Scholar 

  • Chown, N. (2019b). Who benefits from autism research? And to what extent is it participatory and/or emancipatory?: A brief follow-up to Pellicano, Dinsmore and Charman (2014). Autism Policy and Practice, 2(1), 93–95.

    Google Scholar 

  • Chown, N., Robinson, J., Beardon, L., Downing, J., Hughes, L., Leatherland, J., ... & MacGregor, D. (2017). Improving research about us, with us: A draft framework for inclusive autism research. Disability & Society, 32(5), 720–734.

    Google Scholar 

  • Davidson, J., & Orsini, M. (2013). Worlds of autism: Across the spectrum of neurological difference. Minneapolis: University of Minnesota Press.

    Book  Google Scholar 

  • Dawson, M. (2004). The misbehaviour of behaviourists: ethical challenges to the autism-ABA industry (Online blog). Retrieved from: http://www.sentex.net/~nexus23/naa_aba.html. Accessed 12 Aug 2019.

  • Den Houting, J. (2019). Neurodiversity: An insider’s perspective. Autism, 23(2), 271–273.

    Article  Google Scholar 

  • Evans, J. (2013). Feminist theory today: An introduction to second wave feminism. London: SAGE.

    Google Scholar 

  • Fletcher-Watson, S., & Happé, F. (2019). In 2nd (Ed.), Autism: A new introduction to psychological theory and current debate. Abingdon-on-Thames: Routledge.

    Chapter  Google Scholar 

  • Fletcher-Watson, S., Adams, J., Brook, K., Charman, T., Crane, L., Cusack, J., ... & Pellicano, E. (2019). Making the future together: Shaping autism research through meaningful participation. Autism, 23(4), 943–953.

    Google Scholar 

  • Goodley, D. (2011). Disability studies: An interdisciplinary introduction. London: SAGE.

    Google Scholar 

  • Gould, J., & Ashton-Smith, J. (2011). Missed diagnosis or misdiagnosis? Girls and women on the autism spectrum. Good Autism Practice, 12(1), 34–41.

    Google Scholar 

  • Grinker, R. (2020). Autism, “stigma,” disability a shifting historical terrain. Current Anthropology, 61(21). https://doi.org/10.1086/705748.

  • Guest, E. (2019). Autism from different points of view: Two sides of the same coin. Disability & Society. https://doi.org/10.1080/09687599.2019.1596199.

  • Happé, F. (2011). Criteria, categories, and continua: Autism and related disorders in DSM-5. American Academy of Child and Adolescent Psychiatry, 50(6), 540–542.

    Article  Google Scholar 

  • Harte, C. (2019). Reframing compliance: Exposing violence within applied behaviour analysis. Masters, City University of Seattle.

    Google Scholar 

  • Hassiotis, A., Poppe, M., Strydom, A., & Vickerstaff, V. (2018). Clinical outcomes of staff training in positive behaviour support to reduce challenging behaviour in adults with intellectual disability: Cluster randomised controlled trial. The British Journal of Psychiatry, 212(3), 161–168.

    Article  PubMed  Google Scholar 

  • Kupferstein, H. (2018). Evidence of increased PTSD symptoms in autistics exposed to applied behaviour analysis. Advances in Autism, 4(1), 19–29.

    Article  Google Scholar 

  • Leatherland, J. (2018). Understanding how autistic pupils experience secondary school: Autism criteria, theory and FAMe™. Ph.D., Sheffield Hallam University.

    Google Scholar 

  • Macleod, K., Causton, J., Radel, M., & Radel, P. (2017). Rethinking the individualised education plan process: Voices from the other side of the table. Disability & Society, 32(3), 381–400.

    Article  Google Scholar 

  • Macloud, A. (2019). Interpretative phenomenological analysis (IPA) as a tool for participatory research within critical autism studies: A systematic review. Research in Autism Spectrum Disorders, 64.(2019, 49–62.

    Article  Google Scholar 

  • Maddox, B., Trubanova, A., & White, S. (2017). Untended wounds: Non-suicidal self-injury in adults with autism spectrum disorder. Autism, 21(4), 412–422.

    Article  PubMed  Google Scholar 

  • McGuire, A. (2015). “Life worth defending”: Biopolitical frames of terror in the war on autism. In S. Tremain (Ed.), Foucault and the government of disability: Enlarged and revised edition (pp. 350–371). Ann Arbor: University of Michigan Press.

    Google Scholar 

  • McGuire, A. (2016). War on autism. Ann Arbor: University of Michigan Press.

    Book  Google Scholar 

  • Milton, D. (2013). Reversing the vicious circle of psycho-emotional disablism in the education of autistic people. In P. Banerjee, R. Barrie, & M. Hand (Eds.), Championing research, educating professionals: How compatible are elitism, inclusion and social justice? (pp. 127–134). Birmingham: University of Birmingham.

    Google Scholar 

  • Milton, D. (2017). A mismatch of salience: Explorations of the nature of autism from theory to practice. Hove: Pavilion Publishing and Media Ltd.

    Google Scholar 

  • Milton, D. (2018). Pathological Demand Avoidance (PDA) and alternative explanations: a critical overview (Conference paper). Retrieved from: https://kar.kent.ac.uk/67064/1/PDA%20and%20alternative%20explanations.pdf. Accessed 12 Aug 2019.

  • Milton, D., & Lyte. (2012). The normalisation agenda and the psycho-emotional disablement of autistic people. Autonomy, the Critical Journal of Interdisciplinary Autism Studies, 1(1).

    Google Scholar 

  • Milton, D., & Moon, L. (2012). And that, Damian, is what I call life-changing’: Findings from an action research project involving autistic adults in an on-line sociology study group. Good Autism Practice, 13(2), 32–39.

    Google Scholar 

  • Milton, D., Kapp, S., Bovell, V., Timimi, S., & Russell, G. (2019). Deconstructing diagnosis: Multi-disciplinary perspectives on a diagnostic tool. Autonomy, the Critical Journal of Interdisciplinary Autism Studies, 1(6).

    Google Scholar 

  • Moore, A. (2019, June 04). Pathological demand avoidance: What and who are being pathologized and in whose interests? Paper presented at Participatory Autism Research Collective (PARC) critical autism studies conference 2019, PARC, London

    Google Scholar 

  • Nicolaidis, C., Raymaker, D., Kapp, S., Baggs, A., Ashkenazy, E., McDonald, K., … Joyce, A. (2019). The AASPIRE practice-based guidelines for the inclusion of autistic adults in research as co-researchers and study participants. Autism. https://doi.org/10.1177/1362361319830523.

    Article  PubMed  Google Scholar 

  • Oliver, M. (2013). The social model of disability: Thirty years on. Disability & Society, 28(7), 1024–1026.

    Article  Google Scholar 

  • Pellicano, E., Dinsmore, A., & Charman, T. (2014). What should autism research focus upon? Community views and priorities from the United Kingdom. Autism, 18(7), 756–770.

    Article  PubMed  Google Scholar 

  • Pickles, A., Le Couteur, A., Leadbitter, K., Salomone, K., Cole-Fletcher, R., Tobin, H., Gammer, I., … Green, J. (2016). Parent-mediated social communication therapy for young children with autism (PACT): Long-term follow-up of a randomised controlled trial. Lancet, 388(2016), 2501–2509.

    Article  Google Scholar 

  • Pountney, O. (2018). Untangling the knots of neuroqueer intersectionality. A presentation at Autscape 2018. Retrieved from: http://www.autscape.org/2018/programme/handouts/Untangling%20the%20knots%20of%20neuroqueer%20intersectionality.pdf. Accessed 19 Aug 2019.

  • Ridout, S. (2014). More than picture-making: Reflecting on collage as a narrative tool for opening discourse on the involvement of autistics in autism research. Autonomy, the Critical Journal of Interdisciplinary Autism Studies, 1(3).

    Google Scholar 

  • Ridout, S. (2016). Well-being and creative methodologies as a tool for communicating with health and social care practitioners. In D. Milton & N. Martin (Eds.), Autism and intellectual disability in adults (Vol. 1, pp. 45–47). Hove: Pavilion Publishing and Media Limited.

    Google Scholar 

  • Rosenblatt, A. (2018). Autism, advocacy organizations, and past injustice. Disability Studies Quarterly, 38(4).

    Google Scholar 

  • Runswick-Cole, K. (2014). ‘Us’ and ‘them’: The limits and possibilities of a ‘politics of neurodiversity’ in neoliberal times. Disability & Society, 29(7), 1117–1129.

    Article  Google Scholar 

  • Runswick-Cole, K., Mallett, R., & Timimi, S. (2016). Re-thinking autism: Diagnosis identity and equality. London: Jessica Kingsley Publishers.

    Google Scholar 

  • Saxe, A. (2017). The theory of intersectionality: A new lens for understanding the barriers faced by autistic women. Canadian Journal of Disability Studies, 6(4), 153–178.

    Article  Google Scholar 

  • Shakespeare, T. (2017). Disability: The basics. Abingdon: Routledge.

    Book  Google Scholar 

  • Sinclair, J. (2013[1999]). Why I dislike “person first” language. Autonomy, the Critical Journal of Interdisciplinary Autism Studies, 1(2).

    Google Scholar 

  • Stewart, C. (2012). Where can we be what we are?’: The experiences of girls with Asperger syndrome and their mothers. Good Autism Practice, 13(1), 40–48.

    Google Scholar 

  • Strand, L. (2017). Charting relations between intersectionality theory and the neurodiversity paradigm. Disability Studies Quarterly, 37(2).

    Google Scholar 

  • Thomas, C. (1999). Female forms: Experiencing and understanding disability (1st ed.). Buckingham: Open University Press.

    Google Scholar 

  • Waldock, K. E. (2019). Commentary on “thinking differently? Autism and quality of life”. Tizard Learning Disability Review, 24(2), 77–81.

    Article  Google Scholar 

  • Waltz, M. (2007). The relationship of ethics to quality: A particular case of research in autism. International Journal of Research & Method in Education, 30(3), 353–361.

    Article  Google Scholar 

  • Waltz, M. (2008). Autism = Death: The social and medical impact of a catastrophic medical model of autistic spectrum disorders. Journal of Popular Narrative Media, 1(1), 13–24.

    Article  Google Scholar 

  • Waltz, M. (2012). Images and narratives of autism within charity discourses. Disability & Society, 27(2), 219–233.

    Article  Google Scholar 

  • Waltz, M. (2014). Worlds of autism: Across the spectrum of neurological difference. Disability & Society, 29(8), 1337–1338.

    Article  Google Scholar 

  • Williams, A. (2018). Autonomously autistic: Exposing the locus of autistic pathology. Canadian Journal of Disability Studies, 7(2), 60–82.

    Article  Google Scholar 

  • Wood, R. (2019). Autism, intense interests and support in school: From wasted efforts to shared understandings. Educational Review., 1. https://doi.org/10.1080/00131911.2019.1566213.

  • Woods, R. (2017a). Pathological demand avoidance: My thoughts on looping effects and commodification of autism. Disability & Society, 32(5), 753–758.

    Article  Google Scholar 

  • Woods, R. (2017b). Exploring how the social model of disability can be reinvigorated for autism: In response to Jonathan Levitt. Disability & Society, 32(7), 1090–1095.

    Article  Google Scholar 

  • Woods, R., & Waltz, M. (2019). The strength of autistic expertise and its implications for autism knowledge production: A response to Damian Milton. Autonomy, the Critical Journal of Interdisciplinary Autism Studies, 1(6).

    Google Scholar 

  • Woods, R., Milton, D., Arnold, L., & Graby, S. (2018). Redefining critical autism studies: A more inclusive interpretation. Disability & Society, 33(6), 974–979.

    Article  Google Scholar 

  • Yergeau, M. (2010). Circle wars: Reshaping the typical autism essay. Disability Studies Qaurterly, 30(1).

    Google Scholar 

  • Yergeau, M. (2013). Clinically significant disturbance: On theorists who theorize theory of mind. Disability Studies Quarterly, 33(4).

    Google Scholar 

  • Yergeau, M. (2017). Authoring autism: On rhetoric and neurological queerness. Durham: Duke University Press.

    Book  Google Scholar 

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Woods, R., Waldock, K.E. (2020). Critical Autism Studies. In: Volkmar, F. (eds) Encyclopedia of Autism Spectrum Disorders. Springer, New York, NY. https://doi.org/10.1007/978-1-4614-6435-8_102297-1

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  1. Latest

    Critical Autism Studies
    Published:
    22 June 2020

    DOI: https://doi.org/10.1007/978-1-4614-6435-8_102297-2

  2. Original

    Critical Autism Studies
    Published:
    07 December 2019

    DOI: https://doi.org/10.1007/978-1-4614-6435-8_102297-1