Quality of Life Measures in Caregivers of Patients with Cancer

Grov, E. K.; Dahl, A. A.

doi:10.1007/978-0-387-78665-0_171

E. K. Grov &
A. A. Dahl

359 Accesses
1 Citations

Abstract:

Many kinds of tasks and considerable responsibility are put on informal (family) caregivers when impaired cancer patients stay at home during their illness trajectory. The roles and functions of caregivers vary depending on the demands required from the patient and the family situation, but regularly the caregiver situation has five areas of challenge: physical, psychological, social, spiritual and financial. Caregivers’ coping with these challenges in turn influences their quality of life (QOL). In this chapter we review measures that concern caregiving of adult patients, have been published in English, and that cover at least four of the five areas of challenge. We consider caregiver “burden” and “need” as aspects of QOL, and do not considered measures that focus only on “burden” or “need.” Based on these selection criteria, we review six measures: The Caregiver Quality of Life Index – Cancer Scale, The Caregiver Reaction Assessment, The Quality of Life in Life-Threatening Illness – Family Carer Version, The Measurement of Objective Burden and of Subjective Burden, and Bakas Caregiving Outcomes Scale. The reliability and validity data of these scales are presented as well as data of their coverage, format and feasibility. The measures vary considerably in these regards, and all of them have their merits. The choice between these measures for the clinic or for research has to be guided by purpose, manpower and design considerations.

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Abbreviations

ADLs:: activities of daily living
BCOS:: Bakas Caregiver Outcome Scale
CQOLC:: The Cancer Quality of Life Index-Cancer Scale
CRA:: The Caregiver Reaction Assessment
CSI:: The Caregiver Strain Index
MOB/MSB:: The Measurement of Objective Burden and of Subjective Burden
QOL:: quality of life
QOLLTI-F:: The Quality of life in life-threatening illness – Family carer version

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E. K. Grov
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A. A. Dahl
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Editors and Affiliations

Dept. Nutrition and Dietetics Nutritional Sciences Research Division School of Biomedical & Health Sciences, King's College London, Franklin‐Wilkins Building 150 Stamford Street, SE1 9NH, London, UK
Victor R. Preedy (Prof.) (Prof.)
Mel and Enid Zuckerman College of Public Health, University of Arizona, Health Science Center 1295 N. Martin, P.O. Box 245155, 85724-5155, Tucson, AZ
Ronald R. Watson (Prof.) (Prof.)

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Grov, E.K., Dahl, A.A. (2010). Quality of Life Measures in Caregivers of Patients with Cancer. In: Preedy, V.R., Watson, R.R. (eds) Handbook of Disease Burdens and Quality of Life Measures. Springer, New York, NY. https://doi.org/10.1007/978-0-387-78665-0_171

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DOI: https://doi.org/10.1007/978-0-387-78665-0_171
Publisher Name: Springer, New York, NY
Print ISBN: 978-0-387-78664-3
Online ISBN: 978-0-387-78665-0
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