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03-11-2018 | Original Paper

Life After an Autism Spectrum Disorder Diagnosis: A Comparison of Stress and Coping Profiles of African American and Euro-American Caregivers

Tijdschrift:: Journal of Autism and Developmental Disorders

Auteurs:: Takeshia V. Williams, Kathrin Hartmann, James F. Paulson, C. Teal Raffaele, Maria R. Urbano

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Abstract

The purpose of the present study was to understand how caregiver stress and coping behaviors impact African American and Euro-American families differently when caring for a child with autism. This study used discriminate function analysis to contrast the stress and coping profiles of Euro-American caregivers who are more acculturated with the majority culture with African American caregivers who ascribe to more traditional values. A sample of 103 families was recruited (52 Euro-American, 51 African American). African American families reported significantly more stress and utilizing more varied coping strategies than their Euro-American counterparts. Additional differences were found between the high and low acculturated African American groups such that low acculturated African Americans were more likely to engage in religious coping.

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Meer informatie

Abidin, R. R. (2012). Parenting Stress Index Professional Manual (4th edn.). Lutz: PAR Inc.

Armstrong, K., McMurphy, S., Dean, L. T., Micco, E., Putt, M., Halbert, C. H., Schwartz, J. S., Sankar, P., Pyeritz, R. E., Bernhardt, B., Shea, J. A. (2008). Differences in the patterns of health care system distrust between blacks and whites. Journal of General Internal Medicine, 23, 827–833. https://doi.org/10.1007/s11606-008-0561-9. CrossRefPubMedPubMedCentral

Baker-Ericzén, M. J., Brookman-Frazee, L., & Stahmer, A. (2005). Stress levels and adaptability in parents of toddlers with and without autism spectrum disorders. Research & Practice for Persons with Severe Disabilities, 30, 194–204. https://doi.org/10.2511/rpsd.30.4.194. CrossRef

Begeer, S., El Bouk, S., Boussaid, W., Terwogt, M. M., & Koot, H. M. (2009). Underdiagnosis and referral bias of autism in ethnic minorities. Journal of Autism and Developmental Disorders, 39, 142–148. https://doi.org/10.1007/s10803-008-0611-5. CrossRefPubMed

Blacher, J., & McIntyre, L. L. (2006). Syndrome specificity and behavioural disorders in young adults with intellectual disability: Cultural differences in family impact. Journal of Intellectual Disability Research, 50, 184–198. https://doi.org/10.1111/j.1365-2788.2005.00768.x. CrossRefPubMed

Brantley, P. J., O’Hea, E. L., Jones, G., & Mehan, D. J. (2002). The influence of income level and ethnicity on coping strategies. Journal of Psychopathology and Behavioral Assessment, 24, 39–45. https://doi.org/10.1023/A:1014001208005. CrossRef

Centers for Disease Control and Prevention. (2014). Prevalence of autism spectrum disorder among children aged 8 years-autism and developmental disabilities monitoring network, 11 sites, United States, 2010. Morbidity and Mortality Weekly Report. 63. Retrieved from http://www.cdc.gov/mmwr/preview/mmwrhtml/ss6302a1.htm.

Chang, Y., Fine, M. A., Ispa, J., Thornburg, K. R., Sharp, E., & Wolfenstein, M. (2004). Understanding parenting stress among young, low-income, African–American, first-time mothers. Early Education and Development, 15, 265–282. https://doi.org/10.1207/s15566935eed1503.2. CrossRef

Chatters, L. M., Taylor, R. J., Bullard, K. M., & Jackson, J. S. (2008). Spirituality and subjective religiosity among African Americans, Caribbean Blacks, and non-Hispanic Whites. Journal for the Scientific Study of Religion, 47, 725–737. https://doi.org/10.1111/j.1468-5906.2008.00437.x. CrossRefPubMedPubMedCentral

Estes, A., Olson, E., Sullivan, K., Greenson, J., Winter, J., Dawson, G., & Munson, J. (2013). Parenting-related stress and psychological distress in mothers of toddlers with autism spectrum disorders. Brain & Development, 35, 133–138. https://doi.org/10.1016/j.braindev.2012.10.004. CrossRef

Folkman, S., Lazarus, R. S., Dunkel-Schetter, C., DeLongis, A., & Gruen, R. J. (1986). Dynamics of a stressful encounter: Cognitive appraisal, coping, and encounter outcomes. Journal of Personality and Social Psychology, 50, 992–1003. https://doi.org/10.1037/0022-3514.50.5.992. CrossRefPubMed

Fox, R. S., Merz, M. T., Solórzano, M. T., & Roesch, S. C. (2013). Further examining Berry’s model: The applicability of latent profile analysis to acculturation. Measurement and Evaluation in Counseling and Development, 46, 270–288. https://doi.org/10.1177/0748175613497036. CrossRefPubMedPubMedCentral

Fu, M., Shen, Y. C., & Marquez, G. (2014). Personal adjustment of ethnic minority populations across the life span by gender as measured by stress and coping. In F. T. L. Leong (Ed.), APA handbook of multicultural psychology: Applications and training (Vol. 2, pp. 107–118). Washington, DC: American Psychological Association. CrossRef

Goin-Kochel, R. P., Mackintosh, V. H., & Myers, B. J. (2009). Parental reports on the efficacy of treatments and therapies for their children with autism spectrum disorders. Research in Autism Spectrum Disorders, 3(2), 528–537. https://doi.org/10.1016/j.rasd.2008.11.001. CrossRef

Goldstein, S., & Naglieri, J. A. (2010). Autism Spectrum Rating Scale Technical Manual. North Tonawanda: Multi-Health Systems Inc.

Greenglass, S., Jakubiec, F., & Taubert. (1999). The Proactive Coping Inventory (PCI): A Multidimensional Research Instrument. http://www.psych.yorku.ca/greenglass/.

Griffith, G. M., Hastings, R. P., Nash, S., & Hill, C. (2010). Using matched groups to explore child behavior problems and maternal well-being in children with down syndrome and autism. Journal of Autism and Developmental Disorders, 40, 610–619. https://doi.org/10.1007/s10803-009-0906-1. CrossRefPubMed

Jamison, J. M., Fourie, E., Siper, P. M., Trelles, M. P., George-Jones, J., Grice, B., Krata, J., Holl, E., Shaoul, J., Hernandez, B., Mitchell, L., Kolevzon, A. (2017). Examining the efficacy of a family peer advocate model for black and Hispanic caregivers of children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 47(5), 1314–1322. https://doi.org/10.1007/s10803-017-3045-0. CrossRefPubMed

Keenan, B. M., Newman, L. K., Gray, K. M., & Rinehart, N. J. (2016). Parents of children with ASD experience more psychological distress, parenting stress, and attachment-related anxiety. Journal of Autism and Developmental Disorders, 46(9), 2979–2991. https://doi.org/10.1007/s10803-016-2836-z. CrossRefPubMed

Kelly, S., Maynigo, P., Wesley, K., & Durham, J. (2013). African American communities and family systems: Relevance and challenges. Couple and Family Psychology: Research and Practice, 2, 264–277. https://doi.org/10.1037/cfp0000014. CrossRef

Klinger, L. G., Dawson, G., & Renner, P. (2003). Autistic disorder. In E. J. Mash & R. A. Barkley (Eds.), Child Psychopathology (2nd edn., pp. 409–454). New York: Guilford Press.

Klonoff, E. A., & Landrine, H. (2000). Revising and improving the African American acculturation scale. Journal of Black Psychology, 26, 235–261. https://doi.org/10.1177/0095798400026002007. CrossRef

Kroon Van Diest, A. M., Tartakovsky, M., Stachon, C., Pettit, J. W., & Perez (2014). The relationship between acculturative stress and eating disorder symptoms: Is it unique from general life stress? Journal of Behavioral Medicine, 37, 445–457. https://doi.org/10.1007/s10865-013-9498-5. CrossRef

Landrine, H., & Klonoff, E. A. (1996). The schedule of racist events: A measure of racial discrimination and a study of its negative physical and mental health consequences. Journal of Black Psychology, 22(2), 144–168. https://doi.org/10.1177/00957984960222002. CrossRef

Landrine, H., & Klonoff, E. A. (2006). African American acculturation: Deconstructing race and reviving culture. Thousand Oaks: SAGE Publications, Inc.

LaVeist, T. A., Thorpe, R. J. Jr., Pierre, G., Mance, G. A., & Williams, D. R. (2014). The relationships among vigilant coping style, race, and depression. Journal of Social Issues, 70, 241–255. https://doi.org/10.1111/josi.12058. CrossRefPubMed

Magaña, S., Parish, S. L., Rose, R. A., Timberlake, M., & Swaine, J. G. (2012). Racial and ethnic disparities in quality of health care among children with autism and other developmental disabilities. Intellectual and Developmental Disabilities, 50(4), 287–299. https://doi.org/10.1352/1934-9556-50.4.287. CrossRefPubMed

Mandell, D. S., Wiggins, L. D., Carpenter, A., Daniels, L., DiGuiseppi, J., Durkin, C., Giarelli, E., Morrier, M. J., Nicholas, J. S., Kirby, M. S. (2009). Racial/ethnic disparities in the identification of children with autism spectrum disorders. American Journal of Public Health, 99(3), 493–498. CrossRef

Moring, J., Fuhrman, R., & Zauszniewski, J. A. (2011). Interrelatedness of proactive coping, reactive coping, and learned resourcefulness. Measurement and Evaluation in Counseling and Development, 44, 204–214. https://doi.org/10.1177/0748175611414722. CrossRef

Newlin, K., Knafl, K., & Melkus, G. D. (2002). African–American spirituality: A concept analysis. Advances in Nursing Science, 25, 57–70. https://doi.org/10.1097/00012272. CrossRefPubMed

Pargament, K., Feuille, M., & Burdzy, D. (2011). The Brief RCOPE: Current psychometric status of a short measure of religious coping. Religions, 2, 51–76. https://doi.org/10.3390/rel2010051. CrossRef

Pargament, K. I., Koenig, H. G., & Perez, L. M. (2000). The many methods of religious coping: Development and initial validation of the RCOPE. Journal of Clinical Psychology, 56, 519–543. https://doi.org/10.1002/(SICI)1097-4679(200004)56. CrossRefPubMed

Plummer, D. L., & Slane, S. (1996). Patterns of coping in racially stressful situations. Journal of Black Psychology, 22, 302–315. https://doi.org/10.1177/00957984960223002. CrossRef

Pohar, M., Blas, M., & Turk, S. (2004). Comparison of logistic regression and linear discriminant analysis: A simulation study. Metodoloski Zvezki, 1, 143–161.

Redfield, R., Linton, R., & Herskovits, M. (1936). Memorandum for the Study of Acculturation. American Anthropologist, 38(1), 149–152. Retrieved from http://www.jstor.org/stable/662563. CrossRef

Reid, R. J., Brown, T. L., Peterson, N. A., Snowden, L., & Hines, A. (2009). Testing the factor structure of a scale to assess African American acculturation: A confirmatory factor analysis. Journal of Community Psychology, 37, 293–304. https://doi.org/10.1002/jcop.20296. CrossRef

Rivard, M., Terroux, A., Parent-Boursier, C., & Mercier, C. (2014). Determinants of stress in parents of children with autism spectrum disorders. Journal of Autism and Developmental Disorders, 44, 1609–1620. https://doi.org/10.1007/s10803-013-2028-z. CrossRefPubMed

Sernett, M. C., & Robinson, M. C. (2006). Religion. In C. A. Palmer (Ed.), Encyclopedia of African–American culture and history (Vols. 1–6, 2nd edn., pp. 1909–1922). Detroit: Macmillan Reference USA.

Silva, L. M. T., & Schalock, M. (2012). Autism parenting stress index: Initial psychometric evidence. Journal of Autism and Developmental Disorders, 42, 566–574. https://doi.org/10.1007/s10803-011-1274-1. CrossRefPubMed

Sue, D. W., Capodilupo, C. M., & Holder, A. M. (2008). Racial microaggressions in the life experience of Black Americans. Professional Psychology: Research and Practice, 39, 329–336. https://doi.org/10.1037/0735-7028.39.3.329. CrossRef

Sue, D. W., & Sue, D. (2013). Counseling the culturally diverse: Theory and practice (6th edn.). Hoboken: Wiley

Tek, S., & Landa, R. J. (2012). Differences in autism symptoms between minority and non-minority toddlers. Journal of Autism and Developmental Disorders, 42, 1967–1973. https://doi.org/10.1007/s10803-012-1445-8. CrossRefPubMedPubMedCentral

Tobin, D. L. (2001). User Manual for the Coping Strategies Inventory. http://www.ohioupsychology.com/files/images/holroyd_lab/Manual%20Coping%20Strategies%20Inventory.pdf.

White, R. M. (2005). Misinformation and misbeliefs in the Tuskegee study of untreated syphilis fuel mistrust in the healthcare system. Journal of the National Medical Association, 97, 1566–1573. PubMedPubMedCentral

Xu, G., Strathearn, L., Liu, B., & Bao, W. (2018). Prevalence of autism spectrum disorder among US children and adolescents, 2014–2016. JAMA, 319(1), 81. https://doi.org/10.1001/jama.2017.17812. CrossRefPubMedPubMedCentral

Titel: Life After an Autism Spectrum Disorder Diagnosis: A Comparison of Stress and Coping Profiles of African American and Euro-American Caregivers
Auteurs:: Takeshia V. Williams
Kathrin Hartmann
James F. Paulson
C. Teal Raffaele
Maria R. Urbano
Publicatiedatum: 03-11-2018
DOI: https://doi.org/10.1007/s10803-018-3802-8
Uitgeverij: Springer US
Tijdschrift: Journal of Autism and Developmental Disorders
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432

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