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Gepubliceerd in: Journal of Autism and Developmental Disorders 2/2018

07-10-2017 | Original Paper

Language Barriers Impact Access to Services for Children with Autism Spectrum Disorders

Auteurs: Helaine G. St. Amant, Sheree M. Schrager, Carolina Peña-Ricardo, Marian E. Williams, Douglas L. Vanderbilt

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 2/2018

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Abstract

Racial and ethnic disparities in accessing health care have been described in children with autism spectrum disorder (ASD). In a retrospective chart review of 152 children with ASD, children of parents whose primary language was English were significantly more likely to have both social skills and communication goals within their individualized education plan (IEP) compared to children of parents whose primary language was not English. Additionally, children of primary English speakers received significantly more hours of direct services from their state disability program. After controlling for demographic covariates, findings suggest that language barriers may negatively affect parents’ abilities to access health care services for their child with ASD. Acculturation factors must therefore be considered when analyzing disparities in autism.
Literatuur
go back to reference American Psychiatric Association. (2000). Diagnostic and statistical manual of mental disorders (4th edn., text rev.). Washington, DC: Author. American Psychiatric Association. (2000). Diagnostic and statistical manual of mental disorders (4th edn., text rev.). Washington, DC: Author.
go back to reference Becerra, D., Androff, D., Messing, J. T., Castillo, J., & Cimino, A. (2015). Linguistic acculturation and perceptions of quality, access, and discrimination in health care among Latinos in the United States. Social Work in Health Care, 54(2), 134–157. doi:10.1080/00981389.2014.982267.CrossRefPubMed Becerra, D., Androff, D., Messing, J. T., Castillo, J., & Cimino, A. (2015). Linguistic acculturation and perceptions of quality, access, and discrimination in health care among Latinos in the United States. Social Work in Health Care, 54(2), 134–157. doi:10.​1080/​00981389.​2014.​982267.CrossRefPubMed
go back to reference Beronio, K., Glied, S., & Frank, R. (2014). How the affordable care act and mental health parity and addiction equity act greatly expand coverage of behavioral health care. The Journal of Behavioral Health Services & Research, 41(4), 410–428. doi:10.1007/s11414-014-9412-0.CrossRef Beronio, K., Glied, S., & Frank, R. (2014). How the affordable care act and mental health parity and addiction equity act greatly expand coverage of behavioral health care. The Journal of Behavioral Health Services & Research, 41(4), 410–428. doi:10.​1007/​s11414-014-9412-0.CrossRef
go back to reference California Education Code (2010) § 56341.1 subparts (a, f). California Education Code (2010) § 56341.1 subparts (a, f).
go back to reference Casenhiser, D. M., Binns, A., McGill, F., Morderer, O., & Shanker, S. G. (2015). Measuring and supporting language function for children with autism: evidence from a randomized control trial of a social-interaction-based therapy. Journal of Autism and Developmental Disorders, 45(3), 846–857. doi:10.1007/s10803-014-2242-3.CrossRefPubMed Casenhiser, D. M., Binns, A., McGill, F., Morderer, O., & Shanker, S. G. (2015). Measuring and supporting language function for children with autism: evidence from a randomized control trial of a social-interaction-based therapy. Journal of Autism and Developmental Disorders, 45(3), 846–857. doi:10.​1007/​s10803-014-2242-3.CrossRefPubMed
go back to reference Christensen, D. L., Baio, J., Braun, K. V., Bilder, D., Charles, J., Constantino, J. N., … Yeargin-Allsopp, M. (2016) Prevalence and characteristics of autism spectrum disorder among children aged 8 years—Autism and developmental disabilities monitoring network, 11 Sites, United States, 2012. MMWR Surveillance Summaries, 65(No. SS-3), 1–23. doi:10.15585/mmwr.ss6503a1.CrossRef Christensen, D. L., Baio, J., Braun, K. V., Bilder, D., Charles, J., Constantino, J. N., … Yeargin-Allsopp, M. (2016) Prevalence and characteristics of autism spectrum disorder among children aged 8 years—Autism and developmental disabilities monitoring network, 11 Sites, United States, 2012. MMWR Surveillance Summaries, 65(No. SS-3), 1–23. doi:10.​15585/​mmwr.​ss6503a1.CrossRef
go back to reference Disability Rights California. (2011). Special education rights and responsibilities. (Chap. 4). California: Feldman, J. & Rosenbaum Disability Rights California. (2011). Special education rights and responsibilities. (Chap. 4). California: Feldman, J. & Rosenbaum
go back to reference Gulley, S. P., Rasch, E. K., & Chan, L. (2014). Difference, disparity and disability: a comparison of health, insurance coverage, and health service use on the basis of race/ethnicity among US adults with disabilities, 2006–2008. Medical Care, 52(10), S9-S16. doi:10.1097/MLR.0000000000000129.PubMedCentral Gulley, S. P., Rasch, E. K., & Chan, L. (2014). Difference, disparity and disability: a comparison of health, insurance coverage, and health service use on the basis of race/ethnicity among US adults with disabilities, 2006–2008. Medical Care, 52(10), S9-S16. doi:10.​1097/​MLR.​0000000000000129​.PubMedCentral
go back to reference Individuals with Disabilities (2004) Education Act of 2004, 20 U.S.C. § 1414. Individuals with Disabilities (2004) Education Act of 2004, 20 U.S.C. § 1414.
go back to reference Institute of Medicine (US). (2001). Crossing the quality chasm: A new health system for the 21st century. Washington, D.C: National Academy Press. Institute of Medicine (US). (2001). Crossing the quality chasm: A new health system for the 21st century. Washington, D.C: National Academy Press.
go back to reference Lian, M.-G. J., & Fontánez-Phelan, S. M. (2001). Perceptions of Latino parents regarding cultural and linguistic issues and advocacy for children with disabilities. Journal of the Association for Persons with Severe Handicaps, 26(3), 189–194. doi:10.2511/rpsd.26.3.189.CrossRef Lian, M.-G. J., & Fontánez-Phelan, S. M. (2001). Perceptions of Latino parents regarding cultural and linguistic issues and advocacy for children with disabilities. Journal of the Association for Persons with Severe Handicaps, 26(3), 189–194. doi:10.​2511/​rpsd.​26.​3.​189.CrossRef
go back to reference Liptak, G. S., Benzoni, L. B., Mruzek, D. W., Nolan, K. W., Thingvoll, M. A., Wade, C. M., & Fryer, G. E. (2008). Disparities in diagnosis and access to health services for children with autism: Data from the National survey of children’s health. Journal of Developmental Behavioral Pediatrics. 29(3). 152–160. doi:10.1097/DBP.0b013e318165c7a0.CrossRefPubMed Liptak, G. S., Benzoni, L. B., Mruzek, D. W., Nolan, K. W., Thingvoll, M. A., Wade, C. M., & Fryer, G. E. (2008). Disparities in diagnosis and access to health services for children with autism: Data from the National survey of children’s health. Journal of Developmental Behavioral Pediatrics. 29(3). 152–160. doi:10.​1097/​DBP.​0b013e318165c7a0​.CrossRefPubMed
go back to reference Manning, S. E., Davin, C. A., Barfield, W. D., Kotelchuck, M., Clements, K., Diop, H., … Smith, L. A. (2011). Early diagnosis of autism spectrum disorders in Massachusetts birth cohorts, 2001–2005. Pediatrics, 127(6), 1043–1051. doi:10.1542/peds.2010-2943.CrossRefPubMed Manning, S. E., Davin, C. A., Barfield, W. D., Kotelchuck, M., Clements, K., Diop, H., … Smith, L. A. (2011). Early diagnosis of autism spectrum disorders in Massachusetts birth cohorts, 2001–2005. Pediatrics, 127(6), 1043–1051. doi:10.​1542/​peds.​2010-2943.CrossRefPubMed
go back to reference National Research Council. (2001). Educating Children with Autism. Committee on Educational Interventions for Children with Autism. In C. Lord & J.P. McGee (Eds.), Division of Behavioral and Social Sciences and Education. Washington, DC: National Academy Press. National Research Council. (2001). Educating Children with Autism. Committee on Educational Interventions for Children with Autism. In C. Lord & J.P. McGee (Eds.), Division of Behavioral and Social Sciences and Education. Washington, DC: National Academy Press.
go back to reference Reed, P., Osborne, L. A., & Corness, M. (2007). Brief Report: Relative effectiveness of different home-based behavioral approaches to early teaching intervention. Journal of Autism and Developmental Disorders, 37(9), 1815–1821. doi:10.1007/s10803-006-0306-8.CrossRefPubMed Reed, P., Osborne, L. A., & Corness, M. (2007). Brief Report: Relative effectiveness of different home-based behavioral approaches to early teaching intervention. Journal of Autism and Developmental Disorders, 37(9), 1815–1821. doi:10.​1007/​s10803-006-0306-8.CrossRefPubMed
go back to reference Ryan, C., U.S. Department of Commerce. (2013). Language Use in the United States: 2011. Report prepared for United States Census Bureau, American Community Survey Reports. Ryan, C., U.S. Department of Commerce. (2013). Language Use in the United States: 2011. Report prepared for United States Census Bureau, American Community Survey Reports.
go back to reference Shimabukuro, T. T., Grosse, S. D., & Rice, C. (2008). Medical expenditures for children with an autism spectrum disorder in a privately insured population. Journal of Autism and Developmental Disorders, 38(3), 546–552. doi:10.1007/s10803-007-0424-y.CrossRefPubMed Shimabukuro, T. T., Grosse, S. D., & Rice, C. (2008). Medical expenditures for children with an autism spectrum disorder in a privately insured population. Journal of Autism and Developmental Disorders, 38(3), 546–552. doi:10.​1007/​s10803-007-0424-y.CrossRefPubMed
go back to reference Villani, J., & Mortensen, K. (2014). Decomposing the gap in satisfaction with provider communication between English- and Spanish-speaking Hispanic patients. Journal of Immigrant and Minority Health, 16(2), 195–203. doi:10.1007/s10903-012-9733-0.CrossRefPubMed Villani, J., & Mortensen, K. (2014). Decomposing the gap in satisfaction with provider communication between English- and Spanish-speaking Hispanic patients. Journal of Immigrant and Minority Health, 16(2), 195–203. doi:10.​1007/​s10903-012-9733-0.CrossRefPubMed
go back to reference Zwaigenbaum, L., Bauman, M. L., Fein, D., Pierce, K., Buie, T., Davis, P. A., … Wagner, S. (2015). Early screening of autism spectrum disorder: recommendations for practice and research. Pediatrics, 136(1), 41–59. doi:10.1542/peds.2014-3667D.CrossRef Zwaigenbaum, L., Bauman, M. L., Fein, D., Pierce, K., Buie, T., Davis, P. A., … Wagner, S. (2015). Early screening of autism spectrum disorder: recommendations for practice and research. Pediatrics, 136(1), 41–59. doi:10.​1542/​peds.​2014-3667D.CrossRef
Metagegevens
Titel
Language Barriers Impact Access to Services for Children with Autism Spectrum Disorders
Auteurs
Helaine G. St. Amant
Sheree M. Schrager
Carolina Peña-Ricardo
Marian E. Williams
Douglas L. Vanderbilt
Publicatiedatum
07-10-2017
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 2/2018
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-017-3330-y

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