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Quality of Life Research OnlineFirst articles

22-03-2024

Relative importance of selected predictors of health-related quality-of-life (HRQOL) among U.S. adults

As defined by the U.S. Centers for Disease Control and Prevention (CDC), health-related quality of life (HRQOL) is a measure of individuals’ self-perception of their physical and mental health over time. The CDC developed a survey tool, called …

Auteurs:
Haomiao Jia, Erica I. Lubetkin

Open Access 20-03-2024

The phenotype of recovery XI: associations of sleep quality and perceived stress with discounting and quality of life in substance use recovery

In this exploratory study, we investigated the relationship between sleep, stress, and addiction recovery. Sleep and stress are known to make it harder to recover from substance use disorders, but researchers often study them separately. We …

Auteurs:
Yu-Hua Yeh, Michelle H. Zheng, Allison N. Tegge, Liqa N. Athamneh, Roberta Freitas-Lemos, Candice L. Dwyer, Warren K. Bickel

Open Access 20-03-2024

Exploratory factor analysis and Rasch analysis to assess the structural validity of the Adult Social Care Outcomes Toolkit Proxy version (ASCOT-Proxy) completed by care home staff

Routine standardised data collections from older adults resident in care homes are conducted in some countries: for example, data are collected using Minimum Data Set (MDS) 3.0 in the US [ 1 , 2 ] and the International Resident Assessment …

Auteurs:
Stacey Rand, Ann-Marie Towers, Stephen Allan, Lucy Webster, Sinead Palmer, Rachael Carroll, Adam Gordon, Gizdem Akdur, Claire Goodman

19-03-2024

Development and validation of the HDSIM™ assessment system: a measure of hemorrhoid disease symptom impact

Hemorrhoid disease (HD) affects 10 million people in the US, at any given time [ 1 , 2 ]. The prevalence of HD in the population is ~ 4%, increasing with age. Up to 38% of women experience HD in the third trimester of pregnancy [ 3 ], and over half …

Auteurs:
Carolyn E. Schwartz, Katrina Borowiec

19-03-2024

Measuring reconceptualization and reprioritization during France’s first COVID-19-related lockdown in women with and without a history of cancer: an adaptation of the SeiQol-DW and PGI

On March 17, 2020, France’s first COVID-19-related lockdown was introduced to limit the spread of the SARS-Cov-2 virus. Measures included the closure of schools and universities, changes to working methods, and the reorganization of hospital and …

Auteurs:
Charlotte Bauquier, Stéphéline Ginguené, Tanguy Leroy, Marjolaine Doumergue, Natacha Lebrun, Claire Della Vecchia, Renaud Mabire-Yon, Sarah Leveaux, Luis Sagaon-Teyssier, Marie Préau

12-03-2024

Association between sleep quality and quality of life in Singapore

Research in Singapore reveals a gap in understanding the relationship between sleep quality and quality of life (QOL). Local prevalence of poor sleep quality is around 27.8% in the general population and 54.3% in older adults. Aging tends to be …

Auteurs:
Eng Hong Tay, Yen Sin Koh, Janhavi Ajit Vaingankar, Edimansyah Abdin, Rajeswari Sambasivam, Yunjue Zhang, Saleha Shafie, Mythily Subramaniam

12-03-2024

Measuring health-related quality of life in children with suspected genetic conditions: validation of the PedsQL proxy-report versions

To determine the impact of genomic sequencing on health-related quality of life (HRQoL) in children with suspected genetic conditions, researchers need an instrument that is a valid and reliable measure of HRQoL across a wide range of health …

Auteurs:
Hadley Stevens Smith, Michael Leo, Katrina Goddard, Kristin Muessig, Frank Angelo, Sara Knight, Simon Outram, Nicole R. Kelly, Christine Rini

10-03-2024 | Review

Health-related quality of life measures provide information on the contributors, components, and consequences of frailty in HIV: a systematic mapping review

Treatment success for human immunodeficiency virus (HIV) infection over the past two decades has resulted in a shift from a disease with a poor prognosis to a chronic yet manageable condition [ 1 , 2 ]. The HIV infection itself is no longer the …

Auteurs:
Mehmet Inceer, Nancy Mayo

Open Access 08-03-2024

Health-related quality of life and associated risk factors in patients with Multiple Osteochondromas: a cross-sectional study

Multiple Osteochondromas (MO) is a lifelong rare genetic and chronic condition presenting in childhood. However, there is limited research on the Health-related quality of life (HRQoL) of patients with MO. In a real-world clinical setting, we …

Auteurs:
Manila Boarini, Morena Tremosini, Alessia Di Cecco, Maria Gnoli, Evelise Brizola, Marina Mordenti, Elena Pedrini, Manuela Locatelli, Marcella Lanza, Diego Antonioli, Giovanni Gallone, Gino Rocca, Eric L. Staals, Giovanni Trisolino, Luca Sangiorgi

08-03-2024

Reciprocal association between pain and quality of life after newly acquired spinal cord injury

Pain is very common in spinal cord injury (SCI) and associated with lower levels of quality of life. Understanding how the relationship between pain and QoL evolves during first rehabilitation is important for knowing when might be the best time …

Auteurs:
Maren Westphal, Valerie Carrard, Céline Braunwalder, Caroline Debnar, Marcel Post, Christine Fekete, Mayra Galvis, Anke Scheel-Sailer

08-03-2024 | Commentary

When better is the enemy of good: two cautionary tales of conceptual validity versus parsimony in clinical psychometric research

This paper presents an empirical challenge to the assumption that an item-response theory analysis always yields a better measure of a clinical construct. We summarize results from two measurement development studies that showed that such an …

Auteurs:
Carolyn E. Schwartz, Katrina Borowiec, Bruce D. Rapkin

Open Access 08-03-2024 | Correction

Correction: Reference values of EORTC QLQ-C30, EORTC QLQ-BR23, and EQ-5D-5L for women with non-metastatic breast cancer at diagnosis and 2 years after

Auteurs:
Carme Miret, Miren Orive, Maria Sala, Susana García-Gutiérrez, Cristina Sarasqueta, Maria Jose Legarreta, Maximino Redondo, Amado Rivero, Xavier Castells, José M. Quintana, Olatz Garin, Montse Ferrer, the REDISSEC-CaMISS Group

Open Access 07-03-2024

The Hemodialysis Distress Thermometer for Caregivers (HD-DT-C): development and testing of the psychometric properties of a new tool for screening psychological distress among family caregivers of adults on hemodialysis

Worldwide, hemodialysis is the most common renal replacement therapy for adults with kidney failure [ 1 ]. This life-sustaining treatment is extremely demanding and often associated with significant impairments in the physical and emotional …

Auteurs:
Helena Sousa, Oscar Ribeiro, Daniela Figueiredo

Open Access 05-03-2024

Patient experiences in ulcerative colitis: conceptual model and review of patient-reported outcome measures

Patients with ulcerative colitis (UC) experience symptoms that can be disabling. New treatment options are needed for patients with UC. Patient-reported outcome (PRO) measures are questionnaires that ask patients about disease-related symptoms and …

Auteurs:
Chong Kim, Fiona L. Brown, Caroline Burk, Milena Anatchkova, Nashmel Sargalo, Ankita Kaushik

Open Access 05-03-2024

Understanding Canadian stakeholders’ views on measuring and valuing health for children and adolescents: a qualitative study

There has been a growing interest in measuring and valuing health for children and adolescents in recent years [ 1 ]. Since the development of the EQ-5D-Y, a child-friendly version of the EQ-5D in 2010 [ 2 , 3 ], a series of methodological research …

Auteurs:
Feng Xie, Shitong Xie, Eleanor Pullenayegum, Arto Ohinmaa

05-03-2024

An effort to improve the collection of patient-generated data: readability and understandability of patient-reported outcomes measures in a survivorship cohort

The past decades have achieved remarkable progress in cancer diagnosis and treatment, and for many patients, cancer is becoming a chronic rather than a fatal disease. In the case of breast cancer, around 90% of patients will live more than five …

Auteurs:
Camila Chiodi, Jonathan Epstein, Johanna Arvis, Elise Martin, Aude Barbier, Antonio Di Meglio, Emma Gillanders, Guillemette Jacob, Gwenn Menvielle, Sibille Everhard, Francis Guillemin, Ines Vaz Luis, Maria Alice Franzoi

Open Access 01-03-2024

Power analyses for measurement model misspecification and response shift detection with structural equation modeling

Interpretation of change in self-reports is difficult when it is affected by a change in the meaning of respondents’ self-evaluation, also known as response shift [ 1 ]. Response shift research has received increasing attention over the last …

Auteur:
M. G. E. Verdam

Open Access 26-02-2024

Patient acceptable symptom state and treatment failure threshold values for work productivity and activity Impairment and EQ-5D-5L in osteoarthritis

Patient-reported outcome measures (PROMs) have increasingly been advocated to assess treatment effect from patient’s perspective in the clinical setting [ 1 ]. However, interpreting and communicating numeric PROMs values in a clinically relevant …

Auteurs:
Ali Kiadaliri, Anna Cronström, Leif E. Dahlberg, L. Stefan Lohmander

Open Access 25-02-2024

Evaluation of the internet-based intervention “Selfapy” in participants with unipolar depression and the impact on quality of life: a randomized, parallel group study

Mobile psychotherapeutic interventions are important to meet the increasing demand for help in patients with depressive disorders. In our article, we report the results of a study investigating the effect of a therapeutic app ( Selfapy ) on the …

Auteurs:
Cora Schefft, Rico Krämer, Raoul Haaf, David Jedeck, Anna Schumacher, Stephan Köhler

24-02-2024

Sexual health in Belgian cervical cancer survivors: an exploratory qualitative study

Cervical cancer (CC) is the fourth most common cancer in women worldwide, resulting in 604,121 new cases in 2020 [ 1 ]. Approximately 600 patients per year are diagnosed with CC in Belgium, with an average age of 55 years at diagnosis. Seventy-six …

Auteurs:
Eline Naert, Hans Van Hulle, Emiel A. De Jaeghere, Marjolein R. P. Orije, Sarah Roels, Rawand Salihi, Koen J. Traen, Kristien Watty, Lise-Marie Kinnaer, Hans Verstraelen, Philippe Tummers, Katrien Vandecasteele, Hannelore G. Denys