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04-05-2023 | Original Paper

Item Understanding of Common Quality of Life Measures for use with Autistic Adults

Auteurs: Kelly B. Beck, Lauren A. Terhorst, Carol M. Greco, Jamie L. Kulzer, Elizabeth R. Skidmore, Michael P. McCue

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 7/2024

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Abstract

Quality of life (QOL) and life satisfaction are important research priorities for autistic adults. As such, we saw a need to evaluate individual items of commonly used subjective QOL scales to understand how they are interpreted and perceived by autistic adults. This study used cognitive interviews and repeated sampling to evaluate the accessibility, test-retest reliability and internal consistency of several common QOL measures in a sample of young autistic adults (n = 20; aged 19–32). Cognitive interviews suggested that the Satisfaction with Life Scale was well understood and demonstrated excellent internal consistency and test-retest reliability. While the WHOQoL-BREF and WHOQoL Disability Modules had adequate reliability, cognitive interviews suggested that additional instructions and examples would further enhance their accessibility for use with autistic adults.
Literatuur
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Metagegevens
Titel
Item Understanding of Common Quality of Life Measures for use with Autistic Adults
Auteurs
Kelly B. Beck
Lauren A. Terhorst
Carol M. Greco
Jamie L. Kulzer
Elizabeth R. Skidmore
Michael P. McCue
Publicatiedatum
04-05-2023
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 7/2024
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-023-05945-4