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28-02-2020 | Original Paper

“It Defines Who I Am” or “It’s Something I Have”: What Language Do [Autistic] Australian Adults [on the Autism Spectrum] Prefer?

Auteurs: Simon M. Bury, Rachel Jellett, Jennifer R. Spoor, Darren Hedley

Gepubliceerd in: Journal of Autism and Developmental Disorders

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Abstract

There has been a recent shift from person-first to identity-first language to describe autism. In this study, Australian adults who reported having a diagnosis of autism (N = 198) rated and ranked autism-terms for preference and offensiveness, and explained their choice in free-text. ‘Autistic’, ‘Person on the Autism Spectrum’, and ‘Autistic Person’ were rated most preferred and least offensive overall. Ranked-means showed ‘person on the autism spectrum’ was the most preferred term overall. Six qualitative themes reflected (1) autism as core to, or (2) part of one’s identity, (3) ‘spectrum’ reflecting diversity, (4) the rejection of stigmatising and (5) medicalised language, and (6) pragmatics. These findings highlight the importance of inclusive dialogue regarding individual language preference.

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A total of 363 responses were collected. However, 165 were excluded after being identified as spam (Dupuis et al. 2019), repeat responses, and under-age responses (See Supplementary Materials 1 for details of exclusion and analysis).
 
Literatuur
go back to reference American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (DSM-5®). Philadelphia: American Psychiatric Publishing. CrossRef American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (DSM-5®). Philadelphia: American Psychiatric Publishing. CrossRef
go back to reference American Psychological Association. (2012). Publication manual of the American Psychological Association – (6th ed.). Washington DC: American Psychological Association. American Psychological Association. (2012). Publication manual of the American Psychological Association – (6th ed.). Washington DC: American Psychological Association.
go back to reference Andrews, E. E., Forber-Pratt, A. J., Mona, L. R., Lund, E. M., Pilarski, C. R., & Balter, R. (2019). # SaytheWord: A disability culture commentary on the erasure of “disability”. Rehabilitation Psychology, 64, 111–118. CrossRef Andrews, E. E., Forber-Pratt, A. J., Mona, L. R., Lund, E. M., Pilarski, C. R., & Balter, R. (2019). # SaytheWord: A disability culture commentary on the erasure of “disability”. Rehabilitation Psychology, 64, 111–118. CrossRef
go back to reference Arnold, S., Foley, K.-R., Hwang, Y. I. J., Richdale, A. L., Uljarevic, M., Lawson, L. P., et al. (2019). Cohort profile: The Australian Longitudinal Study of Adults with Autism (ALSAA). British Medical Journal Open, 9, e030798. Arnold, S., Foley, K.-R., Hwang, Y. I. J., Richdale, A. L., Uljarevic, M., Lawson, L. P., et al. (2019). Cohort profile: The Australian Longitudinal Study of Adults with Autism (ALSAA). British Medical Journal Open, 9, e030798.
go back to reference Bagatell, N. (2010). From cure to community: Transforming notions of autism. Ethos, 38, 33–55. CrossRef Bagatell, N. (2010). From cure to community: Transforming notions of autism. Ethos, 38, 33–55. CrossRef
go back to reference Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3, 77–101. CrossRef Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3, 77–101. CrossRef
go back to reference Crocker, A. F., & Smith, S. N. (2019). Person-first language: Are we practicing what we preach? Journal of Multidisciplinary Healthcare, 12, 125–129. CrossRef Crocker, A. F., & Smith, S. N. (2019). Person-first language: Are we practicing what we preach? Journal of Multidisciplinary Healthcare, 12, 125–129. CrossRef
go back to reference den Houting, J. (2019). Neurodiversity: An insider’s perspective. Autism, 23, 271–273. CrossRef den Houting, J. (2019). Neurodiversity: An insider’s perspective. Autism, 23, 271–273. CrossRef
go back to reference Dirth, T. P., & Branscombe, N. R. (2018). The social identity approach to disability: Bridging disability studies and psychological science. Psychological Bulletin, 144, 1300–1324. CrossRef Dirth, T. P., & Branscombe, N. R. (2018). The social identity approach to disability: Bridging disability studies and psychological science. Psychological Bulletin, 144, 1300–1324. CrossRef
go back to reference Dunn, D. S., & Andrews, E. E. (2015). Person-first and identity-first language: Developing psychologists’ cultural competence using disability language. American Psychologist, 70, 255–264. CrossRef Dunn, D. S., & Andrews, E. E. (2015). Person-first and identity-first language: Developing psychologists’ cultural competence using disability language. American Psychologist, 70, 255–264. CrossRef
go back to reference Dupuis, M., Meier, E., & Cuneo, F. (2019). Detecting computer-generated random responding in questionnaire-based data: A comparison of seven indices. Behavior Research Methods, 51, 2228–2237. CrossRef Dupuis, M., Meier, E., & Cuneo, F. (2019). Detecting computer-generated random responding in questionnaire-based data: A comparison of seven indices. Behavior Research Methods, 51, 2228–2237. CrossRef
go back to reference Field, A. (2018). Discovering statistics using IBM SPSS statistics (5th ed.): Thousand Oaks: Sage publications Ltd. Field, A. (2018). Discovering statistics using IBM SPSS statistics (5th ed.): Thousand Oaks: Sage publications Ltd.
go back to reference Galasiński, D. (2018). Language and psychiatry. The Lancet Psychiatry, 5, 200–201. CrossRef Galasiński, D. (2018). Language and psychiatry. The Lancet Psychiatry, 5, 200–201. CrossRef
go back to reference Gernsbacher, M. A. (2017). Editorial perspective: The use of person-first language in scholarly writing may accentuate stigma. Journal of Child Psychology and Psychiatry, 58, 859–861. CrossRef Gernsbacher, M. A. (2017). Editorial perspective: The use of person-first language in scholarly writing may accentuate stigma. Journal of Child Psychology and Psychiatry, 58, 859–861. CrossRef
go back to reference Hoekstra, R. A., Vinkhuyzen, A. A., Wheelwright, S., Bartels, M., Boomsma, D. I., Baron-Cohen, S., et al. (2011). The construction and validation of an abridged version of the autism-spectrum quotient (AQ-Short). Journal of Autism and Developmental Disorders, 41, 589–596. CrossRef Hoekstra, R. A., Vinkhuyzen, A. A., Wheelwright, S., Bartels, M., Boomsma, D. I., Baron-Cohen, S., et al. (2011). The construction and validation of an abridged version of the autism-spectrum quotient (AQ-Short). Journal of Autism and Developmental Disorders, 41, 589–596. CrossRef
go back to reference IBM Corp. (2016). IBM SPSS Statistics for Windows (Version 24.0). Armonk, NY: IBM Corp. IBM Corp. (2016). IBM SPSS Statistics for Windows (Version 24.0). Armonk, NY: IBM Corp.
go back to reference Kapp, S. K., Gillespie-Lynch, K., Sherman, L. E., & Hutman, T. (2013). Deficit, difference, or both? Autism and neurodiversity. Developmental Psychology, 49, 59–71. CrossRef Kapp, S. K., Gillespie-Lynch, K., Sherman, L. E., & Hutman, T. (2013). Deficit, difference, or both? Autism and neurodiversity. Developmental Psychology, 49, 59–71. CrossRef
go back to reference Kenny, L., Hattersley, C., Molins, B., Buckley, C., Povey, C., & Pellicano, E. (2016). Which terms should be used to describe autism? Perspectives from the UK autism community. Autism, 20, 442–462. CrossRef Kenny, L., Hattersley, C., Molins, B., Buckley, C., Povey, C., & Pellicano, E. (2016). Which terms should be used to describe autism? Perspectives from the UK autism community. Autism, 20, 442–462. CrossRef
go back to reference La Forge, J. (1991). Preferred language practice in professional rehabilitation journals. The Journal of Rehabilitation, 57, 49–51. La Forge, J. (1991). Preferred language practice in professional rehabilitation journals. The Journal of Rehabilitation, 57, 49–51.
go back to reference Lane, H. (2005). Ethnicity, ethics, and the deaf-world. The Journal of Deaf Studies and Deaf Education, 10, 291–310. CrossRef Lane, H. (2005). Ethnicity, ethics, and the deaf-world. The Journal of Deaf Studies and Deaf Education, 10, 291–310. CrossRef
go back to reference Linton, K. F., Krcek, T. E., Sensui, L. M., & Spillers, J. L. (2014). Opinions of people who self-identify with autism and Asperger’s on DSM-5 criteria. Research on Social Work Practice, 24, 67–77. CrossRef Linton, K. F., Krcek, T. E., Sensui, L. M., & Spillers, J. L. (2014). Opinions of people who self-identify with autism and Asperger’s on DSM-5 criteria. Research on Social Work Practice, 24, 67–77. CrossRef
go back to reference Loomes, R., Hull, L., & Mandy, W. P. L. (2017). What is the male-to-female ratio in autism spectrum disorder? A systematic review and meta-analysis. Journal of the American Academy of Child & Adolescent Psychiatry, 56, 466–474. CrossRef Loomes, R., Hull, L., & Mandy, W. P. L. (2017). What is the male-to-female ratio in autism spectrum disorder? A systematic review and meta-analysis. Journal of the American Academy of Child & Adolescent Psychiatry, 56, 466–474. CrossRef
go back to reference Qualtrics. (2017). Qualtrics (version 2.6). Provo, UT: Qualtrics. Qualtrics. (2017). Qualtrics (version 2.6). Provo, UT: Qualtrics.
go back to reference Robison, J. E. (2019). Talking about autism—Thoughts for researchers. Autism Research, 12, 1004–1006. CrossRef Robison, J. E. (2019). Talking about autism—Thoughts for researchers. Autism Research, 12, 1004–1006. CrossRef
go back to reference Smith, O., & Jones, S. C. (2020). ‘Coming out’with autism: Identity in people with an Asperger’s diagnosis after DSM-5. Journal of Autism and Developmental Disorders, 50, 592–602. CrossRef Smith, O., & Jones, S. C. (2020). ‘Coming out’with autism: Identity in people with an Asperger’s diagnosis after DSM-5. Journal of Autism and Developmental Disorders, 50, 592–602. CrossRef
go back to reference Vivanti, G. (2020). Ask the editor: What is the most appropriate way to talk about individuals with a diagnosis of autism? Journal of Autism and Developmental Disorders, 50, 691–669. CrossRef Vivanti, G. (2020). Ask the editor: What is the most appropriate way to talk about individuals with a diagnosis of autism? Journal of Autism and Developmental Disorders, 50, 691–669. CrossRef
go back to reference Wright, B. A. (1983). Physical disability: A psychosocial approach. New York: Harper & Row. CrossRef Wright, B. A. (1983). Physical disability: A psychosocial approach. New York: Harper & Row. CrossRef
go back to reference Young, R. L., & Rodi, M. L. (2014). Redefining autism spectrum disorder using DSM-5: The implications of the proposed DSM-5 criteria for autism spectrum disorders. Journal of Autism and Developmental Disorders, 44, 758–765. CrossRef Young, R. L., & Rodi, M. L. (2014). Redefining autism spectrum disorder using DSM-5: The implications of the proposed DSM-5 criteria for autism spectrum disorders. Journal of Autism and Developmental Disorders, 44, 758–765. CrossRef
Metagegevens
Titel
“It Defines Who I Am” or “It’s Something I Have”: What Language Do [Autistic] Australian Adults [on the Autism Spectrum] Prefer?
Auteurs
Simon M. Bury
Rachel Jellett
Jennifer R. Spoor
Darren Hedley
Publicatiedatum
28-02-2020
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-020-04425-3